Tag: Privacy

Categories
Internet Culture Travel

Day 1860 and Some Technical Difficulties On The ISP Side Perhaps

I’m not anywhere particularly unusual (a European capital) but all of my end to end encryption applications, most crucially Signal and Twitter are not working.

Nothing will send and I’m not receiving messages now either. Why? Well, I’ve got conspiracy theories but I doubt it’s sinister and I’ll boot up a VPN in the meantime if it persists.

I am nearby several embassies (of the regions you might expect to be dicey including my own) and just uphill of city’s international school so maybe one of them is being a dick.

Or perhaps the Airbnb I am using has an ISP provider that is throttling end to end encryption for some reason. For what reason I couldn’t fathom but I am annoyed. YouTube is streaming in full glory on an enormous television but I can’t text in peace to my loved ones.

So this blog post will have to serve a test post to let folks know that I am fine and anyone who needs to know where I am does which is to be fair a pretty darn small list. I’ll move if the issue persists. I’m a mere 7 kilometers away from the center of the city where the internet was working fine earlier today so I’ve got no idea why I’m having issues now. If I’d known I’d have done my writing earlier. A part of me wonders and worries about what might eventually stop my writing experiment being a communication blackout. Though I never thought I’d have a problem in Europe. That is the stuff of authoritarians right?

I have got unpleasant notions about why a European city and its nearby embassies wouldn’t wish to let people communicate freely and privately on websites with end to end encryption. It’s just amusing they are happy to let me watch Netflix and Youtube. The New York Times has no problem getting through nor my other media applications on my phone.

Having been behind America’s first freedom to compute act, I suppose I’ll let my emotions run a bit wild here as a treat. It seems especially concerning that this sort of informational throttle by big European ISPs seems possible and even likely. That embassies might want to extend a little protection beyond their very high walls seems even more probable. Which is not very nice of them.

It makes my mind go straight to propaganda campaigns and not technical difficulties. In this day and age, we should never take for granted our right to express ourselves via compute freely and privately. Stay frosty and I hope this post makes it to you.

Categories
Aesthetics Travel

Day 1848 and Call To Prayer

The call to prayer echoed out as I stood underneath one of many loudspeaker towers bristling with surveillance equipment.

Strong winds buffeted cell equipment and 360 degree video eyeball cameras as the firm melodic voice of the muezzin recited out the first words of the Adhan.

“Allahu akbar”

I wonder how many cameras were scanning my face as I watched the speaker quiver from the wind and snow as I shivered waiting for the black Mercedes driving me to Istanbul went through giant X-Ray machine.

Loudspeakers and surveillance cameras

I briefly let my eyes scan the area to see if this prayer would delay my transit across the Turkish border. I was in no-man’s land between Greece and Turkey and I felt alone. I prayed. God is the greatest.

I saw no one rushing to prayer rooms or unrolling prayer mats. Maybe others were praying as I did. Silently inside the privacy of their own mind. The siren indicated the giant car X-ray was on.

A kind of Doppler effect buffered the prayers from each tower over the sound of alarm, layering prayer and warning as sound rose and fell over my head.

I switched on my Bose noise canceling headphones and closed my eyes. I went to wait out the cold in the duty free but the smell of the perfumes made me nauseous. I went to the bathroom feeling ill. I finally found the prayer rooms. I was still the only one there.

I found the prayer rooms next to the bathrooms at the Duty Free shops inside.

This was my second time driving to Istanbul through the rolling coastal mountains of the Balkans into Greece. I had not expected this kind of life for myself but I seek to be exploring far reaches in this life and little of it makes sense. I experience reality as closely as I can.

To be a traveler to the crossroads of the great empires is a privilege for princesses not a lowly citizen but here I am. An America woman with a passport has power even a Venetian trader did not.

How long that lasts I can’t really say. Even in the panopticon of the crossing I felt safe but the world is in a strange place. Still for now I was welcomed. Constantinople welcomes all travelers.

Three hours later the open roads of Turkish farmland slowed to potholes and frantic taxis gummed up by city traffic. Istanbul drivers are terrifying. Each near miss I found myself saying God is great. Praying that I would make it to my hotel. That feeling would last through every taxi ride I took.

EDFM techno radio and a tricked out taxi expressing his love for the American Cadillac

Categories
Chronic Disease Politics

Day 199 and Vaccination

I’m not vaccinated against covid-19. It’s not a political stance. I’d very much like to be vaccinated and have it work. But I’m in the small category of folks for whom vaccinations do not produce antibodies. And to make matters worse, the only way I could “potentially” produce the antibodies in response to a vaccine is so destabilizing my doctors don’t want me to pursue it right now. So before being super smug about how this is a pandemic among the unvaccinated and it’s a “choice” for a small portion of us it isn’t.

I take immunosuppressants because my immune system has gotten some dumb ideas about attacking my body. I have had anaphylaxis a dozen times and allergies aren’t even my primary medical issue. That would be swelling in my spinal column. It was bad enough at one point that I couldn’t walk.

I’ve tried a lot over 2 years since it was diagnosed to keep it controlled. I was on chemotherapy drugs for about six months (I don’t recommend methotrexate at all and not just because it’s mustard gas). I was on high dose steroids long enough to develop a chemical dependency on them that required supervised titration down. Plus it made me fat as fuck and that annoyed me. Eventually my doctors settled into the suppressant category known as IL, or interleukin, inhibitors.

These drugs fucking rock and gave me my life back. Thanks to them I can live basically like a normal person with the exception that I need to be careful as I’m more susceptible to infection. We are quite literally suppressing my capacity to develop immune responses. You kinda need immune responses for vaccines to work.

Immunosuppressants and vaccines don’t really mix. I had to go off them to get a flu vaccine and I relapsed so badly my doctor was like well I guess it’s going to be masking for you in the future during flu season. About 5 months later the pandemic hit. Fucking hilarious.

If I go off my IL inhibitors eventually I’ll relapse. It’s possible I can make myself less prone to inflammatory responses but it might all be bullshit. I go to a stupid amount of trouble and money and engage in a lot of woo to make the rest of my health as strong as possible so I am not as prone to inflammatory responses. Maybe it will work. But quite frankly I’m not interested in finding out right at this moment if I can live without the drugs that saved my life.

Why does all this matter? Because you need to be off of immunosuppressants in order to have a vaccine work. And I’m not fucking going off my suppressants. Nor is it recommend except in stable cases.

It takes three weeks to dose them out of my system, three weeks off them before a vaccine of any sort would have a chance of generating an antibody response, and then another 3-6 weeks of injections get back to a baseline of stability. (their effects tend to be cumulative). And that’s because I would only be able to get one stick J&J as I happen to be allergic to the PEGs that stabilize mRNA vaccines, so I have to do one and done. But that’s an aside.

Basically I’m looking at 3 months of intensive inflammation that will cripple me just to get a vaccine. Because of a host of other complicating factors my primary caregiver physician and rheumatologist have recommended against me getting the jab. It will be hugely destabilizing to me (which is its own risk) and even if I get it, we just don’t know if I’ll produce enough antibodies while I’m on the suppressants. It could be for nothing.

It’s basically lose lose for me. It won’t work if I’m on the drugs and if I’m off the drugs I’ll be so sick it’s a crap shoot if I need to be hospitalized for going off them. Which ironically would put me at even higher risk of covid exposure. My doctors do not love this.

With the Delta variant on the rise I don’t know if it’s actually worth destabilizing me or if it’s a risk worth taking. It’s a crap shoot. I isolate. I mask. We didn’t want to fuck me up. It feels damned if I do and damned if I don’t. And I feel super alone in this status as everyone is acting like it’s a choice. And yes it is my body and my choice. But what choice would you make? My doctors aren’t sure either.