Categories
Biohacking

Day 652 and Startled Awake

There are few things more disorienting than waking up without realizing where, or even when, you’ve fallen asleep.

The first few moments of regaining consciousness are the stuff of genuine terror. As your senses do their best to bring their data to your brain, there are a few agonizingly slow beats where you genuinely have no idea what the fuck is going on.

I imagine this phenomenon is where our vocabulary of phrases like “startled awake” get their origin. Perhaps you weren’t awoken by anything surprising, or particularly startling, but the small gap in processing between sense and mind is such a chasm in that singular moment that it all feels startling.

I had lay down to wait for a Midol to kick in to ease my first day of menstruation cramps at around 1:30pm. I remember asking my husband if he could find a heating blanket. I don’t remember much past that except a few hazy details of wrapping my entire lower torso with a heating blanket.

I had not turned off any lights. Nor had I thought to put on a sleeping mask. I thought I was simply waiting for the sweet relief of caffeine, Tylenol and diuretics. I had even told my girlfriend Ellie who had been expecting me to come up upstairs to hang out that I just needed a quick lie down. Turns out the lie part was true. It was not quick however. Which is some fun wordplay.

When I regained consciousness I had no sense of how much time had passed. As I fumbled about for my cell phone I swear I felt my neurons firing off rapidly in an attempt to gain data points for my poor addled mind to do some damned interpreting.

I was wrapped in something hot with a cord. Did that mean I wasn’t in my own bed? I didn’t generally sleep with anything electronic. I briefly panicked as I felt trapped in what was previously providing my body with comfort. I’d forgotten about the electric heating blanket, leaving the cord with no other function but to panic my hind brain with a fear of being strangled.

As all my lights were on, the various lamps were washing out any indication of the hour. I could hear noises above me so perhaps someone was awake. Did that mean it was the afternoon? What was with all the stomping above. It felt like it must be day.

I simply wasn’t getting enough orientation information from my initial position and I couldn’t seem to find my phone. I doubt more than a second or two has passed as I went through my startled awake process.

As I attempted to make sense of all these inputs I finally realized that I had passed out on top of my phone and I’d let it slip under my pillow. It was a bit past 3pm. I texted Ellie to let her know I’d accidentally passed out. The brief pumping of adrenaline and cortisol was easing back. I was at home in bed quite safe and a bit overly warm. But I certainly felt a new appreciation for the limits and frailty of my human mind.

Categories
Emotional Work

Day 647 and Socializing

I thought I was being quite careful this weekend about not over socializing. Last weekend I was hitting up pancake breakfasts and running errands and I thought I was going to pass out come Monday. So I was much more conscious of needing to rest and privacy this weekend.

But no matter how much I dial it back it seems like any amount of interaction is just too much. I backed it down to two hours on Thursday, Friday and Sunday with a recovery day on Saturday. But here I am on Sunday afternoon fighting off a migraine from overstimulation.

Folks bitch and moan about Zoom and how it takes away from the human element of interaction but fuck me if that isn’t the entire appeal of it to me. I myself prefer asynchronous communication to buffer myself even further from the onslaught of audio, visual and emotional inputs. But I’ll take a day full of Zooms as it’s still so much less input.

Perhaps the downside of having the hair trigger central nervous system of an autist is I am simply absorbing more from the inputs than the average person. Every noise, every visual cue, every smell is hitting me. Others may need all those cues but I absolutely do not.

I wish there were a way to articulate this to friends and family that didn’t make people feel rejected. But socializing in person is simply so taxing for me that I need much less of it. And it’s not because I don’t like you. It is just because I’m absorbing way more of you than you think!

Categories
Biohacking

Day 642 and Feast

WARNING: I am discussing food and my relationship to food for anyone that has any triggers around food, eating disorders, or disordered eating.

I accidentally didn’t eat anything of substance today. I had some coffee and a banana so just enough to break my fast but not quite so much that I had a meal. The weekend was packed with meals in huge portions due to slightly more socializing and being out of the house than was wise. I really felt it yesterday as we had two very hearty meals planned and I managed to eat maybe a quarter of it.

I have always been a bit of a feast or famine type. Some of this is probably related to some childhood incidents. I’d much rather eat as much as I’d like and then fast for a day or so. I like the feeling of choice and control.

Some of worst parts of having to combat an autoimmune disorder is sometimes being put on medications that need to be taken with food. I hate when any outside force interferes with my body. Even medication.

I also happen to buy into the research that fasting is a a generally positive force for good health. The intuitive notion that we evolved for feast or famine is slowly being proven out. Every major world religion incorporating fast as a component also reassures. Nothing is more lindy than fasting.

But as I come to the end of my day it is probably time to eat a proper meal. My stomach is rumbling. I can feel my focus faltering. I don’t have much of an appetite but I will need to find the middle ground between feast and famine today.

Categories
Emotional Work

Day 641 and Recovery

This might sound a little shocking but I sleep at least 9 hours a night. Sleep is one of the obsessions of the biohacker. If I’m lucky I might be able to get to ten. It’s always a sign of me doing poorly if I am not sleeping a TON.

It’s usually the first sign I am not adequately reserving time to bring down my central nervous system into rest and digest. I’ll stay up till 11pm and then it’s a hop skip and a jump to only sleeping seven hours.

The best combination of effort and exertion for me is only adding in specific necessary stressors during the day and give ample time to recovery. Much of my work requires focus and information processing and synthesis. And that isn’t improved by overwork and exhaustion.

Nevertheless I am still carting around a lot of lessons from my childhood about the value of hard work. More is better. More hours is best. And this is a fine and noble thing if you do work intelligently with your goals in mind. Simple exertion is sometimes the best option. But not always.

Categories
Aesthetics

Day 638 and Environment

We’ve had an unseasonably warm week in the Gallatin Valley. We pulled out our two air conditioners from the window installations and went to Costco to install our snow tires. Both activities felt a little bit ridiculous as the temperatures touched 80 degrees.

But finally this morning the last bits of summer felt like they might be behind us. We had a beautiful warm sunny evening last night and yet we woke up to clouds and a damp chill. I was relieved if I’m honest.

Almost overnight our cottonwood trees began to turn to pleasant yellows. The aspen groves showed some signs of change as well. When I went for a walk yesterday beyond the property line I spotted apple trees with maturing fruit. I had only been gone a week from my usual walking route and was surprised to see so much progress into fall happening what felt like overnight.

An apple tree alongside one of our country roads beginning to show fruit.

With temperatures safely back into the 40s and 50s, it felt like it was time to unpack some of our winter clothing. I spent some of this morning sorting through sweaters, scarves, hats and gloves.

It was dusty enough inside the the moving boxes I started to break out with a few itchy patches of red inflamed skin. I took a Benadryl and hoped a cup of coffee would overcome the anti-histamine’s fatigue.

The environment around me is tugging on my body and it’s control systems. But I’m grateful for the change even, if some of the required activities have brought up the stress of change. I love fall. I love the cold. I’m a big fan of winter too. And I’m excited to see where this weather takes us. Call me crazy but I can’t wait for my first winter in Montana.

Categories
Chronic Disease Emotional Work

Day 636 and Waves

Yesterday I was on top of a wave of positivity, so naturally this means today I was prepared for that wave to crash. The rhythms of both life, and my body, must accommodate the full range of highs and lows. After several intense days of work and activity I spent my day reading and absorbing news and financial reports in bed.

I am becoming modestly less indignant about having to monitor and meter my energy carefully. This is a new development in some ways as I’ve struggled quite publicly with mixed feelings about accounting for fatigue and pain in my workflows. I have in the past easily fallen into envy and jealousy when I see how much able bodied friends give little thought to their physical realities.

I have slowly let go of negativity around around around my body and come to embrace the rhythms of requiring rest. I’ve even come to see it as a strength as being forced into mitigating stress loads and cortisol spikes means I have more control over my sympathetic nervous system. Rather than give in to fight or flight, I am able now to able to choose how I respond.

Categories
Emotional Work

Day 635 and Wide Horizons

I am absolutely wiped at the moment as I rode a wave of enthusiasm all day. I felt focused, energetic and free of self doubt. I felt like my life was open to possibility.

Perhaps it’s the regular reminders of personal responsibility I get in therapy. Perhaps it’s it’s the sense of accomplishment I got from completing my wilderness medical incident certification last week. The case of the Yips that I felt a few days ago is swiftly resolving.

The strength in my marriage with Alex has always been our commitment to working through our emotional journeys together. He was able to be reassuring my through slow climb back from the depths of my health challenges. He helped me turn it into a source of strength. Next year will be ten years together and Alex really got the “in sickness” portion of the vows a little earlier than anticipated.

This is the first time in both of our lives we’ve ever truly been stable. And that’s a strange thought. That our lives have been so chaotic for so long. We finally have money and a home we own and good health and it’s all at the same time. All of the instability of startups and limited resources and bad health are over. And only really in the last six or seven weeks has that been true. As we just finally bought our first home. We moved to Montana in August.

We climbed through the aftermath of the Great Recession together, made our first angel investments together, raised venture capital together, and now finally thanks to the pandemic we’ve been able to secure a place to live and a wide horizon to plan how to use our resources and time. I am responsible for talking this blessing and letting it provide the foundation for our long term goals. Millennials might just accelerate in middle age just yet! I know it feels like I am.

Categories
Emotional Work

Day 634 and Responsibility

The best part of committing to therapy and emotional work is taking responsibility for your feelings. This is also the worst part of doing any kind of emotional growth. I suppose this is how you know therapy is a worthwhile use of your time.

Emotional work has a bit of the “wherever you go, there you are” tension of acceptance. I’ve also come to appreciate the truism that having is evidence of wanting. We are always living exactly the lives we want. Attachment and delusions and self limiting beliefs are all part of the way we protect our ego.

I’ve got a lot of my identity wrapped up in my coping mechanisms. I’m sure this is quite relatable to many people. If you are willing to be a vulnerable you start to see just how many habits and behaviors are built to protect yourself.

For me I have found comfort in overworking. If I crash and fail I protect my ego by saying little stories like I’m fragile or have high standards or whatever else seems acceptable. When of course, I could have simply made different choices to accommodate my physical state or the expectations I had for quality.

But accepting that I am ultimately responsible for my strengths and weaknesses in equal remains elusive. Personal enlightenment is a minute by minute experience. Ego destruction isn’t easy.

I try to remind myself that any traumas I may have experienced that enabled the development of these coping mechanisms are in the past. I am now the parent to my inner child. And no one is responsible for her happiness but me.

Categories
Aesthetics Travel

Day 633 and Hospitality

One of the things my husband Alex and I were most excited by when we bought our homestead in Montana is inviting our friends and family to stay with us. We have an entire floor of the house dedicated to guests and have plans to turn part of our barn into a separate guest house as well.

We’ve begun the process of designing and furnishing our guest floor. We have two rooms, a bathroom and a separate living room. The furniture is slowing turning up. Which means it is time to work on the details of making it as comfortable and hospitable as possible. Naturally we asked Twitter to weigh in on what makes people feel at home in someone else’s house. And you did not disappoint.

Toiletries

Traveling with full toiletries and skincare can be a challenge especially when flying. Here is a list of the most requested grooming items and toiletries

  • Hairdryer
  • Roundbrush & Styling Tools
  • Shampoo & Conditioner & Body Wash
  • Lotion & Body Moisturizer
  • Skincare Basics (SPF, Face Creams)
  • Skincare single use masks for face & under eye bags
  • Dental Care (Brush, Paste, Floss)
  • Small Individually Wrapped Soap
  • Q-Tips & Cotton Rounds
  • Tampons & Pads
  • Tissues
  • Bandaids & Pimple Patches
  • First Aid Items (Headache, Allergy)

Bathroom Comfort

Grooming items isn’t the only thing that you need in the bathroom. Personal hygiene requires some thought.

  • Trash Bin
  • Dark Towel for Makeup Removal
  • Plenty of Extra Bath Towels
  • Wash Cloths
  • Hair Towel & Turban
  • Extra Towel Hooks
  • Plunger & Brush
  • Bidet and Squatty Potty
  • Septic Care Sign
  • Cleaning Items
  • Extra Toilet Paper
  • Tissues
  • Poo-pouri or matches to mask smells

Organization

Keeping your personal items from overflowing can help make a guest room feel more comfortable. Remember power strips & plugs! Some of the most requested items include:

  • Pens & Notepad & Scissors
  • Desk Power Station
  • Bedside Power and USB
  • Hangers (including pant & skirt)
  • Trays/Landing Zones for small items
  • Coat Hook
  • Dresser & Closet Space
  • Full Length Mirror

Bedding and Sleeping

Getting a good night sleep in a new place can be very challenging. Providing for your guest’s sleep and relaxing needs was a top request.

  • Extra Pillows
  • Hypoallergenic Options
  • Duvet Cover
  • Robes & Slippers
  • Dirty Clothing Bins & Laundry
  • Dimmer & Good Bedroom Lighting (not too bright, preferably lamps)
  • Books & Reading Materials
  • Nightstand Space (w/ power & USB strips)
  • Eye Masks & Earplugs (ideally also blackout curtains)
  • Water Glasses & Jugs
  • Wifi QR Codes
  • Speakers or White Noise Machine

Other requests including desks and working areas. Our current plans are to have adjustable standing desks and ergonomic work chairs in each bedroom. Plenty of landing spaces and areas to keep your items visible but not cluttered (including luggage stands) is also commonly requested. Separate sitting, sleeping and working areas is best. Also a surprisingly large number of people suggested a white board. So clearly our friends like to brainstorm on the road. External monitors and keyboard were also mentioned.

We have plans to write a basic FAQ document that includes things how the house works. We will include details on water filtration (we have an expensive filtering system so you can drink from any tap in the house), where food is kept and expectations on hours and interaction. Also details on things like heating and cooling are crucial for comfort. People should be able to maintain their ideal temperatures for sleeping and working.

We are also planning to outfit the guest common areas (private to guests and separate from the house common areas) with a mini-fridge stocked with favorite beverages and snacks. Having a coffee maker and tea service was a popular request as well. We are also considering extra boots and outdoor gear for city guests that do not have country gear or simply cannot travel with Wellingtons and barn coats.

Another huge area of interest was maintaining health and fitness. We have a full gym including squat rack, pull up bar, treadmill and a Pilates reformer along with mats for stretching and yoga. We’ve got a Theragun, medicine balls & foam rollers. I am also keen to have supplements for basics to keep your immune system happy like Vitamin D, C and Zinc. We also have a hot tub and have plans for an infrared sauna (might even include a cold plunge).

If you’ve got hospitality suggestions we’d love to hear them. And of course if you are one of our many virtual friends we’d be delighted if you’d consider becoming an “IRL” or in-real-life friend by coming to visit us. We are booked through October but would be thrilled to have you come for ski season!

Categories
Medical Preparedness

Day 630 and Sympathetic Nervous Response

One of the downsides of having any kind of medical bullshit is having to keep an eye on yourself. If you over do shit you’ve got no one to blame but yourself.

I’ve been doing a wilderness medical incident first responder course this week. I initially went into it slightly concerned with my ability to physically keep up given my ankylosis. I was easily the odd duck out in a group of former military folks, paramedics and wild land firefighters. If I’m honest I didn’t want to embarrass myself by showing too much frailty. I was already the only woman in the class. I didn’t need to be the cripple on top of that.

But over four days I’ve managed just fine. I did wound packing and splints. I did a number of incident scenario responses ranging from anaphylactic shock to heart attacks. I even did multiple mass casualty response drills. Today I managed one as a triage incident deputy and comported myself quite well.

I was feeling pretty cocky about how well I’d managed through the week. I was enjoying that sense of accomplishment right up until 5pm or so today when we had our last assignment of the day. We’d just finished up a drill with five patients who had been caught in a tornado. It was an hour of field work and triage outside. I was thinking alright maybe I’m getting the hang of thing. But no I was about to embarrass myself on one of the easiest tasks in the course.

It was time to pack up our own medical kits. We got a big baggie with all the supplies we could possibly need for our our first aid kits and dumped it out on the desk. Our instructor began going over all the items and how to pack them up into the bright orange brick that serves as your kit bag. I was doing my best to follow along but my brain was just not having it. I kept trying to figure out what items went where and how it was meant to go. And I was not remotely keeping up with the class or the instructions.

I’m starting to feel overheated and I’m struggling to concentrate. And it’s then I realize “oh shit I’m in a bunch of pain” and I realize I haven’t taken my pain medication for hours and it is starting to show. I just ran around in a big field doing triage for an hour. So I think to myself well I’m having a sympathetic nervous system spazz out. The pain and fatigue is sending me into fight or flight and I’m losing decent coordination and fine motor skills. I am becoming one of my own patients.

I didn’t finish packing out my kit. I had to excuse myself. I briefly considered if it would be funny to have a medical incident in a first responder course. But I was fully capable of treating my own acute stress response. I was getting worked up by an inflammatory response from my ankylosis and low and behold the pain in my spine was going to spike.

The end of the story is that I’m in bed and the non-steroidal anti-inflammatory drugs have kicked in. My pulse and respiration are fine. I’m no longer in fight or flight. And yes I’m a little embarrassed that packing a bag is what did me in. But on the other hand, that’s a very “Julie” way to learn a lesson.