Tag: Migraine

Categories
Emotional Work Travel

Day 1013 and Fragile

I feel awful. I’m having some kind of serious histamine reaction and the cascade of stress and secondary symptoms have been extremely hard to cope with. I do not feel well physically.

I dislike feeling fragile when the wider world feels like it’s in utter chaos. You’d think I’d be used to it. I’ve staked my reputation on increasing volatility.

It’s simply frightening to feel fragile physically and emotionally at the same time while so far from home. As much as I love Tallinn it is a place that is not my home. It takes extra energy to navigate a new place. I love it but it does drain me.

I hope with rest and taking things slowly I can help myself navigate through the fragility. All types of things contribute to making you feel safe. Sleeping a little bit more. Eating nutritious food. Meditating and breathing exercises. Maintaining a healthy routine is the luxury we cannot forgo when faced with crisis.

I hope I’m taking care of myself well. Seeing the fragility and accepting it reminds me to do what is necessary so I can keep going no matter the stress.

Categories
Emotional Work

Day 999 and Auspicious

Tomorrow is the big day in my daily writing experiment. I am chuffed to see 999 on the title. It seems very auspicious to me. While 888 was a lucky day, today’s number feels like I’m on the cusp of something.

I am set to travel to the Baltics shortly. Perhaps I’ll find some next phase on the adventure of life. I need this optimism today as I don’t feel particularly lucky or auspicious today. I unexpectedly had a few things go wrong this morning and then was rewarded for it with a migraine. I was very angry about it as I had a lot of exciting things planned for the day.

I have to remember that trying to get to the larger numbers is about compounding the many small days filled with mistakes, imperfections and failures. Life happens all around you at inconvenient times. It’s how you muddle through at your goals steadily over time.

Categories
Emotional Work Politics

Day 984 and Distrust

I had a bad migraine over the weekend that simply took up all the space in my mind and body. I woke up with a break in the pain and a deep urge to throw myself into something that felt like momentum.

I found myself awash in sadness. I couldn’t stop myself from crying. It was as if my entire body felt despair. I’ve come to accept the value in embracing emotions as they come. “The only way out is through.”

I trust that my nervous system knows as much as my cognitive mind. I go so far as to say it knows more but that sounds a little woo to folks. And so I listened to my sadness. I cried. I rambled at the many problems large and small facing my corner of the universe.

The distrust I have for our elders who twenty two years ago used today as a catalyst for sending us down an inexorable path of death and fraud. I cried over petty inconveniences like the broken visa system keeping people I care about outside of America.

It’s hard to understand how we came to this point across a generation. But easy to see why millennials are unsure if any of our institutions can be trusted. And I wonder what it’s like to have no memory of a time before 9/11.

Categories
Medical

Day 983 and Down For The Count

I have been felled by a migraine today. I’ve been unable to tolerate light, noise or food for a little under twenty four hours. Probably one of the worst migraines I’ve ever had but my suspicion is that it’s tied into a few other issues.

My husband was struggling with some type of infection. It never popped at Covid on tests but given the prevalence of various forms of colds, flus and other illnesses popping up in the back to the arena phase of fall I wouldn’t be surprised if we were both fighting something off.

I am hoping that staying in bed and drinking gallons of water and electrolytes will pay off tomorrow. The intensity of the pain has been unpleasant. Add in nausea and I’m mostly staying still and praying for relief. I’ll catch you all tomorrow.

Categories
Startups

Day 857 and 3 Bag Cascade

I’ve developed a system for travel crisis management that has seen me through many a storm, workers strike, airport security involuntary cosmetics tosses, gate check “full overhead” confiscation, and other ways you might become involuntarily separated from your luggage. Perhaps even permanently at the rate you hear of luggage getting lost on transcontinental flights.

Disability Planning.

My system is pretty simple and a bit sad yet it’s crucial but I cannot be without certain items. I have a medical condition (ankylosing spondylitis) that requires delicate management. I carry a anti-inflammatory that is an injection pen that must be kept refrigerated. I carry a full travel pharmacy including solutions for all major issue from from digestive troubles to anaphylaxis, and analgesics or “forcing function drugs” for emergencies. Most are stored in labeled plastic bags but a few few controlled substances have to remain in their bottles or they can be confiscated by customs unless I can prove the prescription. In other, words. I can’t let the airline ever get their hands on it and it has to be provably mine.

Aer Grey Duffle Backpack

My backpack is my hand luggage under the seat item. In it I keep my travel pharmacy, a basic quart bag of grooming & cosmetic basics, all my electronics & their chargers, and a BagSmart packing cube with a change of pajamas (including under wear, bra, & extra socks). This functions as my purse for the duration of travel so includes wallet, phone, passport, chapstick, hand sanitizer, extra warmth layer, and other essentials. Even if my carry on bag gets checked against my will and lost in transport, I can still survive on what’s in this bag no matter where I end up.

Grey Muji Roller

Alas this bag isn’t sold anymore but it’s a soft top 4 wheel overhead. It’s my typical one week trip companion. It will go overhead unless something happens so this contains a week’s worth of basic clothing, shoes, and purse that could function for an entire trip if necessary. It is all organized and labeled in BagSmart compression cubes. I keep the majority of my secondary cosmetics here as well so I can shave, shower, do some hair and makeup. If I have a checked luggage failure (it’s lost forever) I’d be alright. I also keep a week’s worth of supplements while a month would go into the checked bag. I also keep 2 detergent tablets in this and the remaining in checked. Yes, I bring my own detergent because allergies.

Tumi Alpha Bag

For longer trips like say a month in Europe I do a checked bag. I pack stuff that I’d prefer to have larger sizes of like toothpaste & body lotions and my preferred shampoo, conditioner and styling products. Still 3 oz but no sense in lugging if you have the luxury. I also pack all my professional and going out clothing in here if it’s not absolutely necessary on landing in which case it would go into the grey carry on. I have dresses and separates that can handle anything from cocktail to family office for a month.

How It Works

I have every item listed in a packing template in Notion but I also do a ritual where I write it all out on a note pad and note the placement of each item in the cascade failure packing stage as either backpack, carry on or checked so I always know where everything is at all times. I’ve never been separated from anything critical like medicine or an electronic. Every time I travel I refine the lists and procedures.

Categories
Preparedness

Day 798 and Snowblind

I’m a big believer in working from your gut. I will qualify that your “gut” is only helpful if you have a good information diet, a grounded worldview and some amount of actual experience. But I’d wager if you are intelligent and have common sense, your instincts are, on average, telling you something worthwhile.

So I’m a bit concerned that today my gut is going just absolutely haywire. I don’t have any rational inputs that would warrant any alarm, either specific or generalized. I’m already a Doomer with a capital D but I’m an optimist about it as we muddle through most things. So I would share if I felt like I had something actionable. I don’t. The storms have to be weathered and we can merely batten down the hatches.

But I’ve got a migraine that cannot seem to be tamped down with even a double dose of Imitrax and I’ve got the unverified and unnerving sense that it’s because my entire input system is overloaded with garbage. Which is modestly weird as I’ve torn out a huge amount of inputs in order to prevent that from occurring.

I feel as if, in my attempts to not overload my meat space system, I may be shutting out a bigger warning. But my sense making capacity is lost in the day. I am flying without instruments. It feels like I’m in a snowblind.

Usually this is not problem as I’m a good pilot of my own psyche. But my autonomic nervous system is still pretending like the existing inputs are offering relevant or useful information. I can’t turn it off despite having turned down every possible source of volume.

And I don’t know what that means. Is something about to happen? Because no matter how hard I tamp down the inputs I’m still getting a read on my instruments. It feels like the point in the disaster movie that the sensors go haywire and the birds start dropping from the sky. But I’ve honestly got no idea what’s going on. EDITORS NOTE: SVB collapsed.

I’ve written this out early today just in case I need to further ramp down my sensory inputs and cannot write later. Take this as a single fuzzy reference on the ground background of cosmic radiation noise. Maybe put on a tinfoil hat or something.

Categories
Emotional Work Medical

Day 762 and If It’s Not A Yes Then It’s A No

I was supposed to drive my husband to an appointment today. I’d put it on my calendar and was prepared to make sure it happened because that’s what wives do right? It was an easy and obvious yes. I didn’t think anything of it.

Around noon I noticed I was becoming intensely sound sensitive. I asked my husband if it felt really bright outside even though we had cloud cover. I felt a little bit nauseous but I’ve been taking some antibiotics so I dismissed the symptom.

It was only when some silverware clattered onto our wooden dining table I realized something was wrong. I full on screamed. I jumped and shrieked liked like a poisonous spider had just bit me. A massive overreaction to a noise that objectively was neither that loud or that threatening.

“Honey, is it possible you have a migraine?”

Alex Miller

Despite the litany of easy to diagnose symptoms, I had managed to ignore the obvious. I had a migraine. And from the looks of it a pretty severe one.

I’d woken up feeling amazing so I wanted to tackle the day with all the energy I had. But as it waned I got angry. If I’d bothered to look at the emotion I would have seen that underneath the steam of the anger was hurt. I felt betrayed by my body. I had a 95% recovery score on my Whoop. How dare it let me down? So I just ignored it.

The kicker to the story is I kept trying to ignore it. I took one Imitrax even though it seemed like a two Imitrax migraine. Alex asked me if I was sure I would be OK to still drive him this afternoon. I waffled a little bit and said I dunno I am sure it will be fine once the migraine medicine kicks in.

I don’t like to drive after taking Imitrax as it tends to make me a little sleepy. And I really wanted to help Alex by driving him. So I just took one and hoped for the best.

An hour later Alex came into the dark bedroom and said “honey you know if it’s not an immediate yes then it’s a no, right?”

Apparently I did not. I took another Imitrax and Alex found another ride. Hopefully I learned my lesson.

Categories
Medical Startups

Day 696 and Edge

I’m enjoying a migraine this weekend that was both strong and as of yet unbeaten. Perhaps I overdid things on Thanksgiving and Black Friday. But I’ve been stuck in bed in a dark room for the last 48 hours or so.

While this sounds a bit miserable, I can assure you it is also part of my edge. When my physical works shrinks my cognitive capacity unfurls. I very much liken it to the traditional super hero dilemma of being gifted with something that makes living a normal life a challenge.

I may be stuck inside struggling with light, noise and smell but I can still do most of my core deep work. I can’t take calls or go to meetings but I can be on my phone and my Kindle. I can intake information and I can synthesize that information when I’m in darkness.

And that is 90% of my job. Be informed and make the best decision you can. Those decisions are generally done when you are calm and fast. And I get the benefit of being in rest and digest as often as possible as it’s what keeps me alive.

I’ve got a generalized theory related to finding one’s edge. It’s pretty simple. If other people perceive it as a weakness but you understand how to wield it as a strength then your got an edge. People dismiss you sure. But being underestimated is one hell of a way to get on the better end of a trade.

And so while I’m here looking like I might not be worthy because of some set of heuristics that’s have typically worked well for you I’m actually the one that has a leg up on you. You would do well to think about all the ways in which you can leverage talent and insights that trade below their value. You can make a lot of money betting off of truly underestimated viewpoints.

Categories
Preparedness

Day 620 and AQI

I am in the throes of a horrifying migraine. The take two Imitrax and pray type. It’s also the nausea inducing type so I’ve not eaten all day. I feel awful. And it’s mostly not my own fault even though I often like to blame flares in symptoms on my own lack of discipline or purity in maintaining some Platonic ideal of lifestyle or wellness regimen.

It is fire season in the west and I’m sure some, if not most, of my migraine is tied to the horrifying air quality that is choking out thousands of miles of California, Washington, Oregon, Idaho and Montana.

An AQI reading of western America on September 12th at 3:48pm Mountain Time from PurpleAir

The AQI or air quality index in my neck of the woods is 160. Unhealthy for sensitive individuals is the coy and somewhat misleading phrase used. It means in practical terms visibility is so bad I can’t see the mountains a few miles away.

Montana is at the moment free of any major fires. Our colder temperatures, lack of pervasive fire beetle blight, and reduced density makes it statistically safer than the Colorado front range when it comes to total fire danger. But it’s no safer from prevailing winds and the pollution from fire in other states. In order to escape from it entirely I’d probably have to leave the continent.

I’ve obviously opted not to leave my home region of the mountain west even if I have accepted moving to a more northern and protected corner of it. But there is a certain existential “No Exit” sense I have with AQI and fire season in general. It may just be my lot in life. Maybe it’s everyone’s lot. To give up your homeland is a complicated fight. I expect for some of humanity it must involve either certain death or the prospect of great riches

Categories
Chronic Disease

Day 559 and Stuck

I got stuck on the couch today. I’m not entirely sure why but I’m in the middle of a massive symptom flare. The pain is so acute and unrelenting that if I so much as sit up from bed I’ll get stuck in that position. I made the mistake of trying to eat lunch on the couch around noon and didn’t work up the capacity to get back into bed for over an hour.

This is becoming a theme on bad days. I’ll find myself upright for forty minutes completely unintentionally because moving, even to a more comfortable position laying down, is so painful I will put it off until I simply cannot remain upright anymore. It’s just that bad. Even the higher grade pain management isn’t doing shit. I’m just stuck in the pain until an even worse pain develops.

That’s probably a good metaphor for life. We will stay in an uncomfortable position until it’s so intolerable we simply must change. And I’d love to wax philosophic about that but I mostly mean it literally. If you’ve ever wondered how I got popular on Twitter, it’s simply because it’s the only thing I can do when I’m physically stuck in place by pain. I thank the internet Gods that this has been monetizable through investing or I don’t know what I would do.

You could almost surely correlate the number of tweets I send with the pain scale of my day. If I’ve tweeted more than 50 times on any given day it’s probably because I am over a 7 on the pain scale. It’s 2pm and I’ve tweeted 32 times today not including my DMs. I keep hopping the pain will abate enough that I can shower but it doesn’t show any signs of letting up today.

Frankly I’m just relieved it’s only my spinal pain and not anything else more exotic. Earlier this week I was dealing with being itchy and then I had a migraine that took 48 hours and several Imitrax to break. Regular old spinal pain is at least a recognizable and normal return to form. But until this nerve storm abates I’m stuck. At least until something worse comes along.