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Chronic Disease Chronicle

Day 106 and Perceptual Drift

I often find it easier to talk about the darker parts of my journey from chronic disease once I’m already through the worst of it. If you are hearing about my long dark night of the soul it’s probably because I can see dawn breaking.

Maybe it’s because it’s hard to discuss the challenges when you are in the thick of them. Having any amount of perspective when life is at its worst is a skill reserved for religious scholars and internet advice gurus. The rest of us just try for hindsight being 20-20 at best. I admire the stoic philosopher types but I’m generally just happy to be able to survive rough days with a minimum of pain and angst.

It’s likely this tension between a better current reality and the heaviness of past challenges that made me so confused by the reaction when I posted about the envy I felt towards people who live healthy normal lives. A number of people checked in on me worried or concerned about how I was doing. I didn’t get it. I had just been discussing how well I’d been doing so why was everyone offering to pray me me?

I’d come to terms with some of the sadness and anger I’d felt during the worst days of my illness because I was doing well. I’d been posting about how excited I was that I felt great, had clean bloodwork, and was seeing better days. It was because I was doing so well I decided it was best to ruminate on the challenges I’d experienced. I was on the other side of it. Feeling well and energized meant I had the capacity to explore the dark places. When I’m actually in a dark places usually all I can do is survive the experience.

But I get that others didn’t see that now. They saw darkness and sadness and reach out to me with kindness. The love and support from people close to me and the messages and prayers from my internet friends all added up to me feeling like the good times will just keep getting better. If you are reading this I encourage you to share your journey. You just might get back the same love that I got. People are great that way.

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Chronicle

Day 100 and Rest Days

When I first set out to write everyday I didn’t set a goal. I think in my mind I meant it as a month long exercise to create more. Now I’ve got no idea what will eventually break the streak. I’m sure when it happens (something is bound to occur) I’ll be frustrated and I will just keep going the next day I hope. I’m trying to remember that Banksy “when you get tired, learn to rest, not quit” graffiti with the little girl sitting staring at a bluebird. I know it’s the stuff of inspiration Instaporn but whatever works right?

I’ve managed to write through a fair amount of awful shit in the last hundred days so it’s not that I’m afraid I’ll quit. I’ve become accustomed to simply opening up the draft space and writing. I just start some days with no particular topic in mind. Its more the knowledge that I am going to need to take breaks. Maybe not from writing but from life.

Today is one of those break days. I can barely tell you what happened today. I’ve got a project with a deadline but as I pushed myself physically yesterday I found that I needed today off. Resting today gives me tomorrow. I know this sounds basic but as a workaholic I’ve not traditionally been good at resting when it’s not been forced on me.

Usually on rest days I’m prone in bed as I’m in too much pain and too exhausted to do anything else. I hid this for so much of my illness and now I’m almost comically transparent about it. You’d think I’d be considered a liability and no one would ever want to work with me (or be friends with me) and yet I’ve found that not to be the case.

The empathy I’ve found in almost everyone makes me wonder if we’ve got our reputation building advice all wrong. I was under the impression I needed to hide my illness and always excuse strength. But the more honest I am about my capacity and my limits the better my work and relationships get. I’m slowly leaving behind the persona of “always on” hustle “I’ll sleep when I’m dead” bullshit of my younger years.

I still have a lot of fear about being perceived as unreliable. There’s not much logic to it. I always meet my commitments head on and when I physically can’t people understand. I work with backups plans and teams so that its never a crisis if I simply need to rest. The work gets done with or without me because my reliability is a function of preparedness and collaboration now instead of will force and midnight marches. If anything I think this makes me a better partner to work with ss instead of relying on my “at any cost” personality you can rely on me simply slowly and with planning getting your further than we could have gone alone.

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Aesthetics Chronicle Startups

Day 99 and Swag

My favorite item of clothing in the pandemic has been a Facebook hoodie. It’s the perfect garment for long days indoors, not too heavy but not too light. It zips so it’s easy to get on and off. It has pockets for stowing my iPhone. It’s got a snuggly fuzzy inside but a smooth cool texture outside. I’m not sure I’ve been more dedicated to a piece of clothing.

Years of living in New York, where dragging dirt and debris in from the city was a real concern has made me a almost compulsive aficionado of “indoor clothes” which were not besmirched by the grime of subways and pavement. My Facebook hoodie remains my default “indoor clothing” top layer. At night I unzip it and place it carefully beside my bed. In the mornings if it is cold I put it back on before starting my day. The chances are good that if you’ve been on a Zoom call with me I’ve been wearing this hoodie. It’s just on screen and a strange affectation for someone that has literally never been a fan of the traditional Silicon Valley boy wonder aesthetic. The only item I have gotten more wear out of is a pair of Gucci boots I’ve owned for 12 years now.

To say that they are very different garments is an understatement. One is a thousand dollars worth of black Italian leather crafted into the Platonic ideal of day boots. They are feminine with tight knee high lines that maintain the slightly militaristic echo that typify the Italian school of fashion. The other is a baggy slouching genderless sack of blue with an embroidered white logo that splits with a zipper tight down the middle between Face and Book.

You would not imagine the owner of one garment was the owner of the other. Even when the tech plutocracy decided it wanted to play with high fashion status games (thanks Marissa) the two stylistic poles never really gained much common ground. Still tech has inspired a significant portion of modern fashion and fashion craves the semiotic power of Silicon Valley. I’m sure Willian Gibson could explain the common lineage but I doubt I have the chops. Nevertheless I do consider both pieces to be emblematic of my personal style. Something about utility I suspect. The two garments are not from entirely different worlds

Ironically I don’t use Facebook anymore (though I still have an account) and I don’t even support what the company has become. So you might think it’s odd I own a piece of swag from the company. I got the hoodie after I had already given up on the place. But I got it from a Facebook employee who I consider to be one of the best humans I have ever known. His name his Dan.

I didn’t ask him if I could write this little remembrance so I won’t give his full name. Thanks to the efforts of one of my investors he was an advisor and investor to one of my startups and was unfailingly the kindest person I had the privilege of working with. On a trip to visit him in Menlo Park he took me to lunch on the Facebook campus. We had tacos. Afterwards as we were walking we passed the swag store. I said that I thought it was a brilliant bit of marketing that they sold hoodies. Pop culture has long cemented the status of the hoodie with both the company and with founders in general. To have a specific Facebook hoodie seemed a powerful talisman filled with irony and hope. Without missing a beat Dan bought me one.

There was no way of knowing at the time, for either of us, that this garment would end up a significant figure in my daily routine. It remains an emotional link to Dan and the support he always showed for me. He never wavered in his belief in me. This is a trait he has demonstrated consistently with those in his life. One particular example is a dear friend of mine who worked at Facebook thanks to his efforts. She is also brilliant and kind and at the time Dan worked with her the victim of a deeply Silicon Valley crisis. The kind you might even associate with tech bros who wear hoodies with logos on them. An irony that is not lost on me. The tech industry truly contains emotional multitudes.

I’d encourage you to inspect the garment in your life that holds the kind of significance and emotional resonance that this hoodie does for me. Fashion exists in even the places we think are furthest from style. Like corporate swag. Like a Facebook hoodie. There is always a story and a reason behind what we wear. Indeed this was a topic I thought I’d make my life’s work when I first stumbled onto the internet. I kept a fashion blog on WordPress maybe starting in 2004 or so. I didn’t end up being a fashion critic. But I still get to blog about clothing if I feel like it.

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Chronicle Startups

Day 97 and Socializing Professionally

If you know me well then you know I’m not a natural people person. Despite being both an optimist about the human potential for progress and generally being a happy person, I think a lot of people suck. I know it’s a shitty outlook.

Maybe it’s because I just don’t have the energy for socializing. Big gatherings are not my thing, even though if you met me casually at a party you’d probably think I was an extrovert. If I’m putting my time aside for you it’s because I really enjoy it. The people I spend time with have to be great. They teach me something or have a unique point of view or have great emotional capacity. Most folks just don’t seem to enjoy putting themselves out there. Or maybe it’s that they simply don’t want to offend you so never really say anything of interest. I just don’t care what shit you bought or what your constantly over scheduled activities happen to be (though this has become less true in the pandemic).

I really don’t want to go back to socializing as a professional prerequisite. I hate having to tell people how I am. No one actually wants to know. I don’t really enjoy holding my tongue. Professional events generally require you to keep quiet about how much you think someone is bullshitting.

I’m often a huge hit on panels at conferences because I don’t give canned responses but wow does that make more polished people squirm. I once made the mistake of telling the truth at a Goldman Sachs retail conference. The analysts went wild. The poor CEO next to me looked like she wanted to die. It’s easy to tell when someone is using a script and talking points when the person next to them is just talking without a filter. Humans like truth and honesty it turns out.

I really hope we don’t go back to constant networking and prioritizing people who are naturally socializers. I hope the pandemic broke some of that tendency towards rewarding the constant parade of events, cocktails and ever more exclusive gatherings. But I’m sure there will be a massive correction where everyone loves real life experiences again. But once it reverts to the mean let’s all agree to be a little more judicious in our asks to “meet up” in the future. I’ll send you a Harry and David’s gift basket if we can continue to see less of each other.

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Chronicle

Day 94 and Moods

I got some great news today. All my most recent round of blood work came back in the healthy range. After several years of piss poor inflammatory markers I’m thrilled to see it getting back to normal. But I’m somehow I’m a foul mood for the day.

I talked to a friend about some exciting work we want to do together. It’s exactly the kind of work I’m looking to do in the future and their take on the problem is especially creative. But somehow I’m in a foul mood.

It’s a beautiful Easter Day and I’ve done nothing but enjoyable activities. I went for a hike. Are a gorgeous meal made up of ingredients from our local dairy share and greens from the hydroponics we grew ourselves. But somehow I’m in a foul mood.

I can’t remotely pinpoint why I should feel angry or sad or in anyway negative and yet I’m just a half a step off from the reality of my life today. Not even a viral tweet is doing anything to cheer me. And I usually love dopamine hits. I only had one minor setback in the whole day. I wasn’t looking at a timer and I had a gaming account get zeroed (it will cost a little money to rebuild). Ironically the last time this happened was over Christmas. Apparently holy days and games are a poor mix. But that shouldn’t account for a mood.

I guess some days are just moods. But I’ve got some nachos and tomorrow is another day. I bet I’ll be happy tomorrow.

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Chronicle

Day 92 and Creative Muscle

The more writing has become a daily habit the more I can feel the ebbs and flows of my own voice. Some days I feel a passionate need to share some story or insight, and others, I feel like my voice can barely muster a sentence let alone a full fledged argument.

There are days where fully thought through essays seem to emerge with little effort. As if I wrote them in my subconscious throughout the day and it’s only the slight flick of focus that brings it fully formed to the page. Other days I need to scrape at the contours of my mind to see what fancies or novelties has passed through my attention through the day. Often in theses cases a bit of zeitgeist has stuck in a crevice and I can pull it out and expand on it. I can take a small nugget and chew on it till I find the juice.

I don’t mind the days where I need turn my eye within. The self reflection and additional effort is what I think may slowly be making me a better writer. While I don’t struggle with needing discipline to write everyday, I do need to exercise effort to find ideas that haven’t formed yet. The daily nature of the experiment is building out new thought muscles. It’s making my thinker clearer, faster and crisper. The regular exercise of thought and mind, whether I’m inspired or not, feels as if it’s making inspiration strike more often and my mind see clearly.

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Aesthetics Chronicle Finance Internet Culture

Day 89 and The Real Fake Fendi

What is real? Do originals exist? Can we determine the source of creative genesis when we stew in the folklore of cultural memetics? A knockoff has its own reality steeped in the accretion of culture.

I was once was asked by a tourist for direction’s to find “a real fake Fendi” when I lived in Manhattan’s Chinatown. I was honestly stumped by this inquiry. Was there a fake that had inherent realness that other knockoffs did not possess? Was there a vendor who sold the most authentic mimicry of Fendi which the tourist wished to find? I had no clue how to answer. Did they mean the realness one sees on the catwalks overseen by RuPaul? But which kind of realness? The creation that evokes the spirit of its inspiration? A realness so over the top and yet absolutely true to its essence. Or perhaps the blunt direct feedback that no construction no matter how convincing is the original artifact. Is is serving realness? I honestly didn’t know. I just told them Canal was one block north.

But perhaps authenticity isn’t the issue. In drag authenticity is manufactured. In fashions’ knockoff districts the question of authenticity is a layered confect of replication adhering to the aesthetics of the original. In some cases it actually is the original conveniently lost from some faraway inventory count. The real fake Fendi might in fact be real.

I bring this all up because in Illegal.Auction’s second collection we have curated a selection of the most outrageous instances of authenticity being the commodity sold in the NFT space. None of what we have posted are originals. They are all knockoffs. But like the real fake Fendi how can you tell? What makes something original in digital spaces. All is perfectly replicable. And no we have no new answers from Benjamin’s Art in the Age of Mechanical Reproduction either. But maybe you will. You can buy a token of these real fake NFTs. Like the real Fake Fendi realness is in the eye of the beholder.

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Aesthetics Chronicle Internet Culture Media

Day 87 and Information Processing

I occasionally enjoy dropping a deliberately provocative tweet just to see where people will land on rorsach wordings. I particularly like ones that can be read depending on your place in cultural issues haven’t reached consensus. which is exactly why people get angry. I did this on a whim yesterday asking “is listening to audiobooks reading?”

About 70% of folks said yes. 30% said no. But the reasons why were fascinating. The majority probably doesn’t care about semantics (the minority do which I will get to) but a good chunk cares about the connotations associated with how we learn or retain information. Mostly as a function of diversity and inclusion as many folks find reading to be inaccessible for reasons of neurodivergence or focus.

I relate as I don’t process audio easily so prefer subtitles and transcripts. Sometimes I feel bad about this as folks occasionally moralize about the value of mediums I don’t find accessible. There are plenty of things that I can’t engage with or experience in its original form because of disability. I’m just not particularly angry about it. But I am also left with all of the high prestige ways of consuming culture and none of the lowbrow. Like bummer I don’t have podcasts but I still have Dostoyevsky

That’s ultimately the interesting point about asking if reading and listening are similar. What do we consider to be higher processing? And does that matter? Some folks definitely moralized on the issue on. It’s sides. If you retain the information who cares how you got it. And accessibility is its own value. Pop culture is arguably more important because of its accessibility. This is why memes are folk art. They produce a very low loss form of high meaning to content ratio

A third of folks wanted about the definition used. A lot of semantics of information consumption. If you fall into the camp of caring about how we discuss information processing there is an amazing book called the Alphabet and the Goddess: The Conflict between Word and Image about the transition from image to binary communication and the changes in our neurological structures by a surgeon called and Leonard Schlain.

Like the actual debate about what types of processing is happening and how it affects our structures is worth having. But so much of Twitter boils down to the moral scolds and the rage woke fighting over ideas of worth and assigning value and status. I’d rather discuss how our minds process and that impacts the trajectory of our civilizations.

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Chronicle

Day 86 and Persistence

I’m learning to live around my routines. Or maybe my routines are what I live and everything else that I perceive as life is just moments in between meals, meditation, supplements, treatments, workouts, walks, and pharmaceuticals. Who is to say what forms the contours of life?

When I first picked up the daily commitment to write I struggled to find a topic to write about each day and I would find myself stressed if the end of the day was nearing and I felt I had nothing of value to say. Now I am realizing that having something to say isn’t the point of this daily discipline. It is the persistence that matters. The content is secondary. The knowledge that every day I will write and so I do is what matters. I will exercise the willpower necessary to form my thoughts into words. I will place them in public to prove to myself that I have remained committed. This is like any other aspect of my routine. Breath in and breathe out. Lift the weight. Take the medicine. Write the words.

Daily disciplines bring about breakthroughs. The individual acts maybe don’t matter so much. Some days will be better than others. But persistent effort brings about quality inexorably. It forces a standard of quality that improves at each repetition in some meaningful way even if you cannot see it in that moment. I find the act of creation easier now. It doesn’t feel like a burden. It is nit a source of stress or anxiety. It’s just something I do.

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Chronicle

Day 80 and Spring Equinox

Seasons seems to have fallen into the same category as “time” in that both have no meaning anymore. The pandemic has loosened our grip on linearity in our perception of time significantly. Which I view as an unabashedly positive thing. Why should we all be forced into living as if life moved in a straight line?

Nature has given the impression of being keen on rhythms like seasonal transitions but the more human life bangs on the planet the less it seems like seasons matter either. I’m less sure if that’s a net benefit like losing a linear sense of time (that was always bullshit) but losing nature’s rhythms is a bit weirder.

It’s the first official day of spring in the northern hemisphere and its snowing in Colorado right now. And we just dug ourselves out of over two feet of snow from a significant blizzard. The only indicator that seasonal change is upon us is day and night reaching equilibrium.

I’m having mixed feelings on the season of rebirth. A kind of shaken manic state has taken hold of our emotions with the possibility that the pandemic could be tamed. With vaccines rolling out quickly giddy conversations about summer reunions and family travel are cropping up. Friends are sounding optimistic about seeing each other again..All while we don’t really know if things will actually be better with a number of unknowns in the ether.

I’m not sure I want to change my lifestyle for a post pandemic world. Much as I’m praying vaccines remain effective and same. The pandemic has revealed many elements of our past lives to be unsustainable. I like being home. I like office life being considered less productive than the freedom to work from where you wish. . And I really like not having to socialize for professional reasons. I hope we keep the best elements. If I felt safe that all the accessibility was going to remain maybe I’d feel ready to celebrate spring. As it is I have some snowy winter worries on what life will look like as we step out of the cold into a new spring.