Categories
Chronic Disease Emotional Work

Day 560 and Unstuck

Yesterday was a particularly challenging day for me physically. I described how I was becoming stuck simply because the pain to change positions, even if I was uncomfortable sitting up, was such an obstacle.

I’m just stuck in the pain until an even worse pain develops. That’s probably a good metaphor for life. We will stay in an uncomfortable position until it’s so intolerable we simply must change.

Waxing philosophic about pain is clearly an ongoing theme of this daily writing exercise. I’ve got 108 mentions of the topic so yeah that’s chill. Considering it’s a daily accompaniment I’m relieved it’s not a larger number. Most days I am clearly able to become unstuck from the pain enough that other topics occupy my mind.

I am however not feeling great about how unstuck I feel in life this week. Perhaps it’s the combination of a symptom flare with the final countdown to the big move to Montana. It’s all waiting and anticipation and frantic preparations combined with physical struggle and fatigue. It does not make make for an environment where I feel I am best moving my life forward.

I am someone who very much relies on and feels embolden by willpower. The feeling that I can simply apply my intention to something and through that focus bring it into fruition is a super power. The American dream has been littered with manifesting energy. The Secret literally is our religion.

So I hope that, as I sit in this last waiting period before I confront massive change, I am able to let myself be. To not be obsessed with being stuck or unstuck. But just be in the moment I am in without judgement.

Categories
Chronic Disease

Day 559 and Stuck

I got stuck on the couch today. I’m not entirely sure why but I’m in the middle of a massive symptom flare. The pain is so acute and unrelenting that if I so much as sit up from bed I’ll get stuck in that position. I made the mistake of trying to eat lunch on the couch around noon and didn’t work up the capacity to get back into bed for over an hour.

This is becoming a theme on bad days. I’ll find myself upright for forty minutes completely unintentionally because moving, even to a more comfortable position laying down, is so painful I will put it off until I simply cannot remain upright anymore. It’s just that bad. Even the higher grade pain management isn’t doing shit. I’m just stuck in the pain until an even worse pain develops.

That’s probably a good metaphor for life. We will stay in an uncomfortable position until it’s so intolerable we simply must change. And I’d love to wax philosophic about that but I mostly mean it literally. If you’ve ever wondered how I got popular on Twitter, it’s simply because it’s the only thing I can do when I’m physically stuck in place by pain. I thank the internet Gods that this has been monetizable through investing or I don’t know what I would do.

You could almost surely correlate the number of tweets I send with the pain scale of my day. If I’ve tweeted more than 50 times on any given day it’s probably because I am over a 7 on the pain scale. It’s 2pm and I’ve tweeted 32 times today not including my DMs. I keep hopping the pain will abate enough that I can shower but it doesn’t show any signs of letting up today.

Frankly I’m just relieved it’s only my spinal pain and not anything else more exotic. Earlier this week I was dealing with being itchy and then I had a migraine that took 48 hours and several Imitrax to break. Regular old spinal pain is at least a recognizable and normal return to form. But until this nerve storm abates I’m stuck. At least until something worse comes along.

Categories
Aesthetics

Day 558 and Interior Design

The reality is dawning on me that I don’t have enough furniture for an actual house. We will be moving from a barely furnished townhouse in Colorado to a 3-4 bedroom farmhouse in Montana.

What makes it even funnier is we barely acquired additional furniture when we moved from a one bedroom loft in Manhattan to the townhouse in Colorado. We didn’t know where we’d land long term and boy howdy did we put off acquiring anything larger than some houseplants and a chaise lounge.

The instability of the pandemic years didn’t really drive the acquisition of home goods for us like it apparently did for others. We didn’t want to have big items to move as we were fairly sure the townhouse in Boulder wouldn’t be our forever home. But as it turned out, it took almost two years to figure out where we wanted to purchase a homd and successfully acquire one.

So now I’m saddled with the responsibility of furnishing our new home. You’d think it would be a fun obligation. Shopping! But I honestly never developed much of an interest in interior design. I have a decent enough education in aesthetics and a personal style that is presumably easy enough to translate to interiors. I just so don’t want to do the work to source all the items and string it together into a cohesive whole. So apologies in advance if I do a lot of furniture posts over the next month.

Categories
Emotional Work

Day 557 and Fixation

I’ve got a gift for generating momentum. If I can summon the energy and the willpower, I’ll put my total focus on unlocking whatever blocking issues hinder my goal.

The trouble is that this process doesn’t allow for multitasking. Once I turn my eye on a blocker, I’ll fixate on it until it is solved. I’m incredibly prone to tunnel vision.

I’m usually quite competent at prioritizing and ordering priorities correctly to take advantage of the is tendency toward focus. But sometimes I’ll get fixated on the wrong thing and I’ll stay stuck on a problem that shouldn’t be my first priority.

And it’s really hard for me to pull away from a problem if it’s an emotionally charged issue. Those typically involve my personal life. Problems with my friends, my family and my husband can easily hold my energy hostage. Even if it’s not a top priority, if it feels emotionally like it should be a top priority I’ll struggle to let it go.

Over the spring, one of my fixations was finding a stable living situation. In May when Alex and I went scouting for our second time in Montana I poured all my willpower and focus into removing blockers to purchasing a home. It was a grinding emotional process as where to live and when to make a major investment are hard questions.

Now that I’m less than a month out from the move, I can feel my focus shifting. The creative generative driving energy that secured us a homestead is now searching for its next home. It makes me shiver a little bit. Like I’ve got my own personal Eye of Sauron probing my reality for it’s next target. I know what it should be. But sometimes my focus isn’t well behaved.

Categories
Chronic Disease

Day 556 and Histamines

I am so itchy my entire body is covered in yellow and purple bruises from my attempts to generate some form of relief. I set out title tag this post with “itchy” but apparently I did that three days ago.

That makes me feel super fucked as I honestly don’t even remember writing it. It’s been a blur of Benadryl and travel and shitty sleep and absolutely no recovery. And I am desperately thirsty because I keep taking drugs that dry you out. It’s a misery.

I am running a poll on Twitter asking if nausea, pain or itching is the worst discomfort. Pain changes you the most. Nausea is the most consuming. Itchiness is the most irritating.

I probably feel that way because I am being driven absolutely nuts by the itching. I went for a short walk this morning before the heat dome took the temperature to 100 degrees in Colorado. It was still hot enough that I swear. And everywhere I swear I found myself with a light heat rash afterwards. My body is clearly on some kind of self hating response loop as that’s not normal even for me.

Categories
Travel

Day 555 and Recovery

First off, today is a great number. I love this palindrome thing for me. It remains a surprise (at least to me) that I continue to hit these daily writing milestones but here I am just continuing this habit. I doubt I’ll stop anytime soon.

It’s always fun to have a “I did it” moment on a day where I’d rather not be writing. I’m jetlagged today after flying in from Heathrow last night. I did most of the transition just right but I still have a bit of that lingering sense of recovery one always has after travel.

I am always so hungry when I am jetlagged. I try not to eat at funny hours when adjusting for time zones but it’s not always possible. I’ve eaten at all the proper meal times this transit and it’s left me feeling massively over fed in addition to being hungry. Some of my body chemistry is clearly off.

I’m excited to be done with any planned travel for the foreseeable future. I’ve got my move to Montana in August but that’s not “travel” so much as it is a major life transition. Sure, it is an 8 hour drive from Boulder but at least I’m not getting on an airplane. I’d like to be done with the “back to travel” portion of my pandemic experience as it’s just not a ton of fun to fly anymore.

I’ll wrap it up here as I’d like to go to bed and see where day 556 takes me. But here at the end of 555 I am feeling good about this experiment and life in general.

Categories
Travel

Day 554 and Creature Comforts

You’d be surprised at what you can tolerate so long as you’ve got the little luxuries in life. I think I stole that quote from a Vin Diesel movie Pitch Black. And I’ve found it to be quite accurate. Travel is the sort of experience where misery can be overcome by a decent pillow and room service.

I am emerging from some time on the Ionian Sea that happens to be on the wrong side of some of modernity. And let me tell you my appreciation for capitalism has been rekindled a thousand fold.

I did a layover in Heathrow overnight and I’ve simply never been more relieved to be in a decent business hotel. I must have looked a wreck as I got upgraded into a king suite with a soaking tub. And I just say I feel much more human after an hour in the bathtub, a night of sleep with multiple decent pillows and room service.

A good long soak and a full English breakfast has done much to improve my overall spirits. And my general condition of itchiness has gone by the wayside. The blue bags under my eyes are merely visible as opposed to horrifying.

I’ve got another leg of the journey ahead of me but I’ll be in business class and that’s a luxury of the sort that I very much crave at the moment. A flat lay, endless hydration and a bunch of saved Netflix shows is a creature comfort of the highest order. If the empire is going to decay I’ve got to savor every last moment of little luxuries before they are gone.

Categories
Medical

Day 553 and Itchy

Pollution in the air, chlorine in the tap water, and overflowing filters on struggling air conditioners have left me an itchy mess. Not all parts of European have clean air or water as it turns out. I’m on the Ionian Sea and let’s just say the history of close economies and socialist strong men have left a legacy of infrastructure underinvestment.

My eyes look like I’m high as a kite. I’ve got angry raised welts across my arms. I have a lymph node that got backed up and is now the size of a marble under one armpit. A few of the hives have struggled to heal over and now require antibiotics. I love needing a course of Doxycycline on the road because a sore couldn’t fight off some exotic invader. No wonder they put enough chlorine in the water to scent an entire Olympic size pool. It’s clearly not enough.

Travel has always been a challenge when you are disabled. The indignity of finding yourself with seeping weeping yellow teardrops isn’t very relaxing. My travel pharmacy is working overtime as I carefully mix doses of Benadryl, Hydroxyzine, and Cortisone creams. And my travel cosmetics simply cannot fix the deep sunken blue eye bags that have developed from rubbing in antihistamines and spritzing in eye drops.

I really hope that no one at customs decides to get too curious about why I look so utterly fucked. I’m not entirely sure “I’m sensitive to pollution” is that believable to someone for whom this level of irritants is normal.

In less than a month I’ll be moving into the homestead in Montana. I’m dreaming of the clean air and sparkling rivers. I hope I can stay out for sometime. If I never have to leave “the last best place” on earth I’ll be happy.

Categories
Aesthetics Internet Culture

Day 552 and Consumption

When I was emerging into my teens and early adulthood in the aughts I was fascinated by style. Coming from a small town in the Rocky Mountains, populated by hippies and techies, I’d had little exposure to fashion or cosmetics. Gore-Tex jackets, rainbow sarongs and Tevas had more purchase on the imagination than twin sets or pearls.

I didn’t chose a university known for its style either. I chose one known for crunching the numbers on our economy. My abiding interest in why we consume what we do never quite got around to being taste based. I followed fashion through export deficits, balance sheets and purchase orders. More back page of the Economist than Thursday Styles.

It was all an intellectual exercise for me. And it was mostly a numbers game. The cost of cotton and the trading flows of finished goods were much more legible to me than why a WASP enjoyed salmon colored pants.

I didn’t let an utter lack of taste, hell even exposure to taste, get in my way. I used a personal style blog hosted on WordPress (sound familiar) to comment on runway looks that were slowly emerging onto trade publications online. I used my comment sections to hold conversations with other enthusiasts. I was quite sure my opinion mattered. I guess I still am.

I very presumptuously emailed academic and authors like Valerie Steele and Virginia Postrel to share my enthusiasm. Much to my astonishment they wrote back. Eventually I stumbled into being their nominal peers, blending into the milieu of Balthazar breakfasts once I moved to Manhattan. Talk about peaking early. I’d achieved my life’s goals at 23.

But somewhere along the way it didn’t matter anymore that I lacked taste. No one had taste anymore. Our entire aesthetics stalled out sometime in the wake of the Great Recession. As I partied with the rest of Indie Sleeze crowd in my American Apparel deep v-necks, the end of distinct trends and looks was at hand. We just didn’t know it yet

Globalization and the internet gave us an amalgamation of tastes I’ve come to refer to the “Everything, Everywhere, All At Once” aesthetic. It’s all the same and it’s always been the same as long as our forever End of History Fukuyama moment continued. We’d reached terminal fashion. As the media class fractured into the creative class and struck gold in startup land, the center of gravity of taste didn’t just shift. It disappeared entirely. It was chaos and boring all at once.

No one sets agendas for style, or taste, or top down, or even bottom up aesthetic movements anymore. It’s just a stream of consumables made by fast fashion factories and sold out through Instagram and TikTok as the data miners and algorithms predetermined your desires before you’d even thought them up. Dystopian looks like getting exactly what you want.

It turned out that fashion blogs, once a nemesis for showing taste before it was ready, had been too slow. Blogging is so 2000 and late. The Everything Everywhere All At Once aesthetic is done with a look even before it starts. Because it has no beginning or end or middle.

Maybe we should have called it non-linear fashion. There are no early adopters or taste laggards any longer. It’s all very much a kind of quantum of sameness. Which is somehow even less exciting than a James Bond movie in the Daniel Craig era.

I stumbled onto a styles section piece about the disappearance of the fashion Czarinas in the wake of the Ukraine war. Global taste has collided with the brutal reality of kleptocracy. We’d ignored it for a decade or two but now it appears history has reasserted itself. Maybe that means fashion might come back? But as inflation runs rampant and supply chains crack we might be edging towards a new austerity. Which might make for a pleasant pre-war historic period.

I for one would love to know who the Neu-Weimar Coco Channel of the Boogaloo/World War 3 conflicts will be. I bet she’s an anorexic TradCath living in Dimes Square. And like her predecessor she’s definitely fucking a Nazi. Let’s pray she has taste that is more interesting than her sex life.

Categories
Politics Travel

Day 551 and Enjoy The Decline

I didn’t celebrate Independence Day yesterday. At least not in any meaningful sense. Typically I like to watch Roland Emmerich’s classic film Independence Day and cheer on American exceptionalism with explosions and hamburgers.

Instead I’m abroad and trapped in a small Airbnb that has me tethered to the nearest air conditioner. Pollution and climate change isn’t very good for enjoying time outside. 100 degree heat and a lack of EPA pollution standards are not a great combination so best of luck to my friends in Texas.

Nothing breeds appreciation for capitalism quite like spending time somewhere it hasn’t existed for long. Even at the end of the empire, American capitalism is so effective, our living standards still eclipse eastern block countries and other experiments in strongman style socialism. There is a reason people want to come to America and it’s not because we make it easy on immigrants or offer a strong social safety net.

It will be better to live in America for another fifty years or so than nearly anywhere else. Even with all our problems and bullshit, America at its worst is better than most of the planet. Entropy is a bitch though so you may you may as well enjoy the decline as eventually our lack of infrastructure and crumbling institutional capacity will destroy us.

Eventually “the crumbles” and the “Jankening” will eat away at our quality of life lead over the rest of the world. And let me tell you having been reminded of how much it sucks to live without the comforts of modernity, life this life to the fullest while you can. You are not going to enjoy the average lifestyle of a Balkan or Baltic state.

Which might be optimistic given some of the reactionary types striving to be the next Victor Orban. So might I recommend going out to eat at some fine fast casual restaurant and then making a Target run for things you don’t need. It won’t be around forever.