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Chronic Disease Emotional Work

Day 157 Brushing Your Teeth

I feel like I need a break from having daily obligations for a day or two (it was a big week) but I’m also a creator of routines and rhythm. When you’ve got a chronic disease you don’t get to skip stuff like your medication or healthy habits without some consequences. One reason I don’t […]

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Reading

Day 143 and Fiction

I like to read stories more than I like to read any other form of writing. I just can’t seem to get into non-fiction. History, self help, how-to just doesn’t grab me. I’ve got a particularly intense allergy to business books of which my aversion is so strong I would rather pulp a “helpful” book […]

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Aesthetics Chronicle

Day 132 and Chaos Energy

Humans crave novelty but require stability. I guess this was probably fine when the worst we could do was gossip and club each other on the head. But giving humanity mass scale has been a mixed bag. Our constant dopamine seeking behaviors are piling up negative externalities as any individual can throw chaos energy out […]

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Biohacking Chronic Disease Chronicle

Day 120 and Naps

I’ve always been prone to energy dips in the afternoon. I wake up immediately ready for the day but after lunch and another of work or activity and I’m heading off an energy cliff. If I allow myself a burst of sleep I’ll be back and feeling as energetic as I was in the morning […]

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Chronic Disease Chronicle

Day 115 and Physical Rehabilitation

As part of my commitment to quantified self and biohacking I have a physical rehabilitation protocol I cobbled together. Two years ago at the start of my autoimmune my journey I couldn’t walk easily. The ankylosing spondylitis manifested in my upper spine meaning I would struggle to get from my bed to the bathroom. I […]

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Startups

Day 112 and Unknowability

Human minds seem to prefer predictably. The back brain craves knowing what is coming even as our flighty consciousness seeks novelty. Talk about a tension that sucks. We’ve all seem just now much this is a recipe for misery when you live in a world with no predictability but easy access to low stakes novelty […]

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Aesthetics Chronicle Startups

Day 99 and Swag

My favorite item of clothing in the pandemic has been a Facebook hoodie. It’s the perfect garment for long days indoors, not too heavy but not too light. It zips so it’s easy to get on and off. It has pockets for stowing my iPhone. It’s got a snuggly fuzzy inside but a smooth cool […]

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Chronic Disease Chronicle

Day 93 and Distrust

I’m feeling pretty good these days. I’ve written about my progress and my biohacking. But one area I’m not improving in is consistency. Despite meticulous record keeping and a routine I maintain assiduously, it’s almost impossible to predict when I’ll have a bad day. They appear at random! Most days were bad days the past […]

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Chronic Disease Chronicle

Day 90 and Health ROI

The American attitude towards healthcare leans heavily towards pharmaceuticals. Much of what ails us might be mitigated by nutrition, supplements, exercise or physical treatments. But we tend to prioritize a “one and done” approach that lends itself to prescriptions for any ailment you can pinpoint. It’s not unusual to be on upwards of ten pills […]

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Chronicle

Day 86 and Persistence

I’m learning to live around my routines. Or maybe my routines are what I live and everything else that I perceive as life is just moments in between meals, meditation, supplements, treatments, workouts, walks, and pharmaceuticals. Who is to say what forms the contours of life? When I first picked up the daily commitment to […]