We are in a weird moment for transactional goods and services. As more people draw inwards towards themselves, the social contract is less clear. What do we expect when we pay someone to do something for us? Do we make small talk? Do we smile? Do we reach for connection? I went to a nail […]
Search: “ankylosing spondylitis”
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Day 974 and Flare
As most casual observers of this daily log have probably noticed, one of my main interests is biohacking. It was a hobby in the time of my life I mislabel as “before chronic illness.” It’s not accurate so much as recency bias. I’ve been into biohacking my whole life because I’ve had to manage an […]
Day 953 and Sugar
If you’ve been following me for a while chances are good that you’ve seen me discuss my biohacking. I’ve got an autoimmune condition called ankylosing spondylitis. It’s a form of arthritis in the spine. When it flares the inflammation can be so painful that basic tasks like walking or standing can be out of the […]
Day 919 and Thin Skin
I am experiencing very palpably the literal meaning of being “thin skinned” this week. All the areas where my skin is thinnest (eyes, lips, fingers, and other more delicate spots) are inflamed. I’m beating back some kind of this autoimmune response to having some pets in the house with everything I’ve got, and have thus […]
Day 896 and Watching Pain
Two of the people closest to me emotionally are having bad days. I’d like to discuss what it feels like to watch someone’s pain when you yourself are intimately familiar with pain yourself. It hurts to watch someone else in pain when you yourself know how much it takes from your spirit and how little […]
I hate when I am made to feel it is embarrassed and ashamed that I have a disability. And German’s current energy policy has me feeling like my medical needs are something of which I should me ashamed. And that’s bullshit. It’s a policy failure. I have ankylosing spondylitis (an inflammatory condition in my spine) […]
Day 857 and 3 Bag Cascade
I’ve developed a system for travel crisis management that has seen me through many a storm, workers strike, airport security involuntary cosmetics tosses, gate check “full overhead” confiscation, and other ways you might become involuntarily separated from your luggage. Perhaps even permanently at the rate you hear of luggage getting lost on transcontinental flights. Disability […]
I’m on maybe my third or fourth trip to a warmer climate where I’ve brought a Norma Kamali bathing suit. I bought it on sale from Net-Porter as I’d always wanted one of her classic one pieces. I’ve never worn it. For the casual reader, I have a chronic autoimmune disease called ankylosing spondylitis. It’s […]
Day 767 and Abandonment
I called someone today with whom I have a standing appointment. They didn’t pick up at first. I called back a few minutes later when they didn’t return my call. They picked up on the second call back. They didn’t seem entirely healthy. I found myself scared. My inner child dove immediately into a pattern […]
Day 664 and Political Disabilty
I did not watch the Pennsylvania senatorial candidate debate between Democratic Lt. Governor John Fetterman and Republican tv personality Dr. Mehmet Oz because I live in Montana. Why the fuck would I do that? But I have caught the discourse surrounding it and I do not like it. If you are not following this saga, […]