Category: Chronicle

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Chronic Disease Chronicle

Day 47 and Unraveling

The saga of the specialty doctor continued this morning. To recap quickly my doctor wants me to see a specialist for an urgent medication but the clinic didn’t have any appointments till mid April. So I said I’d take any cancellations. Apparently this guy is in such demand a 23 minute lag time has me missing out on a canceled appointment. So carrying on, I got a call at 8am from a Denver number. “This is the clinic we have a cancellation at 11am can you make it in?” This time I’m smart enough to say yes immediately. I hadn’t rebooked my calendar so I was available.

I spent the morning organizing supplement and pharmacy charts, brought in my biomarkers and a list of tests. I worked myself into a small frenzy coordinating with my doctor on what information and part of my medical history needed to be brought up in the short appointment as my case is complex. No need to bring up unnecessary or extraneous detours. I could feel myself unraveling. I took an Ativan after throwing a pile of books off a chair in a fit of frustration to get a better angle at the laptop. It was at that point I realized I might have some medical trauma spooling out.

I say this not to insinuate I have unchecked anxiety or am concerned about my mental health but to say that even the most stoic can quickly find themselves unraveling in the Kafka logic of our medical industrial complex. The people tasked with healing us are burdened by a system that is poorly suited to anything that can’t be solved with acute care. Break a bone or need emergency care and you can’t go wrong with western medicine. Add any additional complexity to their already onerous system and you may wish you had a broken bone instead. Finding a way to through the maze requires willpower and focus just when you are at your weakest.

Add in a dose of chronic care and health quickly becomes a discussion of just how much better to you expect your life to be. Maybe this is as good as it gets. You ask yourself why do I bring trauma into my life? Why bring on the stress of yet another specialist when it may get you just another dead end. Even with a good diagnosis, and an excellent doctor pain, exhaustion, and other “irritating” but but not life threatening symptoms get to be things you start to accept. You live with debilitating issues because getting good care can sometimes be worse for your health than living with it.

Except I’m not good at taking no for an answer. I don’t stop just because a hurdle or even a panic attack gets thrown in my way. I keep plugging away. I’m what you might call resilient. Still I know medical systems have become places I associate with trauma. But I keep at it.

This is how I’ve become someone that swipes my credit card for $900 in supplements and no longer turns my nose up at esoteric and unproven treatments like cold therapy or electromagnetic pulses. I want to be 90% better not just “can get out of bed” better. I can work 5-6 hours a day now. I want to get back to 10-12. Even though I know my half day is more productive than most people’s whole days. Because I just don’t accept that what I’ve got is good enough. Even when the search for health unravels me. Because progress is something that you work at every day. Even with the setbacks. Especially because of the setbacks.

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Aesthetics Chronicle Politics

Day 45 & Noblese Oblige

“With great power comes great responsibility” is a comic book classic known as the Peter Parker principle. If you are bestowed with gifts, you must gift them back to your community. Noblese Obliege or “nobility obliges” suggests that nobility comes with a responsibility to fulfill obligations to the people who guarantee your status.

This sounds like a social good, and sure it anchors all the great heroic narratives of our modern age, but it appears to be unraveling in modernity. It used to be that we believed the morally good are the ones with gifts, if you weren’t wealthy it was because you didn’t deserve it. It was a bit of a religious and heroic tautology. But it worked! The nobles and the superheroes felt an obligation to their subjects insofar as publicly demonstrating their inherent goodness was crucial to demonstrating their nobility.

A key component of noblese oblige was showing off moral worth by giving to the people without the insistence that the people be inherently good. The people didn’t need to be worthy to get anything. Being worthy was the job of the nobility not the peasants. Which meant that all gifts from nobility to peasants were inherently gratuitous. No one deserves to be given gifts. Gifts were bestowed at random and in significant largess.

I’d suggest the reason our institutional trust is breaking down is not because we are wising up to inequality, but because the narrative arc of nobility living up to its responsibilities have broken down. America’s first robber baron class understood this with their grand social gifts of libraries, parks and endowments. Some of our Billionaires still do. But we no longer feel the gifts match the obligations. No matter how much this new nobility gifts, the rabble is still pissed.

Maybe it’s the insistence on making charity go to worthy causes. Or welfare go to people that deserve it. That is ass backwards. The nobility are supposed to be good. The peons with outstretched arms never had any worth to begin with. If they did then they would definitionally be noblese oblige too. You can’t ask everyone in the system to be good, moral, and true. That’s fucking exhausting. Even Christianity got that sin was so encompassing that literally only God could be expected to be without it. Probably why we used to let nobility get away with bad behavior. That is fine as long as they did their part. The prodigal son got shit without deserving it. That was the moral of the story.

The trouble with a time that has broken with historical arcs of goodness is that now no one is nobility or peasantry. No one is noble or good. Which means nobody deserves anything they get. Which is about as close to the war of all against all as I can imagine. Hobbes would be pleased.

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Aesthetics Chronicle Media

Day 43 and The Freeze

I’ve been watching the television adaption of Snowpiercer. So I’m delighted to have the polar vortex collapse that is chilling most of American dovetail so well with my current media aesthetics. I’ve always loved the cold.

Colorado has been in the single digits all day and will be below freezing for the weekend. I had to drive out to a doctor’s office for some treatments and was terrified I’d slip off the road at every intersection. As the sun slipped behind the flatirons a gloomy grey quickly turned into a pitch back snowstorm.

The aesthetics of disaster and apocalypse generally lean more towards heat and explosions but the subgenre of extreme cold holds our attention. Day After to Tomorrow, Snowpiercer, The Revenant, The Thing, The Grey and many other freezing fear movies capture an aesthetic.

The natural fear of cold isn’t just about freezing to death. Much of the claustrophobic feeling of cold crisis movies comes from isolation, loneliness and it’s resulting paranoia. It’s why the genre does so well when mixed with horror or action. Game of Thrones regularly intoned the threat of winter.

Freezes typically operate on bleak but wide open spaces like arctic tundra or within the confines of a station or refuge that quickly closes in on its people. Scenes of mayhem and violence come out of close quarters that are supposed to guard you from the even more fearsome freeze right outside your door.

All of this conditioning from film and television makes a weather condition like a polar vortex collapse take on a bit of an edge. I indulged in my pre-storm prepping shopping to make sure we has enough beef for stew and chickens for roasting. But that’s partially ritual. A sacrifice to the gods that says I am worthy to survive the bitter cold that is coming. It’s almost superstitious. But it’s also joyful. Humanity against the odds of Mother Nature. We’ve developed rituals and technology to live in the worst conditions.

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Chronicle Internet Culture

Day 42 & Audio Engagement

When a new social media application hits the J curve, it’s the most exciting feeling in the world. The magic of network effects kicking in to make each day on the app more valuable than the next for its users.

It’s also stressful as hell for teams because everyone is watching and has opinions. So I feel a little bad that today I’m going to talk about live audio talk radio app Clubhouse, but it’s on my mind and I made a commitment to myself to hit publish every single day, so here I am.

First some disclaimers. I didn’t join the beta in the spring because early users do the bulk of culture building and I didn’t think I had it in me. Several female friends of mine had negative experiences and I didn’t want to be on clean up duty. Toxicity compounds and I get plenty of it having significant visibility on Twitter. I’ve been doxxed, stalked, harassed (my favorite story is about Glamour Magazine’s attempt to do a crowd sourced Dos and Don’t section), and canceled by Gawker. So I’m inclined to steer clear of being an early adopter these days as I don’t have the emotional bandwidth to build positive communities that I’m not getting paid to build. This is not a commentary on whether I think Clubhouse is a good or bad place so much as a personal preference I have.

So I’ve only been on Clubhouse since it hit exponential. That means most of my feedback reflects the experience of the app hitting popular consciousness and not it’s early Silicon Valley FOMO insider days.

Audio is a wonderful medium that carries emotional depth. It connects you more intimately and is exceptional at narrative. It’s also much slower as an informational conveyer than writing and an attention resource consumption hog when you pay attention (some people like background noise, I personally do not). These two factors are the driving tension in the Clubhouse product. You feel connected listening to other humans, but your attention quickly lags as your brain works faster than the content.

Unlike in photo feeds, or a mixture of image and written content, you cannot scroll out of a lull. And unlike in precorded podcasts you cannot play it at 2x speed or rewind for something you missed. So you get stuck in boring rooms in Clubhouse but feel bad that other nice humans bores you. People are on a stage in Clubhouse “rooms” so you tune out, as unless you jump on stage there is no way to improve the engagement. And in large rooms you aren’t getting on stage.

But you shouldn’t feel bad that you’re bored because it actually is usually pretty boring in Clubhouse. People don’t naturally talk in consistently engaging ways without significant production and preparation. No one is always concise and engaging. Literally being “interesting” means to hold interest. And no one, not even A list actors or television hosts, are interesting all the time. Even though they have entire teams dedicated to making it seem like they are.

So what does this mean?

First, Clubhouse is going to need to elevate influencers that have experience in the kind of production work that works in audio. That probably means talking product cues from talk radio like call screening, cueing the audience what is coming next, having prepared topics and set time frames and giving audio stitchers to drive attention. TikTok is the gold standard in narrative tool enabling creation and might be a good source for product inspiration on what tools to give those on stage.

Clubhouse is also going to need to decide if they want to be more conversation driven. A stage and an audience naturally begets status anxiety and a one-to-many dynamic. But that means you can’t drive the same massive numbers as a one-to-one or many-to-many social space. Maybe they will be content to have a smaller influencer driven creative pool that brings in audiences but they will be forced to adapt their tools to that reality. In that way it looks more like Spotify. People use Spotify because the talent is there and it happens to have some social feature. I believe Clubhouse could pull this off as it certainly has the money for it and there is clearly an appetite for produced audio. Rush Limbaugh is a very rich and influential man (disclaimer I worked at 77WABC as an EA and did stints on his show) and there is room for more types of voices.

I’d personally prefer a conversational platform as a user. I was a rabid fan of the first iteration of Anchor before it became a podcast product. It was call and response “voice messages” initially. It was enormous fun to talk into the ether and get messages back. I still talk to friends that I made on it. To call back to my opener, it was a magical time as the app grew quickly around a massive influx. They eventually pivoted and sold to Spotify for what was clearly a better business, but I look back on those few months as some of the best time I’ve ever spent on social media. The magic of asynchronous audio messages made me feel in control as a user. There something I don’t feel I have yet on Clubhouse which has given me a sense of being overstimulated and even anxious. Timing choice is a significant part of social media scale for users as not everyone can be extremely online.

Clubhouse’s product choices in the next few months will determine how long they can keep that magic going and for how many people. Their team has captured something special for a lot of people and and they some of the best institutional backing in venture capital. I’d personally love if they went in a more conversational less status audience driven direction. But it’s not my startup so all I can do is comment from the sidelines and wish them the best.

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Chronic Disease Chronicle

Day 40 and Forgetting

When I first committed to writing “something” every single day I didn’t have a lot on my schedule. I was busy with routines for my recovery (I’ve been busting my ass to overcome an autoimmune issue that presents in my spine) but most of those obligations didn’t require coordination with anyone but myself and my doctors. It can be a full time job between medicines, supplements, treatments, testing, and insurance. But it wasn’t hard for me to find time to write something. Hasn’t always been polished but I’ve always got “something” out the door.

Today is the first day since that commitment to write pushed up against a building set of obligations to other people and projects. My medical stuff felt easy and part of a natural routine. And I didn’t take any downtown for recovery between obligations. I used to buffer my obligations with naps or even whole days of rest. Increasingly I have the capacity to do big blocks without any breaks. Which is how I find myself at 9pm without having set out a quiet block to write my thoughts.

I cannot tell you how exciting it is to have a productive day of work and healthy habits and find myself thinking well huh 15 hours have gone by since I woke up and yet I found no time to write? I look back and see no there really wasn’t an hour or two where I was in bed on my phone. That’s a first for me in quite sometime. I don’t feel exhausted or depleted. I feel if anything pleasantly energetic. Like I need to begin my bedtime routine to let myself come down. And I cannot wait to pick back up what I didn’t accomplish today first thing in the morning.

My human capacity to forget is kicking in. I’m forgetting what it was like to be unable to walk. I’m forgetting what it was like to be in so much pain I couldn’t think clearly. I’m forgetting the soul crushing exhaustion that took all but the most basic activities from me. I wouldn’t mind forgetting the bad parts to be honest. If I could just remember the emotional depths and new strengths I discovered I’d be pleased. I’m sure I’ll have a flare soon and become newly intimate with the ways pain overtakes all life. But I enjoyed forgetting it today. And maybe if I’m lucky I’ll have more time to keep forgetting.

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Chronicle Finance Internet Culture

Day 39 and Trustlessness

It may come as a bit of a surprise to people that know me that I find Bitcoin to be a little boring. Finance and decentralization are extremely exciting to me so you’d think I’d be into our standard bearer currency. It’s deeply cool and I’m HODL but it’s not the most fascinating intellectual problem that blockchain can unlock. The possibilities around ditching trust are what make the space.

Some of us don’t don’t trust the dollar. That primes decentralized finance for broader user adoption. as the dollar gets printed. Add in many governments, from India to Nigeria, pushing currency controls and bans, and the political desire for forgoing “trusted” central grows. It’s going to be a fun time as financial products and services get built out just as politics comes for crypto.

Culturally more Americans are sick of relying on trust. A chaotic year building on top of historic institutional meltdowns makes the need for trusted third parties significantly less appealing across all institutions. As a woman I’m excited to be less bound by bias and social expectations. We won’t need to fixate on gender or identity as old trust paradigms of who or what is risky fall away. It simply won’t matter. Decentralization frees us from old white men as being the most trustworthy. Excellence that is validated not by a third party institution but by verifiable information frees us all.

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Chronicle Politics

Day 38 and Better Fear Than Anger

Culturally in America we’ve lost touch with the value of fear. Which is a shame as fear is a root emotion (along with sadness and happiness). We’ve became enchanted by anger instead. But anger is not a root fear. Anger is the steam rising off of fear. Cultivate, explore and release your anger and underneath you will find the fear that drives the issue.

We’ve decided we don’t like fear though. We’ve perverted it into a weakness. Especially during the pandemic. Anger on the other hand as won cultural acclaim in America. We use phrases like “right to be angry” and “righteous anger” rather than exhuming a deeper truth that will be more revealing. Fear is good though. It cuts deep. Fear shows us the child that lives in our innermost self, revealing the terrors and traumas children feel from being powerless, abandoned, and small.

Even as we cultivate strong bodies and swift minds as adults, the child who was betrayed by the accidental lapses by our parents remains inside of us. In psychology they call that the inner child. Perhaps your inner child is angry. Mine often feels anger. But at her heart the child is just scared. But rather than answer the questions raised by our fear and overcome it, we are seduced by the power of the anger steaming on top. We cultivate heroics to nurture the anger. Americans craft elaborate myths about the heroic value of anger.

I’m not suggesting you are not angry. Or that your anger has no place. Nor am I invalidating the source of your anger. I am however asking us all to dig deeper. Learn why you are angry. Then go deeper. Find the fear of the child that is inside you.

My fear? That I’ll be abandoned by my people during this pandemic. Just like I was abandoned as a child. I got angry seeing the choices people made. But underneath it was simply the fear that repeated a childhood trauma that I wasn’t important enough for anyone to save me. Knowing that helps me save myself. I take responsibility for my own fear. I can use it as an edge if others don’t work on their anger. But I’d rather we as a nation work through our shit instead.

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Chronicle

Day 37 and Boundaries

I recently did a Twitter poll where I asked folks what they used to develop their emotional capacity. I listed therapy, meditation/mindfulness, coaching and “nothing” as the options. A full third of respondents choose nothing.

This really took me by surprise as much of my follower base is made up of folks in the technology industry along with significant business and finance types. Most have Silicon Valley mindsets tend to prioritize hobbies like biohacking and performance. Having insight into your mental and emotional state has become a burgeoning part of the quantified self movement. So finding out that a large number of people don’t invest in their mindset was, to quote Geoff Lewis, a narrative violation. I really thought we were all committed to parenting our inner children along with our Wim-Hoff breathing, weight lifting and protein eating.

But maybe I shouldn’t find this odd. It’s much easier and certainly more linear to put gains on your squat and cut your fat mass to show your abdominal muscles. The math on that can be done on apps and coaches can help along your progress. It’s trackable. Clear metrics for success exist. OKRs for your body. But learning to let go of self limiting beliefs, check your desire to self victimize, or refrain from vomiting your emotions all over your friends is less quantifiable.

Still you can track your meditation minutes in Calm or your time with a professional coach which your venture fund offers with their new fangled mental health benefits. So why is it that a third of people happily clicked that they were fine not doing anything for their emotions?

I suspect it has something to do with the challenge of knowing yourself and that knowledge necessitates drawing new boundaries. The further one gets in a journey of emotional and mental health the more one has to let go of habits and people that undermine us. Sometimes it can even mean giving up all the things we thought made up our life. Such is the high price of happiness. People may reasonably make the calculation that it’s too high a cost. That being unhappy isn’t so bad. That boundaries are too expensive for someone like them. So they tolerate what they’ve always known as the unknowns of pursuing happiness is too much.

It’s quite likely I’m overthinking this one as I’m currently reminding myself of the value of boundaries in my own life. Perhaps it’s as simple as being a fish in water. If you don’t know the water is there why question it? A third of people may have never considered the benefits of questioning their existing beliefs and emotions. Which saddens me a little. But also reminds me that investment in emotional growth is a significant edge.

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Chronic Disease Chronicle Politics

Day 36 and Responsibility For Yourself

As a libertarian, personal responsibility is a foundational philosophy. Owning your decisions and their impacts on others is crucial for freedom. It’s also an impossible standard at which we fail daily.

Humans are selfish and fallible creatures, prone to rationalization and justification. We tell ourselves stories about our innate goodness in order to shield ourselves from the pain of our sins. We believe our own lies first.

This has been particularly apparent to me, once again, during the pandemic, as I’ve watched family members make choices over and over again that show how much they need me to forgive their sins. As if I was their own personal Jesus and not their daughter or sister. Ready to tell them that leisure travel is fine because well they are probably being safe and oh sure winter is just so hard. Mental health is just such a struggle isn’t it?

I’m no messiah. I am not here to take your sins and wash them away. I’m just as much a sinner as you. And I’m certainly not the best person to ask forgiveness of when it comes to the health of others. I’m the personification of how your decisions actually affect real people.

You know our little stories about how “the sick and elderly should stay home and keep themselves safe because…list of rational reasons.” We’ve turned it into an entire political stance. We’ve built it into a moral edifice. When it’s just a lie we need to feel better about our sins to survive.

And so I stay at home. I don’t interact with other people. I see my husband and my doctors. Because I know I’m responsible for my own life and my own health and nobody else will be. I’m not asking others to be responsible for me that haven’t actively chosen this as their life path (with thanks to my husband and mother who did).

But I am asking my other family members be emotionally truthful with me. I’m asking them to admit to themselves and to me that their pleasures are more important to them my quality of life. That by taking a trip to a far away beach that they perceive as safe for them, they add to the aggregate set of decisions on a collective level that forces me to stay at home. That those decisions will keep me at home alone cut off from normal activities for longer. Basic life.

If you engage in those choices, admit the truth to yourself. And admit it to me. That your enjoyment of life is more important than me living mine safely. To not do so is to lie to yourself and to me. I can accept your choice. I cannot accept your lie.

I’m shouldering the sum total of all the bad decisions and little sins of everyone else who either can’t or won’t take responsibility for the impact that their own choices add up to at the societal level. It makes me angry, I’m a libertarian not an ubermenschen. I don’t want to carry responsibility for everyone else. If I was I’d probably have different politics. I’m only responsible for myself. So stop asking me to accept responsibility for yours.

Categories
Chronic Disease Chronicle

Day 35 and Workflows

For someone that thrives in chaos I hate change. Once I have a workflow for an application or device I dig in hard. Part of this is because I have shockingly poor user experience intuition. It takes me longer than average to learn to use even the most simple applications. But part of it is how I learn. I dive in deep to master a new skill and then jealousy horde the knowledge out of fear that someone will change a design or form factor to the point where my muscle memory cannot be relied upon. That would mean a complete reset of my capabilities requiring a day of learning. That’s mental overhead and the stress of doing my work poorly while I learn. I bring this all up being I got a new phone.

My old one was getting sluggish and my husband loves buying gadgets so a new one appeared after I had merely whispered that my old device may not be long for this world. The new one is sleek and fast and lovely but it’s significantly bigger than its predecessor.

And even an inch requires me to completely relearn muscle memory for how to hold the phone, how fast I can type, and where the apps do or do not bleed out the edge. I kid you not when I say two days into using it I’ve already developed a callus on my pinky from holding it up vertically while thumb typing. I hope my pinky hardens over fast as damn this phone is heavy.

This frustrates me as I spend my day on my phone and have a significant amount of my workflow baked into mobile apps (I’m writing this in WordPress’s excellent iOS mobile app) as my spine gives me trouble if I spend all day in even the nicest office chair. So I type a lot while lying down with the phone over my face. You can see how I might get a pressure callus from this nonsense now as the grip I’ve developed relies heavily on the right pinky to hold up the device. This worked well on a lighter shorter device. Not so much here.

I know I’ll adjust in a few days but the minor irritation that comes from having a workflow be disrupted has its cascade effects. It does just enough to knock you off kilter that it can sour a mood or inhibit creativity. I’m sure there are lessons in here for how app onboarding and product sales can be managed to ease stress or buy in for consumers. But for me it’s probably just a minor callus and an extra Ativan. And a bit of writers block as I get frustrated with just how uncomfortable my hands feel with something new.