Tag: Emotions

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Chronic Disease

Day 207 and Doxycycline

I don’t have a thesis or a point in mind so I’m just going to get started and ramble. I’ve felt like shit for most of July. Must have picked up some kind of infection on top of my usual bullshit autoimmune nonsense. I finally caved and asked my doctor if I could just try good old fashioned doxycycline. Six hours later I felt like a million bucks.

Sometimes it’s the simple shit that makes a difference. I don’t know if that is an Occam’s razor thing but I’m a little pissed that just tossing an old faithful antibiotic at me did the trick. But then I could be throwing some cool bias at this problem and be equating a bunch of causality that just isn’t there. Humans are prone to that.

Like did you know Occam’s razor was actually a justification for miracles? No shit. Occam was a friar and so into simplicity that he figured God was the easiest explanation. It absolutely blows my mind that there are logicians out there who will stomp on complex answers and holler “Occam’s razor” on your ass when the dude was saying my bias says probably miracles because that’s easier.

I don’t have anything more useful to say than that but this meets my daily criteria to write something every single day. So I’m calling it. Maybe tomorrow will be better. Which it might be because doxycycline!

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Emotional Work

Day 205 and Saying It Outloud

No one would accuse me of being keeping my opinions to myself. I generally say what I mean and mean what I say. I find filtering my thoughts to be exhausting. It’s not that I think manners are not important. I think it can often be a great kindness not to blurt out every thought. Being considerate and not imposing your every thought onto others is part of living in society. But I’m learning that you have to be clear about who you are. Keeping your truth inside will kill your soul.

So it has come as a surprise to me that I am keeping a lot to myself. Mostly emotional and personal things. I still generally go straight to taking a public stand on politics, professional topics and cultural issues. But there are areas where I just don’t have that bravery. Where I haven’t uttered how I really feel to anyone.

I’m working through how to discuss some of these truths out loud. How does it feel to tell friends and family that I just don’t have the same desires, preferences, or mores as they do? Generally I’ve found acceptance. Even some of the more “out there” stuff has been ok. No one has rejected me. If anything people loved me because of it and not in spite of it.

Obviously I’m not in a place where I want to broadcast most of it in public. But I’m slowly realizing that saying things out loud makes me happier. To know my own truth and have it be clear is a great relief. Especially for areas where I feared it might implode my life. Or where it might hurt someone I love.

If you’ve got a truth you are keeping close to your heart consider sharing it with those you’ve already trusted with your heart. If they genuinely love you for you they don’t want you changing yourself to fit some idea of what they want. You may be causing suffering to yourself for nothing. The editing of desires, goals or preferences only limits your life.

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Emotional Work

Day 204 and Saying Hard Things

I’ve had to have a number of emotional conversations with people I care about recently. We’ve had miscommunications, failures, admissions, and changes in relationships both personal and professional.

Initially I was worried once it became clear I had to have “that conversation” where unsaid or unspoken truths couldn’t remain that way. I suppose it’s natural to fear sharing hard things with those we love. But avoiding the temptation to “not hurt their feelings” is not right path. It is always more hurtful to obfuscate or be avoidant.

In each of these conversations, I felt utterly unprepared. I cycled through shame, regret, sadness, fear, hurt, embarrassment until I had said my piece. Even if was crying in a few instances, once I got over the fear, the relief washed over me. I felt loving and joyful. Peaceful and lighter in my soul that I had owned the range of feelings & failures with honesty.

We know in our hearts before our minds what needs to be said. If you are struggling with a hard conversation or a relationship that needs truth to be spoken, summon you the courage to do it. Facing our self limiting beliefs and the mental blockers that keep us from having the life we want is always worth it. You can do it.

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Startups

Day 203 and Living Rent Free in Our Heads

There are two kinds of startup teams. The ones that forgive each other, and the ones that don’t. If you are very lucky, everyone forgives each other in time. But for the ones that can’t forgive each other, the pain of the experience is a curse. Your failures and weaknesses live in each others’ heads rent free. And that sucks.

I understand how the curse of the unforgivable startup sins get cast. I understand the pain of having people in your life that you cannot imagine forgiving because their sins against you feel too big. Startups are exactly the kind of place where forgiving seems impossible. Why? Building something new is painful.

New life, new business, new art. It hurts to birth something from nothing. Those laws of thermodynamics seem to indicate that energy doesn’t get made or lost, so sure, getting an idea to come into reality has to have an energy cost that comes from somewhere. I’d argue with startups it comes from our will. Maybe our soul. If you aren’t into that then money and time. It has a cost is what I’m saying and we pay it. And when we feel we’ve paid those costs unfairly it’s hard to forgive those whom we blame.

When you’ve given so much of yourself to make a new reality, the pain of it not succeeding is real. It hurts to realize we’ve failed. To come headfirst at the possibility that your sacrifice was for nothing is existential. That the energy you took to build something was for nothing.

With existential problems you’ve got two choices. Face who you are and your part in it or blame it on someone else. It is a lot harder to own existential yourself. If we are feeling like a victim there are people who we can blame. We hired wrong. We had cofounder issues. We couldn’t collaborate well. We had cultural mismatches.

There are endless reasons our failures are shared. And it’s true. Failure never has a single point. It wasn’t just you. But it’s not your cofounder or your teammates fault either. You have to forgive them. They have to forgive you. If you don’t they will live in your head rent free forever. And no one wants that. Find a way to forgive. Find a way to own your own existential failures. It’s not worth losing people over.

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Chronic Disease Emotional Work

Day 201 and Take It Slowly

I woke up today feeling normal. I wasn’t in any pain. I felt rested. The excruciating exhaustion that has gripped me had lifted.

I was a little bit surprised as I’ve been fighting off a setback that has diminished my physical and emotional state. An infection required an anti-viral that just destroyed me for the last week and a half.

The relief I felt at having the energy and desire to do normal tasks was palpable. I started making “to do” lists and plans for how I was going to use the energy during the day. I bounded out the door at 8am to my favorite trail to get in a walk before the summer heat hit. I came back energized and immediately went to workout. And then I realized I was doing it again.

In my relief to have back a functional body I was setting myself up to be exhausted by immediately over doing things. . My enthusiasm to get back to doing “all the things” would again be my undoing. Some residual guilt over needing to get back to people was on my mind and I used this projected shame right back into myself. What a disappointment I was to people and clearly I must set it right immediately that I’d been late by a week. I needed to respond to startups, catch up on my diligence pile, and email back all the folks in my inbox plus I was behind on any number of fund tasks for Chaotic. I justified these obligations as a reason to beat myself.

I have often struggled with the feeling that I need to work as hard and fast as I can when I am physically well. Part of it is my general tendency towards workaholism. But part of it is fear that feeling well is transient and I need to make hay while the sun shines.

I talked myself down from it and kept a steady pace through the day. I didn’t rush. I took breaks. And I didn’t feel guilty or beat myself. Which was quite a relief. It seems I can learn to take things slowly after all.

Categories
Chronic Disease Emotional Work

Day 198 and Kindness from Strangers

I’ve written about how terribly I’ve felt physically for the past 6 straight days. The last positive day of writing I had was 8 days ago. People have noticed the emotional tone of this struggle.

Generally speaking a day or two of being down doesn’t get noticed on social media, but a continuous streak of being “off” tends to get noticed by your community. Your mutuals know who you are even from afar. Your mutuals see your struggles. Your mutuals may know more about you than you imagine. And I’ve found your mutuals may genuinely care about you.

I’ve never felt less alone than I have the past year under quarantine. Maybe it’s because the network of mutuals that shares their personality and life has spent more time on the give and take of commenting, posting, responding and messaging across social media. When we are forced to contend with our own inner emotional lives we can extend more empathy to others.

So while others may have seen politicization, partisanship and other externalized anger on social media, I’ve found mostly grace and kindness. People who I have never met in the flesh have shared their knowledge, their vulnerability and their network with me. When I have opened myself up I have been met with with compassion and understanding.

If you share a period of struggle and your desire to get out from under it you may not be far from help. The kindness of your community is within reach. Even, perhaps especially, your social media community. If you are hurting share that burden. I have and it is much lighter.

Categories
Aesthetics Emotional Work

Day 197 and Status Anxiety

I’m becoming quite bored of feeling like shit as I go on maybe day 8 or 9 of a poor reaction to an anti-viral. It’s not fun when the cure is worse than the disease. I noticed something fascinating as more and more “days off” piled up. I’ve still got a lot of emotional shit when it comes to being sick.

My anxiety over being seen as weak, lazy or lacking in willpower started to compound the more days I’ve needed to recover. What will people think of me that just as I’m making a comeback to full time work that I let myself get waylaid by a virus? Every project and meeting that needed canceling felt like I should accompany it with an apology tour. I felt like I owed everyone my time and energy. I felt ashamed.

The social striving and status chasing that have gripped the aspirational class seems to have its claws firmly in my psyche. At least when it comes to work, I’m convinced I must always be working to be “better.” Where the fuck did this self limiting belief come from?

Who cares if I needed a week off to cope with health care needs when I’ve been on medical leave for nearly two years? What is another week. Why am I so anxious to show that I’m capable of going back to work? Who the fuck cares! It’s not as if I’m dependent on a salary to survive. I’m not chasing a resume or CV polish on LinkedIn. I can just not work.

Technically I’ve already made it out of the status social climbing games. I’ve got money. I’ve got traditional credentials. I have a well compensated skill set that is easily hired out for income without sacrificing much of my time. I should not be experiencing any class anxiety at all. I should happily go into the leisure class and not concern myself that my workaholism isn’t possible for health reasons. And yet I’m absolutely panicked that I’ll be see as lazy and unreliable every time I have a minor setback.

It’s abundantly clear that aspirational class signals, especially around meritocracy and knowledge work, are as bogus as Edwardian England’s aristocracy. Class division can be upended if you just stop giving a fuck. But I’m experiencing exactly this anxiety noted in The Hedgehog Review.

The aspirationals’ endless pursuit of better can produce psychic restlessness and doubts beneath the façade of confidence and accomplishment.

I’ve always thought of my habits as being high status. I read science fiction, make a hobby of macroeconomics, and pursue healthy biohacking experiments. Of course, that I think of these things as having status is precisely what makes me signaling it low status. The perception of me caring so fucking much is proof that I don’t think my status in life is secure. I’m no better than the middle class strivers in Downtown Abbey who miss manner cues. How embarrassing!

But if I can admit that I’m anxious about my place in the world maybe it’s a sign I’m not so beholden to class systems after all. I’ve just now admitted that I’m afraid of how I will be perceived if my climb back to health isn’t perfectly stage managed. I hope that is the first step in letting it go. Fixating on fear and anxiety isn’t great for physical health. So I’m putting it out there that I’m afraid of how I’ll be seen by others. And I’m letting it go.

Categories
Chronic Disease Emotional Work

Day 196 and Exhaustion

I’m terrified of being tired. It’s the first sign of illness and a trigger of a cascade of traumas for me after fighting for two years to recover my health. The fear I feel when my energy flags is more than mere phobia. It’s the kind of gripping all consuming fear that stops all other emotions from surfacing. It’s a fear that stops joy and anger. It stops my my breathe and chokes out my chest if I pay it too much mind.

I’m already shedding unbidden tears probing a little at the edge of this fear. The fear that exhaustion will never lift sits in my body, scaring me into believing I’ll be trapped forever.

I’m more afraid of fatigue than I am of pain. Pain is complete and totalitarian yes. It limits your world sometimes in the extreme. But pain is not an enemy that cannot be overcome. When pain spikes or throbs I’m equipped with tools to combat it. It’s not that pain isn’t terrifying and all consuming. I’ve written about the challenges of chronic pain. How it robs you of your right mind. But it isn’t an enemy that extracts complete victory either.

I feel I can fight back. Light pain can be tossed out of my consciousness with mindfulness exercises. Even a slight self inflicted pinch can deflect pain. If it’s unbearable there are pharmaceuticals on hand. It’s not that I don’t find pain to be consuming, I do and it is, it’s that it doesn’t feel impossible to conquer. I have tools with varying degrees of efficacy that let me retain my agency with pain.

With exhaustion I have nothing. I fear exhaustion is an enemy I cannot best. There are no tricks for my mind that give me a boost of energy or remove the obstacle of feeling leaden. The tiredness is too complete to be overcome by mantras. There are no drugs for exhaustion. Stimulants can drag me out of bed but the crash afterwards makes it clear the effect was extracted under duress.

A doctor doesn’t mind giving opioids for a patient with spinal swelling but telling them you are tired doesn’t do much. What could they even give you? Caffeine? Aderall? Of course you are tired they say, your body is fighting inflammation. In this moment, I’m overcoming an infection and a poor reaction to anti-virals. An inability to crawl out of bed is a given. Nothing can be done. I just need to ride this out and hopefully it will lift.

But I’m afraid of the tiredness that has taken hold of me this past week. The fear that all of the work and money I’ve put into recovering my help might have been for nothing lingers. I logically know, and doctors confirm, that I’m simply fighting an infection and we had a slight complication with the medication. They say I’ll be feeling well a few days. They asked me to stay in bed for a few days. But I cannot shake the fear that it it’s permanent. The fear that I’ve lost all my progress is real. I just hope I can convince myself that feelings are not facts.

Categories
Chronic Disease Emotional Work

Day 195 and Waiting on Hand & Foot

I’m embarrassed that I need help with minor physical tasks. I’ve got an infection of the self sufficient Americana myth that seems to have taken root right in my very marrow. If you need something done you’d better do it yourself right?

When I was much sicker and undiagnosed two years ago, it felt easier to accept help because surely it must be temporary. There is no harm in needing help if you know you can pay it back tenfold? There is no harm in being unproductive for a time if you can pay it it back with interest.

But what will if can’t pay it back? What if I must rely on the kindness of others forever? Early on I struggled with little things like needing to use a wheelchair in the airport. I told myself stories like“I could walk if I just tried harder and accepted more pain” as I went through the concourse on the way to a hospital stay. I couldn’t pay back fellow travelers for slowing them down. And maybe no one minded that I was sparing myself pain for little inconvenience on their end. Perhaps I could accept small types of kindness.

But what if it’s not temporary? And what if it’s a significant amount of help! What if I do need help with basics for the rest of my life? Thanks to a recent trip my husband took I learned his running of the household increases my capacity by a full 30%. I could do everything just fine on my own but it would make my life much smaller. And it doesn’t seem to make his life any less enjoyable. On the contrary he shines when showing off his excellence in operational matters. It’s possible what I see as an undue burden is something he quite enjoys.

But I can’t quite convince myself it’s a good thing. The self audience myth has a deep hole on me. But if a third of my capacity disapates into tasks like cooking, cleaning, errands, and logistics but I’m enriched and energized by work like writing or working with the media then shouldn’t the choice be obvious?

And yet I still find myself embarrassed and angry about my limitations. . Why did it exhaust me so much to stand and wash lettuce? Or require so much rest to recover from a short run to the pharmacy. Those are small, albeit physical, tasks. My soul feels broken and my body a traitor with these small physical limits.

Whereas other pursuits can be done from bed. And even though it sometimes makes me sad it’s not always my choice, I don’t mind that my world is often limited to lying flat for hours on a mattress. I don’t resent it. In fact, it makes me rather happy. I’ve got the whole world available to me thanks to the internet. I can invest as easily in bed as from a fancy office. Twitter is just as good a connection to the networks of ideas and power as conferences or clubs. Better often.

The only part I resent is feeling like I’m a burden. Like I need to be waited on head and foot like some aristocrat or an ailing relative. Well not like an ailing relative. I am ailing. That part is the. But I can thrive in it with help. I just hope I’m not to embarrassed to take it.

Categories
Chronic Disease Emotional Work

Day 193 and Downward Pressure

I’ve had a terrific year (pandemic aside) with significant progress on my health. I’ve become used to seeing positive trends, especially within the last six months. But the last month has been a mess for me and the downward pressure is getting to me emotionally. I’m afraid. The fear of a setback is palpable.

I haven’t been able to pinpoint exactly what has been causing a dip in my progress or frankly if it is even a dip, as it could just be a few bad days. It may be that I’m just not progressing as fast as I could have hit some Pareto Principle limit and it’s just going to be a slog to get the remaining gains. Some of my metrics continue to improve (I’m seeing cardiovascular improvements still) but my energy, pain and inflammation seem to be going in the wrong direction.

I’m crushed by the exhaustion in particular. And sadly I know this to be real. Because I take immunosuppressants I am prone to infections. To combat one I was put on a course of antibiotics which seems to have some negative side effects. So now I can’t tell if I am exhausted because I am running an infection or because I’m having a bad reaction to the drugs. Could be both.

I feel angry at my body for this pause in progress. I’ve been working so hard at improvements. When I look at how I spend my time I am often overcome with resentment and envy of healthy people. It saddens me how much more of my life needs to be dedicated to doctors than a normal person. It’s especially frustrating as in the spring I was regularly noting how well I was doing and how much capacity I had to work.

Of course, the benefit of writing every day is I can go back and see what was going on. I’ve been doing plagued by the caprice of my body before.

The trajectory of my health is one of continual improvement but scatterplot is jagged as hell as each day vacillates between health and pain.

It’s my hope that this is just another local minima and I’ll be able back to my “normal” soon. Even if I have hit 80% of my gains I can manage with that. But it’s valuable to recognize the negative emotions as they come so we can let them go.