Author: Julie

Categories
Chronic Disease

Day 621 and Pain’s Anxiety

Before I was diagnosed with my spinal condition ankylosing spondylitis, I didn’t really understand that I was in pain. I know that sounds weird, but I just knows I felt like shit. I hadn’t yet pinpoint the origins of the crisis in my own body. I was a stranger to myself.

Back then getting a diagnosis involved a lot of questions about my mental health. Are you anxious? Would you consider taking an anxiety medication just to see if it help? Are you sure it’s not all in your head? No doctor I’m not sure of anything that’s why I’m asking you.

The thing is I did feel anxious. My central nervous system was in a perpetual state of fight or flight from the pain. I had tachycardia. I was twitchy. I wasn’t a sleeping well. I didn’t want to be touched. It hurt too much. I was exhausted all the time and felt overwhelmed that no one seemed to know what was wrong with me. I’m lucky no one asked me if I was depressed or I might have been put on Prozac.

I’m one of the lucky ones. My chronic disease has a simple blood panel and physical exam to diagnose it. It only took me a few specialists to get to a rheumatologist.

I fear I would have been given an anxiety diagnosis and told it was all in my head if I’d had something more complex. But thankfully we untangled that any anxiety or depression I felt was simply a function of being in an inflammatory condition so acute every movement was painful. You’d have a racing heart and a fear of movement or touch too if everything was painful to the touch

The thing is I am scared of my pain. I do regularly get caught in fight or flight fear responses if the pain appears and I’m not prepared for it. I am militant about certain aspects of self care and my biohacking as I fear flares. I fear the drugs that are required when it isn’t controlled. It makes me anxious to need drugs at all to control my symptoms. Especially in America where a war on drugs has made it hard to need anything stronger than Advil.

Everything about pain and it’s treatment is anxiety inducing in America. And that’s a hard comorbidity to live with in a disease. As if pain wasn’t enough, the latent fear that you might not be believed lingers.

Categories
Preparedness

Day 620 and AQI

I am in the throes of a horrifying migraine. The take two Imitrax and pray type. It’s also the nausea inducing type so I’ve not eaten all day. I feel awful. And it’s mostly not my own fault even though I often like to blame flares in symptoms on my own lack of discipline or purity in maintaining some Platonic ideal of lifestyle or wellness regimen.

It is fire season in the west and I’m sure some, if not most, of my migraine is tied to the horrifying air quality that is choking out thousands of miles of California, Washington, Oregon, Idaho and Montana.

An AQI reading of western America on September 12th at 3:48pm Mountain Time from PurpleAir

The AQI or air quality index in my neck of the woods is 160. Unhealthy for sensitive individuals is the coy and somewhat misleading phrase used. It means in practical terms visibility is so bad I can’t see the mountains a few miles away.

Montana is at the moment free of any major fires. Our colder temperatures, lack of pervasive fire beetle blight, and reduced density makes it statistically safer than the Colorado front range when it comes to total fire danger. But it’s no safer from prevailing winds and the pollution from fire in other states. In order to escape from it entirely I’d probably have to leave the continent.

I’ve obviously opted not to leave my home region of the mountain west even if I have accepted moving to a more northern and protected corner of it. But there is a certain existential “No Exit” sense I have with AQI and fire season in general. It may just be my lot in life. Maybe it’s everyone’s lot. To give up your homeland is a complicated fight. I expect for some of humanity it must involve either certain death or the prospect of great riches

Categories
Aesthetics

Day 619 and Indoor Clothes

I have one issue on which I am a little obsessive compulsive. I hate when someone wears dirty clothes on a clean bed. It just drives me absolutely up the wall.

I suspect this is born of some totally rational preferences. I am very outdoorsy and always have been. As a child I spent as much time as I could negotiate at the barn. I worked as a stable hand as part of keeping my own horse’s board and feed paid. If you’ve ever kept animals or worked on a farm you know how barn clothes smell at the end of a long day. You don’t wear your barn clothes except when you are choring. It’s rude.

Then when I left Colorado for New York City I found another reason that your work clothes should be taken off at the door. Instead of smelling like manure, urine and stale sweat after a long day mucking stales you’d smell like shit, piss, the subway and traffic exhaust. City smells are no more polite to bring inside than barn smells. Getting splashed by a cab or sitting too close to someone who hasn’t showered in a while on the subway is just normal life in a city.

You can probably imagine now a routine in which I take off my outdoor clothes and swap them for my clean indoor clothing. I try to do this as fast as is possible. I can’t fully relax unless I know I’m in my indoor clothing. Because unless I’m clean I cannot get into bed. And there can be no dirty clothes on clean beds.

I simply will not let myself even get on top of the comforter of my bed with outdoor clothing on. If I want to get under the covers and fully relax at home, I better be in clean designated “indoor clothing.”

It still upsets my brain when I see a teenager on television lounging on their bed with shoes and jeans on. Maybe suburban sitcoms neighborhood are a cleaner environment than the one I grew up in?

Or when an adult couple is about to get it on and then tumble into bed with their coats and jackets and high heels. I just hate that. I shudder. I don’t want to bring dirt and shit into my love making. Sorry it’s just my preference no shame if that’s your kink. But absolutely not in my house.

I’ve finally fully trained my husband on this quirk. He keeps a clean set of pajamas to change into and is careful to keep barn clothes to the barn. As for me, I like this quirk. I keep a cleaner house because of it. Sure it’s a little weird but I love a nice clean safe place.

Categories
Chronic Disease Politics

Day 618 and Personal Politics

I hesitate to share too much detail about this but, I’m an opioid user.

Actually I’m not hesitant to share that at all, it’s in fact the core salient point I want to make today. I have a chronic disease and sometimes, blessedly more and more infrequently, it can only be effectively treated with pain medication.

Why am I talking about this? And in public no less? Because unless powerful people that have a degree of social, personal and political capital discuss things we deem unsavory we never make any damn progress on humanizing our inhumane responses. And our response to the opioid epidemic is inhumane.

The backlash to the crisis, a mash up of intense scrutiny, government intervention and rigid rules, has now reached a point where it is doing as much harm as the original crisis of overprescribing. And I hope my personal story allows you to see why.

My spinal condition (ankylosing spondylitis) can be so debilitating that the only way I can get out of bed to accomplish basic tasks is by taking a mild opioid called Tramadol. It’s not in the same category as OxyContin or Percocet but it’s not risk free either.

I’m lucky that my condition is relatively well controlled. I don’t need pain medicine all the time and I work very hard on alternative treatments in the hopes that I won’t need it at all in the future. I spent a small fortune making sure I don’t need a core useful medicine. Let that sink in.

I’m not an addict. I am monitored by a team of professionals. Every step of the way is in fact monitored extensively by state and federal systems along with massive insurance and hospital system oversight. It’s the closest I’ve come to experiencing the Panopticon. It’s life altering in its scope. My entire life by necessity has to revolve around when the system deems it safe for me to get a prescription. Not when my doctor thinks I need it. When Uncle Sam does.

I fucking hate relying on something so dangerous and so demonized but also so regulated. I hate that my entire private medical life is so closely monitored by the state. I hate all of it. But, on very bad days, the choice is immobilization or Tramadol. And I’m not at all ashamed to say I pick Tramadol. I want to be a working productive member of society and that’s hard to do when you are unable to move from the pain.

There is no grace in suffering but what it teaches us. And I’ve learned we use pain as a cudgel to control people in our society. That it is so effective is why I am both a libertarian and fiercely against the carceral state. One day it might be you suffering and you won’t deserve it either. And I pray that you will be shown grace in your personal circumstances.

But I’m lucky. I’ve got other pharmaceuticals, like biologic injections which treat inflammatory conditions, that I can rely on. I’ve got THC and CBD for their anti-inflammatory properties. I’ve got good old fashioned steroids like Prednisone. Which interestingly, my physicians universally believe is more dangerous than my Tramadol usage and did actually require an extended titration down as I was physically dependent on it, as your body stops producing the necessary hormones. They’d rather I use Tramadol for flares.

But you notice the government isn’t up in your face with a massive publicity campaign showing cops busting down Prednisone rings. There are no political advertisements showing how an opponent supports big steroid. Even though if you saw Donald Trump after he got Dexamethasone during his fight with Covid it was pretty clear he felt pretty good. Steroids have gotten me far more fucked up and also higher than any opioid ever has. But no massive surveillance program has ever come down on anyone for anti-inflammatory drugs.

Because that would be fucking ridiculous even though it’s just as addictive in driving physical dependencies , just as debilitating and depending on your body chemistry, just as “fun” as narcotics. Fun fact about me, I don’t have whatever chemical makeup that allows an opioid to give me a high. Which as I’ve learned is a saving grace. Not everyone does. That’s kind of the rub. The risk profile on opioids is a bit worse because some pharmaceutical executives lied about the percentages of people who get addicted. Or who found it’s side effects pleasurable in the absence of symptoms. They did not lie about the benefit of not being in pain.

And that ought to give you a good sense of the problem at hand. The iron law of prohibition strikes again. A massive bureaucracy imposing a fix that intervened in crude and inflexible ways is causing more suffering than it fixes. It wasn’t the intent but it is the outcome.

The iron law of prohibition is a term coined by Richard Cowan in 1986 which posits that as law enforcement becomes more intense, the potency of prohibited substances increases. Cowan put it this way: “the harder the enforcement, the harder the drugs.”

Because doctors were lied to about the risk profile of certain types of opioids in the first place, the backlash is now as bad as the original sin the pharmaceutical companies committed.

Regular law abiding people are getting fucked in their treatment plans because hard enforcement is making it harder to get the low dose drugs. We treat Tramadol users with arthritis with the same tools as as criminals addicted to illegal fentanyl. I know shocker that the American federal government can be as evil as Purdue.

But also historically you know it’s true. And now a huge portion of normal people like me, who just want the benefits of not being in constant pain, are being turned into an over surveilled over controlled population. And I’m not saying there are no risks. But who do you want deciding that? A doctor who knows you well? Or the government? Yeah I’d pick the doctor too.

Categories
Politics

Day 617 and Overnight

I plowed through a bunch of choring yesterday. Which apparently tuckered me out. I took maybe an hour nap before dinner. I had a little extra CBD beforehand and found myself drowsy as hell. I passed out sometime around 8:30pm.

Alas the napping and the early bedtime, if you can call just utterly losing consciousness “bedtime,” had consequences. I came to around 1am and found myself wide awake. Oops.

At first I wasn’t quite sure how to approach this unexpected moment of being lucid and energetic in the middle of the night. I toddled over to the bathroom to pee. I crawled back into bed. I debated if I should try to force the issue with an Ambien. But I didn’t have anything in the morning so I thought maybe I should take those sleep hygiene folks seriously and just do something till I get tired.

Of course, the thing I decided to do was read on my phone. I cleared a few back logged essays from my collections on my favorite reader app Matter. I logged into Bloomberg to check pre-market sentiment. I opened up the New York Times and read Queen Elizabeth’s obituary.

Around 2am it seemed clear I wasn’t sleepy at all. Whether from the back lighting of my phone or the five hours of sleep I’d logged earlier. So I said fuck it and opened Twitter. I dig deep into the feuding discourses of “God Save the Queen” versus the survivors of British empire. Monarchists loved their kindly grandmother and the Irish did their best to be polite about the genocide of it all.

If the sun never sets on the British Empire the doom scrolling through the celebration of the end of the longest reigning monarch seemed like the way to go out. But unsurprisingly there was a lot of darkness to be found in the pre-dawn sentiment. I tweeted a reminder to myself to explore how enclosure movements and anti-colonial “fuck the federales this is our land” historical context plays into the American political moment.

Eventually I got drowsy. I feel asleep around 5am just as the rest of the country was waking up. I slept till 9am or so.

Categories
Preparedness

Day 616 and Choring

If I haven’t yet recommended it to you, my favorite sit-com is called Letterkenney. It’s about a group of young Canadians living in a small town in farm country. It follows the hicks, skids, and hockey players as they go about their lives of mostly manual labor and occasional drug dealing. This premise dramatically undersells the show which has the smartest writing and quippiest dialog this side of an Aaron Sorkin drama. Except it’s about ten times as vulgar and much less pretentious.

One of my favorite ongoing bits in the show is how everyone is always “choring” as a background. Or if you aren’t choring you need to get back at it. Want to go out? Pitter patter, let’s get at her by getting back to choring.

Between various work obligations today I have been getting back to choring myself. I had a whole host of both farm and house chores that got put away today in my frenzy of focus. First up was doing seed starts for my winter hydroponic lettuce and herb garden. I used this guide from my favorite resilient living website Unprepared.

We’ve had a lot of success with hydroponics in small indoor spaces with the LettuceGrow. We hadn’t yet done our own starts for it as we’ve had access to great nurseries. But our goal is to have a continuous seed to starter to full grown head of lettuce rotation system in place. If you’d like to try it out yourself, you can get $50 off with this link.

Feeling invigorated by the success of the mornings planting and by the nutrients in the head of butter leaf I harvested, I turned to other overdue bits of choring.

A grey bookshelf with an esoteric mix of books.

I unpacked and organized some of the books I keep on hand for reference materials. You might spot preparedness & resilience topics. Also my library on consumption, class & money. My capitalism meets Marxism meets political theory books. And then of course a lot of Greeks.

A pantry well stocked with dry goods

I then tackled the organization of the pantry. That’s got a long way to go but at least I took it from a bunch of stuff Willy Nilly into a basic organization. We’ve got shelves dedicated to dried fruit, an entire shelf for nuts, and other sundry spots for grains and sugars and the like. Shockingly there are drawers under this where I’ve put beans and lentils to keep the onions and potatoes companies.

I’ve got so many chores that listing out all the choring for one day both motivates me to keep at it but also reminds me that we get a lot day each day around the homestead.

Categories
Internet Culture

Day 615 and Look Back

I recommend having habits from which one doesn’t deviate. I’ve come to appreciate how much the daily exercise of writing has come to provide a kind of scaffolding on which I hang the rest of my day.

But it can be easy to get lost in a habit too. I had originally started the act of daily writing as the habit. But I sometimes forget that there is more I can do on top of the foundation I have laid over these past eighteen months. I could integrate more of my past writing into the daily writing. I could do more to make it visible. I could do more to make it accessible. I could do more to make it durable. Perhaps now that writing every day is a firm habit I can expand on it.

In that spirit I am doing a little link round up on what might warrant a look back. A few posts that I thought were particularly good. A few posts that reflect some of the zeitgeist that I am digesting. And a throwback that some of my internet friends reminded were worth while.

The Thursday Styles Problem is probably one of my favorite essays. It’s about who knows what when and how that power flows.

I did a few write ups about masculinity and the internet. Two are about groypers. One is about cucking in the imagination of the American conservative. Or be careful as you can absolutely get brain worms from the internet.

I also had an essay on doing errands and the reality of living your daily life in a time of collapse. It pairs well with this bit about shrinkflation and consumer packaged goods.

Categories
Internet Culture

Day 614 and Cuckservative

At the risk of scandalizing any of my relatives, I learned about a sexual kink today called cuckholding. I was not, sadly, enjoying kink SubReddits. I learned about this term from a bunch of Trump acolytes. Apparently cuckholding means watching another man have sex with your partner (usually wife). So now you know.

For those that are not terminally online, the context is that in a lot of right coded spaces terms like cucking, beta cucking, and cuckservative get used to describe humiliation but also insufficient purity to the cause. The cause usually being some Platonic ideal of conservatism right up until it becomes indistinguishable from authoritarianism.

Now I’d not given a lot of thought to the term and it’s apparent intense fascination to conservatism men. But it keeps showing up in even ancillary spaces like gun culture and even Wall Street Bets. Every humiliation is cucking. Every instance of not holding perfectly pure in-group signifiers and adherence is cucking. The beta cuck is in a an internal battle with the alpha Chad. And frankly it got so prevalent I finally had a “lady doth protest too much” moment and asked wtf is the obsession with cucking.

Can anyone explain to me why the right is so obsessed with cucking?

I honestly didn’t expect to learn as much as I did about the anxieties of our age, the particular traumas of living with ego preservation needs from our childhood, and the sheer raging reaction formation that is American masculinity. Honestly I’m starting to spend a little more time there than feel safe.

I quite feel don’t feel up for analyzing the whole mess of reactions but it largely seems to boil down to a Slate or Salon article said this was the hot liberal fetish. This got percolated through forums culture and whipped into a frenzy by Trump meme magic. But because the internet gives you brain worms this turned into an actual thing people got sexually turned onto and now it’s maybe impossible to untangle what is fetish and what is meme. But there is definitely some wild sexual politics around power and property in America and who counts as a full person with agency. I’m including some screen shots for posterity as it might be helpful for later research as I fear this will end up being useful as some internet ethnography.

Categories
Emotional Work Preparedness

Day 613 and Timing

It’s hard to look straight on at your desires. Why is it that some of your life arises from your priorities and focus, but others are just chances and circumstances?

The hardest part about looking face first at being responsible for yourself is that you are both in total control and not in any control. We want to live with willpower. We want to be people of purpose. And yet life is happy to show us how much it’s all just dumb fucking luck.

Because we are what we make time for in our lives. And if we don’t make honest time for ourselves how the fuck will we ever know what we actually want. If you let life idle past you that’s fine. Because that is the path of fulfillment all along. And in letting ourselves just be maybe we find entirely new reservoirs of resources.

I’m considering taking a wilderness first responder course. I’ve got other priorities for the fall but I also made a commitment to a resilient rural life. Somewhere in my own desires I may find that what I want can and does align with the rest of my life. That by opening up to something new I also see who I am more clearly. I believe they call it getting perspective.

Categories
Preparedness

Day 612 and Errands in the Apocalypse

A lot of preppers have fantasies about how they will come into their power with the fall of civilization. Their foresight will show them to be the stoic masculine leaders society always needed but were wrongly maligned in the feminized world of diversity capitalism. Needless to say I think this is quite silly even without the sexism and racism.

Total collapse scenarios are not your most likely outcome. Sure we all think about what it might be like. A safe society enjoys horror stories. Chances are much better you will experience a couple issues compounding on each other. A few cascade are enough inconvenience such that it fucks up your life, but not so much that your boss doesn’t expect you to go to work in the morning. And definitely not one where law and order breaks down so far that you can get away with shooting someone. The police can’t help you but in anarcho-tyranny they sure can hurt you.

My first taste of this was during Hurricane Sandy. Lower Manhattan lost power for close to 10 days. Gasoline shortages and food access became issues as some neighborhoods were in the dark. But enough of the city was fine, and enough institutions in dark zones like Goldman Sachs and the NYSE, had their own backup systems.

You as an individual might be fucked but the institutions expected your ass to show up for work. I had a girlfriend who had to walk from Greenpoint to Madison Avenue for a social media job. Can’t imagine anything more dystopian than having your corporate Twitter shitposting job require you to have a butt in a chair when your own home is without electricity and molding. Cyberpunk is here.

Today in Montana our air quality is an abysmal AQI of 120. Wildfires blowing in from western fires in Oregon have tinged the sky yellow. Apparently it’s worse in Missoula with a number sky of particulates trapped in the valley.

But it’s Sunday so I had errands to run. We were coming off having a houseguest with us so we needed to grocery shop. We had a prescription that needed picking up from the pharmacy. We live outside of town so we try to plan a bunch of stores per trip. It felt like the end times outside. You couldn’t see to the mountains. Visibility was limited. But damn it we’ve got work next week and the meal planning is done so we’ve got to keep going. Life finds a way. There will still be errands during the apocalypse so don’t get too hopeful about your cosplay.