Tag: Chronic Disease

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Biohacking Media

Day 1204 and Moral Panics

I do not care for podcasts but I listen to a Bloomberg podcast called Odd Lots for entertainment. I’m an avid participant in the niche in-group you might have once called Financial Twitter. The hosts of the podcast Joe and Tracy are part of this community as well.

Usually I listen to it for the fun expert guests who come to do commentary on their corner of the markets. Today’s episode was titled how the American workforce got hooked on adderall. Which I personally think is a very provocative title.

Over the last few years, users of the popular ADHD drug Adderall have been frustrated by regular shortages in getting their prescriptions filled. Various regulatory and supply chain factors have contributed to the inability of producers to keep up with demand. But this raises the question: why is there so much demand in the first place? How did a significant chunk of the labor force — from tech workers to Wall Streeters — begin using the drug as an aid for their work and everyday lives? On this episode of the podcast, we speak with Danielle Carr, an assistant professor at the Institute for Society and Genetics at UCLA, who studies the history of politics of neuroscience and psychology. We discuss the history of this medicine and related medicines, what it does for the people who take it, and how market forces opened the drug up to almost anyone.

Odd Lots “Hooked on Adderall”

My impression of Danielle Carr was of a nuanced thinker with a lot of historical insight who happened to have haplessly taken on some academic moralizing about whether the wrong class of person might be abusing stimulants. I’m perhaps the wrong class of person to be commenting as I don’t use any stimulants stronger than a cup of coffee in the morning.

I was struck how the narrative eventually came to demonizing market demands in contrast to the I’m sure completely neutral national health systems. The theory being we might keep better track of the vulnerable in such a system struck me as classist. Adderall may be an American healthcare market issue only because those poor London bankers have another go to black market stimulant. We just don’t mind because they make money.

Moral panics around pharmacological intervention seem to be a flavor of the decade sort of thing. Prohibitions catch on when the wrong kind of person gets themselves into trouble of abusing something that was otherwise contained to social sanctioned consumption.

Perhaps in less inclined to judge on these things because I don’t witness the abuse but I also think paternalism is the excuse schoolmarms and aristocrats love in equal measure.

Categories
Chronic Disease Emotional Work

Day 1192 and Stasis

I am not feeling well today and used all the capacity I had to simply push at the edges of my universe and scream a bit into the abyss.

Screaming into the abyss is my pet name for being on the internet. Mostly Twitter. I know it sounds stupid.

Sometimes there are actual people on there still which is a small comfort. Just telegraphing into the universe that you are a “live one” is half the battle of bringing the future into the present.

I know it sounds like a stupid way to bring in resources and deals and alliances but it works. Make of that what you will. I’ll get on a phone call now and again if you are really compelling and intelligent. I spent some time on the phone with one of my favorite people and it was more energy than I would have anticipated.

Sometimes that’s just how it goes. There is only so much you can do when your time horizons for results are measured in a ten year cycle anyway.

It’s occasionally embarrassing to admit there are days I don’t have the energy to manage what what I eat, how much I exercise, whether I bath or do farm chores or otherwise manage the work of physical reality.

A few days of the month I do the absolute minimum to manage stasis and I honestly even that was a stretch. But like the classic Monty Python sketch of another era “I’m not dead yet!”

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Chronic Disease Medical

Day 1150 and Gut Biome

At the risk of being “TMI” (this is a gesture of self knowledge to readers not an actual concern of mine that I will ever include too much information), I did something stupid to my personal biome today.

I took an expired a probiotic. I fucked up my bacterial mix. In my defense, I didn’t know it was possible to have an expired Lactobacillus mix. Expired doesn’t seem to mean dead. It just is not doing what I’d hoped and I feel worse not better.

I honestly sort of believed that most probiotics on the self were bullshit. It’s hard to decide what’s medical woo anymore. But I acquired it from a German pharmacy last year and I guess GlaxoSmithKline supplies better shit in Frankfurt than it does in Bozeman.

I immediately nuked the new, supposedly friendly, bacteria from orbit with a one-two punch of doxycycline. I always carry some with me when I travel. Don’t tell my health insurance I’m so cavalier with my over-the -counter bacteria.

I’m joking, but only just. I’m sure artificial intelligence will be put out to nefarious purposes like denying health care coverage to random idiots who blog about their bodies any day now. I just doubt any lawyer will care what nonsense I got up to with yogurt when so many other forms of Medicare fraud are more accessible.

So in the spirit of my blogging forefathers and mothers, I’ve included you in the circle of trust as to the inner workings of my co-infections, symbionts, and other biological processes. Let’s hope, unlike in the case of Ripley, that nuking from orbit works. No need to be carrying aliens in my dark places.

Categories
Medical

Day 1146 and Quesy

I had kind of a weird night. I feel asleep feeling earlier than I wanted. I was tired in a way that suggests either manually dosing oneself into sleep or intense physical exhaustion. I’d experienced neither.

I woke up multiple times drenched in sweat and freezing. It’s unpleasant to feel salty and worked up from sleep rather than exercise. I finally gave up on it around 6am.

I’m on GMT+1 in Europe which put my wake time at late Monday evening on the West Coast and early Tuesday afternoon in Japan. I used the opportunity to connect in real time with a friend who lives in Tokyo and catch up on the end of the El Segundo hackathon attendees.

Now it’s evening for me and I’m drained and a bit sick to my stomach. I can’t tell if I’ve got some odd form of stomach bug or if I’m fighting off something else entirely.

Honestly with how frequently I nuke my own gut biome it’s unclear. It feels as if I’m on a course of antibiotics but I’ve not taken a dose of anything recently. The symptoms are not the full on gastrointestinal effect of food poisoning neither are they the unpleasant travel stomach one associates with new foods & water.

In an ideal world I’d use differential diagnostic artificial intelligence but that would clearly be unsafe so I’ll have to ride through it with over the counter medication, witchy self knowledge and a bit of suffering.

I suppose that’s no different than any other medical condition I’ve had to treat in the past on my own. I’ve had a host of irritating chronic conditions I’ve only pieces together with what feels like endless effort and consultation. I wonder if we will look back on the American Medical Association as a cartel in the not too distant future. It certainly doesn’t feel as if keeping me from healing myself benefits me.

Categories
Chronic Disease Travel

Day 1137 and High Friction

I’ve been experiencing several forms of friction over the last week or two.

Some of it was a deliberate step back to be grounded and present. I introduced the friction myself to focus on my nervous system.

But other things have acted as more of a drag on my days than I’d have anticipated. The ambient noise of city living. The small frictions of daily needs like cooking and cleaning.

I even added some friction to my own shopping to speed up my decision making. So maybe there is a theme to be found in the extra friction. And truthfully I’m not sure all of it is net positive. I’m in the red more than I’d like. So I’ll cut down on any friction that isn’t performance enhancing.

Categories
Biohacking

Day 1135 and In The Red But Climbing

I’d love to know if this happens to anyone else. I find I’m easily influenced by the data that my fitness trackers share with me. Sometimes it will even affect my mood negatively. A green recovery can make me feel more optimistic.

I’m a user of both a Whoop and an Apple Watch. I’ve got a whole biohacking routine like every other Silicon Valley bro.

This morning, after a fitful seven and a half hours of sleep, my Whoop showed my recovery was in the red. My HRV was 26 which is low even my my standards.

I felt worse yesterday than I do today so it’s my hope that my Whoop is merely showing me the bad day I had after the fact. Pain can affect my recovery significantly as it’s a lot of stress. I’ll manage my way through it slowly and with lots of rest. And I’ll try not to let it get to my head. A quiet day in bed reading the internet is is a good day in my book.

Categories
Emotional Work

Day 1134 and Happy Being Miserable

I am in a lot of pain today so I’m not thinking as clearly as I’d like. But I have learned to be sanguine about misery over the years.

When you have chronic illnesses you can either become a victim to them or accept them as part of the tapestry of human experiences.

I have had a framing that I’ll butcher today as I can’t recall any past artful coinages. It goes something like one can be existentially happy even if one’s circumstances are miserable. The opposite applies as well. People can have happy daily circumstances and be existentially miserable.

I feel like that no matter how much I may bitch and moan about my life that I am ultimately happy about my lot in life. I’ve got nothing to complain about and when I do complain it’s quite likely that kind of misery actually makes me happy.

Categories
Homesteading

Day 1109 and Cabin Fever

I hope the rest of America is enjoying the polar vortex that is bearing down on them. Our weather improved somewhat from from there last two days of -40 into the comparatively balmy -5.

I do feel a little bit stir crazy being inside for this long or maybe I’m just feeling a little crazy from pain. I’m feeling some intense pain in my spine and joints during this freeze. It’s unclear if the pain weather related but I’ve got no reason to be experiencing any kind of flare so my mind has tied them together.

I’m hoping that as the weather recedes for us on the western half of the country I’ll be ready to leap into action. I’m a bit antsy. I’ve been considering a number of moves as I have commitments to work on a number of portfolio and founder related initiatives as well as the most crucial #FreedomToCompute campaign.

I’d write more but I am not at the top of my game so I’ll dip back into reading and hope tomorrow is a good day.

Categories
Chronic Disease Medical

Day 1100 and New Symptoms

I am experiencing some ongoing nausea today alongside a number of odd side symptoms like body temperature disregulation. I am displeased with this development

It’s probably a cluster of symptoms related to a migraine. So I’ve taken an Imitrax. I had some sort of reaction to dinner last night (possibly allergic though to what I couldn’t say) that hasn’t quite subsided. I am in a dark room silent with an ice pack popping Zofran and praying.

I always hate when I have a new symptom as it’s scary. I don’t know if it’s a new problem or something a new spin on my existing autoimmune issues.

It’s easy for me to slip into fear as I run through a differential diagnosis. The idea that I might have a new dimension to deal with in my daily health routine triggers all my autonomic stress responses. I’ve got a handle on my existing health issues and I don’t have any desire for new ones.

There is a strange aspect of chronic disease where if you’ve reached any kind of stability or continuity you simply don’t want to mess with it. Adding in new treatments or medication is always a scary prospect. I’ve been doing bodywork that seems to have significant impact in a positive way but I’m terrified that as it improves things I’ll have down days as systems interact. I shall pray it improves soon.

Categories
Chronic Disease Medical

Day 1094 and Small Progress

I am clinging to the small progress in my physical condition. I feel numb and exhausted which is an improvement over being so much pain I can’t think while also breaking the variance ranges on my Whoop.

It would appear as if I missed Christmas and much of the week off even though I did enough doing some work when I had a few good hours.

I figure if I aggressively pursue a program of medication, rest and positive inputs I can make the small progress that should have been back if I just don’t rush it.

No one is looking for 2024 to get here and faster than necessary. Cling to the last moments of the year and cling to small progress. Who knows what happens next.