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Chronic Disease Chronicle

Day 60 and Never Saving Anything For The Swim Back

I’m feeling scrambled today as I’m not quite in a place where I can push myself without consequences but I’m also not so sick that I can’t work at all. It’s an awful liminal state where I’m working what is probably the actual productive output of an average person but still need to buffer in time for medical shit.

I honestly contemplate just lying about being sick some days. I could hide the disability of chronic illness and no one would be any wiser. Well minus the public posts about being sick but you get my meaning. I’d probably have to get a little bit better at scheduling work during consistent productive hours, push through when I feel like shit, and then crash when I wasn’t on the clock. I’d be seen as a little unreliable but definitely enough that I could manage as a director at some company.

I’m not sure if this says something bad about me or about the expectations of the American workplace. Probably a little of both. I’m clearly a bit of an outlier and we don’t actually expect that much output from the average worker. When I’m operating at my full capacity I blow away workloads. I sometimes doubt if I’ve ever been at full capacity and I’ve been faking it my entire life. I’ve never been completely hale and hearty. I’ve always had a tendency to put on a show when I’m in public and then retreat into recovery when in private. I’ve been a very boom and bust person.

I don’t really want to live this way though. I’d rather run a marathon than be a sprinter that is collapsing after each race. I recognize that in some way this pattern of intense work and recovery isn’t sustainable. It’s also clearly an addictive pattern. But I’m too scared to admit that I don’t really know what a consistent healthy working life looks like. I’ve been an addictive compulsive worker my whole life because I never trust that I can rely on my good hours to be consistent. I gulp at each hour of feeling well like I’ll never get them again. The fear that this is my last shot at feeling well is palpable.

One of the most formative pieces of art in my narrative self is the movie Gattaca. In a dystopian future, children have their genes edited before they are born. The protagonist of the film “Vincent” played Ethan Hawke is an “old fashioned” human conceived without any edits. He has a heart condition and other frailties. His brother Anton was given edits. Despite being an “in-valid” Ethan Hawke is able to find his way in to a space program using contraband genetics. His brother is furious and cannot figure out how his disabled brother is able to beat him. This fraternal tension plays out in two swimming competitions. The invalid brother Vincent bests his genetically superior brother Anton. Twice. How did he do any of this!?!

“You wanna know how I did it? This is how I did it, Anton; I never saved anything for the swim back!”

https://www.youtube.com/watch?v=fe9Fc34GozY

I really internalized this logic as a teenager. There is no gene for the human soul. Winning is not about being superior it’s about giving it your all. I bought this. So I never saved anything for the swim back. Except that maybe this is a shitty strategy for anything but races. That if you need more than to win a swimming match you can’t go all out every single day. That this is actually a strategy that will kill you.

Of course, I am petrified that this isn’t true and I should be swimming like Vincent every day. That he was right that greatness is forged in extreme effort. That I should give my all till I collapse. But then what?

I’m stuck in a behavioral pattern of self limiting fear that I must always be striving or I will literally be dead. It’s live at the edge till I win. But win what? Sometimes you fail. That’s how you learn. Failure is a crucial part of success. But if I am always swimming to failure I’ll never recover enough to learn from my failures. I’ll literally be dead in the water. So I’m stuck in this place of fear where I know I can’t always give my all but I don’t really yet believe that there is any other way to succeed.

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Chronic Disease Chronicle

Day 40 and Forgetting

When I first committed to writing “something” every single day I didn’t have a lot on my schedule. I was busy with routines for my recovery (I’ve been busting my ass to overcome an autoimmune issue that presents in my spine) but most of those obligations didn’t require coordination with anyone but myself and my doctors. It can be a full time job between medicines, supplements, treatments, testing, and insurance. But it wasn’t hard for me to find time to write something. Hasn’t always been polished but I’ve always got “something” out the door.

Today is the first day since that commitment to write pushed up against a building set of obligations to other people and projects. My medical stuff felt easy and part of a natural routine. And I didn’t take any downtown for recovery between obligations. I used to buffer my obligations with naps or even whole days of rest. Increasingly I have the capacity to do big blocks without any breaks. Which is how I find myself at 9pm without having set out a quiet block to write my thoughts.

I cannot tell you how exciting it is to have a productive day of work and healthy habits and find myself thinking well huh 15 hours have gone by since I woke up and yet I found no time to write? I look back and see no there really wasn’t an hour or two where I was in bed on my phone. That’s a first for me in quite sometime. I don’t feel exhausted or depleted. I feel if anything pleasantly energetic. Like I need to begin my bedtime routine to let myself come down. And I cannot wait to pick back up what I didn’t accomplish today first thing in the morning.

My human capacity to forget is kicking in. I’m forgetting what it was like to be unable to walk. I’m forgetting what it was like to be in so much pain I couldn’t think clearly. I’m forgetting the soul crushing exhaustion that took all but the most basic activities from me. I wouldn’t mind forgetting the bad parts to be honest. If I could just remember the emotional depths and new strengths I discovered I’d be pleased. I’m sure I’ll have a flare soon and become newly intimate with the ways pain overtakes all life. But I enjoyed forgetting it today. And maybe if I’m lucky I’ll have more time to keep forgetting.

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Chronicle Politics

Day 38 and Better Fear Than Anger

Culturally in America we’ve lost touch with the value of fear. Which is a shame as fear is a root emotion (along with sadness and happiness). We’ve became enchanted by anger instead. But anger is not a root fear. Anger is the steam rising off of fear. Cultivate, explore and release your anger and underneath you will find the fear that drives the issue.

We’ve decided we don’t like fear though. We’ve perverted it into a weakness. Especially during the pandemic. Anger on the other hand as won cultural acclaim in America. We use phrases like “right to be angry” and “righteous anger” rather than exhuming a deeper truth that will be more revealing. Fear is good though. It cuts deep. Fear shows us the child that lives in our innermost self, revealing the terrors and traumas children feel from being powerless, abandoned, and small.

Even as we cultivate strong bodies and swift minds as adults, the child who was betrayed by the accidental lapses by our parents remains inside of us. In psychology they call that the inner child. Perhaps your inner child is angry. Mine often feels anger. But at her heart the child is just scared. But rather than answer the questions raised by our fear and overcome it, we are seduced by the power of the anger steaming on top. We cultivate heroics to nurture the anger. Americans craft elaborate myths about the heroic value of anger.

I’m not suggesting you are not angry. Or that your anger has no place. Nor am I invalidating the source of your anger. I am however asking us all to dig deeper. Learn why you are angry. Then go deeper. Find the fear of the child that is inside you.

My fear? That I’ll be abandoned by my people during this pandemic. Just like I was abandoned as a child. I got angry seeing the choices people made. But underneath it was simply the fear that repeated a childhood trauma that I wasn’t important enough for anyone to save me. Knowing that helps me save myself. I take responsibility for my own fear. I can use it as an edge if others don’t work on their anger. But I’d rather we as a nation work through our shit instead.

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Chronicle Internet Culture

Day 31 and The Goal

I feel a real sense of accomplishment that I did what I set out to do; write one piece of long form content everyday for a month. Now of course having achieved my goal I would like to do it for two months straight but I’ll give myself a moment to enjoy the happy feelings that come from finishing what you set out to do.

On the first day my writing muscles felt atrophied. It has been sometime since I wrote regularly and here I was committing to do it every single night. But I was able to get into the habit and quickly found myself enjoying the routine.

The biggest change I’m noticing is a smoother less disjointed focus in my mental processes. Rather than needing to work myself up to writing or pick a topic and commit to a narrative, I now ease myself into the threads from the day and see where my imagination takes me. This mental fluidity (which requires non judgement which is a struggle sometimes) is slowly improving the quality of my thoughts. I look forwarded getting ideas on paper and tying together disparate thoughts now each day. To seeing what strange new connection might emerge from the day. Like limbic memory and crisis or the power of loosely organized crowds

I’ve also noticed a distinct uptick in the momentum of life. That a daily exercise of writing could push forward my focus shouldn’t be a surprise but nevertheless I’m seeing progress on ideas that may become a reality. Because I’m using this space to think about my investing, finance, and cultural chaos a daily writing habit means I am makings fast progress on a thesis. Writing is an excellent forcing function for seeing ideas more clearly but also for seeing if you may have the seeds for something bigger.

If you are considering a writing exercise like mine I highly recommend doing a month long commitment. Do it in public. You may be surprised by where you end up. I covered a lot of emotional ground which has been a really boost to my spirits.

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Chronicle

Day 1 or The Chronicles of Julie

In 2021 I will create as much as I consume. Or at least attempt to balance the ratio as much as is possible given divisions of labor in capitalism. I’ve fallen out of the habit of making things in the past two years as I’ve worked through health challenges and the transitions they imposed on my life. I’m happier when I’m making things. From my early childhood in Waldorf schools to my career as an entrepreneur creating has always been the anchor of my life.

In my college years I picked up blogging. As was typical of the early blogosphere, I mostly focused on my hobbies which at the time was Greek antiquity and Italian fashion. I called it “Where Plato and Prada Meet” and it wouldn’t be an exaggeration to say that it changed the trajectory of my life. I met my first cofounder in the comments section, I got invited to fashion week and I eventually turned the community in a business selling advertising and the early incarnations of sponsored content. That lead to an entire career in retail and e-commerce where I was lucky to ride the wave of the next generation of merchants and shopping. But back to my original point.

The simple act of committing a thought to more concrete form is a creative discipline. Like any discipline it becomes easier the more you practice. Ease comes from regular action.

To begin my practice of regular creation I am committing to publishing some form of content every single day. There will be no theme. No specific form of content. No overarching lesson. I will write essays. I will collect links to topics that interest me. Some days will publish longer form content that o have prepared and edited. Some days I will put down a stream of consciousness. But I still commit to do something every single day in public. If you would like to tag along with me I typically wander a large terrain, often with my pack of intellectual peers across the independent web.

But if you would like a preview to decide if you want to ride along with me I plan to deeper my interests across liberal politics and civics (by that I mean enlightenment liberalism not say leftist political parties), macroeconomics, aesthetics both personal and cultural, science fiction, finance (generally venture capital but some private equity and public market topics), currency and monetary policy (obviously I like crypto) homesteading and resilience, health and fitness (including a large dose of woo-woo self experimentation biohacking), public relations and media theory, and whatever else may come across my transom.