Author: Julie

Categories
Chronic Disease

Day 1670 and Bile and Spleen

I am, as per usual, having a shitty summer. Once we cross the Solstice it’s me hanging on to sanity by ny nails praying for the return of winter.

I can’t recall a time I had a good summer except perhaps jn the hazy memories of my early twenties when I was probably too stupid, traumatized and physically healthy to know one way or another.

Now I’m smarter, sicker and I’ve done enough emotional work to actually feel it all. Don’t knock that desensitized disassociation kids you may miss it when it’s gone.

Maybe it’s simpler than that. Back in the aughts & the briefly booming Obama ZIRP teens, our global climate weirding just had not hit New York City hard enough for me to have really bad summers.

I always had a window air conditioner and enough cash to run it. Either way, a summer where I wasn’t miserable isn’t a memory I cant access now. It’s sealed off under the pain of the now. The past being a foreign country and all.

I’ve certainly not had a good summer in the last decade. I’ve got daily tracking data from the last six years of my life and the summer is just an unending torment of bad biometrics, pain, cabin fever and seasonal affective disorder. Bet you didn’t know it has a summer variant did you?

I’m always sicker when it’s hot. So it’s just bile and spleen for now. Almost enough to make me want to toss the entire daily logging project till the torment lifts. Since I won’t do that I’ll pour the misery on page.

I can’t wait to see what August has in store for me. My cold comfort is knowing I will be enjoying a long week of financial news. At least that you can do indoors locked up under the air conditioning.

Categories
Community Politics

Day 1669 and Seeing Without A State

We are entering an era where technology is liable to be the scapegoat for a number of problems that are all too human. Seeing state failures and institutional failures and deciding to blame something new rather than human nature is very much human nature

We are looking for someone or something to blame for human nature and the thing that makes the current world different from the hazy memories of childhood are an easy place to start.

The rate of change fights with the basic realities of being evolved apes. And the social dynamics of our ancestors are pretty gnarly so I don’t blame religion for wanting to obfuscate the evidence of our base nature. We have to believe we can be better.

The trade offs involved in providing communal protection has meant submissions to various forms of power and hierarchy and yet we still have social scandals over genes, jeans, semiotics and the perversion of our biology. It’s not a day to discus sex and advertising online.

I look at this chronology of my life and have pride in its daily discipline even as I know being myself online is a risk. I see day 1669 and want to make a nice joke. I believe in the commons and my freedoms within it.

It’s just getting more dangerous to be online. I am considering how I bring myself to a world where I’ve always be extremely present online under my own identity. I want to train the intelligences we develop on top of our digital commons and feel the pull of that responsibility.

Then I see another grid failure. I see a plane crash. We have terrifying realizations that we can’t rely on the systems of the past for where our future is headed.

We have European software developers now noticing what Balaji was pilloried for pointing out. The nation state and the network state are coexisting already as anarcho-tyranny increases.

In American and Western Europe we are already seeing daily examples of anarcho-tyranny. The state can hurt you but not help you. Communal needs we once enabled the state to run and provide can’t be counted on in water, energy, and infrastructure. You have to build systems for yourself where and when you can while you still can.

Categories
Biohacking Chronic Disease Medical

Day 1668 and Rounding The Corner

I really feel the weight of month of July today as I am just now getting the sense I am making a recovery. I did not have post surgical wound care for an abscess on my list of “to do’s” for the month but here I am.

Nor did I expect to work through a pathology report on my own while cobbling together the best blend of infection coverage through a globe spanning set of physicians and sub specialties.

I didn’t know what a sub dermal panniculitis was or how to treat an infection where that was a proximate side effect. But I learned and I managed my care to a much better result. I had real consequences from disinterested burned out doctor and I had to step up.

Frankly I’ve spent more time on artificial intelligence projects doing differential diagnostics on myself than I ever conceived was possible. I owner my own data and inputs and I could make inferences while corroborating it with physicians who are more interested in my care.

I am a slow healer and there is a high cost associated with immune suppression biologic drugs for chronic autoimmune conditions. I have no choice but to be active in my own care and tools as simple as a deep search on Perplexity take you so far.

There is a high cost to healthcare in America and it’s not getting any better. That I can now reliably use any number of commercial AIs to break down lab and pathology reports is a huge boon to all of humanity. Real miracles are happening because someone used AI to double check blood work and symptoms.

Healthcare gets rationed by price or by time and we’ve never really known an abundance of trained doctors in my lifetime. But we might have an abundance of intelligence about healthcare in our lifetime.

Part of put quandary with care in America is regulatory capture by organizations like the American Medical Association and others of its ilk. Of course they prioritize what works best for keeping their continued privileged position on care.

I lost a lot of time this month to health but I gained more than I realized. We are seeing changes in a system that has only ever known scarcity. And we know it’s not good enough.

Categories
Aesthetics Internet Culture

Day 1667 and Guess Goes Idoru

In 1995 William Gibson wrote a novel called called Idoru. The protagonist Colin Laney has a talent for identifying nodal points which are the concept undergirding Gibson’s most famous quote.

“The future is here, it’s just unevenly distributed.”

Nodal points, or as Gibson later called the process of finding them “pattern recognition,”is a type of useful apophenia in which you notice the emergence of trends before they have fully emerged.

You pick out the new and next amongst the now. In the case of Idoru, a rock star named Rez wants to marry a synthetic self Rei Toei who is an AI construct that is a massive pop star.

Thirty years later that future is here. Heck Lil Miquela debuted in 2019. But in 2025 we are in the very darkest depths of the uncanny valley and it looks more like a banal blonde with an ugly handbag than an exciting light show hologram in Tokyo.

Fashion’s primary value is in acting as routers of emerging nodal points, so I should have known it was only a matter of time before Vogue’s publishers decided to let one of their lower rent advertisers run a campaign from an advertising agency whose gimmick is creating artificial intelligence editorial spreads.

You’ve got to test the waters with someone who doesn’t really matter before it spreads to your editorial and luxury advertisers amirite? And it’s somehow less creative than your average Guess campaign.

A series of images in an advertisement for Guess featuring a blonde woman in a striped dress and a floral-romper situation are stamped with tiny fine print: “Produced by Seraphinne Vallora on AI.” via NYMag

Chevronesque patterns against Yves Klein blue couldn’t have cost more than their usual Rome dolce vita rip off campaigns but you do you Guess
Just when you thought photoshop was the worst thing for body dysmorphia now it’s AI

Anna Wintour learned her lesson a little late with the Internet and social media (thanks for the career Ms Wintour) but it’s hard to predict just how Condé Nast will bungle this next content transition.

You’d think with Cloudflare’s different rates for bot scrapers versus human Internet traffic would provide the ideal opportunity for a renaissance of valuable online creative content but maybe no one at Vogue knows about that yet.

The AI future at Condé Nast is not looking great based on this Guess advertising campaign but who cares it’s August and Guess right? When it’s Prada and the September issue I’ll grant them much less slack. If I’m paying for content, I expect it to be something better than derivative goods.

Categories
Chronic Disease Medical

Day 1666 and Disability Rolls

It’s a shame that National Public Radio is going out in a Trump fire as used to regularly produce reporting that I find informative. Look at this old piece of reporting. We have seen a steady rise of disability rolls.

Thanks to their work I was made aware of the disability industrial complex and I was introduced its scope and cost. Even 2013 National Review was singing its praises. And it is staggering that disability has become the fall off program for those who only have unskilled labor to offer. Disability replaced welfare. And it’s not gotten any better.

I think about how easily I could have ended up on disability myself given my health issues if I didn’t work an information economy type of job you can do sitting day.

But I also know there are ranges of accommodations for most of the work I have now. Things could change and that work might be less valuable. I’m sure many Americans are considering this as automation and artificial intelligence threaten knowledge work.

I was somewhat aware of the relationship to welfare burdens being shifted from the federal government to states during the Clinton era for the rise of disability as it is still paid at the federal levels.

Naturally it meant a growth in disability as Washington D.C. has more money than say Washington state. But to realize just how much money disability rolls have grown and how tightly related they are is salient in our current financial and budget situation.

Comparison of lowered welfare rolls to the rise of disability claims. Source: Social Security Administration Credit: Lam Thuy Vo / NPR

A person on welfare costs a state money. That same resident on disability doesn’t cost the state a cent, because the federal government covers the entire bill for people on disability. So states can save money by shifting people from welfare to disability. And there are whole corporations that exist to make that transition seamless.

We are burdened by the unfit to work as manual labor has nowhere else to go but we will find other disabilities and other ways to get around labor if the contribution to rears ratios don’t work out in someone’s favor. After Covid this calculus got a lot worse.

Especially if health insurance continues to skyrocket. Better a live of poverty and healthcare than a live of poverty and no healthcare. But who knows if we choose to tackle this problem and when. If it’s all about getting what you can and we are in the exit scam era of America I am afraid to learn about the privileges of working while disabled.

Categories
Media

Day 1665 and Getting Outside of the Problem

I try to spend real time living outside of America every year. It started as a slightly eccentric experiment in on the ground sentiment filtering as the pandemic dragged on.

I wanted to get outside of the informational bubble of being inside the America media’s production timezone. You probably don’t realize it but hard news mostly runs on American timezones.

And while it is exhausting to be inside it, the bigger issue is that American news drowns out the rest of the world and its news. It distorts everything around it.

I sometimes need to get outside the din of the American worldview to really get a sense of what is happening in the world. I can hear real sentiment more clearly outside. Signal can always get through the noise of living in the worlds largest media market and dominant timezone.

Our celebrity culture coupled with English language domination of television and the internet means American news (and its adjacent distribution & amplification businesses) means our media reaches the world more than the world reaches America.

I’m not saying our politics or news always makes it to Americans or the rest of the world. Sure some state news subsidized outlets exist but this stands to change a little as Voice of America, NPR and PBS have funding struggles.

It’s more the cultural product of media and its noise that hamper its consumption in America. We have too much of a good (bad) thing and it’s impossible to fully tune out. We export so much culture it’s a glut.

Categories
Chronic Disease Medical

Day 1664 and Pathology Report

Well, we finally got the culture and pathology reports back from the hospital in Istanbul. For those not following along I had an almost emergency surgery of an abscess that got infected.

And it’s kind of a good news, bad news situation. I dislike the useless preventive care dermatologist who dismissed me even more now.

The good news is that nothing malignant or cancerous is going on. The bad news is that the abscess was a gnarly mix of acute and chronic inflammatory issues that turned from a basic case of folliculitis (albeit 3cm deep so required slicing) to a nasty MSSA case that is resistant to the doxycycline typically prescribed. Yay.

Didn’t know hairs could grow sideways and frack your tissues till they produce a juicy abscess.

A little synopsis of the reports thanks to our favorite LLM Perplexity analyzing the reports with the additional context of my health history, recently bloodwork and current medical regimen.

  1. Pathology Report Review
    Gross Description
    • Multiple grey-white tissue fragments, largest 0.6×0.3×0.3cm.
    • Specimens from the excised lesion.
    Microscopy
    • Neutrophilic (PMN) inflammatory exudate on surface, consistent with acute infection.
    • Proliferative vascular stroma, frequent erythrocytes, and mixed chronic inflammatory infiltrate (suggesting ongoing/recurrent inflammation).
    • Fibrinous exudate, abscess cavity, active chronic inflammation, granulation tissue: typical of a maturing or organizing abscess.
    • Panniculitis: inflammation extending into subcutaneous fat.
    No evidence of malignancy was found.
    Interpretation: This confirms an abscess with active, mixed (acute-on-chronic) inflammation and granulation, but no neoplastic (cancerous) changes.
  2. Microbiology Report Review
    Culture
    • Growth: Staphylococcus aureus (methicillin-sensitive; MSSA)
    • Sensitive: Erythromycin, fusidic acid, linezolid, teicoplanin, tigecycline, trimethoprim-sulfamethoxazole.
    • Moderate: Levofloxacin.
    • Resistant: Tetracycline.
    Gram Stain
    • Numerous leukocytes and Gram-positive cocci in clusters, confirmatory of acute bacterial infection and consistent with S. aureus.

So the doxycline and indeed any of the basic tetracycline types I’ve been taking are useless. The extra five days of Augmentin were all for naught after I finished the Cipro. Thank goodness for topical antibiotic I am using is fusidic acid.

I’ll be moving to erythromycin orally and hoping for the best as once I finished the Cipro I started Augmentin which seems to have been functionally useless as a holding pattern antibiotic based on this report.

I’ve had a systemic staph infection before and it’s no fun. I’ve done IV antibiotics and I don’t know if I’d like a repeat. It’s my hope that Erythromycin does the job from here.

Categories
Politics Preparedness

Day 1663 and Panem et Circenses

Catching up on the going’s on of the world this Monday as I reorient myself back to productivity after a very long ten days of surgery recovery is brutal.

The algorithmic response on the internet to a story of a random affair being revealed on a kiss-cam is unsettling in light of the actual empire changing realities playing out at the same time. I don’t want to study the angles of a professional chief executive and his human resources lead becoming entangled.

I keep hoping studying Rome will prove useful in facing the moment but I have nothing better to say than the satirist Juvenal. Bread and circuses continue to serve their purpose in distracting us from our obligations to engage in the making of our own future.

So what do I think deserves your attention? Take time with the artificial intelligence tools that are on offer from every major technology company out there (well except Apple).

Become literate in the new types of search and discovery that connect across inference so you don’t confuse the tool for something it is not (a God or a Devil or worthy of driving you mad).

Learn how to automate something you do regularly and find tedious. See what kind of business processes in your own work might benefit from automation. Go do a rabbit hole on a health problem and see how context reveals things about your own body.

Decide how this new informational access and connection affects things in your own relationship to the power. Decide what it might do to your nation state if you live in a democracy. What kind of economic system will arrive as we have expectations of automation, transparency and information even as we have more tools than ever to obfuscate and confuse?

Do you want more centralized power systems and power flowing to those who run those systems (corporate or state) or do you see the value of decentralized systems and protocols that let you engage with your own preferences? And I don’t just mean what kind of delivery food or Netflix you prefer.

Categories
Politics

Day 1662 and Class Consciousness Across The Atlantic

America is grossly class segregated in a way that I don’t think Europeans fully grasp but all Americans intuit even if they don’t understand all of its rules. Every time I find myself in Europe I learn something new about socialism and its trade offs.

Sure we talk a big game about the middle class but America has an enormous variance between our poorest classes and our richest. We are a country where capital decides your fate much more so than your birth station. And we have always had mad scrambles to the top between eras of consolidation and state intervention.

American aristocracy has been land owners but as of the post war years it’s been mostly making good financial decisions. Sure land ownership has been one of paths to better class positions but 2008 showed it is a policy choice from the state as much as an economic one.

Even in a middle tier city like the Seattle area you could once see wealth that ranged from Jeff Bezos to port and manufacturing line union workers. Maybe you don’t end up the richest man in the world but if you got a decent job at one of the many companies powering the metropolitan area from Boeing to the port authority you had a nice upwardly mobile life if you took the opportunities available to you.

If you made bad decisions maybe you ended up pretty far out of the city and can’t find steady work but you could find work if you could get to it.

Being poor when you have freedom of movement seems insane to Europeans who understand the logic of borders and state benefits in ways Americans and their interstate mobility don’t always.

You can with unitive move to better jobs and pick up marketable skills and send your children to decent schools. Maybe then they move from the factory line to engineering. In the next generation their kids go from engineering to founding their own company. Ever so the upward logic of American wealth goes. Naturally it’s not that simple but it’s a good story of competitive logic.

If you lived in a booming region maybe you moved to be closer to a core city. If you can move to opportunities you do so.

The question becomes if Americans can move to successful areas why don’t we do so? Some Europeans don’t understand attachment to place as their movements are either inside the Eurozone or a battle to get inside the Eurozone. That we might be attached to our mountain town and not want to move to Denver or Seattle might be a surprise. It’s all one country right?

Western Europe has had a safety net for so long that wealth is more of a choice than poverty. You have to make quite a bit of effort to get around the slow planned socialist efforts of older industrial concerns to become wealthy. But if you can become part of the social fabric you won’t starve or struggle to get antibiotics prescribed either.

If you are in society in Europe you can make through without a healthcare crisis, cut hours or an eviction notice upending your life. That is why there is a fight to be in the social contract of Europe. America has that fight too it’s just less intense as our benefits are about having our passport and are less about having social security. No one believes they will get it anyway.

Eastern and Southern European societies still know closed borders and poverty through restriction of opportunity. Intra-European strife is all about immigration just as immigration from the rest of the world now drives American fears. Who is part of the social contract and why?

Sure you see wealth in Europe but it can feel as if it’s either generational or corruption or both. In America you see how wealth might be both but you get to see how wealth can be series of good decisions.

If you can keep your shit together you can rise. So why don’t we all do it? It’s a mystery to everyone and no one. You either race to coordinate with capital or you opt out of it entirely.

That’s our class system in America and I think it has shown a lot of merit even as some of Europe doesn’t understand why we choose it. Why opt for competition when you can have coordination? Well maybe a New Yorker doesn’t want to coordinate with someone in Texas. We allow for some of that even as the federal tensions rise amongst our compact. Italy upsets Denmark too.

I don’t know how this class compact works itself out on either continent but I always find myself reaffirming my commitment to capitalism anytime I spend even a couple weeks in socialist countries.

Categories
Medical

Day 1661 and Please Let This Be Over Soon

I am hanging onto my sanity by a thread as I round the corner of a surgery I did not expect. Well, I’m eight days out from it, so slightly more than a week.

I’m hoping I start to feel gets better soon. It’s my first day without antibiotics and I am already certain I shouldn’t be off them. As horrific as the side effects of Cipro may be, my immune suppression on Bimzelx is leaving me shockingly open to skin infections.

I’m terrified of MRSA at this point. I was taking doxycycline for another skin infection when the cyst went around the bend to “septic fears” on me so I’m a bit twitchy about the entire situation.

The prior IL-17 seemed to strike a fine balance on suppression and capacity to fight off infections. Now my biometrics are better but I’m constantly fighting off chaos with the meiborn gland nonsense and now buried cysts from sideways hairs fracking my dermis.

Maybe I’ll turn a corner and have some better writing ahead of me soon. Until that happens please forgive my poor blogging and missed emails. At this point the singularity could arrive and I’d miss it like a character in Left Behind. I’ll probably miss the rapture at this rate.