Tag: Migraine

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Chronic Disease Medical

Day 1221 and Migraines

I get really bad migraines. I do what o can to manage them but they are a frequent and challenging enough issue for me that I’ve got 45 separate entries on the topic.

I’d prefer not to discuss it at all as it’s not a very pleasant experience but it can be so overwhelming that it’s all I can think about on a given day. I probably should have seen it coming when I starters making jokes about Cardassians light torture yesterday.

I’ve taken about as much medication as I can (more than two Imitrex otherwise known as Sumatriptan it is a dynamite medicine but you don’t want to risk over doing it as overuse can make the migraines worse. It’s the 109th most prescribed drug in American with over five million prescriptions in 2021 so there is a lot of good data. Plus there is some fun asides.

Overdose of sumatriptan can cause sulfhemoglobinemia, a rare condition in which the blood changes from red to green, due to the integration of sulfur into the hemoglobinmolecule

Since I was making Star Trek jokes earlier this might be the closest I ever get to being a green blooded Vulcan.

Categories
Chronic Disease Travel

Day 1137 and High Friction

I’ve been experiencing several forms of friction over the last week or two.

Some of it was a deliberate step back to be grounded and present. I introduced the friction myself to focus on my nervous system.

But other things have acted as more of a drag on my days than I’d have anticipated. The ambient noise of city living. The small frictions of daily needs like cooking and cleaning.

I even added some friction to my own shopping to speed up my decision making. So maybe there is a theme to be found in the extra friction. And truthfully I’m not sure all of it is net positive. I’m in the red more than I’d like. So I’ll cut down on any friction that isn’t performance enhancing.

Categories
Chronic Disease Medical

Day 1100 and New Symptoms

I am experiencing some ongoing nausea today alongside a number of odd side symptoms like body temperature disregulation. I am displeased with this development

It’s probably a cluster of symptoms related to a migraine. So I’ve taken an Imitrax. I had some sort of reaction to dinner last night (possibly allergic though to what I couldn’t say) that hasn’t quite subsided. I am in a dark room silent with an ice pack popping Zofran and praying.

I always hate when I have a new symptom as it’s scary. I don’t know if it’s a new problem or something a new spin on my existing autoimmune issues.

It’s easy for me to slip into fear as I run through a differential diagnosis. The idea that I might have a new dimension to deal with in my daily health routine triggers all my autonomic stress responses. I’ve got a handle on my existing health issues and I don’t have any desire for new ones.

There is a strange aspect of chronic disease where if you’ve reached any kind of stability or continuity you simply don’t want to mess with it. Adding in new treatments or medication is always a scary prospect. I’ve been doing bodywork that seems to have significant impact in a positive way but I’m terrified that as it improves things I’ll have down days as systems interact. I shall pray it improves soon.

Categories
Chronic Disease Medical

Day 1089 and Silencing Inputs

I am doing very poorly today. All inputs into my system are being read by my senses as pain.

I’ve spent the last two or three hours in a dark room without any systems inputs but background. I’d hoped to become unconscious but was unable to sleep. It was an extended period of consciousness doing battle with pain. I didn’t set a timer or I’d be able to tell you for sure how much time I spent in this state.

I couldn’t read text on paper or watch visuals on a screen, I couldn’t listen to audio or intake spoken word without difficulty and intense focusing, nor could I tolerate novel or new smells. You’d think this would be very boring except that the intensity of the nerve outputs clouded all thought.

My body seems to be reading all changes in systems inputs as painful. I am unsure where the proximate source of my pain might be as it’s both too intense to get outside of and too diffuse to respond to mindfulness.

Typical locations like my thoracic spine hurt but I feel it in every joint as I take inventory. My intercostal muscles across my rib cage and chest are so tight I’d swear I have several broken ribs if I didn’t know better.

I’ve taken several pain medications of varying strengths (anti inflammatory and analgesic) to little effect. I had to stop watching Christmas movies with my husband sometime in the afternoon as I simply couldn’t handle the noise and sound coming from the tablet.

I don’t know how coherent my writing is at the moment and I feared I wouldn’t be able to muster any focus. I am finding it hard to look at my mobile phone screen even at the minimum brightness setting. This usually indicates a migraine but that seems like a secondary issue.

I hope this passes as I do not have time to manage this kind of symptomatic intensity. Perhaps my body knows this and is simply allowing a breakdown on a day where it’s safest to do so. In which case I may need another holiday or two to actually find a break restorative instead of as emergency maintenance.

Categories
Biohacking Medical

Day 1084 and Tension

For the last week or two I’ve been getting tensions headaches. While I have migraines that manifest mostly around hormonal cycles, I can’t say I’ve had a tension headache before.

Migraines make me sensitive to light, sound, and smells but this new headache type was more like a pressure inside my cranium. Typical migraine medicine like Imitrax didn’t do much but neither did Advil or Tylenol. I tried caffeine to minimal effect. Exercise seemed to exacerbate the issue, especially if I was getting my heart rate up.

After discussing it with my physician I’ve got a suspicion that I’ve done something compensatory that has caused tension in my upper spine.

I have ankylosing spondylitis in my thoracic spine so it’s a decent hypothesis that to protect myself from the chronic pain there I’ve added additional pressure further up my spine. A inflammatory issue causing a complete different mechanical issue is a logical differential diagnosis.

I’ve got a couple of approaches to fixing the problem. I can get some body work done to relieve some of the pressure in my neck and shoulders with a massage, physical therapy or craniosacral therapy. I can take more magnesium as it is nature’s muscle relaxer. I also can take muscle relaxers.

I think this development is coming now as I’ve been really upping my intensity professionally this fall. I’ve traveled a lot, attended a number of conferences and meetups, and generally applied acceleration to everything in my world. It’s a good thing that Christmas is almost upon us as it seems like it could use some time away from the world. I will be turning within.

Categories
Biohacking Internet Culture

Day 1054 and Extra Strain

This year has had a number of absolutely crazy weekends where it’s felt as if the entire world was having the rules written overnight. Seemingly unrelated bits of the world will flare into supernova attention grabbers.

Off the top of my head, I can recall weekends devoted to aliens, bank collapse, room temperature super conductors, war in Israel and fear we’ve summoned artificial intelligence.

The fact that we can participate in the narratives as they emerge on social media means that every type of influence actor does just that. And it’s exhausting even as it’s occasionally a fun interactive game.

Today I found myself with a poor Whoop recovery and more physiological strain that is ideal. You can see it in my awful heart rate variability. Nevertheless I tried to stick to good routines, possibly to my detriment.

My afternoon went from enjoyable walk to migraine to a low stability.

You can see my Welltory data after I went for a forty minute walk. My HRV tanked and I went into a migraine pattern. Thankfully Imitrax, meditation, and a short non sleep deep relaxation exercise got me stabilized in about two hours.

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Medical

Day 1043 and Differential Diagnosis Failure

I’m throwing something up here as I am fairly certain I’ll be out for the rest of the day. I have thrown back an entire pharmacy in an attempt to remedy a barrage of symptoms that are so intense I can barely process.

I thought I had a cold or potentially some kind of flu based on my initial symptoms like heightened respiratory rates, congestion and pain in my muscles. But as the day progresses I’m not so sure. The mucus is clear and was easily improved by a Mucinex and cortisone nasal spray. The remaining symptoms of lowered body temperature (which feels feverish) a migraine, and tight muscles are now much more acute. I guess the cold medicine I took was a waste of liver stress.

It’s messy and conflicting and neither myself, my husband, my doctor nor the artificial intelligence chats have managed a differential diagnosis.

My hope is that with the sheer variety of drugs that we have thrown at this that I’ll be passed out for the foreseeable future. Maybe a full twenty four hours of sleep can fix this. Hopefully you will see me cheerful tomorrow.

Categories
Emotional Work Travel

Day 1013 and Fragile

I feel awful. I’m having some kind of serious histamine reaction and the cascade of stress and secondary symptoms have been extremely hard to cope with. I do not feel well physically.

I dislike feeling fragile when the wider world feels like it’s in utter chaos. You’d think I’d be used to it. I’ve staked my reputation on increasing volatility.

It’s simply frightening to feel fragile physically and emotionally at the same time while so far from home. As much as I love Tallinn it is a place that is not my home. It takes extra energy to navigate a new place. I love it but it does drain me.

I hope with rest and taking things slowly I can help myself navigate through the fragility. All types of things contribute to making you feel safe. Sleeping a little bit more. Eating nutritious food. Meditating and breathing exercises. Maintaining a healthy routine is the luxury we cannot forgo when faced with crisis.

I hope I’m taking care of myself well. Seeing the fragility and accepting it reminds me to do what is necessary so I can keep going no matter the stress.

Categories
Emotional Work

Day 999 and Auspicious

Tomorrow is the big day in my daily writing experiment. I am chuffed to see 999 on the title. It seems very auspicious to me. While 888 was a lucky day, today’s number feels like I’m on the cusp of something.

I am set to travel to the Baltics shortly. Perhaps I’ll find some next phase on the adventure of life. I need this optimism today as I don’t feel particularly lucky or auspicious today. I unexpectedly had a few things go wrong this morning and then was rewarded for it with a migraine. I was very angry about it as I had a lot of exciting things planned for the day.

I have to remember that trying to get to the larger numbers is about compounding the many small days filled with mistakes, imperfections and failures. Life happens all around you at inconvenient times. It’s how you muddle through at your goals steadily over time.

Categories
Emotional Work Politics

Day 984 and Distrust

I had a bad migraine over the weekend that simply took up all the space in my mind and body. I woke up with a break in the pain and a deep urge to throw myself into something that felt like momentum.

I found myself awash in sadness. I couldn’t stop myself from crying. It was as if my entire body felt despair. I’ve come to accept the value in embracing emotions as they come. “The only way out is through.”

I trust that my nervous system knows as much as my cognitive mind. I go so far as to say it knows more but that sounds a little woo to folks. And so I listened to my sadness. I cried. I rambled at the many problems large and small facing my corner of the universe.

The distrust I have for our elders who twenty two years ago used today as a catalyst for sending us down an inexorable path of death and fraud. I cried over petty inconveniences like the broken visa system keeping people I care about outside of America.

It’s hard to understand how we came to this point across a generation. But easy to see why millennials are unsure if any of our institutions can be trusted. And I wonder what it’s like to have no memory of a time before 9/11.