It’s always baffling to me when something that is supposed that is supposed to make you feel good makes me awful. And yet it’s a very consistent experience for me. Every time I get bodywork done (massages, acupuncture, osteopathic spinal work, physical therapy) I feel like absolute shit for 24-48 hours afterwards. I have an […]
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Day 1283 and nAChRs
Never one to take things laying down, I started a crazy “n of 1” experiment today. My family doctor prioritizes keeping up on literature. We’d chat about anti-inflammatory research in reputable journals. But I am on week seven of Covid symptoms simply not clearing. I’ve been coughing when under stress or exertion, my seasonal allergies […]
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Day 1084 and Tension
For the last week or two I’ve been getting tensions headaches. While I have migraines that manifest mostly around hormonal cycles, I can’t say I’ve had a tension headache before. Migraines make me sensitive to light, sound, and smells but this new headache type was more like a pressure inside my cranium. Typical migraine medicine […]
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Day 993 and Service Expectations
We are in a weird moment for transactional goods and services. As more people draw inwards towards themselves, the social contract is less clear. What do we expect when we pay someone to do something for us? Do we make small talk? Do we smile? Do we reach for connection? I went to a nail […]
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Day 974 and Flare
As most casual observers of this daily log have probably noticed, one of my main interests is biohacking. It was a hobby in the time of my life I mislabel as “before chronic illness.” It’s not accurate so much as recency bias. I’ve been into biohacking my whole life because I’ve had to manage an […]
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Day 953 and Sugar
If you’ve been following me for a while chances are good that you’ve seen me discuss my biohacking. I’ve got an autoimmune condition called ankylosing spondylitis. It’s a form of arthritis in the spine. When it flares the inflammation can be so painful that basic tasks like walking or standing can be out of the […]
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Day 919 and Thin Skin
I am experiencing very palpably the literal meaning of being “thin skinned” this week. All the areas where my skin is thinnest (eyes, lips, fingers, and other more delicate spots) are inflamed. I’m beating back some kind of this autoimmune response to having some pets in the house with everything I’ve got, and have thus […]
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Day 896 and Watching Pain
Two of the people closest to me emotionally are having bad days. I’d like to discuss what it feels like to watch someone’s pain when you yourself are intimately familiar with pain yourself. It hurts to watch someone else in pain when you yourself know how much it takes from your spirit and how little […]
I hate when I am made to feel embarrassed and ashamed by my disability. And the German’s current energy policy has me feeling like my medical needs are something of which I should be ashamed. And that’s bullshit. It’s a policy failure. I have ankylosing spondylitis (an inflammatory condition in my spine) along with a […]
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Day 857 and 3 Bag Cascade
I’ve developed a system for travel crisis management that has seen me through many a storm, workers strike, airport security involuntary cosmetics tosses, gate check “full overhead” confiscation, and other ways you might become involuntarily separated from your luggage. Perhaps even permanently at the rate you hear of luggage getting lost on transcontinental flights. Disability […]