Categories
Biohacking

Day 866 and Sensory Overload

I was up very late last night as I had an evening commitment on Eastern Standard Time while I myself am on European Central Time. I finished at 6pm in New York but it was 2am for me. It was stimulating I was unable to fall asleep till well past 3am.

I didn’t successfully sleep in as much as I would have liked, so I found myself running on a bit less sleep than I would have preferred even though my Whoop suggested I was in the green with a reasonably high HRV score. When my biometrics are all in the green, even if I’ve had perceptually poor sleep, I try to let my data guide me.

I thought I was doing ok as I went about my routines and workload. I showered, meditated, did some work and even got a power nap in.

Still I found myself getting overwhelmed by basic sensory inputs. The sound of the cars on the road felt loud. I took a walk and found myself ordering an Uber to get home as I was tired and has gone too far. Alas, in the car, I found myself covering my ears and closing my eyes as the pop music and car incense overwhelmed two senses at once.

I felt as if I was an autistic cliche. I literally had my fingers in my ears humming to myself to calm myself down. After my nervous system mastery Bootcamp course, I knew my vagus nerve had gone into overstimulation.

I had gone into sympathetic shutdown without even realizing it. I couldn’t even think to ask the driver to turn down the music. I did what I could to breath.

It was a quick reminder that my daily life in the countryside of Montana is a lot easier on the body than a bustling city like Frankfurt.

Categories
Biohacking Travel

Day 861 and 8%

I’ve been on the road all week for work (and a little bit of play). I flew an overnight transcontinental from Seattle to Frankfurt Tuesday evening into Wednesday which is yesterday for America but with the time zone change feels like two days. While I am not jet lagged (a surprise) my Whoop recovery is the worst I’ve ever received. I got an recovery 8% score. And I feel basically fine

After a rocky encounter with a new airline carrier Condor, I struggled to stay asleep sleep on the airplane. I blame the excitement of the bizarre business class setup without assigned seating. Or maybe it was because I ended up making friends with my seat mate and swapped stories over dinner.

Usually when flying overnight I take an Ambien and immediately pass out. Better living through chemistry right? Plus I’m not naturally social. Instead I was doing face masks and debating White Lotus theories over a pretty decent seared tuna.

When I landed in Frankfurt I felt quite energetic and pushed through the afternoon with ease. Or maybe it felt easy as I had several cups of coffee. I thought I’d nailed the flight even though I knew I didn’t get enough sleep.

Once I’d settled into my Airbnb, I checked my previous night’s biometrics I realized I’d only recorded four hours of sleep and my HRV had dropped into the low teens. Maybe I’d made a mistake not “force quitting” myself into a hard sleep on the airplane with a downer.

My average HRV is usually in the forties which isn’t all that impressive to begin with (I’ve got a spinal condition called ankylosis spondylitis) but I hadn’t expected all my biometrics to go flashing red quite so badly when I felt mostly fine. My guess is that the 8% reflected a significant amount of stress and I’d simply not flushed the adrenaline and cortisol out of my system.

I’m keeping it low key today as a consequence. I was up at 7am European Central Time and went grocery shopping to stock the apartment. Getting sunlight is crucial and while I plan to keep EST hours mostly while I’m here it felt good to be up and about.

I managed to fit in some work, did a load of laundry, got some Ethiopian food for lunch and still feel like I can manage a work day. It’s now past 5Pm in Germany and America is just waking up on the west coast. My husband just texted me from San Francisco so it’s time to finish my day and start the day with everyone else.

Categories
Biohacking Emotional Work

Day 858 and In Passing

As I’ve been working on a nervous system mastery course the past few weeks I’ve been especially attuned to how quickly emotions rise and fall in my body. Like a small child, the range and swiftness of feelings always catches me by surprise. And it is a blessing.

I don’t repress anything. Good or bad, I let it rise up and feel it deeply and completely. This can lead to some awkward timing.

I had a moment of intense grief and sadness wash over me on the airplane today as part of an exercise called somatic free diving. I let the tears overcome me only because I had on an eye mask that I knew would hide it. I was in a safe place to feel it even though I was in public.

But just as quickly as the storm blew in so too did it dissipate. The emotions are always in pass if we allow ourselves to enjoy the temporality of our reactions. If the issues are in our tissues we can bring ourselves in and out of them just by noticing where in our body we feel our emotions.

The pressure to let go of bad feelings and hang onto good ones can be intense. We rush to toss off grief, sadness, fear, abandonment and rage while we cling to happiness, joy, wonder and arousal.

But I am playing with the idea that everyone and everything is just happening “in passing.” Humans only get to live forward in time linearly. None of the probabilistic potentialities happen for us. We enjoy heavily edited narrative memory and future fantasies but reality happens in the present.

I am hoping to catch some people in passing while I am in transit. However I know possibilities are endless and my linear limitations will intersect with all of the other beings also in passing with equality linear limitations.

All of that has become beautiful and tangible to me the further I dive into my own nervous system and it’s inner workings. If you do want to join the next cohort with me (apparently alumni are able to do so) my code JULIE does something. Probably saves you some money. For me the course has saved me something far less tangible and I am grateful.

Categories
Medical

Day 836 and Medical Care & AI

I had a little bit of excitement in New York City when I encountered some type of gastrointestinal issue. We’d speculated it was food poisoning or norovirus with our doctor.

After getting it out of my system and speeding back to Montana; we’ve been pouring over the symptoms, timing, biometrics and medicines to see if we missed anything. It felt like an opportunity.

We had three doctors retire on us this year and after two years of rising premiums, we are naturally skittish about health care. Pandemic telehealth reimbursement being sunset is a hit to rural care as is the other policy roll backs as the of emergency winds down. Reciprocal licensing across all states sure seemed like it should have been a keeper. But alas American health care is a mess.

Thankfully we’ve got a doctor local to us in Montana who we’ve been slowly building up a relationship with over our first year here. After his star turn in this gastrointestinal saga, I am ready for a round of blood work and a look at the big picture with him.

We’ve even been dabbling in a few theories with our Large Language Model friends. While ChatGPT goes to a lot of trouble not to diagnose, we’ve been able to run down some leads on our own and bounce them off our doctor. I’m looking forward to getting a look at my liver panels and gallbladder. Maybe tweaking some of the pharmaceutical line up.

While it may seem a bit grim, I’m considering that with enough questions asked and enough clever inferences on our behalf from our new AI friends, maybe we can get further. Sure we are down 3 doctors and up 30% cost wise, but maybe these plucky kids can make do with a chatbot, a young doctor and a can do attitude.

Categories
Chronic Disease

Day 827 and Temporal Displacement

Everyone probably remembers a moment during the pandemic when time lost all meaning for them. Maybe you regained your sense of time as schedules solidified back into the real virtual hybrid we’ve agreed to keep for some of us.

I don’t recall ever getting back my sense of time. It started earlier than the pandemic for me. I slipped the time train tracks sometime after Trump was elected, before the pandemic hit, but definitely during the course of rebuilding my health.

Maybe sometime in late 2018 it became temporal displacement. And the variables involved in the perception of time and my own sense of where I am in time has been a common theme on the blog.

I’ll be dimly aware that it’s a weekday or a weekend if I’ve got someone who needs my attention or if I’m producing a specific outcome on a timeline. But otherwise I’m basically the the grand dame in Downton Abbey. “What is a weekend?”

It is in fact coming up on a weekend. A weekend where I don’t appear to have any houseguests or events planned or much necessary to be handled. I only have temporal obligations for physical care of my body. So maybe I’ll be able to slip further out in time or maybe I’ll align back to standard American work week. I mostly want to sleep.

Categories
Emotional Work

Day 822 and Increased Load

Maybe I should lay off the space opera as this is the second blog post this week in which I’m tempted to use a metaphor about gravity. I’ve been recalculating fuel costs and orbital mechanics for all the journeys in my life as of late. Just to see if I can go the distance.

I’m feeling good about the increased load of an accelerating life. I like that so much is happening. But I do feel very like it’s a bit by the seat of my pants. Various things aren’t tightened, shit is flying everywhere, I’m finding out who gets sick to their stomach.

I am finding that my adjustment to the increased load is a bit uneven as well. For a couple days I’m flying and then I realized I need to recalculate my fuel inputs and it gets a little bumpy.

Categories
Chronic Disease

Day 812 and Stress

My internet experience recently has shown me some touchy people. Maybe it’s the stress of the global banking crisis. Or the random panics about Bitcoin. Or the AI panic. Or presidential perk walks. Or extreme weather. Or rising tensions with China. Maybe someone got the wrong coffee order.

Or maybe, in my case, I’m snippy and touchy because I’m having a terrible flair up of my ankylosis. I forgot what a challenge pain can be to manage. Then it comes roaring back after a period of intense stress and I forgot myself.

I’m just noting it for today as I’ve been working nonstop. I’ve had houseguests without fail for three straight weeks (five in total) for reasons mostly personal but occasionally with professional overlap. It’s just been a bit.

So no elaborate intellectual ramblings today or extremely online rabbit holes. It’s just a check in to say I’m not quite dead yet.

Categories
Chronic Disease Travel

Day 791 and Bathing Suits I’ve Never Worn

I’m on maybe my third or fourth trip to a warmer climate where I’ve brought a Norma Kamali bathing suit. I bought it on sale from Net-Porter as I’d always wanted one of her classic one pieces. I’ve never worn it.

For the casual reader, I have a chronic autoimmune disease called ankylosing spondylitis. It’s an inflammation condition that affects my spine and is aggravated by heat & humidity. Any temperature above above room temperature, give or take 72 depending on the humidity, starts to swell my tissues.

It’s well controlled with drugs but environmental factors can quickly spin up a bevy of symptoms including pain so debilitating I can’t walk. It’s one of the reasons we moved to Montana. I can live a semi-normal life so long as it’s cold. I spend most of my days laying flat in bed or in a zero gravity chair. My disability has become one of the super powers I use to propel my investing alpha. Because what else do you do with your time if you can’t leave bed except monitor financial indicators and chat with founders?

But back to the bathing suit. The black halter swimsuit has turned out to be entirely an aspirational garment. It’s still got the sanitary sticker for the crotch on it that says remove before wearing. I left it in and it’s become the not so subtle reminder that I may never enjoy a beach vacation again. It’s simply beyond my grasp unless I want to pay an obscenely high cost in pain and immobility.

I dutifully pack the Norma Kamali suit on each trip with a warmer climate. I’ve taken it to Miami, Texas, the Mediterranean and Mexico now. For this trip to Puerto Vallarta I packed a second bathing suit. It’s a striped bikini.

I had a fantasy that maybe I’d need a second swim suit as the other would need to dry if I swam every day. Oh what self deception we humans are capable of when it involves something we cannot have but want. I’ve never put the second suit on either. It also has the sanitary sticker still on it. It’s beginning to feel like they taunt me. Isn’t it funny that Julie still yearns to participate in the simple pleasures of life. “That dumb cunt” I imagine them murmuring as I pack.

My father loves tropical vacations. An adults only resort on a beach is his idea of a good time. And for his birthday, my brother and I very much wanted to give him what he wanted. Part of this is self protection as he often forgets to ask after other people’s preferences even if they are for something serious like a disease or disability. Better to avoid disappointment than know for sure. But also if we can give him what he wants why not make the sacrifice? It’s expensive for me energetically but I wanted to spend.

But it’s become clear I can’t make the sacrifices desired for the perfect fantasy family vacation. The bathing suit gets tossed in the suitcase with the knowledge that I can only manage one event outside each day. It’s usually a dinner or a chat.

Then I must sleep it off and work to recover. There is no space for pleasant relaxation on the beach in my body. The compressed Lycra slowly battling the expansion of my tissues as they swell overlapping with stuck lymphatic liquids would be torture. There is no joy to be found and no extra capacity to be eked out that might make the experience mimic the pleasure in a healthy body.

The fantasy is just that. A delusion I have about a life a lost and unlikely to be regained. The after effects of fertility treatments, IVF and living hard to outrun the vicissitudes of capitalism. I’ve accepted it as my lot in life. But it’s much harder to get it across to the rest of the world. And my fear that I’ll be left out and forgotten, that if I don’t fit myself into someone else’s life I’ll be abandoned. And so I rationalize that I’d be abandoned if I don’t at least try to bring the bathing suit. Even though going to the beach is a fantasy.

I hope my friends and family are able to meet me half way but I remain afraid that they don’t know how, or are unable to imagine what it’s like to live in my body. And it would be nice to be met halfway.

Categories
Biohacking Chronic Disease

Day 790 and Siesta

I have been crashing out of my day into a sleep cycle after lunch till about 4pm while I’m in Mexico. The stress of the situation along with the heat and humidity have me needing a lot of rest.

Last time I was in a hotter climate I’d find myself crashing out into naps if I did something like eat lunch outside. I think something similar happened here. There are no air conditioned common spaces in this hotel so if I want to spend time with someone I’m outside. Sure there is shade but that doesn’t knock down anything but brightness. The heat and humidity strike anyways.

I hate this phenomenon. I don’t find it helpful to be laid flat and exhausted by two or three hours outdoors, sitting, in the shade; but it’s absolutely draining. Even if I felt like I had a full charge, which I don’t particularly, I’d be down in the red quickly.

I woke up with someone asking about dinner plans which I had offered but in truth the most I want to do is get some dinner and go back to sleep. It’s just much too draining to be outside and there aren’t many restaurants in this town with air conditioning.

Categories
Biohacking Chronic Disease Travel

Day 789 and Types of Poverty

As you’ve probably seen articulated in thought leader tweet streams and thot-leader Medium posts, there are different kinds of millionaires. If you are young you are a time millionaire. If you are able bodied and healthy you are an energy millionaire.

I am in energy poverty. I carefully ration my attention & time and use lots of time-economic craft like asynchronous communication like emails and direct messages. Like a thrifty person with a budget I am always cutting the various coupons of time in my life to cobble together enough time to work full time so that no one can tell I’m energy poor.

It’s pretty common for folks to be in energy poverty. Maybe you are a parent. Maybe you are a care giver for an elderly parent. Maybe both. The most common is of course being disabled and requiring care. I am in that category.

I’ve turned my energy poverty into my super power. I am like Mr World monitoring feeds across the globe laying back and ingesting information & taking small minute actions to adjust my plans. I’ve adjust my career to fit this reality and find it to be an excellent fit for investing as it’s all about finding the alpha and acting on it.

I do telegraph that I’m in this situation. That my mind is sharp but my body is weak. I accept 2-3 events a week at maximum that require me to be up, about, in makeup and battle regalia (business dress) and the rest is dedicated to recovering.

I’ve never had hobbies that couldn’t be done from bed. The last time I participated in a sport was in my twenties before my latest flare. I’ve not had a social life independent from work for decades. It’s isolating and I remain perpetually afraid of losing people who aren’t in the same situation of energy poverty as I am.

Capacity can be drained further by negative conditions like heat, humidity or bright light. I am the type of disabled person that finds showering to be a huge drain so typically include those in my energy budgets as drains. Travel requires 24-48 hours of minimum recovery time which is why I tend only do month long stays places. You may have noticed I go cold places like Prague or Frankfurt and I live in Montana. That’s based on doctor recommendations.

Certain types of travel can’t be done without significant outlays of energy budget that will leave me in deficit for weeks. Beach vacations have long ago been lost but I can manage a tropical location so long as I stay entirely inside in an air conditioned room. Don’t worry laying on the beach isn’t fun for me so I’m not missing anything. Heat & salt water humidity is the fastest way for my body to begin an inflammation cycle.

I’m in Puerto Vallarta for my father’s birthday and the best I can manage is stay in my room all day and a dinner every other night. It’s a little confusing for folks who aren’t in energy poverty to fully grasp the concept but I feel no more frustrated with my situation than I would if I had financial poverty. Sometimes it’s just the situation and your budgets have hard limits. I’ll make an effort and spend 2 weeks of an energy on a long weekend for someone I love but it does cost me. Everything costs something.