Categories
Emotional Work

Day 772 and Spoiled

For as much as I write about pain, both emotional and physical, so much of my life is saturated with joy.

I was asked this week “when will you accept that you are happy” and I was thrilled to find myself blurting out in agreement “It’s true I am so happy.”

Crawling your way back from a life event that gave you ego death is no easy journey. You either accept that you are responsible for yourself or you don’t. And really bad shit happening to us like illness or divorce or death loss tend to be deeply clarifying.

I feel so spoiled by the life that my choices have given me. For all the mistakes I made, and they are numerous, I on balance made the right calls. I have never felt more loved in life than I do right now. I’ve got what I need and I felt brave enough to go after what I wanted.

I’m surrounded by people who care about me for me. And it’s such a luxurious feeling to be given the space to be yourself. It’s even better when being yourself is the thing that everyone loves.

A Friday night surf and turf feast with filet and crab.

I spent so much of my life fitting myself to my circumstances. And now here I am stretching out to become more of myself and I find myself rewarded for it. Last night my husband and a dear girlfriend made a magnificent surf and turf dinner. Just a restaurant quality meal made by my loved ones at my own home in Montana. And then we all watched one of my favorite movies Margin Call

Crab with lemon & parsley
Categories
Emotional Work Politics

Day 768 and Memory

I’ve not ever read Proust in its entirety, because what am I, an eternal being who exists outside of linear time? But, thanks to Wikipedia and university survey courses, I am familiar with its basic themes of memory and it’s frustrating insufficiency.

Anyways, when not pondering madeleines, I am often confronted by how resilient the mind is in protecting us from the horrors of the world. Memory is a very funny thing. As good a reason as any to maintain diaries or engage in hagiography, is that you’d be surprised at what you forget if you don’t write it down.

A doctor asked me to get a pelvic ultrasound. I surprised myself by saying absolutely not unless it’s an emergency life or death situation, I am not doing that. And she, in sincere surprise, asked me why not.

And, because I guess therapy works, I recalled a pelvic ultrasound from maybe 10-12 years ago. I’d been referred in to a specialist as there was concern about a uterine cyst. This doctor, a gentleman over 50 in the kindly white patrician archetype, who I did not know know, proceeds to tell me this won’t hurt a bit.

But it does hurt. I am screaming bloody murder. It hurts so much I cannot stop. He tells me he will call security unless I quiet down. I cannot and I am in tears hysterically trying to convey the pain to him. I pass out.

I had utterly suppressed the memory till today. It happened to coincide with my husband mentioning a think piece in New York Magazine about women who empathized with the Clare Danes character from Fleishman Is In Trouble. There is a profoundly violating scene around reproductive health and consent that culminates in dark emotional trauma.

And of course, because it’s happening to a striving insecure aspirant white bitch, it totally doesn’t count right? The internet is not sympathetic to whining Clare Danes types. Fucking Karens. It’s super cringe to consider where the system hurts you, because, you dumb bitch, you benefit more than anyone else except the men.

So I guess I am not surprised I had banished the experience of something bad happening to me at a doctors office, but you know, it was not so bad that I am allowed to complain about it. And that is how the patriarchy perpetuates itself. Shut up you are rich. Look at the skulls upon which your empire is built you witch.

What I’m saying is that maybe you need to remember who it is that benefits from you not remembering the pain. Who benefits from forgetting? And trust me they are very scared when you realize that you remember. Even the rich striving white bitches have scares from this system.

Categories
Chronic Disease Emotional Work

Day 767 and Abandonment

I called someone today with whom I have a standing appointment. They didn’t pick up at first. I called back a few minutes later when they didn’t return my call.

They picked up on the second call back. They didn’t seem entirely healthy. I found myself scared. My inner child dove immediately into a pattern of abandonment and distance as I tried to cancel and give them a way out. I blathered on about how it’s usual time and I hoped I wasn’t invading their privacy but if they were sick I could rescheduled as it was obviously no big deal.

Julie” they said to me firmly but kindly. “Stop telling me how I am.”

I sat back on my heels at that. I hate it when people make assumptions about how I feel. Rather than listen, people will simply make assumptions about how I am and what I can or cannot do. If you hate feeling pitied then this will probably seem quite familiar to you.

It’s not uncommon for people to work through their own issues on illness, pain or disability when talking to me. While I have an invisible disability from a chronic disease called ankylosing spondylitis I do make it known that I have this diagnosis. I even treat it as a part of my edge at work. But it’s just a fact that I’m in various degrees of pain because I have swelling in my spine. It’s arthritis basically just inconveniently located.

But despite it being a public part of my identity, most people have no idea. I don’t look sick and I mostly don’t act like it in public as it’s kept under control with modern medicine. But I’ll have bad days. Or I’ll have to ask for an accommodation like sitting down.

And that’s when I learn a lot about a person’s relationship to illness. I’ll get pitied. I’ll get babied. I’ll get pep talks. I’ll get praised. I’ll get ignored. I’ll get written off. It’s never about me but entirely about the other person. It’s a little bit like seeing someone’s tell in poker. Most people have got one.

In the past I’ve let myself be invaded by these feelings from others. And it made me sad. I felt abandoned by all these people around me who couldn’t see me for me but instead saw their own feelings mirrored back to them. I felt invisible. I got treated like a cipher for disability or illness.

But underneath that little drama, an the actual person names Julie would be left alone to watch them play out their emotional theater. But I am done feeling abandoned by it. I don’t have to let anyone else tell me how I am. And it’s entirely up to others to decide if they can manage around me. I don’t need to make it my problem. I’ve got no need to abandon myself for them.

Categories
Emotional Work

Day 766 and Friends

The worst part of getting back on Instagram has been the number of people who said welcome back. Now you might say that sounds kinda nice. And for the extended universe of people with whom I casually socialize, yes it was nice. But for the people I considered to be friends it was fucking insulting.

I left Instagram before my health troubles but the overlap on the timing on the two isn’t wide. Its mostly concurrent. It’s hard to post the kind of aspirational lifestyle bullshit that the algorithm prioritizes from bed rest. There is a reason Twitter and long form blogging on WordPress are where I spend my social media time.

A significant portion of people in my bucket of friends simply disappeared from my life when I disappeared from their lives. When I stopped reaching out they stopped reaching out. My timing certainly wasn’t great as my health imploded around the time a lot of my peers got married and had children. Totally acceptable reasons to be busy.

But I also I learned the hard lesson that most people are so busy keeping themselves afloat they don’t give a fuck if you are dying. Because they are struggling too. Yet it’s hard not to have a sense of abandonment when people don’t reach out across any medium except what’s proximate and convenient for them.

I went to so much trouble putting myself and my entire journey online. I knew I was harder to reach as I couldn’t leave the glide let alone my own bed. So I reached out from the pit of my own despair and hoped someone would see my hands reaching. And a whole world of people did. I made a lot of new friends that way.

I’ve literally written hundreds of thousands of words about my journey. And all of it is conveniently tagged and linked and is searchable. If you wanted to read about pain management or biohacking or my medicine regiment it’s all here. I’ve even written an FAQ on how to reach me. I am one of the most accessible people you will ever reach. I made this this space because I knew I had to reach out lest I be abandoned.

So when a bunch of socially networked acquaintances said “welcome back” on Instagram, what I really heard was you were never my friends in the first place. And that felt sad in a way I wasn’t expecting. I’m sure was true that most people were not my friends. I always knew was true for the vast majority of people. But it was sad to learn it was true for people I’d felt close to in the past.

For the handful that were actually friends, it was a bit disappointing to see what distance, time and sickness has yielded for my expectations. I hadn’t heard from them in years but they still think we are friends. And I don’t know how to break to them that no actually we aren’t. I have come to expect more from people.

Categories
Emotional Work

Day 747 and Defeat

They say you shouldn’t make big decisions after a failure or a defeat. I failed during my trip to Prague. And I’ve been trying to let go of the sting of the failure. I was trying to help a family friend secure a visa to America. It was my second attempt and second failure. I’ve been working on it for two years.

I don’t know what to do next. I am unsure if I am able to do more to help. It’s humiliating to keep failing at securing a visa. Americans have little to no idea how hard it is to get into our country. Only 40 countries of 195 can travel to America without going through our Byzantine maze of rejection and waiting.

Maybe I need more time to pass before I’ll come up with another idea or solution. Every time I write about visa issues I get back a bunch of comments from folks and alas few of them appear capable of fixing the situation. I’ve got a few leads ranging from fixers to number one ranked legal firms. We’ve reached out and secured help from congressional representatives and ambassadors.

I don’t accept defeat easily. I chew on failure like a dog on a bone. I want to find a way to a solution for our friend but at this point it’s not just about them. I need to find a path forward for myself as well.

Categories
Emotional Work Travel

Day 746 and Control

When I feel afraid I seek control. I have rituals and rhythms that help sooth the fears of my inner child.

This morning I was in my least favorite fear control pattern. I had to leave a temporary hotel for a new Airbnb as a mold issue destabilized my first week. Hives and prednisone and such. I hate packing and I hate the logistics of it. It reminds me of my childhood nightmares.

I set my alarm early enough to get breakfast and packing in before the slightly too early checkout. I was racked with anxiety I couldn’t repack everything as I’d acquired new items meant for an apartment stay and my suitcase overflowed.

I had vitamins and medicine to take but I couldn’t do more than choke down a croissant. I ordered fruit and cheese and than was too worked up to eat it. I hate wasting food so I wasn’t thrilled. I beat myself up for being a bad person who can’t take care of herself.

As soon as realized how had it was getting I took an Ativan. Joke all you want about benzodiazepines but occasionally they are the barrier between a traumatized woman and the history of her fears. Probably why it’s such a cliche. Just the sort of thing you learn as you are alone in a foreign country where you don’t speak the language.

I felt so rushed by the need to be out at a certain time. Each knock on the door a reminder of my failures. Each internal call to calm down a criticism I recalled from my father, my coaches, my bosses and my lovers. A hysterical woman is a shameful thing.

Each “hurry up” a reminder that I am someone who is policed and polite and controlled for other people’s convenience. I am not allowed to be scared or cry or reactive. A hysterical woman woman is, again, a shameful thing.

Finally after the tension and anger and shame bubbled up, I threw the first thing I could get my hands on to release the tension. Better than hurting myself a dim quiet voice said. I cracked my watch face. And immediately felt better. And so embarrassed I’d boiled over.

I’d only needed five more minutes to get myself together. Just a moment. Give me a second. Please just let me be. And each time my preferences had to accommodate someone else I lost more of myself.

I was able to exert the seamless self control over my emotions eventually. I checked out. I tipped. I’m swanned over to my new digs. I executed exactly what I needed and got on with my workday. But the shame stung and the control soothed it like a cold aloe gel.

Categories
Politics

Day 740 and Immigration Failed Us Again

My second attempt at a securing a tourist visa for a friend failed this morning. If you’d have asked me a few years ago if I thought the American immigration basically worked, I would have agreed that, sure I thought it probably worked ok. No reason to think otherwise right? Phew I was wrong.

But after years of being humiliated over and over again by the state department for “the crime” of wanting a family friend to come visit us for vacation, I’ve never felt more ashamed of myself and my country.

I’m ashamed I was such a sucker. I thought we would still do the basic work of being a functional state. I’m ashamed that America treats people who want to visit us this badly.

We have well off, interesting, curious guests that want to explore our culture and spend their time & money seeing our land. We spit on our guests by turning away anyone who isn’t on a Schengen or ESTA waiver. You probably think that includes most people. I did. But we are wrong.

Only 40 of the 195 countries on the planet are granted travel visas without going through the visa embassy approval process. Most people have bad passports. Latin America, Africa, the Balkans, the former Soviet blocks and most of Asia have “bad passports” that require a tourist visa that requires years of waiting for appointments and almost assured disapproval at the Embassy.

I’ve never met a system so broken I couldn’t find a workaround. But here I am at the of my workarounds in tears at how I’ve let down my family and friends. The visa I’ve been helping with was denied a second time today after waiting since March for a second chance to re-apply. That first meeting at which we were also denied also took years of waiting.

And it is getting better. This round after flying to Prague, we got two minutes instead of thirty seconds in Frankfurt. In those minutes they still didn’t look at any of the materials prepared. Just a generic we don’t like the look of your people rejection. We got some boilerplate language about strong ties or weak ties and no we won’t read the 200 pages of supporting documents you brought.

I was a mess yesterday about how afraid I was we’d get down turned down again. But I thought surely I was being too paranoid. The lawyers we paid thought we had a good chance. We’ve brought everything possible for paperwork from mortgages to W2 forms. I’d taken personal financial liability for our friend. I let the government have an invasive look at our finances. I gave the consular offices the deed to my house. I worked for months to get a Congressional letter asking for a fair review of the application. None of it was reviewed.

Now in the aftermath, I’m not even sure if it’s possible to get a consular officer to do a fair review. Our congressional representatives wrote the consular office and they send back boilerplate with no details. No one reads the applications I guess. We can apply again. And again. But would good would it do?

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Uncategorized

Day 739 and Immigration Anxiety

My family has been working on a visa for a friend to come visit us in the United States. It’s felt like the longest 2 years of everyone’s lives. I had no idea how broken our visa and immigration system ones until we tried to invite a family friend with a bad passport on vacation to America.

Sure the pandemic distended wait times into bulging impossible monstrosities, we pushed simple state department work into an impossible task. But it’s not just the broken bureaucracy at play. It’s a system so broken by it’s own disdain and lack of resourcing, your only hope is the grace of God.

If you tried to arrange a tourist visa for someone from the global south you’d find the next available appointment for a tourist visa was three years down the road. And this was after the borders opened up after the pandemic got to be too much trouble. It only got worse from there. I quickly become shocked at how impossible it is to travel to America if you aren’t on a Schengen passport from Europe.

I’ve been working on this seemingly intractable problem for well over two years. We are on our second embassy appointment. The first visit was in Frankfurt in March where it was immediately turned down without the officer even looking at the paperwork. Thousands of dollars and endless time lost to a random bureaucrat in thirty seconds.

And you aren’t even allowed to ask them to take another look as they could ban you on the spot. I cried I was so humiliated after seeing that first refusal. How could America be so broken? We did everything right and it didn’t matter. Kafkaesque doesn’t begin to describe it.

Apparently the American state department treats a visa like a Rabbi handling a conversion. It took another 10 months to schedule a follow up appointment in Prague. Our friend’s home embassy has a three year wait so we’ve been going to European embassies to avoid needing to pay a bribe for an appointment in his home country. Legal immigration is much harder than illegal immigration.

So we planned a trip to Prague. And now the appointment is tomorrow. And I’m terrified. I’m despondent. I’ve done everything right and I have no idea if we will succeed. And it’s not even a visa for me. I can’t imagine how they feel. To be treated as if you are a criminal when all you want to do is visit friends and spend money in a other country.

I’m almost embarrassed how invested I’ve become in making this work but I will not allow myself to be beaten by this system. Guests do not deserve this humiliation and America is my house.

Mind you this is for a tourist visa not a work visa or a green card. This is just for coming to enjoy tourism and spend time with friends and family. Tourism is an important part of the American economy. Especially where I live in Montana. The whole world wants to see Yellowstone.

The entire process has been so humiliating for everyone involved. As the sponsor of the visa I filled out a form called an I-134 where I had to prove my net worth, my home ownership, my income, my job and compensation. I accepted personal financial responsibility for them.

This after being instructed that our guest must show strong ties to their home country and a minimum financial independence of their own. They had to show their home ownership, car deeds, work pay stubs & tenure at the company, not to mention guardianship and primary care responsibilities for their grandmother among many other invasive questions. The paranoia of visa overstays has made it so no one can get a tourist visa at all.

All this humiliation be granted the privilege of spending wealth in America as a tourist. It’s beyond insulting. It only gets worse for each step down the line if you want to work or live in America.

If you’ve ever wondered why we don’t have more legal immigrants this is why. Insofar as I can tell there are two ways to get to America. Illegal crossing and you pray. Or tens of thousands of dollars and years of waiting and you pray. Oh and you probably only get to come if you do it illegally. It is a crisis in every sense of the word.

We’ve spent tens of thousands of dollars, weeks of time on the ground in foreign countries and it has gotten us no where.

We’ve also called in everyone type of favor and access we could find. A privilege most lack. Our constituent services office at our Congressional office has been amazing. They submitted a letter asking for a fair review.

If the hundreds of pages of professionally prepared paperwork, the millions of dollars of financial assets and a congressional letter of fair treatment simply aren’t enough, I wouldn’t be too proud to go crying hat in hand to the ambassador to please consider our case. All we want to do is have a family friend granted the freedom to travel. I’ve got no idea where to turn if it isn’t granted.

I’m so anxious and depressed now that the culmination of so many years of work is coming down to one short interview tomorrow, over which we had no control. I’m mess. I’ve let it get to me.

I cannot fathom what else we could do. If millions of dollars of assets, a by the book legal case, multiple political appointees vouching for us and a good faith effort to show our personal responsibility aren’t enough, than what is enough for America?

My fear is nothing will be good enough and I will be despondent in tears tomorrow by 11am. And I pray I have the strength to fight on if it happens. Because I believe in America and I will go to the mat to bring more people to see it’s splendor. Empire’s end won’t happen on my watch without a fight.

Categories
Culture

Day 686 and Code Switch

The social contract in America is breaking down but none of us have agreed on the new rules yet. Of course, some populations have never lived within the consensus social contract in America.

And yes there are a lot of Americans that don’t live inside our social contract. Being black or queer (or god forbid both) even in 2022 means speaking a foreign language in your own land. If you aren’t familiar with the term code switching I’d encourage you to look it up.

I’ve almost always lived within consensus norms. At least appearance wise. I pass as a nice white lady with a nice seems white husband. He’s Jewish so only the incredibly woke or the incredibly racist disagree. Though eventually even that protection may give way if we don’t have children.

Code switching isn’t cost free. You’ve got to think about your audience constantly. You adjust who you are based on the acceptable norms of discourse. And it’s an exhausting exercise if you’ve never had to do it.

One of the reasons Twitter has been such a combustible place is that people code switch all the time. If you get caught in a context collapse situation where what you said is fine in one community and heresy in a another you might find yourself getting canceled. Speech norms have always been context dependent.

I’ve recently become more aware of how much code switching I do because I’ve been trying to solve a problem that isn’t considered polite to have in rich stable white American society. If you follow me closely you know it’s related to immigration.

I really need to fix this problem so I’ve been asking around quietly and obliquely trying to sense my way around adjacent communities with rules that won’t turn me into a pariah. And it’s a ton of work. It requires the kind of sensitivity and social graces I’ve previously prided myself on only to discover it’s just the rules for the Western upper class whites. Everyone else knows justice isn’t for them.

As you might imagine plenty of people live with entirely different contexts and social graces than the Eurocentric worldview. And they are all fully and completely aware of the indignities of my problem and the varied ways in which one solves for it. And no one is judging me for it. But it’s been a bit shocking to me. I fully believed playing by the rules would eventually reward me. And of course that’s the real reasonable we code switch. Because different rules apply to different people.

Categories
Emotional Work Finance

Day 683 and Goverance

I’m not a big fan of early stage venture investors meddling too much in the day to day of their portfolio companies. Asking for too much reporting and too frequent board meetings can be a huge source of momentum friction.

But I am a big fan of corporate governance. Even right from the very start. You should have agreed upon avenues for settling issues and disputes from the moment you have assets bigger than an Ikea couch let alone a 32 billion dollar valuation company. A lack of governance structures can lead to deeply destructive behavior even if you aren’t a sociopathic rich kid bent on committing fraud.

As much as it may seem irritating to set up formalities like a full board and agreed upon voting rights structures, you will regret not having it if something goes wrong. And something will go wrong. I’d go so far as to say Murphy’s law is an immutable law of the universe. What can go wrong will go wrong.

The intense pressure of a startup is what turns the lump of coal that is your vision into the diamond that will be worth something in the open market. And pressure is often destructive. People who otherwise respect and trust each other can slowly find themselves deeply at odds.

Just think of your worst breakup and imagine that intensity playing out in ways that impact everything you’ve worked to build. If you’ve ever gone through a divorce I’m sure you understand. Let me tell you a little story about one of my breakups to illustrate why you should set up governance right form the start.

My easiest personal breakup was also one of my worst. We’d moved in together and devised an elaborate set of budgets and savings protocols. We’d combined belongings. We even set up a shared bank account. He was a corporate governance lawyer at a very aggressive firm. I was working a lucrative corporate job but preparing to go back to startups.

While he wasn’t a contract lawyer, he did have enough common sense to suggest we write up a relationship contract complete with dissolution protocols. I thought this was absolutely brilliant which I’m sure tells you a lot about how I operate. Absolutely all of our friends thought we were nuts. Including a colleague and friend who would go on to be one of my board members down the road.

I was in Colorado for my mother’s wedding. I’d expected my boyfriend to join me. But we’d been discovering that all our good faith attempts to arrange the perfect relationship structure was nothing in the face of widely disparate personalities and risk tolerance. No amount of mitigating structure could overcome those differences.

When I came home he’d triggered our breakup clauses and moved out. Everything was done by the governance protocols we’d set out. If I’m absolutely honest I was relieved. My biggest annoyance was losing the Vitamix blender that was his property. As furious and heartbroken as I was at the time, I didn’t have any avenue to engage in my worst most defensive reactionary emotions. Neither did he. Which was extremely valuable as I hadn’t at age 26 gone through the therapy that helps me productively channel negative emotions now.

My ex-boyfriend and I are still friends to this day. Sure it took a few years for us to come around but we’d avoided a scorched earth situation despite the significant risks we’d engaged in by moving in and combining our lives and fortunes after a relatively a brief period. The damage was mitigated by a shared understanding of how we’d manage downside protection and whose rules we’d consider binding.

While I’m sure this sounds a bit weird, I do think it’s a helpful illustration of why even the most optimistic scenarios benefit from guardrails and mutually agreed upon avenues for pursuing a dissolution or change in status.

No matter how calm and rational you think you are, there will be scenarios that trigger deep emotional patterns. If you vomit up those childhood coping mechanism emotions, you need to clean it up even if it feels shameful and embarrassing.

I’d also say it probably tells you a lot that I’m telling you a deeply personal story about a breakup in a personal relationship and not my actual board experiences. There are some secrets you take to the grave and how you failed your business partners tends to be one of them. How they failed you is another. I’ve had reason to be grateful for corporate governance guardrails at all of my companies. Because that is human nature.

So no matter how early it is in your startup journey you should be considering how you’d handle tough times. Set up a board to help you work through and arbitrate disputes. I know you cannot imagine it now but you won’t regret it.

No one is ever fully immune from disagreement (or even disaster) and you owe it to yourself and your partners to set up fair resolution issues from the start. Plus if you happen to have partnered with a sociopath you will appreciate the modicum of protection offered by binding contract law or consensus mechanism contract execution. And if you really want a Vitamix make sure you put that in the contract.