Tag: Illness

Categories
Internet Culture Travel

Day 1139 and Coming Back Online

I took some time off the grid last week to refocus. I found it to be a bit more tiring than enlightening but I did benefit quite a bit from time offline in the quiet.

I was whisked into some immediate local concerns getting a home base set back up in a city. I speed ran the basics. I feel as if I’ll be coming back online shortly.

This morning, despite a slight cold, I enjoyed the six hour head start I had on the markers today.

After being extremely offline for a week and change, it felt fun to submerge myself in earning season discourse, inflation data, and other concerns of industry.

I’m excited for the problems in front of me, I like my placement on the board, and I trust I will play the hands when the time is right.

Categories
Chronic Disease Travel

Day 1137 and High Friction

I’ve been experiencing several forms of friction over the last week or two.

Some of it was a deliberate step back to be grounded and present. I introduced the friction myself to focus on my nervous system.

But other things have acted as more of a drag on my days than I’d have anticipated. The ambient noise of city living. The small frictions of daily needs like cooking and cleaning.

I even added some friction to my own shopping to speed up my decision making. So maybe there is a theme to be found in the extra friction. And truthfully I’m not sure all of it is net positive. I’m in the red more than I’d like. So I’ll cut down on any friction that isn’t performance enhancing.

Categories
Biohacking

Day 1135 and In The Red But Climbing

I’d love to know if this happens to anyone else. I find I’m easily influenced by the data that my fitness trackers share with me. Sometimes it will even affect my mood negatively. A green recovery can make me feel more optimistic.

I’m a user of both a Whoop and an Apple Watch. I’ve got a whole biohacking routine like every other Silicon Valley bro.

This morning, after a fitful seven and a half hours of sleep, my Whoop showed my recovery was in the red. My HRV was 26 which is low even my my standards.

I felt worse yesterday than I do today so it’s my hope that my Whoop is merely showing me the bad day I had after the fact. Pain can affect my recovery significantly as it’s a lot of stress. I’ll manage my way through it slowly and with lots of rest. And I’ll try not to let it get to my head. A quiet day in bed reading the internet is is a good day in my book.

Categories
Emotional Work

Day 1134 and Happy Being Miserable

I am in a lot of pain today so I’m not thinking as clearly as I’d like. But I have learned to be sanguine about misery over the years.

When you have chronic illnesses you can either become a victim to them or accept them as part of the tapestry of human experiences.

I have had a framing that I’ll butcher today as I can’t recall any past artful coinages. It goes something like one can be existentially happy even if one’s circumstances are miserable. The opposite applies as well. People can have happy daily circumstances and be existentially miserable.

I feel like that no matter how much I may bitch and moan about my life that I am ultimately happy about my lot in life. I’ve got nothing to complain about and when I do complain it’s quite likely that kind of misery actually makes me happy.

Categories
Chronic Disease Medical

Day 1100 and New Symptoms

I am experiencing some ongoing nausea today alongside a number of odd side symptoms like body temperature disregulation. I am displeased with this development

It’s probably a cluster of symptoms related to a migraine. So I’ve taken an Imitrax. I had some sort of reaction to dinner last night (possibly allergic though to what I couldn’t say) that hasn’t quite subsided. I am in a dark room silent with an ice pack popping Zofran and praying.

I always hate when I have a new symptom as it’s scary. I don’t know if it’s a new problem or something a new spin on my existing autoimmune issues.

It’s easy for me to slip into fear as I run through a differential diagnosis. The idea that I might have a new dimension to deal with in my daily health routine triggers all my autonomic stress responses. I’ve got a handle on my existing health issues and I don’t have any desire for new ones.

There is a strange aspect of chronic disease where if you’ve reached any kind of stability or continuity you simply don’t want to mess with it. Adding in new treatments or medication is always a scary prospect. I’ve been doing bodywork that seems to have significant impact in a positive way but I’m terrified that as it improves things I’ll have down days as systems interact. I shall pray it improves soon.

Categories
Biohacking Chronic Disease

Day 1099 and Wide Ribs

I’ve started some body work recently with an osteopath to see if more muscular skeletal fixes might be helpful. I’ve only had two sessions but I’ve already learned some very interesting things about my body.

I have a wider more open rib cage apparently. The osteopath noted that I’m on the wider side of ribs and that I could do some zipping to “close” them to impact my thoracic.

I did lot of singing and voice work in my school years. It was a requirement of Waldorf curriculums not any personal preference I had myself. Diaphragmatic breathing was a big part of voice training for me and it served me well over a number of athletic hobbies over the years.

I now wonder if I was born lucky with wider ribs on average (a reasonable assumption in my mind) or if the regular practice of voice work strengthened it such that it’s now now part of my affects and thereby reshapes my entire compensatory system. Either way my ribs are open and wide and I can breath and move my posture around this fact.

Categories
Chronicle

Day 1090 and Winter Breaks

I would very much like to take an extended break to restore my mind and my body. I feel as if I could use a week or two offline.

The holy nights have held a place in my heart and mind as the season for introspection. I like doing fasts during this time, but it’s not been physically wise to take an extended fast recently.

I expect 2024 to be a big year. I had lots of little things to wrap in 2023 which is impacting my capacity to fully check out for the remainder of the year. Duty calls I suppose. I am keeping my obligations to others but I may need to find a way to keep obligations to myself.

On that note, I’ll keep this short. It’s better to get back to reading and resting when my capacity is diminished.

Categories
Chronic Disease Medical

Day 1089 and Silencing Inputs

I am doing very poorly today. All inputs into my system are being read by my senses as pain.

I’ve spent the last two or three hours in a dark room without any systems inputs but background. I’d hoped to become unconscious but was unable to sleep. It was an extended period of consciousness doing battle with pain. I didn’t set a timer or I’d be able to tell you for sure how much time I spent in this state.

I couldn’t read text on paper or watch visuals on a screen, I couldn’t listen to audio or intake spoken word without difficulty and intense focusing, nor could I tolerate novel or new smells. You’d think this would be very boring except that the intensity of the nerve outputs clouded all thought.

My body seems to be reading all changes in systems inputs as painful. I am unsure where the proximate source of my pain might be as it’s both too intense to get outside of and too diffuse to respond to mindfulness.

Typical locations like my thoracic spine hurt but I feel it in every joint as I take inventory. My intercostal muscles across my rib cage and chest are so tight I’d swear I have several broken ribs if I didn’t know better.

I’ve taken several pain medications of varying strengths (anti inflammatory and analgesic) to little effect. I had to stop watching Christmas movies with my husband sometime in the afternoon as I simply couldn’t handle the noise and sound coming from the tablet.

I don’t know how coherent my writing is at the moment and I feared I wouldn’t be able to muster any focus. I am finding it hard to look at my mobile phone screen even at the minimum brightness setting. This usually indicates a migraine but that seems like a secondary issue.

I hope this passes as I do not have time to manage this kind of symptomatic intensity. Perhaps my body knows this and is simply allowing a breakdown on a day where it’s safest to do so. In which case I may need another holiday or two to actually find a break restorative instead of as emergency maintenance.

Categories
Internet Culture Medical

Day 1069 and Fever

I both literally have a fever in my own body while I am watching a fever burn through one of my favorite extremely online communities in the form of effective acceleration memers versus a heavily armed establishment unit of academic utilitarians. Who would like you to know they aren’t effective altruists I’m sure.

I myself enjoy a good internecine debate as I became a Calvinist as an adult because fuck it the Reformation is the home of the institutional skeptic. Flame wars are the modern 95 theses. And naturally everyone involved thinks their counterparts are reactionaries. Tyranny of small differences.

I’d say more about this but it’s later in the day and like I said I am running a fever. My immune system is remarkably active so I’m honestly shocked a fever got through at all. I actively beat my immune system into retreat so whenever it gains ground I am annoyed and confused. So it’s probably best if I sign off as it’s never a good idea to be letting your fever dreams get the best of you.

Categories
Travel

Day 1064 and Faster San Francisco

I am energized by my day. Any residual pain from the challenges of travel have been mitigated by rest, exercise, meditation and lots of medication.

If I could to give only one argument in favor of acceleration, it would be our capacity to improve medicine. I’d like to find a cure to my ankylosis personally, but it’s bigger than all that. I believe we should do everything we can to improve the health and well being of humanity.

I do so much to balance my own health and wellbeing just so I can keep working and contributing to the startups I love so much. Often I miss so much of life that others take for granted like socializing together. Hobbies, socializing and much of the tapestry of living together is off limits to me as energy budget is too high.

I’d like more capacity in life so I can chose not only to work, but to go to meetups, dinners and whatever else folks get up to in their leisure and community hours.

I am not one for FOMO while I’m in bed recovering, but on the occasional day where I get to do leisure activities I am reminded that I could have more of life if we agreed to prioritize the acceleration of medicine. My energy budget is only limited by the state of our healthcare.

On that note I’ll be at an e/acc meetup tonight in San Francisco. If you think you see me do please come up and say hello. I’d love to meet you. I’ll be wearing the leopard dress I have come to think of as the “spot me in the wild” outfit as well as three distinct wearables.