Categories
Chronic Disease

Day 1466 and Bubbles

I feel as if I have bubbles in my joints. They move and grow and every change hurts so badly I can’t stop myself from crying.

I’ve put out a request for biohacking help as it doesn’t seem like my current routines (which have been stable enough for normal work) are doing the trick any longer.

It’s hard sometimes to tell the difference between pain itself and the fear of the pain not relenting when the pain becomes acute. I get scared that the ever increasing pain won’t be controllable.

I’ll riffle through NSAIDs, Tramadol, and the dreaded stronger options as I do box breathing and voo-hum breathes. I’m practiced at throwing my attention away from the pain but the physiological impact is the same even if my mind can distance itself.

Before I was first diagnosed with ankylosing spondylitis and psoriatic arthritis, I had doctors try to convince me it was all in my head. “Take an Ativan!” I’ve never quite lost the fear that I won’t be taken seriously as pain management is such a clusterfork in America.

Addicts abound and doctors are often skeptical and malicious. It can feel as if those of us with chronic pain from illness will never be able to get enough distance between our genuine needs and the “drug seeking” junkies in crisis on our streets. We get treated like criminals with suspicion while zombies on the streets find other ways.

I’ve never known the supposed euphoria of an opioid like OxyContin as for me the rare occasion where I take on feels more like a brief respite from horror. There is no joy or ebullience. Only a mind of normality of function and clarity of mind which I imagine normal life is like for most people.

Categories
Medical

Day 1465 and Biohacking Help Request

I’m having a bit of trouble with an autoimmune flare so I’ll keep the narrative but short.

Essays

Everything is About Sex. Femininity is About Power

Shopping

I am going to take a course with a Twitter mutual on building an AI life coach for myself. It’s an exercise in accountability for my playtime & learning.

Considering buying this Hooli vagus nerve stimulator.

Tweets

Geeks, Mops and Sociopaths in the Memetic Of Woke

Medical

I’m looking for my next step in my medical care. If you’ve been watching the blog over the last few years you’ve seen my struggles with chronic health issues and the work I do to be well enough to pursue my work.

But I’m at an impasse and I know we must have more solutions than what I’ve got. Looking for a doctor or research group that may have protocols or care capacity for the autoimmune buffet of nonsense that plagues so many. I have ankylosis & psoriatic arthritis, joint pain & anaphylactic allergy issues along with migraines.

I’ve worked with woo, lifestyle and nutrition changes, supplements, osteopathy, injections and IVs, longevity science & expensive biologics to pursue the functionality I have now to work. But I long to work the hours of my youth and I don’t believe science has progressed so little that arthritis and migraines should be so painful and exhausting. So please feel free to DM on Twitter with recommendations for clinics and physicians.

Categories
Emotional Work Internet Culture

Day 1460 and Review Process

I began my review of my “round up” for the year post today. I was going post by post dredging memories and taking notes by hand. I’m embarrassed to say it took me almost 7 weeks of post scrolling to realize I was going through 2023 and not 2024.

Now you might argue that I’m tired as it’s been a long year, but just how crazy do things got to be when time is so punctuated with “happenings” that it’s genuinely hard to remember even the most shocking of events?

How is it that wars, elections, and major technological breakthroughs are just the daily happenings? Can it be that this much travel is required to do business? How long have we been living through this acceleration in politics and technology?

I want the narrative through lines of life to be more comprehensible. It is however clear that we are in a roiling period of chaos and even as I may remain ahead of some aspects I’ll always experience a trend multiple times.

Things that were huge this year were trends last year and were mere subcultures the year before that. Such is how information propagates in a networked world. I’m not even fully saturated on my own thesis.

Categories
Chronic Disease Medical

Day 1456 and Altered Window of Immunity

You ever push yourself so hard (physically, emotionally, mentally) that you crash afterwards? This is a common human experience. It’s called an altered window of immunity. Over exert yourself and you get sick.

I’ve come to understand the Christmas Break period as my yearly window of altered immunity. One reason I like to fast during the Holy Nights is to bring down my own physical and emotional reactivity.

When basic functions feel stressful and even small involuntary processes like digestion feel inflammatory then the work of living feels toxic. At that point one hopes rest is enough to get it out of your system.

The human tendency to ignore small problems until they become big problems is surely part of a wider cycle of disease. We wait to rest and repair till it’s too late and find ourselves crashing. For everyone bobbing along on the waves of life be sure to take a deep breath before plunging back under. It just might save your life.

Categories
Aesthetics Culture

Day 1453 and Shopping Malls at Christmas

I partook in the time honored tradition of going to a mall before Christmas. My family was inconsistent in its treatment of the holiday when I was growing up and consumerism was not a value we celebrated.

And yet now I think it’s a wonder America has exported the triumph of the American consumer at its most intense and made Christmas shopping a mentality globally. Consumer debt is a marvelous when it’s priced in American dollars.

Our holidays are now times for displaying status and taste in so much of the world. I think it’s reasonable to say we’ve been post scarcity since the mass commercial fertilizer and it’s all been status signaling since then. We all live materially better lives. Arguments for the impoverishment of our souls are still quite valid.

Yet here I am buying stuff before Christmas. Nothing makes me feel more like a piece of the capital markets like buying consumer electronics at Christmas.

The prices are better only because we’ve been trained into a consistent purchasing pattern. We can predict consumer sentiment and meet those demands partially as a function of training the consumer when to shop. The propaganda of the markets.

So I get to enjoy the overstimulating existential horror that is the wall of televisions ready to be Christmas gifts. The high fidelity color and intense noise is an assault on the senses. No wonder reality is a disappointment. I’ve never seen so crisp a picture. It’s all just a bit too much.

Categories
Biohacking Chronic Disease

1452 and Bone Deep Weather

When the weather begins a shift to wet, cold or otherwise stormy, I feel it like some poor grandmother in a folktale.

My joints begin to ache, I feel swelling across my fascia and my ankylosis pain intensifies. Why do joints hurt when a storm system moves in? We’ve got a couple plausible explanations for all too common phenomena.

Barometric Pressure Changes: Before a rainstorm, barometric pressure (the weight of the air) typically drops. This decrease in external pressure can allow tissues surrounding the joints to expand.

Humidity and Inflammation: Rainy weather often brings high humidity, which may worsen inflammation in joints, particularly for those with conditions like arthritis.

Thanks to Perplexity the bone deep discomfort of a storm front becomes much easier to understand.

Cold conditions can stiffen joints by thickening the synovial fluid that lubricates them. Reduced blood circulation may also contribute. Changes in weather can make nerves more sensitive which amplifying pain signals.

The remedies for these changes are pretty basic. Stay warm, get your blood flowing with some light exercise, stay hydrated, stretch and take anti-inflammatory medications like NSAIDs to mitigate discomfort.

I asked Grok to draw me as a cyborg granny out in front of a storm

Prompted Grok to draw me as an arthritic cyborg granny in a rocking chair waiting and watching as a storm comes in.
Categories
Aesthetics Culture

Day 1448 and Overhead Lighting

A quibble I have with modern industrial living is the prevalence of overhead lighting. I know we have to tolerate the bright lights in public and institutional spaces for reasons of cost, efficiency and clarity but why on earth have we found it to be acceptable in the home?

I’m grateful our divas bring their significant cultural gravitas to this debate. Bless Mariah Carey for leading the charge on this assault on the senses. I’ll let her not terribly articulate quote from a podcast speak the truth.

”I can’t with the overhead lighting. Why do they do it to us?,” Carey, 55, said. “But overhead lighting I don’t think so honey. Please stop it!…Everywhere I go, shut the lights! I don’t want to see them no more. Overhead lighting, it makes me sick.”

I was delighted to read this synopsis of the overhead lighting hate debate in the Walk Street Journal. They quote a few psychologists and photographers who sum up the debate as diffuse lighting is more relaxing while cool focused lighting is better for concentration.

However it is relatively challenging to do cool focused lighting well. Yes it possible to do overhead track lighting in ways that bring focus and don’t overwhelm your senses. But it’s harder to do right.

You’d probably have to literally light Mariah Carey for a living to do it in a way that’s comfortable for someone with sensory issues. I developed migraines in my thirties and combined with my spectrum level sensitivity to noise, sound, taste and light I don’t need to push my luck. .

Given that us mere mortals without expert lighting design have to live comfortably, I fully stand by my preference for lamps and multiple light sources in my private spaces. It’s just going to be less of a headache. Literally.

If you light from overhead with bright cool tones bulbs so you can see the details I get it. I can’t fathom why I’d want that for anything but cooking, cleaning or sewing.

When the it’s time to relax and interact you are damn right I want a nice warm lamp. Now I’ve got double the lighting. No wonder the topic gives so many of us headaches.

Categories
Internet Culture Politics

Day 1447 and LARPing To Death

Do you know what LARP means? If so, do you remember when you first heard the term? Think back and recall the context of your first exposure to the term. I’ll give you a couple hints for history.

Maybe LARP was used to describe playing a tabletop game like Dungeons and Dragons. Perhaps you went to a Renaissance Fair and encountered the melees put on by Society for Creative Anachronism. If you remember Dagohir you are a real OG & also old.

LARP stands for live action role-playing. It originally involved fancy dress, maintaining character and strict but fantastical rule sets. Its not much different from what children call “make believe” except it’s done by adults who presumably understand the difference between fantasy and reality.

It’s likely if you are younger and extremely online, your first encounter with LARPing was less “gamers dressed up with swords” and more “anon pretending to be some type of identity” on a social media platform. Like based and woke, LARP is a term that has had a lot of semantic drift.

Increasingly it feels as if some of us aren’t sure what is shared consensus reality and what is fantasy anymore. We used to call that “crazy” but it’s so prevalent one has to wonder if whole categories of otherwise sane people have gone nuts. People become convinced of fantasy they have made in their identities and are acting out on them.

Even the FBI is concerned about the blurred lines between fantasy and reality in LARPing. In 2023 they discussed the potential threat of violent extremism emerging from LARPing

Violent extremists will extensively engage in confirmation bias prior to the implementation of their plan. However, in this context, it becomes confirmation violence, or the use of targeted violence to impose social and political beliefs onto others and, therefore, change their behavior — in a grandiose sense, perhaps even the course of history

I personally can’t think of a more chilling term than confirmation violence in the wake of the public reaction to the assassination of United Health Care insurance CEO Brian Thompson. We are now LARPing ourselves to death. A bit too “if you die in the Matrix you die in real life” vibes if you ask me.

Think about how we went from digital mobs to physical riots to the dangerous new trend of assassination as cancellation. Vaguely defined members of today’s outgroup are no longer merely targets of online criticism but actually targets of stochastic terrorism. This is leaderless, decentralized violence. No one person held up a hand to start it, and no one person can easily stop it.

Balaji on Decentralized Violence

As centralized authorities are going through significant challenges to their authority we are probably in for a lot more LARPing to death. I’d be prepared to see a lot more violence emerging from LARPers convinced of their own story’s moral superiority.

And I’d be careful about buying into anyone’s story as we adjust. If all the world is a stage but the characters have real weapon’s we are in for a world of hurt.

Categories
Politics

Day 1446 and Wrapping It Up

I’m running on fumes and would really like to say “fuck it” to both the year and my daily habits but as that’s not an option I’ll kvetch about it instead.

As optimistic as I am about 2025 (I know this isn’t a widely held view), I’ve never felt like I needed a break more than I do now.

Clearly I’m not alone. Germany’s Chancellor Scholz lost a no confidence vote setting the stage for snap elections. Canada’s Deputy Prime Minister Chrystia Freeland stepped down today further weakening Justin Trudeau’s government.

And that’s just today’s news. The world’s institutions are in a state of transition and regular people like me could use just a few weeks to catch our breath.

Remember when we had “two weeks to stop the spread?” Maybe we need that for whatever the heck is going on now. Two weeks to calm your tits?

There are plenty of people screaming for a pause in artificial intelligence but I think they have it all backwards. I’d like a pause in all the politics of the world and press on towards a future where we have more insight into the world. Accelerate the future but please let me have a break from the current moment just for a bit.

Categories
Travel

Day 1445 and Sprint

It’s rare that I need to make an all out physical effort. My competitive fitness days are long beyond me thanks to my ankylosis. Most of my exercise is focused on mobility, strength and low impact cardiovascular work.

Thanks to a confluence of chaotic travel issues I had to sprint a full 2 kilometers across an airport with a backpack and roller bag. Which is a little bit more of a full body high high impact workout than I would prefer to do with a red Whoop recovery.

I had 20 minutes to make a flight connection. The next available flight was 8 hours later so there was no way I was missing this connection. It wasn’t clear I had a shot with so little time to spare but I intended to try.

I haven’t sprinted so fast or so hard in ages. I had a 40lb backpack on my back, a winter coat and scarf along with my trusty Muji roller bag so picking up speed was hard but not impossible.

Imagine a 5’3” woman sprinting up airport stairs with roller bag on one arm and a backpack on her back yelling “pardon” and “excuse me” as I huffed my way through the terminals. Hilarious objectively I’d say.

I made it though. I got the flight. I was the last person on the airplane but I did it. Sweaty and disheveled, my paper ticket crumbling in my hand the gate agent congratulated me. “You made it with a minute to spare!”