Categories
Preparedness

Day 241 and Other People’s Disasters

Hurricane Ida made landfall in Louisiana today on the 16th anniversary of Hurricane Katrina. Watching disasters in other cities has the sad side effect of making me go through my emergency gear. After living through Hurricane Sandy in New York I felt it a civic obligation to be prepared for emergencies. Ready yourself so you can help others is my philosophy of prepping.

I spent the morning doing a complete overhaul of my go-bags pharmaceutical set up. It has been a while since I had rotated out some medications and I wanted to add in more drugs for situations where it might be some times before we could reach a hospital or medic. Worst case scenarios crossed my mind.

Disasters often get portrayed as these dramatic events but more often it’s just neighbors helping each other through a bad time. That means I stock a trauma kit along with shit like anti-diarrhea drugs and cortisone. More likely to be itchy and have an upset stomach than a trauma bleed so prepare for the basics first.

But I’ve had the basics down for a while. I’ve been prepping now for several years with increasing seriousness. So sometime this year I decided to prepare for worse. I thought it wise to have a stash of prescriptions for situations where doctors aren’t coming, maybe at all, including antibiotics, steroids, antihistamines, NSAIDs, caffeine, and an array of drugs that are, well, controlled substances and I swear I have legitimate prescriptions for all of them and am monitored by several physicians who work in coordination. But you know, the good stuff.

I say that as if it is remotely recreational to break a leg and require an opioids or be suffering from shock. If someone is having a panic attack because their world is coming down around them I think fuck it this is why it’s good to have an Ativan. No judgements.

Plastic baggies filled with medications.

Disaster hits a little different when you have a chronic disease. You have to think about scenarios where you are actually in the most vulnerable groups. That those worst case scenarios you see on TV could actually happen to you. Shit hitting the fan would actually mean your life if you didn’t prepare. And so I’ve scrapped together a small pharmacy over the past few years. I’ve rationed doses and asked for extra refills. I’ve squirreled away a dose here and there between insurance coverage and extra days. It’s actually quite hard to be able to have as many additional drugs as the CDC recommendation for an emergency. No seriously they suggest 7-10 days of extra medication. Can you imagine most Americans affording that? It’s a fucking slow moving American tragedy we are told how to survive but hobbled in being able to enact any of what the Fed suggest. It’s no wonder Americans don’t trust the government for anything.

The pandemic has solidified this sad truth for me. So I’ve learned new skills. I worry that it’s hard to rely on community when most communities are struggling already. It’s an impossible ask. And so we are forced into another circle of individualism and personal responsibility because really what other option can you imagine having. Because next time it won’t be some other persons disaster on the TV. Next time it might be yours.

Categories
Emotional Work Finance

Day 233 and 927 Hours of Therapy

I’m motivated by media. If I’m in a bad headspace I can take time to read a book or watch a tv and shake myself out of it with a few hours. I’m a voracious consumer of all forms of narrative, it’s how I synthesize.

You’d have to be a professional to keep track of more stories than I do just by sheer numbers alone. Maybe journalists, authors or publicists read more than me, but even then I’d bet real money I’m still top decile. I never lose a “Wait Wait Don’t Tell Me” news quiz.

I’m working though some emotions on risk, punishment, hurt, and fear this week. So I’ve been watching a favorite show on all those emotions: Billions. It’s a show about a hedge fund manager feuding with the US Attorney for the Southern District. It’s a terrific portrayal of finance culture and elite consumption. But it’s real strength is it’s portrayal of therapy. Emotional capacity is the key to coming out ahead in Billions.

While I don’t want to give any spoilers, the second season gives us a character named Taylor who is a prodigy. Not only are they intellectually brilliant but they understand who they are. I’m rewatching the show so I’m noticing details I didn’t process the first go around. Taylor says they have had 927 hours of therapy.

The impression I had on the show was that Taylor was in their twenties as they frame the introduction of the character around an internship and graduate school. I wish I had started on therapy in my twenties. Imagine having over three years of intensive emotional work before you’ve started your career. Honestly I’m envious. When I was in my early twenties I didn’t understand jack shit about my emotions.

Maybe by the time I get 927 hours of therapy I’ll recognize my own traumas and motivations as well as Taylor. I’m getting up there in hours and I am admittedly sinking a lot more into understanding what motivates me now than I ever did when younger. It’s not exactly linear progress. Feelings aren’t facts. That makes it a lot harder to lock down what will or won’t work for you. But I’d rather be finding out who I am now. Some people never do. But still I wish I’d had the good sense to invest 927 hours into therapy when I was Taylor’s age.

Categories
Emotional Work

Day 231 and Afraid of Feeling Fear

Being sick has left me with some scars that I am working through. Currently I’m afraid of pushing myself to my limits. I don’t know it for a fact but I fear some of the severity of my illness was tied to the overwork that is required when working in startup life. So now I’m afraid of overdoing things physically. I’m struggling to even set the boundaries of what 50% capacity would look like.

This isn’t the first time I’ve struggled with the question of my capacity. I’ve been a fan of what I call the “Gattaca” method since I was a child. “Never save anything for the swim back.” But now having experienced the worst case scenario of being unable to work for two years I’m gun shy. That common knowledge says failure “is never as bad as you imagine” is bullshit. Losing two years of my life was fucking awful. What if next time I give my all and I lose more than two years? I’m running myself in circles with this fear without any indication that it will become reality.

When I was a teenager I rode horses. I liked cross country eventing where you jump over obstacles on an open field. It’s a bit dangerous. That’s how Christopher Reeves got hurt. I had plenty of spills but it never really upset me. I always got back on the horse. I wanted to become more competitive so bought a thoroughbred who was being retrained from being a racehorse. I thought I was a talented enough rider for the job. I wasn’t.

He was a high strung panicky creature and threw me into a wall. I cracked my helmet, blacked out briefly and was diagnosed with a concussion the next day. Despite the severity of the fall, I got back on the horse immediately. I was afraid of being scared. So I pushed through.

Turns out I should have just felt the fear. I should have gone to the doctor, allowed myself to recover and not pushed through it. I never fully recovered my nerve about that concussion. I just slowly circled the drain emotionally and my fear won over my enthusiasm for rising. I never went back to competing in eventing. Instead of working through my fear I chose to ignore it. That turned out to be a sure fire way to let fear win in the end.

I don’t want to be afraid of being scared. I want to embrace my feelings and their origins. I want to come to terms with them. Because unlike horseback riding, I intend to keep working.

Categories
Emotional Work

Day 228 and Recurring Nightmares

Chances are you have some kind of recurring nightmare that your subconscious tosses up for processing regularly. Some blend of math tests or being naked at a big meeting seems pretty popular. I used to regularly have a dream where I was told I wouldn’t graduate from university as I had forgotten to take some core requirement. But by far the most consistent and upsetting nightmare I have is packing.

I moved a lot as a child. A fun (sad) fact about me is I changed schools every two years for my entire tenure as a student. These moves were generally coupled with moving homes while some just were just me moving by myself. I did first and second grade in Orange County in California, 3rd and 4th in Sacramento, 5th and 6th in Niwot Colorado, 7th grade I was homeschooled (somewhere in there my parents got divorced so my mom and I moved out), 8th was a prep school outside of Boulder, 9th grade was boarding school in Connecticut, 10th was half at prep school and half in France, 11th grade I dropped out and took classes in Manhattan, then for 12th I was back to Colorado and remote classes and prep school. The first and only time I had a consistent schooling experience was at University of Chicago. I did it in three and a half years to save money.

Just writing it out makes me anxious and sad. I wish I could condense it for purposes of the narrative. It feels too long reading it over. It wasn’t just moving schools and houses. It’s actually worse than I’m letting on. My father loves travel. I was put on an airplane at six weeks old for a flight to Hawaii. Many of my childhood memories are of airplanes and cruise ships and motor homes. You name a form of traveling and we did it. We were always going somewhere. I fucking hated it.

Now as an an adult I loathe packing. It brings back all my childhood memories of never feeling stable. Boxes and suitcases take me back. And I don’t just dislike it, I loathe it so much I dedicated several years of my life to making it more convenient to carry your cosmetics with you. I called the line Stowaway. It was all travel sized. I hate packing so much I went to years of trouble to make one core routine easier to take with you. I wanted one thing about travel to be less scary. Less overwhelming. One less thing you leave behind. Childhood trauma sticks.

Maybe only people who love travel should try to improve the experience. Working from a place of childhood trauma is often the road to riches. I guess it worked out fine for me. But I don’t have the fondness for travel that many millennials of my generation have. I only have nightmares. Maybe if I had realized that before I started it would have gone better.

A common theme in my recurring nightmare is trying to find all the basics I will need for some trip. I’ll be searching for underwear or prescription medication. As the dream unfolds I’ll find a key item only to have it disappear. There is always a countdown. Some reminder that a flight is taking off soon. But it’s usually much more dramatic than that. It’s often some kind of unspoken crisis. I won’t remember it when I wake up. Maybe it’s apocalyptic. But it’s rarely a go bag or a bug out situation in my nightmares. It’s just a suitcase or a box or a bag never being filled up.

I never leave on the trip. The dream never lets me finish packing. I guess my unconscious hasn’t figured out how to proceed that it wasn’t the packing that scared me, it was leaving behind the life that I thought was safe. Maybe I’ll get there eventually. I don’t want to be stuck in a nightmare, packing up my life, being afraid of being dragged someplace I don’t want to go.

Categories
Chronic Disease

Day 224 and Wanting a Break

I don’t want to write today. I feel foggy, unfocused and anxious. I had to have a medical procedure last week whose preparation was destabilizing. I felt pretty good coming out of it but a few days on I guess recovery has its own logic.

I don’t want to feel like this. In order to have the procedure done we had to remove me from all of my medications. Not normally something you do unless you have no other choice. Which in the end I didn’t feel I had. And I’m struggling. Modern medicine works pretty well. Some of science is neat.

I don’t want to be writing about any of it though. I’m scared, tired, sad and angry about all of it. I want to be alone. But my mind is so fatigued I cannot come up with any other topics. I tried to focus on fun things like the PR DAO I’m working on and some investments I’m excited about.

But I just can’t seem to make sense without a lot of energy and focus. And the doctors would prefer I keep the energy for my recovery.

So I’m stuck writing baleful takes about sleeping and migraines. I’d rather crawl into a hole and lick my wounds in private but I promised myself I’d write every single day.

And it seems I’m unable to write anything remotely intellectual. It’s all emotions and physical ailments. No wonder I’ve been watching so many BBC period dramas. Their leading ladies seem so relatable at the moment. Which is why I’m stuck writing about life as if I were some talentless version of Virginia Woolf. I’m incapable of writing about anything else but the consuming nature of feeling like shit. Write what you know is all fine and well until the thing you know most intimately is physical frailty.

On the bright side I did learn today that Herman Melville and I share the same diagnosis; ankylosing spondylitis.

Herman Melville endured chronic pains in his joints, back and eyes, symptoms consistent with ankylosing spondylitis, an autoimmune disease.

Maybe pain relief was his white whale too. Of course, he didn’t have the benefit of biologic injections like IL inhibitors. Maybe that’s why he wrote the great American novel and I’ve got a daily writing habit. I know glorifying and romanticizing suffering is a habit I’ve got to kick.

Categories
Chronic Disease

Day 223 and Actually OOO

I’ve got a nightmare of a migraine. Ironic that I should right at such length about being available or out of office yesterday only to find myself utterly incapable of being pretending today that I am available. If you want a better essay of the day then I’d click out to yesterday’s as the rest is just an exercise in willpower not quality.

If you’ve never had a migraine consider yourself lucky. I’m prone to about one a month and I’ll let you use your imagination as to why they are so regular on a monthly cadence

For this particular migraine the light and noise sensitivity are debilitating but today it’s the nausea that’s the worst. Somehow the pain and tension can be so bad you literally cannot imagine tolerance for food or smells. I’m struggling to drink water.

I can’t really fathom how I’ll have enough to say to qualify for “write every day” but here I am with the CMS open and typing out sentences that appear to be coherent. I suppose three paragraph with a few links, a title and the proper tagging qualify as showing up for the day. Every day I write. Every day some small creation. Even though at the moment I’m trying to work myself up to the idea of eating some rice in the hopes that I’ll be able to take some medication and settle my stomach. Good enough.

Categories
Emotional Work Internet Culture

Day 222 and OOO

I’m out of the office. I’m OOO. I’m not available. I’m off the grid. I’m on vacation. I’m on leave. I’m out sick. I’m out for family.

Whatever your reasons, the idea of being unavailable, actually being unavailable is increasingly at odds with reality. It’s rude to not be available. People notice if you are on social media dicking around after all. And I’m always fucking off on Twitter. And that means I am default available right?

I have an app that allows people book time with me without the hassle of checking in called Calendly. The theory is you maintain times you are available and you avoid a bunch of back and forth. The reality is I don’t maintain it. Virtually no one ever uses it except a couple close business partners. Because of that lack of integration into my workflow, the app is rarely ever booked unavailable. I don’t really use it or maintain it but a few folks have the link and being polite and nice, they try to use it rather than bother me asking if I’m around. Then it’s a comical back and forth of me explaining that no I again forgot to alert the app I wasn’t available. Again. Exactly the sort of interaction the app is supposed to help you avoid. It’s fucking embarrassing and it’s happened a half dozen times.

This happened again this week when I had explicitly intended to take off all of it as I’m recovering from a medical procedure. My brain is a bit foggy and I forgot to ask my husband, who more often than not is forced into managing my ineptitude with logistics, to make sure the damn app knew I wasn’t available. He’s got an elaborate system of multiple calendar applications that all talk to each other and sync up and if I just put “OOO” into one of them then all the apps would know. I’m too stupid to actually manage any of it. I figured eventually I’d hire an administrative assistant I deal with it when my schedule became more complex. But it isn’t that complex yet and I didn’t think to block the calendar after my procedure. Which makes me feel like an idiot. Why is it so hard for me to manage a damn calendar?

And such is my emotional block with being unavailable that I am literally writing a post about it rather than simply deleting the app entirely and texting my friend and partner back that I’ve fucked up again and the app was incorrect. Again.

Maybe it’s because I really want to be the kind of person who is available. That I’m the sort of person who is consistent and has routines that can be relied upon and thus has calendars which reflect the reality of my availability. That I am the kind of person who manages their application layer, personal data and thus has promptly corrected for any changes that may have occurred to my routines and seen to it that it percolates into the operating system of my life. Maybe this is why I’m obsessed with manners and class this week. It’s just a Freudian unconscious embarrassment that I’m bad at manage a calendar.

Alas it doesn’t really matter. I’m not the sort of person with a calendar. I’m the sort of person who will write a thousand words about the culture of availability, the way we mediate we our time and attention with technical applications, and my own emotional relationship to the acronym “OOO” rather than text back “actually I’m out this week!”

I’m counting on this being amusing rather than irritating in this particular instance as despite it seeming like I’m around and available, I’m actually extremely out this week and depending on my recover the next two. I hope it will be funny when I tag them on Twitter and share this post. Because it’s actually extremely embarrassing for me.

Categories
Chronic Disease

Day 221 and Somnambulance

Around 1pm today I was overcome by a kind of drowsiness. I couldn’t seem to shake the feeling so I lay down. For the past 5 hours or so I’ve been in a not quite waking not quite sleeping state. I wasn’t dreaming but I couldn’t force wakefulness on myself either.

I had to crawl my way into just enough consciousness to call and text my therapist to let her know I wouldn’t make my session or group therapy. Had I not seen proof I left a message when I woke up I would not have been surprised to learn that I had been somnambulant texting. I barely recall managing the effort.

I had a medical procedure a few days ago so I am likely still recovering from the stress my body endured. But I’ve felt reasonably energetic. I was entirely unprepared to fall into a liminal state between consciousness and sleeping for most of my day. I could tell I wasn’t fully awake but I couldn’t quite tell if I was asleep.

I kept trying to force wakefulness upon myself only to find my mind falling further away from the effort. It felt like some horror movie effort where a character has been put under but is still aware of what is happening to them. I didn’t love it. But clearly I needed the sleep. I was just barely able to get myself up to take my evening medications. Certainly wasn’t what I was expecting out of my Monday but so it goes.

Categories
Biohacking Emotional Work

Day 215 and Leisure

I’ve got a bad relationship with work. Since I was a teenager I’ve been compulsive about the idea of hard work. I don’t know how I got to have a problem with the Protestant Work Ethic but it seems likely I developed it long before I read Max Weber and found it’s comforting rationalizations about work’s inherent morality.

I’m fascinated by things like commodity aesthetics, the history of consumption, and theories of leisure & status. Partially because I got a kick out of supposing I was a better person than those wretched lazy types. I wasn’t so sophisticated to sneer “rentier” class as kid but I was well on my way to veneration of hard work and productive capital. An economics degree finished the job.

This was compounded by growing up in a family that worshipped the culture of Silicon Valley. The innovation of computers and the people that worked all hours to bring their creativity to the world were the most important people on the planet. They hadn’t quite crossed the cultural rubicon of power that the tech industry has now, but the power of making the future was hard work and heady stuff even before it captured the mainstream. I wanted to change the world like the people my father admired

There was a time when computing and automation raised questions of a new era of leisure. If we could move all of the work we’d previously done manually to automated systems perhaps humans could ascend to The Culture of Ian M Bank’s novels. In a distant future of abundance, sentient AIs run industry and production, so humanity can do, well, whatever it likes.

But we haven’t achieved a post scarcity world. If anything accumulating resources and showing you’ve done it by the rules of the meritocracy makes hard work even more crucial. You’ve got to play and win two games. You’ve got to make the money and show you’ve demonstrated the proper status while doing it. It seems like leisure is losing the battle quite soundly.

I’ve been pushing all year to get back to hard work. I’ve worked hard at my health. I’ve committed myself to biohacking. But really what if the obsession with working myself to the bone is killing me? I’ve been completely relaxed as I prepared for a medical procedure this week. I’ve never felt better. Which forced me to ask myself if maybe I better come to live leisure like the way I have loved work. It might be a much better life for me. The future sentient AIs might approve as well.

Categories
Biohacking Emotional Work

Day 211 and Laughter

I miss being able to enjoy time out in the world. You know that feeling when you’ve spent the last two hours at your favorite bar with your friends just talking about nothing? The ease that you feel being with your community and enjoying being together? The casual camaraderie and easy laughter that comes from no expectations time together has been lost to many of us. I miss it.

It doesn’t seem like those days are coming back for some of us in the near future. If I give too much thought to the impact of things like the pandemic I think I just spike my cortisol. That’s a stress hormone. The stress of reactivity is killing all of us. Constant panic over floods, heatwaves, outbreaks and all their downstream effects is overwhelming our capacity to live. And yes, granted a more globalized war with a changing climate is capable of killing us. But we don’t have to let futility do us in early. We can find our way into solutions. But only if we stay alive to do it.

I’ve been coping with apocalyptic nihilism by shitposting on Twitter. Yes I realize this is a popular upper class pundit class past time. I’ve got some self awareness. But it’s also the only thing that mimics being out socializing with your friends. And I think that’s worth a lot. Shitposting is good for the soul.

You don’t have to shitpost, but if you cannot find a way to lower your stress response, as we say in crypto, ngmi. Everything may be going to hell but you aren’t there yet. You’ve got a life to live, people to love and who love you, and a chance to be happy.

Fuck cortisol. It’s not good for you. That’s some metabolic poisoning eating away at you and you chose to let it kill you. There is no reason to give yourself unnecessary stress. Some stress is good. It makes you resilient. But stuff you opt into? Fuck that noise it’s only going to make you sick.

And despite whatever family trauma circuit you may be playing out in your head, YOU DO NOT DESERVE THAT SHIT. No I’m seriously disease and suffering aren’t a moral good. Everything might be rough but you need to find a laugh. It might just save your life.