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Chronic Disease Chronicle

Day 90 and Health ROI

The American attitude towards healthcare leans heavily towards pharmaceuticals. Much of what ails us might be mitigated by nutrition, supplements, exercise or physical treatments. But we tend to prioritize a “one and done” approach that lends itself to prescriptions for any ailment you can pinpoint. It’s not unusual to be on upwards of ten pills a day if you are chronically ill each one treating a distinct symptom. You mostly pray they don’t have any interactions and that the cure isn’t worse than the disease especially when it comes to drugs like opioids that can form dependencies.

I’m not entirely opposed to this approach if I’m being honest. A wholistic approach is a lot of work and when you are sick having the energy to do a bunch of shit is unrealistic. Even as I’m rounding the corner on controlling my autoimmune disease I still find it time consuming and often exhausting to manage all aspects of my health. The meal planning, the physical therapy, the body work, the exercise protocols, the sleep regimens, the supplement routines (mine easily costs upwards of $500 a month and no it’s not covered by insurance) and the nonstop recording and monitoring is practically a full time job. And you can’t even tell if it’s working half the time with crashes and system cascades that require heavy duty intervention. It’s hard to spot signal in the noise but that doesn’t mean it’s not there

Being sick in America feels surprisingly similar to being a startup founder. You get dismissed constantly. The workload rarely relents. And progress is only visible if you are diligent about monitoring core metrics that might reveal a trend line. It’s no wonder that entrepreneurs can be avid biohackers. We record and measure and monitor and hope that some higher authority (a physician or a venture capitalist) will spot the the key inflection point that may change our lives.

I have over 1,000 recorded data points just on my usage of pain medications and it’s correlation to my functionality. Despite my meticulous tracking and my adherence to protocols, I regularly have encounters with medical professionals that discount what I have to say. Like a founder I may be an expert on my “startup” but a physician or other expert has a lot more longitudinal data. The question ends up being do you as the operator (or the patient) have some insight the professionals do not? Honestly it’s hard to tell. Being wrong is pretty common. Doctors and venture capitalists know this. So do you as the patient or founder. Trust in these interactions can be low because of this.

Unlike with a company where you can walk away, being a patient means you are stuck with it. I have to work through the blocks as if I don’t I’m resigning myself to a life of illness. Which isn’t to say I can’t tolerate being ill and disabled, merely that I don’t believe that “this is as good as it gets.” I’m happy with my life but I do believe it’s within my control to do and be more.

For me this has meant juggling the pharmaceuticals that control symptoms but don’t heal me alongside an elaborate functional medicine and biohacking routine. I think of these drug for symptom regimens a cash flow business that can do well but will always remain the business that it is without a creative owner pushing for more.

I don’t want to just run my “business” even if it might be a self sustaining one. I’m at a point where yeah I can live like this for the rest of my life. But I want more than having a store or a service. So I test. And I experiment. And I throw tons of time after protocols and treatments that may be woo or bullshit. Or they may in fact be the turning point that lets me be more. And if it is then it’s all worth it. Much of what I’ve done has been worth it. But how the fuck do you determine that in a system that has so little interest beyond simple solutions like a pill? If I had the answer I’d tell you. Until I do I’m spending my time on machines that shoot electromagnetic pulses into my spine and glugging down micronutrient slurries. I hope the hacks turn into sustainable growth channels. But I could have just waisted a few hours on nothing. Until then I’ll record the data and hope the trend line reveals something.

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Chronicle

Day 86 and Persistence

I’m learning to live around my routines. Or maybe my routines are what I live and everything else that I perceive as life is just moments in between meals, meditation, supplements, treatments, workouts, walks, and pharmaceuticals. Who is to say what forms the contours of life?

When I first picked up the daily commitment to write I struggled to find a topic to write about each day and I would find myself stressed if the end of the day was nearing and I felt I had nothing of value to say. Now I am realizing that having something to say isn’t the point of this daily discipline. It is the persistence that matters. The content is secondary. The knowledge that every day I will write and so I do is what matters. I will exercise the willpower necessary to form my thoughts into words. I will place them in public to prove to myself that I have remained committed. This is like any other aspect of my routine. Breath in and breathe out. Lift the weight. Take the medicine. Write the words.

Daily disciplines bring about breakthroughs. The individual acts maybe don’t matter so much. Some days will be better than others. But persistent effort brings about quality inexorably. It forces a standard of quality that improves at each repetition in some meaningful way even if you cannot see it in that moment. I find the act of creation easier now. It doesn’t feel like a burden. It is nit a source of stress or anxiety. It’s just something I do.

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Chronicle

Day 80 and Spring Equinox

Seasons seems to have fallen into the same category as “time” in that both have no meaning anymore. The pandemic has loosened our grip on linearity in our perception of time significantly. Which I view as an unabashedly positive thing. Why should we all be forced into living as if life moved in a straight line?

Nature has given the impression of being keen on rhythms like seasonal transitions but the more human life bangs on the planet the less it seems like seasons matter either. I’m less sure if that’s a net benefit like losing a linear sense of time (that was always bullshit) but losing nature’s rhythms is a bit weirder.

It’s the first official day of spring in the northern hemisphere and its snowing in Colorado right now. And we just dug ourselves out of over two feet of snow from a significant blizzard. The only indicator that seasonal change is upon us is day and night reaching equilibrium.

I’m having mixed feelings on the season of rebirth. A kind of shaken manic state has taken hold of our emotions with the possibility that the pandemic could be tamed. With vaccines rolling out quickly giddy conversations about summer reunions and family travel are cropping up. Friends are sounding optimistic about seeing each other again..All while we don’t really know if things will actually be better with a number of unknowns in the ether.

I’m not sure I want to change my lifestyle for a post pandemic world. Much as I’m praying vaccines remain effective and same. The pandemic has revealed many elements of our past lives to be unsustainable. I like being home. I like office life being considered less productive than the freedom to work from where you wish. . And I really like not having to socialize for professional reasons. I hope we keep the best elements. If I felt safe that all the accessibility was going to remain maybe I’d feel ready to celebrate spring. As it is I have some snowy winter worries on what life will look like as we step out of the cold into a new spring.

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Chronicle Internet Culture

Day 77 and Bedtimes

As a dedicated shitposter I have got to learn to keep the takes to myself after 9pm. It’s feels like I’ve been following gossip about the perennial “platform versus editorial” since I was a toddler (in reality maybe since I was in college) so every time a new chapter unfolds I lap it up. Mostly because I’m a sucker for media gossip and this is a personal favorite.

Last night after my bed time I starting reading more Substack hot takes (if you aren’t following people are worked up about a program called Substack Pro and what opinion writers are or are not being paid by the startup) and decided to be a dork and say shit even though I knew I’d regret it. Not the shitposting itself to be clear, I never regret a take, I just regret doing it when I should be asleep. Two hours later I’m way too worked up to sleep. Twitter is a lot of fun and I’m a high energy kind of person. Despite me being dedicated to my healthy routines I ended up not sleeping till midnight and then got woken up at 530am. So I’m a bit of walking nightmare today as I’m really too old for late night goofing off even if it’s just on the internet and not a nightclub (remember those?).

So if you see me goofing off on social media after 9pm please tell me to go to bed. Do not encourage me. Don’t feed the trolls. And by trolls I mean me

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Chronic Disease Chronicle

Day 76 and Lost Time

I didn’t used to keep much of a routine. Startup life and Manhattan nightlife made for a lot of variability in my days. But the trick of losing your body to sickness means that you don’t need the novelty of nightclubs or the emotional highs of startup life.

My body now provides all kinds of surprises all on its own. I can feel terrific one day and the next for no apparent reason I’m practically immobile from pain. The frequency has gone down significantly this year thanks to modern medicine and a lot of biohacking but let’s just say I’m grateful I work on the internet so no one cares if I’m flat on my back typing in bed.

But one things I’ve found to be extremely helpful in managing the foibles of an unreliable body is a deliberate routine. I honestly wish I had learned the value of routine earlier in life. Maybe I’d be healthy now if I had shown the same dedication to supplements, exercise, meditation and sleep. Objectively that’s probably unlikely as some stuff is just chance and generics but man when you find something that works you want to retcon your whole life.

But there is a downside to routine. You cannot get sucked into work manias because you have to stop to meditate or take a supplement or get in a workout. Routines keep you from meandering as you can fill a whole day with good behavior. But life sometimes needs more randomness than a strict day of check lists. Today I felt like an entire disappeared to my routine and while physically I feel well I’m not entirely sure I got anything done despite having taking all my pills on time. I lost time between all the good things I was going to keep stable. Sometimes I worry that all this effort will keep me from the creativity and serendipity of a life lived without good habits. But then I might end up sick and back in bed so I hope it’s a fair trade. But I still worry I’d rather lose time to work binges or nights out.

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Internet Culture Startups

Day 59 and Throwaway Days

The worst part of being in your thirties is no one tells you that won’t be able to sleep past 7am.

So this morning, right after sunrise, I’m plotting all the ways I’ll get to work on new projects today. Never waste a good Sunday. As if time has any meaning in the pandemic.

Here I am sliding back into workaholic ways, excited by the pace of change. But then you are reminded that routines and nutrition and supplements need to be done. So the tension between the allure of work and the practicality of needing to care for your body split. So I stop to mix a supplement smoothie and take some stuff. Then the sun is out so a hike up the front range trail is a must. Nutrition and exercise keeping the tension in check.

Maybe somedays it is ok to prioritize the long haul. The body that need to be strong for the next big shifts. That chaos is coming at us so fast a firm anchor for mind is a must. Techno-progressives need to believe in the positive outcome because we must cheerlead for a better future.

It’s nice to feel like even on throwaway days, you can cheer for all the outcomes

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Chronicle

Day 52 and Circadian Rhythm

I have come to appreciate routines and rhythms. They have a place in anchoring our lives. I didn’t always feel this way. As a twenty-something I enjoyed novelty and varied schedules. As I’ve aged the wisdom of setting your body to nature’s clock has become my preference.

One crucial routine for me is walking or hiking for an hour a day. Getting outside in full view of the sun turns out to be crucial to my health and well being. It helps my sleep and keeps my energy steady. It’s a routine I didn’t keep when living in Manhattan as there was little nature to enjoy and even less sunlight. While I walked everywhere that was a transit decision more than an anchoring rhythm.

But the past two weeks have been completely shot routine wise for me as the polar vortex brought temperatures well below zero and then a series of snowstorms piled up the powder. Usually in Colorado the sun will melt off light snowfall within hours and the temperatures will climb into a pleasant place where you can be outside without layering up. Instead we’ve been Arctic cold with snow that is sticking around past it’s fluffy white powder phase.

The biggest impact has been on my sleep. Typically I am in bed by 9pm and try to stay off my phone. I’ll read and drift off to sleep. Without the sunlight resetting my circadian rhythms I’m letting the blue light of my phone tempt me into staying up “just a little bit later” till I find it’s past midnight. It’s not even doomscrolling. It’s just not winding down when my body normally does. Rather than falling asleep naturally I’m struggling to come down. So I talk myself into just reading one more article and then I’m sure I’ll be tired. Then another. And another. And well you get the picture.

This is beyond the help of hot tea and magnesium. Only sunlight and movement in the morning is going to reset me back. Thankfully it seems the Arctic air has passed. I’m tempted to take a double Ambien and force myself to sleep so I can restart the process in the morning with a good night sleep and a wander in the foothills. So on that note I’ll leave you to a good night as well.