Tag: Life

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Chronic Disease Emotional Work

Day 636 and Waves

Yesterday I was on top of a wave of positivity, so naturally this means today I was prepared for that wave to crash. The rhythms of both life, and my body, must accommodate the full range of highs and lows. After several intense days of work and activity I spent my day reading and absorbing news and financial reports in bed.

I am becoming modestly less indignant about having to monitor and meter my energy carefully. This is a new development in some ways as I’ve struggled quite publicly with mixed feelings about accounting for fatigue and pain in my workflows. I have in the past easily fallen into envy and jealousy when I see how much able bodied friends give little thought to their physical realities.

I have slowly let go of negativity around around around my body and come to embrace the rhythms of requiring rest. I’ve even come to see it as a strength as being forced into mitigating stress loads and cortisol spikes means I have more control over my sympathetic nervous system. Rather than give in to fight or flight, I am able now to able to choose how I respond.

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Emotional Work

Day 635 and Wide Horizons

I am absolutely wiped at the moment as I rode a wave of enthusiasm all day. I felt focused, energetic and free of self doubt. I felt like my life was open to possibility.

Perhaps it’s the regular reminders of personal responsibility I get in therapy. Perhaps it’s it’s the sense of accomplishment I got from completing my wilderness medical incident certification last week. The case of the Yips that I felt a few days ago is swiftly resolving.

The strength in my marriage with Alex has always been our commitment to working through our emotional journeys together. He was able to be reassuring my through slow climb back from the depths of my health challenges. He helped me turn it into a source of strength. Next year will be ten years together and Alex really got the “in sickness” portion of the vows a little earlier than anticipated.

This is the first time in both of our lives we’ve ever truly been stable. And that’s a strange thought. That our lives have been so chaotic for so long. We finally have money and a home we own and good health and it’s all at the same time. All of the instability of startups and limited resources and bad health are over. And only really in the last six or seven weeks has that been true. As we just finally bought our first home. We moved to Montana in August.

We climbed through the aftermath of the Great Recession together, made our first angel investments together, raised venture capital together, and now finally thanks to the pandemic we’ve been able to secure a place to live and a wide horizon to plan how to use our resources and time. I am responsible for talking this blessing and letting it provide the foundation for our long term goals. Millennials might just accelerate in middle age just yet! I know it feels like I am.

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Emotional Work

Day 634 and Responsibility

The best part of committing to therapy and emotional work is taking responsibility for your feelings. This is also the worst part of doing any kind of emotional growth. I suppose this is how you know therapy is a worthwhile use of your time.

Emotional work has a bit of the “wherever you go, there you are” tension of acceptance. I’ve also come to appreciate the truism that having is evidence of wanting. We are always living exactly the lives we want. Attachment and delusions and self limiting beliefs are all part of the way we protect our ego.

I’ve got a lot of my identity wrapped up in my coping mechanisms. I’m sure this is quite relatable to many people. If you are willing to be a vulnerable you start to see just how many habits and behaviors are built to protect yourself.

For me I have found comfort in overworking. If I crash and fail I protect my ego by saying little stories like I’m fragile or have high standards or whatever else seems acceptable. When of course, I could have simply made different choices to accommodate my physical state or the expectations I had for quality.

But accepting that I am ultimately responsible for my strengths and weaknesses in equal remains elusive. Personal enlightenment is a minute by minute experience. Ego destruction isn’t easy.

I try to remind myself that any traumas I may have experienced that enabled the development of these coping mechanisms are in the past. I am now the parent to my inner child. And no one is responsible for her happiness but me.

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Aesthetics Travel

Day 633 and Hospitality

One of the things my husband Alex and I were most excited by when we bought our homestead in Montana is inviting our friends and family to stay with us. We have an entire floor of the house dedicated to guests and have plans to turn part of our barn into a separate guest house as well.

We’ve begun the process of designing and furnishing our guest floor. We have two rooms, a bathroom and a separate living room. The furniture is slowing turning up. Which means it is time to work on the details of making it as comfortable and hospitable as possible. Naturally we asked Twitter to weigh in on what makes people feel at home in someone else’s house. And you did not disappoint.

Toiletries

Traveling with full toiletries and skincare can be a challenge especially when flying. Here is a list of the most requested grooming items and toiletries

  • Hairdryer
  • Roundbrush & Styling Tools
  • Shampoo & Conditioner & Body Wash
  • Lotion & Body Moisturizer
  • Skincare Basics (SPF, Face Creams)
  • Skincare single use masks for face & under eye bags
  • Dental Care (Brush, Paste, Floss)
  • Small Individually Wrapped Soap
  • Q-Tips & Cotton Rounds
  • Tampons & Pads
  • Tissues
  • Bandaids & Pimple Patches
  • First Aid Items (Headache, Allergy)

Bathroom Comfort

Grooming items isn’t the only thing that you need in the bathroom. Personal hygiene requires some thought.

  • Trash Bin
  • Dark Towel for Makeup Removal
  • Plenty of Extra Bath Towels
  • Wash Cloths
  • Hair Towel & Turban
  • Extra Towel Hooks
  • Plunger & Brush
  • Bidet and Squatty Potty
  • Septic Care Sign
  • Cleaning Items
  • Extra Toilet Paper
  • Tissues
  • Poo-pouri or matches to mask smells

Organization

Keeping your personal items from overflowing can help make a guest room feel more comfortable. Remember power strips & plugs! Some of the most requested items include:

  • Pens & Notepad & Scissors
  • Desk Power Station
  • Bedside Power and USB
  • Hangers (including pant & skirt)
  • Trays/Landing Zones for small items
  • Coat Hook
  • Dresser & Closet Space
  • Full Length Mirror

Bedding and Sleeping

Getting a good night sleep in a new place can be very challenging. Providing for your guest’s sleep and relaxing needs was a top request.

  • Extra Pillows
  • Hypoallergenic Options
  • Duvet Cover
  • Robes & Slippers
  • Dirty Clothing Bins & Laundry
  • Dimmer & Good Bedroom Lighting (not too bright, preferably lamps)
  • Books & Reading Materials
  • Nightstand Space (w/ power & USB strips)
  • Eye Masks & Earplugs (ideally also blackout curtains)
  • Water Glasses & Jugs
  • Wifi QR Codes
  • Speakers or White Noise Machine

Other requests including desks and working areas. Our current plans are to have adjustable standing desks and ergonomic work chairs in each bedroom. Plenty of landing spaces and areas to keep your items visible but not cluttered (including luggage stands) is also commonly requested. Separate sitting, sleeping and working areas is best. Also a surprisingly large number of people suggested a white board. So clearly our friends like to brainstorm on the road. External monitors and keyboard were also mentioned.

We have plans to write a basic FAQ document that includes things how the house works. We will include details on water filtration (we have an expensive filtering system so you can drink from any tap in the house), where food is kept and expectations on hours and interaction. Also details on things like heating and cooling are crucial for comfort. People should be able to maintain their ideal temperatures for sleeping and working.

We are also planning to outfit the guest common areas (private to guests and separate from the house common areas) with a mini-fridge stocked with favorite beverages and snacks. Having a coffee maker and tea service was a popular request as well. We are also considering extra boots and outdoor gear for city guests that do not have country gear or simply cannot travel with Wellingtons and barn coats.

Another huge area of interest was maintaining health and fitness. We have a full gym including squat rack, pull up bar, treadmill and a Pilates reformer along with mats for stretching and yoga. We’ve got a Theragun, medicine balls & foam rollers. I am also keen to have supplements for basics to keep your immune system happy like Vitamin D, C and Zinc. We also have a hot tub and have plans for an infrared sauna (might even include a cold plunge).

If you’ve got hospitality suggestions we’d love to hear them. And of course if you are one of our many virtual friends we’d be delighted if you’d consider becoming an “IRL” or in-real-life friend by coming to visit us. We are booked through October but would be thrilled to have you come for ski season!

Categories
Politics Travel

Day 631 and Reunion

I normally spend a lot of time my husband. During the pandemic we got very accustomed to being around each other twenty four seven. We quite enjoy each other’s company so it’s been a life upgrade.

But occasionally we take longer chunks of time apart. It started as a deliberate effort, but now as the post pandemic world works itself out travel is starting to happen naturally again. We haven’t seen each other for two weeks. And completely organically.

And we couldn’t have had more diverse life experiences and seen more varied cross sections of America if we’d planned it. Alex was at an investment firm’s CEO summit in Santa Barbara while I was in Billings Montana taking wilderness medical incident first responder training. He was hobnobing with bankers while I was doing “stop the bleed” with wildfire fighters and EMTS.

When we reunited this evening after being apart, and for such disparate types of experiences, it was so much fun to compare notes. The types of concerns and the expectations for the good life couldn’t be more divergent for the two poles of people. And I am modestly afraid that as America polarizes and different industries code for different versions of America that it will be rare for different classes to intersect.

And that’s a real problem if bankers are so far removed from paramedics as to have entirely different interests and ideals for their shared country of America. It’s clearly possible to encounter all types of Americans across all classes but I’m not sure I’m optimistic about enough people making the effort to bring us all together.

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Aesthetics Community Preparedness

Day 628 and Intensity

If my brain is a sponge I think I’ve been sopping up more than I am designed to handle. But I am holding on and facing a lot of new information and acting on it quickly.

I’m at a wilderness medical first responder class. And I’m the odd duck out on the class. Everyone else is living with much harder realities than I do. They are the ones that fight our wars. Provide our security. Fight our fires. They keep up with where our most vulnerable live. It’s an on the margin make your best call world.

My body can feel that this reality is very different from what I live with and on different class and wealth bands. People that are more buffered from harsh realities often don’t want to face the costs of our lifestyles. But we are not in a morally neutral systems. And a lot of violence still happens on the margins.

I feel somewhat invigorated by the immediacy of decision making in these chaotic environments. If you are in a natural disaster like a wildfire your capacity to react calmly under extreme conditions is a given. So naturally we arm these people with more agency and skills as it’s a set of problems with a lot of nuance and grey areas too.

I am frankly exhausted even though I didn’t do anything that intense. I did some traumatic brain injury drills. And I worked on how to properly stint and secure broken bones if you are in the back country and need to hobble back in to society. I learned a lot about agency and context and the need for high emotional intelligence as you cope with those who are in need or duress.

I suppose with that in mind, it’s no surprise that I’d like to enjoy a good long night of sleep and a big breakfast in the morning. One has got to enjoy living when you have the chance.

Categories
Aesthetics Biohacking

Day 624 and Goblin Mode

A trigger warning for folks. This post contains discussions of poor eating habits, food trauma and possible eating disorders.

As much as I like being a bit of a loner, I am often comically inept at having to take care of myself. My husband has been busy with work and I have been left to my own devices to manage cooking this week. Let’s just say it went a bit poorly. Or at least it was comical. My husband is practically a chef and I can barely microwave a hot pocket.

I’m exactly the sort of person that Soylent, the tech bro reinvents NutriSlim beverage, was designed to appeal to. I am easily overwhelmed by the thought of even basic cooking. I’m extremely picky about texture, smells and presentation (thanks autism). And if I’m really honest I just don’t want to eat anything that isn’t perfect. So if it’s not exactly what I want, I might has well have a nutritional slurry. I hate to waste calories in unappealing food so I’d rather get in my macronutrients and vitamins.

I’m embarrassed to say that I did exactly that for a few meals this week. I tossed 2 scoops of protein powder, a scoop of vitamin mix, and some GI stomach support into a glass of water and called that dinner. Even lower rent than a packaged shake but probably healthier. I got 35 grams of protein out of this bad boy.

A protein slurry in water.

I realize this sounds like I’ve got an eating disorder. And maybe I do. Before anyone has a clue that I might be autistic I had some knock down drag out battle of wills with doctors.

One of the defining traumas of my childhood was my pediatrician telling my mother I needed to eat more dairy. I hated the stuff and refused milk & yogurt as small child. My doctor’s solution (and I am not making this up sadly) was to not allow me any food till I ate dairy

Julie Fredrickson from Day 368 Eating Disorder Season

That story doesn’t end well. I didn’t eat the dairy. I passed out. Starving kids into compliance is perhaps a bad idea. But it did leave me with a sense of comfort and control with fasting. If I cannot eat for any reason I know I will be able to manage feelings of hunger. So not a total loss.

I have enjoyed some of this feral goblin mode stuff but I’m glad that Alex is back at his cooking now that the week is over and it’s Friday. Pulled pork is definitely better than nutritional slurry. Well, sometimes slurry has its place.

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Emotional Work Uncategorized

Day 623 and Pausing

I am feeling a bit anxious about back to work season. I’ve traditionally had a terrible relationship with work. I’m a workaholic and struggle to pace myself effectively. I particularly love riding on the zeitgeist of a season like the fall as “everyone” is back at the grind and I like to ride the energy of the moment.

But I also need more frequent and shorter pauses than the American work week or season has ever allowed. I’ve always been afraid to take them because I fear being seen as lazy. “Only the morally weak rest” is a truism of English and Germanic lineage well prior to the Reformation. Though that’s kind of an aristocracy needs the serfs working thing.

But Protestant Work Ethic aside, I’m not really cut out for hustle culture. Being disabled, even modestly with something my spondylitis, is like the double whammy of being weak and lazy. I need to maintain a different schedule because I cannot overcome the foibles of my own body? That’s an affront! I’ve got a lot of self talk that basically goes like this

You soft feminine pathetic weak bitch get your ass back to work.

Me to myself. Sadly.

Does someone have internalized issues with feminine cycles? Oh yes she does! I guess it’s not just being lazy but it’s being female and a waste of productive worker all in one body. Super fun! And yet here I am a libertarian and I work in finance. Square that circle my friends.

Capitalism has enjoyed patriarchal structuring because it allows us to categorize the inconveniences of bodies that are harder to regulate. Women in the workforce was a pain in the ass until we figured out chemical birth control I’ve got to assume.

But all these legacies of who is worthy and who is strong and who is valued are kind of bullshit constructs. I can take what serves me. I don’t need to get all up in my head about having a less productive body because who even set the damn standard right?

So I am reminded I can pause without crashing. I choose to pause at my own leisure. I can choose to self nurture so I operate from my own point of maximum strength. I have to chose to pause. A pause is not is weakness.

A pause is like the ocean cresting before the wave breaks. And I can choose to ride that momentum. This is all a part of my own work on not just surviving the current moment but thriving with optimism. It’s peace from strength. While I recognize and even ride the chaos outside, I do not feel chaotic inside.

Categories
Preparedness

Day 620 and AQI

I am in the throes of a horrifying migraine. The take two Imitrax and pray type. It’s also the nausea inducing type so I’ve not eaten all day. I feel awful. And it’s mostly not my own fault even though I often like to blame flares in symptoms on my own lack of discipline or purity in maintaining some Platonic ideal of lifestyle or wellness regimen.

It is fire season in the west and I’m sure some, if not most, of my migraine is tied to the horrifying air quality that is choking out thousands of miles of California, Washington, Oregon, Idaho and Montana.

An AQI reading of western America on September 12th at 3:48pm Mountain Time from PurpleAir

The AQI or air quality index in my neck of the woods is 160. Unhealthy for sensitive individuals is the coy and somewhat misleading phrase used. It means in practical terms visibility is so bad I can’t see the mountains a few miles away.

Montana is at the moment free of any major fires. Our colder temperatures, lack of pervasive fire beetle blight, and reduced density makes it statistically safer than the Colorado front range when it comes to total fire danger. But it’s no safer from prevailing winds and the pollution from fire in other states. In order to escape from it entirely I’d probably have to leave the continent.

I’ve obviously opted not to leave my home region of the mountain west even if I have accepted moving to a more northern and protected corner of it. But there is a certain existential “No Exit” sense I have with AQI and fire season in general. It may just be my lot in life. Maybe it’s everyone’s lot. To give up your homeland is a complicated fight. I expect for some of humanity it must involve either certain death or the prospect of great riches

Categories
Aesthetics

Day 619 and Indoor Clothes

I have one issue on which I am a little obsessive compulsive. I hate when someone wears dirty clothes on a clean bed. It just drives me absolutely up the wall.

I suspect this is born of some totally rational preferences. I am very outdoorsy and always have been. As a child I spent as much time as I could negotiate at the barn. I worked as a stable hand as part of keeping my own horse’s board and feed paid. If you’ve ever kept animals or worked on a farm you know how barn clothes smell at the end of a long day. You don’t wear your barn clothes except when you are choring. It’s rude.

Then when I left Colorado for New York City I found another reason that your work clothes should be taken off at the door. Instead of smelling like manure, urine and stale sweat after a long day mucking stales you’d smell like shit, piss, the subway and traffic exhaust. City smells are no more polite to bring inside than barn smells. Getting splashed by a cab or sitting too close to someone who hasn’t showered in a while on the subway is just normal life in a city.

You can probably imagine now a routine in which I take off my outdoor clothes and swap them for my clean indoor clothing. I try to do this as fast as is possible. I can’t fully relax unless I know I’m in my indoor clothing. Because unless I’m clean I cannot get into bed. And there can be no dirty clothes on clean beds.

I simply will not let myself even get on top of the comforter of my bed with outdoor clothing on. If I want to get under the covers and fully relax at home, I better be in clean designated “indoor clothing.”

It still upsets my brain when I see a teenager on television lounging on their bed with shoes and jeans on. Maybe suburban sitcoms neighborhood are a cleaner environment than the one I grew up in?

Or when an adult couple is about to get it on and then tumble into bed with their coats and jackets and high heels. I just hate that. I shudder. I don’t want to bring dirt and shit into my love making. Sorry it’s just my preference no shame if that’s your kink. But absolutely not in my house.

I’ve finally fully trained my husband on this quirk. He keeps a clean set of pajamas to change into and is careful to keep barn clothes to the barn. As for me, I like this quirk. I keep a cleaner house because of it. Sure it’s a little weird but I love a nice clean safe place.