Tag: Illness

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Biohacking Chronic Disease

Day 1535 and Telogen Effluvium

In what has become a real persistent mood this winter, I have another dumb problem. I am losing my hair. Literally.

As it turns out stress can trigger hair into mistakenly going into what is called a rest phase. Perplexity tells me this is a temporary condition where significant stress pushes large numbers of hair follicles into a resting phase, causing shedding within weeks to months.

I have a lot of hair so it’s only really noticeable to me but I am tired of unexpected problems this winter. Obviously I have been under some stress and it feels like punishment.

Thankfully virtually all people diagnosed with it recover once the underlying stress has passed. It’s commonly associated with giving birth but it seems any significant or stressful event can trigger it.

Hair regrowth typically begins within 3–6 months. In most cases, up to 95% of acute TE resolves completely without long-term effects on hair density.

My vanity is pleased this temporary. I can certainly take it easy and pull back from unnecessary stress. Plus it’s a great reason to overspend at Sephora on new haircare. There is a bright side to everything.

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Medical

Day 1531 and Dumb Novel Problems

I personally find I’ve got an adequate number of problems in my life. I’d rather not go searching for new ones. And yet they keep cropping up no matter one’s hopes.

I’m at the eye clinic at the hospital for a two week checkup on an infection that felt like it literally ballooned my right eyelid. It was either a cyst or a chalazion, the doctor was like eh treatment is the same.

Not to upset those with weak stomachs but the treat is slice open your eyelid and squeeze out the pus, blood and scar tissue. It isn’t as painful as it sounds.

After two weeks of diligent hot washcloths, antibiotic eye drops and doxycycline my eye has reduce the lump to a small pea or large lentil. My body was trying to move it out but it needed a bit more help.

So she sliced it open again seeing if we could get anything else out. Alas the tissue scaring was most of the volume so there was less ooze to be pushed out.

She said I could wait it out but it takes months to move it naturally or we can do a steroid injection and reduce the swelling so it clears more easily.

I’m not a big fan of prednisone when I’m taking it internally but a little localized dexamethasone shot into the eyelid seemed like a good plan to me.

I’ll say that it’s a bit scary trying to stay perfectly still while someone holds a scalpel to your eyelid. Having someone inject a needful of steroids is much worse from a base animal terror perspective for me.

I’m safely through it though now my eye is all puffy again. I’m likely to have a black eye for a bit so I’m excited for all the jokes Alex and I will make about how he hit me. Nothing more awkward than a wife with a black eye.

Categories
Emotional Work

Day 1530 and Pandemic Anniversary

March 11 2020 was the day the World Health Organization declared Covid-19 to be a pandemic. It’s been five years since we had our once in a century pandemic that changed everything. Honestly it feels like it just happened.

You can quibble a bit on the start (right there in the name alluding to its discovery in 2019) but this second of March the week where America finally started changing behaviors. Within two weeks we’d have the infamous “flatten the curve” discussion. What a shitshow those early days were.

The pandemic changed a lot of people’s lives. The New York Times has a feature with 30 charts about how the world is different that I found interesting.

My life changed in a lot of ways that are probably recognizable to other Americans. My already digital life became how business was done. I moved back home. I rethought my relationship with institutional trust.

We lived in New York when we were locked down. Alex and I didn’t leave our one bedroom apartment for three months except to go to the CVS.

Coincidentally we’d been in the middle of our landlord trying to evict us for filing a complaint with the department of buildings over broken elevators. That got stopped. As soon as it seemed safe to leave city we rented an Airbnb in the Hudson Valley. The next week protests broke out. We had lived above City Hall so we got very lucky.

Figuring out where to land and the shape of our lives was a process. The Airbnb phase felt stressful as the summer ended and the urge for permanency felt overwhelming. We signed a lease site unseen for a townhouse in my hometown of Boulder Colorado.

Much of the rest of these past five years have been subsequently documented here on this blog. We found our way to Montana. A lot happened in those intervening years. None of it felt like it happened very fast. And yet here we are.

Categories
Emotional Work Medical

Day 1528 and The Days Go By

My family has had a really difficult winter. In November I felt so much optimism heading into the darker months. As we spring ahead for Daylight Savings I honestly have no idea how we survived.

My husband and I have both had a run of awful luck with our health. Somehow we both got pneumonia in the last year. I hesitate to blame Covid but neither one of us have ever had pneumonia in our lives and now random respiratory illnesses seem to balloon into significant problems.

Now this could have been exacerbated by discovering we have a mold problem in our bedroom. We are so lucky we have another floor in the house to move into but we are looking at the type of mitigation work that evokes “eh fuck it full remodel” in the hearts of men.

Bright side by 2026 we may have a bathtub in the house. Oddly despite living in 4 bedroom 3 bath house we only have showers. Renovated farmhouses have their quirks.

The only thing keeping me from giving into the constant parade of maladies is working with my portfolio companies. Not having been blessed with children I pour my nurturing into my founders. Investing into the future comes in many forms and I try to trust that this is where I’m meant to be.

Categories
Medical Preparedness

Day 1525 and Turbulence

I am doing what I can to hold steady in the turbulence of the moment. Deals are still getting done, founders move companies forward, I do my small part to contribute in the strange dance of rounds coming together.

It has not been easy with both my husband and I seemingly rotating between one health issue to another. It would be nice to have us both healthy at the same time.

Because it is the winter of our discontent I’ve spent more time on Deep Research projects this past month than seems sensible but the urge to find solutions is strong when your health needs mending.

Plus it saves a ton of time when the alternative is calling a bunch of different experts and making progress at best every two weeks with appointments. Scheduling health care of any kind is a mess.

I remember realizing so vividly during Hurricane Sandy that no matter the catastrophe the rest of life went on. Everything will feel turbulent in our new high variance age and all we can do is live through it.

Categories
Chronic Disease Startups

Day 1519 and Steady

I am doing my best to remain steady. The world at large doesn’t make it easy. Every day we have a new crisis, impending doom and looming fascism.

I would be more inclined to reactivity if it didn’t seem much more important to pay attention to the actual problems over which I have some agency.

Some days that agency is used on frustratingly small things and others it’s the most fantastical science fiction come to life in our day to day reality. The indignities of human embodiment and the miracles of applying knowledge to problems exist in the same reality.

There is so much pretending and posturing in the process of pursuing any goal, it’s understandable that people mistake the symbols of things for the thing itself.

Categories
Medical

Day 1517 and Blink Blink

I’m writing this in the waiting room of the new hospital campus in Bozeman. We’ve recently had an outpost of the Billings Clinic go up alongside the highway between Bozeman and Belgrade to keep up with the growth in Southwest Montana.

It’s really nice and absolutely packed with people. The average age looks to be early seventies so it’s not a young crowd in the eye clinic.

The only other mid-life people besides Alex and myself is a prison inmate in a yellow jumpsuit and his two Corrections officers. I had half a mind to go ask him what he was in for while showing off my own deformity m.

I’m unsure if it’s a side effect of changing medication or just plain bad luck, but I have an infection in my right eyelid. It started about a month ago and looked like it was a simple chalazion.

It’s sometimes called an eyelid cyst or a meibomian cyst. It slowly forms when an oil gland (called a meibomian gland) becomes blocked. Cleveland Clinic

But over the last month it went from painless little boba ball sized lump to my entire eyelid being swollen. It got much worse this week especially as I started applying wet washcloths to it regularly.

They were able to perform an incision and curettage (don’t click through if you don’t want to see some gnarly eye stuff) as my discomfort was pretty intense. I desperately wanted it drained and they did not disappoint.

Just wiping up the last of the pus

I hope this heals well and without issues. I fear this was complicated by the changes I’m meant to undergo in my medical protocol from one IL-17 inhibitor to another.

To soften any backlash in symptoms during the change I’m on another immunosuppressant so I’m particularly nervous about infections especially when it comes to sensitive areas like the eyes. I’m glad I was able to get this drained but I’m a bit nervous about how it will heal.

Categories
Emotional Work

Day 1513 and Forcing Function

I’ve not in one thousand five hundred and thirteen days of writing in a row set forth a m standard for how I might quit. Four years (or 216 weeks) is plenty of time to come up with a criteria for making a decision.

I have in that time embraced the haziness inherent in self trust. I’ll just know when it’s time. That’s obviously a rationalization. I assumed that circumstances would decide for me which meant I’d never need firm criteria for stopping. It would just happen.

Given my health and the general state of the world surely in this long timeframe some calamity, crisis or mishap would keep me from writing one day and that would simply be that. The chain would be broken.

It has not yet happened. No forcing function has stopped me from my writing practice. And I’ve not yet set worth anything firm about how I’ll know.

So far 2025 has tested me. There are many short posts. I have been hampered by health and home issues which sorely make me want to give up some days.

I’ve tried to included more sporadic “linking and thinking” to make my writing space more blog-like and less essay oriented. Backing away from narrative forms is a fine way of introducing flexibility into one’s writing.

I can’t help wondering if I should introduce a forcing function and create a set of criteria for when I’ll stop. But the truth is I’m scared to give myself a clear way out when I’m struggling. Perhaps it’s better to keep that trust that I’ll know.

Categories
Chronic Disease Media

Day 1509 and Wrapping My Arms Around The Problem

I am seeing some progress in my various home and health projects. I’ve been doing my best to remain optimistic even though I was not feeling well and the sheer amount of changes required was intimidating. But I’m seeing low progress.

An industrial hygienist is coming to do an arm test tomorrow on our basement as well as the rest of the house to confirm the extent of our mold problems. Our hope is that it’s contained to the bathroom in the basement.

If we have to do a bathroom remediation that presents an opportunity to do some renovations. While exciting that is also introducing more risk. But you can’t waste a crisis right?

Stuff I Read

The Agent Problem

CoinDesk reporting on the Libra scandal in Argentina

Politico: Voters Were Right About The Economy

Epsilon Theory “It Was Never Going to Be Me”

Categories
Chronic Disease Emotional Work

Day 1508 and Dorymaxxing

I am pushing myself to continue with the daily writing habit even as I am on a rollercoaster of health and home challenges that have put me well on the back foot.

I want to rage against the symptoms, the system that can’t solve anything, and even my own body for being tricky. But that won’t fix anything. I’m need to give the new protocols the space to work.

So it’s one foot in front of the other. Whatever is happening out there in the real world I just need to put one foot in front of the other. Or if you prefer a meme. Just keep swimming Dory.

Just keep swimming

I’m doing my best not to get it get me down. I’m afraid of the setbacks. I am afraid of the length of recovery and the potential for things to be worse. But I’ll Dorymaxx. It’s all I’ve got in me