Tag: Migraine

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Biohacking Medical

Day 1617 and Trap Queen

I am struggling with some biomechanical issues in my upper body that are intersecting poorly with the inflammation of my ankylosing spondylitis and psoriatic arthritis.

The upper fibers of my trapezius muscles are killing me. I presume I have some soreness and pain as I’ve been incorporating a new slow progressive full body workout program. But a little digging is making me reassess that conclusion.

Via Physio-Pedia

I’ve been patiently working the problem of my inflammatory issues for literally half a decade and yet I am regularly finding new information thanks to the wonders of deep research products.

Somehow I had never really researched enthesitis despite it being a fairly core symptom in my case presentation of spondyloarthropathies.

It is an inflammation where tendons and ligaments attach to the bone and I have it something fierce in my intercostals and trapezius muscles.

There are many other areas where enthesitis can occur, he says, including the area where the ribs meet the breastbone, the back of the head where it meets the neck, and in the spine in the area closest to the skin. Creaky Joints

It’s possible current pain not delayed onset muscle soreness at all. It’s enthesitis. I don’t know if my new IL-17 inhibitor is working as it should but the strain of my new workout regimen is just a part of a wider issue in my condition. I’ve got a deep dive running on exercises but right now I’m going to take a muscle relaxer (magnesium) and lay down.

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Biohacking Chronic Disease

Day 1502 and Always Something

When we first moved to Montana we did a pretty thorough home inspection. My husband flew in a friend who is residential contractor.

We didn’t need much remediation work. A bit of radon and we installed a state of the art water filtering system but otherwise everything from foundations to soil quality were looking good. But you can never be too sure things stay that way.

We’ve done some repairs and installations over the past two years and it would appear somewhere in there we must have had some water damage. We ran some mold tests and the reports are not good.

As we’d done so much testing before moving in we’d not done thorough assessment. It hadn’t seemed necessary. But as part of the new year’s rigorous “get a grip on autoimmune” push we did an ERMI test (done via dust collection) through an independent lab EnviroBiomics.

The Environmental Relative Moldiness Index (ERMI) test is a DNA-based method developed by the U.S. Environmental Protection Agency (EPA) to assess indoor mold contamination by analyzing settled dust in homes.

It uses mold-specific quantitative polymerase chain reaction (MSqPCR) to identify and quantify 36 mold species, which are divided into two categories: Group 1 (associated with water-damaged homes) and Group 2 (common indoor molds not linked to water damage).

The ERMI score is calculated by subtracting the log-transformed sum of Group 2 molds from Group 1 molds, providing a single numerical value to indicate the relative moldiness of a house.

Welp. Seems like we may have some water damage somewhere. We’ve got some theories from the last two years.

ERMI Score 18.3:
Places this bedroom in the higher range of mold contamination. Typically, an ERMI above 5 is already considered higher than average. A score of 18.3 signals a strong likelihood of hidden moisture issues or longstanding mold growth.

We also ran a HERTSMI-2 test on which we scored 20. That test is a bit more salient for my autoimmune conditions. And its results were not encouraging. Running that through ChatGPT’s new Deep Research.

This test is used to gauge risk for mold-sensitive or chronically ill individuals. A value over 15 strongly suggests that the environment may be unsafe for those with mold-related illnesses or sensitivities. Re-occupancy should be delayed until remediation and follow-up testing confirm substantially reduced mold levels.

We have to do remediation of some sort though we think it’s limited to the basement. But I’ll be staying upstairs for a while if this conclusion is sound. It’s always something.

Conclusion: The contamination is significant and poses a tangible health risk. Addressing it thoroughly is crucial, particularly given your household’s health concerns.

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Chronic Disease Politics

Day 1486 and Odds and Ends and Migraines

It was a busy week. I felt physically well through most of it, but yesterday and today I am struggling. I’m in bed with a migraine that I think I accidentally kicked off by enjoying a quiet walk on sunny snowpack.

Amusing that people think we don’t get enough sun for solar power

While I prefer to have illness strike on a weekend, I feel irritated that I often get my personal time used up by health issues. I very much prioritize using my good hours for work.

Which on that note, I’d love for folks to check out a bill in Montana to secure a right to compute. What started as an idea has now officially been introduced into the legislative process. It’s a big victory to have this under consideration.

I was also in the New York Times this week in a column by James Pogue. It’s my second time being interviewed by him and I think quite highly of his reporting.

A few quotes in the New York Times on the tech right, the H1B debate, and a general sense of getting back to business

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Medical

Day 1465 and Biohacking Help Request

I’m having a bit of trouble with an autoimmune flare so I’ll keep the narrative but short.

Essays

Everything is About Sex. Femininity is About Power

Shopping

I am going to take a course with a Twitter mutual on building an AI life coach for myself. It’s an exercise in accountability for my playtime & learning.

Considering buying this Hooli vagus nerve stimulator.

Tweets

Geeks, Mops and Sociopaths in the Memetic Of Woke

Medical

I’m looking for my next step in my medical care. If you’ve been watching the blog over the last few years you’ve seen my struggles with chronic health issues and the work I do to be well enough to pursue my work.

But I’m at an impasse and I know we must have more solutions than what I’ve got. Looking for a doctor or research group that may have protocols or care capacity for the autoimmune buffet of nonsense that plagues so many. I have ankylosis & psoriatic arthritis, joint pain & anaphylactic allergy issues along with migraines.

I’ve worked with woo, lifestyle and nutrition changes, supplements, osteopathy, injections and IVs, longevity science & expensive biologics to pursue the functionality I have now to work. But I long to work the hours of my youth and I don’t believe science has progressed so little that arthritis and migraines should be so painful and exhausting. So please feel free to DM on Twitter with recommendations for clinics and physicians.

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Aesthetics Culture

Day 1448 and Overhead Lighting

A quibble I have with modern industrial living is the prevalence of overhead lighting. I know we have to tolerate the bright lights in public and institutional spaces for reasons of cost, efficiency and clarity but why on earth have we found it to be acceptable in the home?

I’m grateful our divas bring their significant cultural gravitas to this debate. Bless Mariah Carey for leading the charge on this assault on the senses. I’ll let her not terribly articulate quote from a podcast speak the truth.

”I can’t with the overhead lighting. Why do they do it to us?,” Carey, 55, said. “But overhead lighting I don’t think so honey. Please stop it!…Everywhere I go, shut the lights! I don’t want to see them no more. Overhead lighting, it makes me sick.”

I was delighted to read this synopsis of the overhead lighting hate debate in the Walk Street Journal. They quote a few psychologists and photographers who sum up the debate as diffuse lighting is more relaxing while cool focused lighting is better for concentration.

However it is relatively challenging to do cool focused lighting well. Yes it possible to do overhead track lighting in ways that bring focus and don’t overwhelm your senses. But it’s harder to do right.

You’d probably have to literally light Mariah Carey for a living to do it in a way that’s comfortable for someone with sensory issues. I developed migraines in my thirties and combined with my spectrum level sensitivity to noise, sound, taste and light I don’t need to push my luck. .

Given that us mere mortals without expert lighting design have to live comfortably, I fully stand by my preference for lamps and multiple light sources in my private spaces. It’s just going to be less of a headache. Literally.

If you light from overhead with bright cool tones bulbs so you can see the details I get it. I can’t fathom why I’d want that for anything but cooking, cleaning or sewing.

When the it’s time to relax and interact you are damn right I want a nice warm lamp. Now I’ve got double the lighting. No wonder the topic gives so many of us headaches.

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Biohacking Chronic Disease

Day 1433 and Pardon The Interruption

I’ve been running around keeping a busy schedule while I’m on the road for a few weeks on the west coast.

I had a number of things I wanted to do today but I’m so tuckered out I have been slowly passing on everything.

My stomach is upset, I’ve got a migraine that isn’t quitting and everything hurts. So pardon me for the interruption in my regularly scheduled posting but I am going to attempt one of those sixteen hours of sleep nights in the hope that any issues can be fixed with rest.

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Biohacking

Day 1324 and Sensitive to Input

Maybe the intensity of sensory inputs is worse than it used to be, but I think of myself as being a sensitive person.

I have strangely acute hearing, I struggle with bright lights but in particular screens, and I am often unsettled by smells, flavors, and textures. Life feels like it’s having at 10x the density and clarity that I’d prefer.

It’s probably just the flavor of autism that seems to plague every other person on the internet.

Today I found myself focused on the texture of a pair of socks that I’d just purchased. It felt as if they were rubbing the top of my feet raw. But it all looked fine when I took them off. I applied moisturizer and put them back on but it still itches.

Sensitivity is annoying and I am chalking it up to fatigue. I’ve been excitedly putting in long hours for work so every input might simply be on raw nerves.

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Chronic Disease Medical

Day 1221 and Migraines

I get really bad migraines. I do what o can to manage them but they are a frequent and challenging enough issue for me that I’ve got 45 separate entries on the topic.

I’d prefer not to discuss it at all as it’s not a very pleasant experience but it can be so overwhelming that it’s all I can think about on a given day. I probably should have seen it coming when I starters making jokes about Cardassians light torture yesterday.

I’ve taken about as much medication as I can (more than two Imitrex otherwise known as Sumatriptan it is a dynamite medicine but you don’t want to risk over doing it as overuse can make the migraines worse. It’s the 109th most prescribed drug in American with over five million prescriptions in 2021 so there is a lot of good data. Plus there is some fun asides.

Overdose of sumatriptan can cause sulfhemoglobinemia, a rare condition in which the blood changes from red to green, due to the integration of sulfur into the hemoglobinmolecule

Since I was making Star Trek jokes earlier this might be the closest I ever get to being a green blooded Vulcan.

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Chronic Disease Travel

Day 1137 and High Friction

I’ve been experiencing several forms of friction over the last week or two.

Some of it was a deliberate step back to be grounded and present. I introduced the friction myself to focus on my nervous system.

But other things have acted as more of a drag on my days than I’d have anticipated. The ambient noise of city living. The small frictions of daily needs like cooking and cleaning.

I even added some friction to my own shopping to speed up my decision making. So maybe there is a theme to be found in the extra friction. And truthfully I’m not sure all of it is net positive. I’m in the red more than I’d like. So I’ll cut down on any friction that isn’t performance enhancing.

Categories
Chronic Disease Medical

Day 1100 and New Symptoms

I am experiencing some ongoing nausea today alongside a number of odd side symptoms like body temperature disregulation. I am displeased with this development

It’s probably a cluster of symptoms related to a migraine. So I’ve taken an Imitrax. I had some sort of reaction to dinner last night (possibly allergic though to what I couldn’t say) that hasn’t quite subsided. I am in a dark room silent with an ice pack popping Zofran and praying.

I always hate when I have a new symptom as it’s scary. I don’t know if it’s a new problem or something a new spin on my existing autoimmune issues.

It’s easy for me to slip into fear as I run through a differential diagnosis. The idea that I might have a new dimension to deal with in my daily health routine triggers all my autonomic stress responses. I’ve got a handle on my existing health issues and I don’t have any desire for new ones.

There is a strange aspect of chronic disease where if you’ve reached any kind of stability or continuity you simply don’t want to mess with it. Adding in new treatments or medication is always a scary prospect. I’ve been doing bodywork that seems to have significant impact in a positive way but I’m terrified that as it improves things I’ll have down days as systems interact. I shall pray it improves soon.