Tag: Stress

Categories
Chronicle

Day 253 and Lady Troubles

Occasionally I find myself annoyed that women’s bodies are less studied than male bodies. You’d think we’d want to know more about the vessels that produce the heirs to make fortunes. Grumbling about mishandling property rights aside, I do wish we knew a little more about women’s health.

I get migraines when I menstruate. If that particular tidbit of information is too much for you well sorry but maybe it might be helpful if the basic biology of women’s bodies were a little further to the forefront of cultural consciousness. Women talk about it with each other which is why I’ve got a host of folklore on cramps, bloating, headaches, sore breast, and emotional rollercoasters.

I’m fairly lucky to have migraines. It’s marginally more pleasant than what my friends with heavy flows or bad cramps go through. And I say this just having vomited from the nausea that comes with my migraines.

And on that note I’m signing off as I only went on a tangent about the need for more effective study and treatment of women’s health as it’s the only thing I can think of to write about. And I committed to writing something every single day. So here I am writing through the migraine. I bet tomorrow will be more interesting. And I’d be thrilled if later in life we solve for the interplay between hormones and headaches so I never write about this topic again.

Categories
Emotional Work

Day 252 and Women on the Spectrum

I’ve always been an introvert, but this tends to surprise people as I socialize reasonably well. You wouldn’t guess that I find being around others overwhelming and exhausting. I asked on Twitter today if anyone else ever got sensory overload?

I’d accidentally stressed myself by combining an intense physical activity with an intellectually demanding one, forcing myself to process touch, sound, and audio. I received a lot of interesting replies back but one friend asked me gently if anyone had ever tested me for the autism spectrum.

I had not ever considered it. The typical struggles I associated with non-neurotypical spectrums weren’t ones I personally had. But he showed me a fascinating article on how women get missed in diagnosis as their patterns are quite different. What I thought of as autism is the dominant presentation in men. In women it shows up differently for many of them. Naturally it is less studied than in boys and men so we’ve got less scientific study to go on. But these presentations all match me. Do please keep in mind that I don’t know anything about the space, it’s politics, or what is or is not appropriate so go easy on me. I’m just noticing that these are patterns I see in myself.

  • Work very hard to “camouflage” her social confusion and/or anxiety through strategic imitation, by escaping into nature or fantasy, or by staying on the periphery of social activity.
  • Show different sides of her personality in different settings.
  • Be more prone to releasing her bottled up emotions at home through meltdowns.
  • Be exhausted from the work of deciphering social rules or of imitating those around her to hide her differences.
  • Be anxious in settings where she is asked to perform in social situations.

This is interesting enough to me that I’d like to explore further if I might be slightly on a spectrum. Perhaps the exhaustion I feel from socializing is more than simple introversion and should be treated as as something I can accommodate rather than admonish myself over.

I remember spending much of my life working hard to master and emulate social and class markers and behaviors. I didn’t find them confusing. If anything I made a study of it.

I became so good at social cues I would often get praised for it. But I often resented the energy these performances required. When I would express anger or frustration I’d be scolded, told I wasn’t a nice girl, or even told that I was a bad person for not wanting to spend time with people. As an adult I have the choice to use my energy and focus as I see fit.

Categories
Preparedness

Day 241 and Other People’s Disasters

Hurricane Ida made landfall in Louisiana today on the 16th anniversary of Hurricane Katrina. Watching disasters in other cities has the sad side effect of making me go through my emergency gear. After living through Hurricane Sandy in New York I felt it a civic obligation to be prepared for emergencies. Ready yourself so you can help others is my philosophy of prepping.

I spent the morning doing a complete overhaul of my go-bags pharmaceutical set up. It has been a while since I had rotated out some medications and I wanted to add in more drugs for situations where it might be some times before we could reach a hospital or medic. Worst case scenarios crossed my mind.

Disasters often get portrayed as these dramatic events but more often it’s just neighbors helping each other through a bad time. That means I stock a trauma kit along with shit like anti-diarrhea drugs and cortisone. More likely to be itchy and have an upset stomach than a trauma bleed so prepare for the basics first.

But I’ve had the basics down for a while. I’ve been prepping now for several years with increasing seriousness. So sometime this year I decided to prepare for worse. I thought it wise to have a stash of prescriptions for situations where doctors aren’t coming, maybe at all, including antibiotics, steroids, antihistamines, NSAIDs, caffeine, and an array of drugs that are, well, controlled substances and I swear I have legitimate prescriptions for all of them and am monitored by several physicians who work in coordination. But you know, the good stuff.

I say that as if it is remotely recreational to break a leg and require an opioids or be suffering from shock. If someone is having a panic attack because their world is coming down around them I think fuck it this is why it’s good to have an Ativan. No judgements.

Plastic baggies filled with medications.

Disaster hits a little different when you have a chronic disease. You have to think about scenarios where you are actually in the most vulnerable groups. That those worst case scenarios you see on TV could actually happen to you. Shit hitting the fan would actually mean your life if you didn’t prepare. And so I’ve scrapped together a small pharmacy over the past few years. I’ve rationed doses and asked for extra refills. I’ve squirreled away a dose here and there between insurance coverage and extra days. It’s actually quite hard to be able to have as many additional drugs as the CDC recommendation for an emergency. No seriously they suggest 7-10 days of extra medication. Can you imagine most Americans affording that? It’s a fucking slow moving American tragedy we are told how to survive but hobbled in being able to enact any of what the Fed suggest. It’s no wonder Americans don’t trust the government for anything.

The pandemic has solidified this sad truth for me. So I’ve learned new skills. I worry that it’s hard to rely on community when most communities are struggling already. It’s an impossible ask. And so we are forced into another circle of individualism and personal responsibility because really what other option can you imagine having. Because next time it won’t be some other persons disaster on the TV. Next time it might be yours.

Categories
Emotional Work Finance

Day 233 and 927 Hours of Therapy

I’m motivated by media. If I’m in a bad headspace I can take time to read a book or watch a tv and shake myself out of it with a few hours. I’m a voracious consumer of all forms of narrative, it’s how I synthesize.

You’d have to be a professional to keep track of more stories than I do just by sheer numbers alone. Maybe journalists, authors or publicists read more than me, but even then I’d bet real money I’m still top decile. I never lose a “Wait Wait Don’t Tell Me” news quiz.

I’m working though some emotions on risk, punishment, hurt, and fear this week. So I’ve been watching a favorite show on all those emotions: Billions. It’s a show about a hedge fund manager feuding with the US Attorney for the Southern District. It’s a terrific portrayal of finance culture and elite consumption. But it’s real strength is it’s portrayal of therapy. Emotional capacity is the key to coming out ahead in Billions.

While I don’t want to give any spoilers, the second season gives us a character named Taylor who is a prodigy. Not only are they intellectually brilliant but they understand who they are. I’m rewatching the show so I’m noticing details I didn’t process the first go around. Taylor says they have had 927 hours of therapy.

The impression I had on the show was that Taylor was in their twenties as they frame the introduction of the character around an internship and graduate school. I wish I had started on therapy in my twenties. Imagine having over three years of intensive emotional work before you’ve started your career. Honestly I’m envious. When I was in my early twenties I didn’t understand jack shit about my emotions.

Maybe by the time I get 927 hours of therapy I’ll recognize my own traumas and motivations as well as Taylor. I’m getting up there in hours and I am admittedly sinking a lot more into understanding what motivates me now than I ever did when younger. It’s not exactly linear progress. Feelings aren’t facts. That makes it a lot harder to lock down what will or won’t work for you. But I’d rather be finding out who I am now. Some people never do. But still I wish I’d had the good sense to invest 927 hours into therapy when I was Taylor’s age.

Categories
Emotional Work

Day 231 and Afraid of Feeling Fear

Being sick has left me with some scars that I am working through. Currently I’m afraid of pushing myself to my limits. I don’t know it for a fact but I fear some of the severity of my illness was tied to the overwork that is required when working in startup life. So now I’m afraid of overdoing things physically. I’m struggling to even set the boundaries of what 50% capacity would look like.

This isn’t the first time I’ve struggled with the question of my capacity. I’ve been a fan of what I call the “Gattaca” method since I was a child. “Never save anything for the swim back.” But now having experienced the worst case scenario of being unable to work for two years I’m gun shy. That common knowledge says failure “is never as bad as you imagine” is bullshit. Losing two years of my life was fucking awful. What if next time I give my all and I lose more than two years? I’m running myself in circles with this fear without any indication that it will become reality.

When I was a teenager I rode horses. I liked cross country eventing where you jump over obstacles on an open field. It’s a bit dangerous. That’s how Christopher Reeves got hurt. I had plenty of spills but it never really upset me. I always got back on the horse. I wanted to become more competitive so bought a thoroughbred who was being retrained from being a racehorse. I thought I was a talented enough rider for the job. I wasn’t.

He was a high strung panicky creature and threw me into a wall. I cracked my helmet, blacked out briefly and was diagnosed with a concussion the next day. Despite the severity of the fall, I got back on the horse immediately. I was afraid of being scared. So I pushed through.

Turns out I should have just felt the fear. I should have gone to the doctor, allowed myself to recover and not pushed through it. I never fully recovered my nerve about that concussion. I just slowly circled the drain emotionally and my fear won over my enthusiasm for rising. I never went back to competing in eventing. Instead of working through my fear I chose to ignore it. That turned out to be a sure fire way to let fear win in the end.

I don’t want to be afraid of being scared. I want to embrace my feelings and their origins. I want to come to terms with them. Because unlike horseback riding, I intend to keep working.

Categories
Emotional Work

Day 228 and Recurring Nightmares

Chances are you have some kind of recurring nightmare that your subconscious tosses up for processing regularly. Some blend of math tests or being naked at a big meeting seems pretty popular. I used to regularly have a dream where I was told I wouldn’t graduate from university as I had forgotten to take some core requirement. But by far the most consistent and upsetting nightmare I have is packing.

I moved a lot as a child. A fun (sad) fact about me is I changed schools every two years for my entire tenure as a student. These moves were generally coupled with moving homes while some just were just me moving by myself. I did first and second grade in Orange County in California, 3rd and 4th in Sacramento, 5th and 6th in Niwot Colorado, 7th grade I was homeschooled (somewhere in there my parents got divorced so my mom and I moved out), 8th was a prep school outside of Boulder, 9th grade was boarding school in Connecticut, 10th was half at prep school and half in France, 11th grade I dropped out and took classes in Manhattan, then for 12th I was back to Colorado and remote classes and prep school. The first and only time I had a consistent schooling experience was at University of Chicago. I did it in three and a half years to save money.

Just writing it out makes me anxious and sad. I wish I could condense it for purposes of the narrative. It feels too long reading it over. It wasn’t just moving schools and houses. It’s actually worse than I’m letting on. My father loves travel. I was put on an airplane at six weeks old for a flight to Hawaii. Many of my childhood memories are of airplanes and cruise ships and motor homes. You name a form of traveling and we did it. We were always going somewhere. I fucking hated it.

Now as an an adult I loathe packing. It brings back all my childhood memories of never feeling stable. Boxes and suitcases take me back. And I don’t just dislike it, I loathe it so much I dedicated several years of my life to making it more convenient to carry your cosmetics with you. I called the line Stowaway. It was all travel sized. I hate packing so much I went to years of trouble to make one core routine easier to take with you. I wanted one thing about travel to be less scary. Less overwhelming. One less thing you leave behind. Childhood trauma sticks.

Maybe only people who love travel should try to improve the experience. Working from a place of childhood trauma is often the road to riches. I guess it worked out fine for me. But I don’t have the fondness for travel that many millennials of my generation have. I only have nightmares. Maybe if I had realized that before I started it would have gone better.

A common theme in my recurring nightmare is trying to find all the basics I will need for some trip. I’ll be searching for underwear or prescription medication. As the dream unfolds I’ll find a key item only to have it disappear. There is always a countdown. Some reminder that a flight is taking off soon. But it’s usually much more dramatic than that. It’s often some kind of unspoken crisis. I won’t remember it when I wake up. Maybe it’s apocalyptic. But it’s rarely a go bag or a bug out situation in my nightmares. It’s just a suitcase or a box or a bag never being filled up.

I never leave on the trip. The dream never lets me finish packing. I guess my unconscious hasn’t figured out how to proceed that it wasn’t the packing that scared me, it was leaving behind the life that I thought was safe. Maybe I’ll get there eventually. I don’t want to be stuck in a nightmare, packing up my life, being afraid of being dragged someplace I don’t want to go.

Categories
Chronic Disease

Day 224 and Wanting a Break

I don’t want to write today. I feel foggy, unfocused and anxious. I had to have a medical procedure last week whose preparation was destabilizing. I felt pretty good coming out of it but a few days on I guess recovery has its own logic.

I don’t want to feel like this. In order to have the procedure done we had to remove me from all of my medications. Not normally something you do unless you have no other choice. Which in the end I didn’t feel I had. And I’m struggling. Modern medicine works pretty well. Some of science is neat.

I don’t want to be writing about any of it though. I’m scared, tired, sad and angry about all of it. I want to be alone. But my mind is so fatigued I cannot come up with any other topics. I tried to focus on fun things like the PR DAO I’m working on and some investments I’m excited about.

But I just can’t seem to make sense without a lot of energy and focus. And the doctors would prefer I keep the energy for my recovery.

So I’m stuck writing baleful takes about sleeping and migraines. I’d rather crawl into a hole and lick my wounds in private but I promised myself I’d write every single day.

And it seems I’m unable to write anything remotely intellectual. It’s all emotions and physical ailments. No wonder I’ve been watching so many BBC period dramas. Their leading ladies seem so relatable at the moment. Which is why I’m stuck writing about life as if I were some talentless version of Virginia Woolf. I’m incapable of writing about anything else but the consuming nature of feeling like shit. Write what you know is all fine and well until the thing you know most intimately is physical frailty.

On the bright side I did learn today that Herman Melville and I share the same diagnosis; ankylosing spondylitis.

Herman Melville endured chronic pains in his joints, back and eyes, symptoms consistent with ankylosing spondylitis, an autoimmune disease.

Maybe pain relief was his white whale too. Of course, he didn’t have the benefit of biologic injections like IL inhibitors. Maybe that’s why he wrote the great American novel and I’ve got a daily writing habit. I know glorifying and romanticizing suffering is a habit I’ve got to kick.

Categories
Chronic Disease

Day 223 and Actually OOO

I’ve got a nightmare of a migraine. Ironic that I should right at such length about being available or out of office yesterday only to find myself utterly incapable of being pretending today that I am available. If you want a better essay of the day then I’d click out to yesterday’s as the rest is just an exercise in willpower not quality.

If you’ve never had a migraine consider yourself lucky. I’m prone to about one a month and I’ll let you use your imagination as to why they are so regular on a monthly cadence

For this particular migraine the light and noise sensitivity are debilitating but today it’s the nausea that’s the worst. Somehow the pain and tension can be so bad you literally cannot imagine tolerance for food or smells. I’m struggling to drink water.

I can’t really fathom how I’ll have enough to say to qualify for “write every day” but here I am with the CMS open and typing out sentences that appear to be coherent. I suppose three paragraph with a few links, a title and the proper tagging qualify as showing up for the day. Every day I write. Every day some small creation. Even though at the moment I’m trying to work myself up to the idea of eating some rice in the hopes that I’ll be able to take some medication and settle my stomach. Good enough.

Categories
Emotional Work Internet Culture

Day 222 and OOO

I’m out of the office. I’m OOO. I’m not available. I’m off the grid. I’m on vacation. I’m on leave. I’m out sick. I’m out for family.

Whatever your reasons, the idea of being unavailable, actually being unavailable is increasingly at odds with reality. It’s rude to not be available. People notice if you are on social media dicking around after all. And I’m always fucking off on Twitter. And that means I am default available right?

I have an app that allows people book time with me without the hassle of checking in called Calendly. The theory is you maintain times you are available and you avoid a bunch of back and forth. The reality is I don’t maintain it. Virtually no one ever uses it except a couple close business partners. Because of that lack of integration into my workflow, the app is rarely ever booked unavailable. I don’t really use it or maintain it but a few folks have the link and being polite and nice, they try to use it rather than bother me asking if I’m around. Then it’s a comical back and forth of me explaining that no I again forgot to alert the app I wasn’t available. Again. Exactly the sort of interaction the app is supposed to help you avoid. It’s fucking embarrassing and it’s happened a half dozen times.

This happened again this week when I had explicitly intended to take off all of it as I’m recovering from a medical procedure. My brain is a bit foggy and I forgot to ask my husband, who more often than not is forced into managing my ineptitude with logistics, to make sure the damn app knew I wasn’t available. He’s got an elaborate system of multiple calendar applications that all talk to each other and sync up and if I just put “OOO” into one of them then all the apps would know. I’m too stupid to actually manage any of it. I figured eventually I’d hire an administrative assistant I deal with it when my schedule became more complex. But it isn’t that complex yet and I didn’t think to block the calendar after my procedure. Which makes me feel like an idiot. Why is it so hard for me to manage a damn calendar?

And such is my emotional block with being unavailable that I am literally writing a post about it rather than simply deleting the app entirely and texting my friend and partner back that I’ve fucked up again and the app was incorrect. Again.

Maybe it’s because I really want to be the kind of person who is available. That I’m the sort of person who is consistent and has routines that can be relied upon and thus has calendars which reflect the reality of my availability. That I am the kind of person who manages their application layer, personal data and thus has promptly corrected for any changes that may have occurred to my routines and seen to it that it percolates into the operating system of my life. Maybe this is why I’m obsessed with manners and class this week. It’s just a Freudian unconscious embarrassment that I’m bad at manage a calendar.

Alas it doesn’t really matter. I’m not the sort of person with a calendar. I’m the sort of person who will write a thousand words about the culture of availability, the way we mediate we our time and attention with technical applications, and my own emotional relationship to the acronym “OOO” rather than text back “actually I’m out this week!”

I’m counting on this being amusing rather than irritating in this particular instance as despite it seeming like I’m around and available, I’m actually extremely out this week and depending on my recover the next two. I hope it will be funny when I tag them on Twitter and share this post. Because it’s actually extremely embarrassing for me.

Categories
Chronic Disease

Day 221 and Somnambulance

Around 1pm today I was overcome by a kind of drowsiness. I couldn’t seem to shake the feeling so I lay down. For the past 5 hours or so I’ve been in a not quite waking not quite sleeping state. I wasn’t dreaming but I couldn’t force wakefulness on myself either.

I had to crawl my way into just enough consciousness to call and text my therapist to let her know I wouldn’t make my session or group therapy. Had I not seen proof I left a message when I woke up I would not have been surprised to learn that I had been somnambulant texting. I barely recall managing the effort.

I had a medical procedure a few days ago so I am likely still recovering from the stress my body endured. But I’ve felt reasonably energetic. I was entirely unprepared to fall into a liminal state between consciousness and sleeping for most of my day. I could tell I wasn’t fully awake but I couldn’t quite tell if I was asleep.

I kept trying to force wakefulness upon myself only to find my mind falling further away from the effort. It felt like some horror movie effort where a character has been put under but is still aware of what is happening to them. I didn’t love it. But clearly I needed the sleep. I was just barely able to get myself up to take my evening medications. Certainly wasn’t what I was expecting out of my Monday but so it goes.