Categories
Biohacking Chronic Disease

Day 668 and Health Multitasking

I didn’t take my own advice recently. When folks ask me how to begin biohacking I tell them to take it slow. You should change only one variable at a time.

Biohacking requires that you don’t change up your variables too often or too quickly. You need to establish trend lines. The biggest mistake you can make is being “noisy” as you will never isolate the meaningful variables. And you won’t stick to it. So it’s a double fuck up. Clean reliable data matters. Don’t change too much too fast.

Day 91 and A Beginner’s Guide to Biohacking

My biohacking has been focused on improving my core inflammatory markers for several years. Secondary metrics like pain and energy got better as my erythrocyte sedimentation rate and C-reactive protein went down.

What I did to improve those metrics was complex, time intensive and expensive but it was pretty clear what outcome I was pursuing. My broad goals were simple. The tactics merely a function of one overarching strategy to lower inflammation.

Recently I’ve been a bit sloppy about my goals as my SED rate and CRP approach normal. I got excited that I might be stable enough to pursue some new goals. I am always looking to lower my doses of pain management medications. But the real shiny object for me has been fat loss.

I’ve struggled to stay lean as several medications that improve inflammatory markers have weight gain as a side effect. I struggle with shame about my weight. So much of popular culture portrays weight gain as a function of poor impulse control. It embarrasses me on some deep core level that others might think I’m lazy. If immediately trigger’s defensiveness for me.

I can rationally know I was pursuing a responsible health by taking prednisone during acute phases of my illness, but a part of me is still so embarrassed by the side effects. What must people think of me? Even if I explain that it’s a side effect of medication I fear that it’s still perceived as been slovenly.

So I decided to go back on metabolic drug called ozempic because I just hate carrying excess fat. I thought I could add it into my routine. But I am not doing as well as I’d like with the side effects of the injection. I’ve now vomited two Sundays in a row and been unable to eat. That is destabilizing enough that it is impacting my other goals like a slow dose down of non-steroidal anti-inflammatory drugs.

Maintaining low inflammation rates with lower pharmaceutical intervention is obviously a huge goal of mine and far more crucial than dropping a few pounds of fat. Especially because my metabolic markers are all in the clear.

I just so badly want to put behind some of the visible markers of my disease. It was hubris to pursue ozempic when I know I have other metrics that are more important than my shame about having steroid fat. So next time you see someone who is overweight I encourage some empathy. You never know the whole story of someone’s health.

Categories
Biohacking

Day 663 and Bad Sleep

I realize I’ve had several days of “well shit seems badposting. The outside world is a bit kooky but my world is basically fine. It’s snowy and I’m cozy and I’ve got friends visiting so you’d think I’d be in a terrific mood. But I’ve had two nights of absolutely horrible sleep.

I have been tossing and turning. I’m in more pain than I’d prefer. My heart rate is up. And my recovery has been for shit. At 6am this morning I just fully gave up on sleeping and trudged up to the kitchen for coffee. According to my Whoop I’d been awake since 1am. The same thing had happened the night before too.

I have reasonably good sleep hygiene. Dark quiet cold room. I take magnesium. I have a wind down routine. I’ve got a good mattress. And crucially if I am particularly fucked up I’ve got a prescription for a downer or two.

None of that appears to have mattered. Not even drugs were able to keep me asleep. And it’s bumming me the fuck out. At a certain point I’ve got to assume I’ll simply be so tired that I’ve got to sleep through the night right?

I told myself that was true yesterday when I feel asleep within a few minutes of my head hitting the pillow. But a few hours later I was awake and in pain. I’ve tried to be extra active today in the hopes that I won’t repeat it tonight.

Categories
Internet Culture

Day 660 and When Extremely Online Goes Terminal

I committed one of the cardinal sins of the extremely online yesterday. So much discourse was happening I overwhelmed myself. Just like an endless stream of stuff was hitting my hind brain and like an idiot I just kept drinking from the firehose of engagement. I stayed up till 1am.

I’m typically careful about how much central nervous system stress I’m willing to tolerate. It’s a hazard of the job when being visibly online and searching for investments is mostly virtual. Purposely consuming a significant amount of bad news or scrolling the deep cuts of the dark corners of the message boards is meant to be done in small doses. I have no need to push my endocrine system into permanent fight or flight. No one does. It’s very counterproductive.

Going into a sympathetic nervous response is a part of life though. Some stress is good. I have an entire routine for soothing an overstimulated vagus nerve. I take adaptogens. I meditate. I live in Montana with plenty of open spaces and fresh air. I am skilled in discerning agitprop from all corners of the information wars. When I dive into the dopamine river I do so responsibly with the right tools. Don’t try this at home kids.

But that doesn’t mean I’m immune from drowning in the dopamine drip. I just have a good chance of pulling myself out before it’s too late. Around 9pm or so it became clear that even after a quiet dinner, some CBD and THC gummies, and relaxing television with my husband that I was in fact still very much in sympathetic response.

I panicked a little bit as hour after hour passed and I continued to be reactive. I’d started a negative flywheel. I took an Ativan fully expecting the steroid of the mind to knock me out. It did not. And so giving in to all my worst impulses stayed on Twitter. Fuck it if the good rare drugs weren’t doing it. I said “let ‘er rip!” I had recently finished the Bear.

Today I undid the damage. I slept until my body decided it was time to wake up. I followed my supplement routine carefully. For the TMI readers I had about a dozen orgasms. I slept some more. I stretched and took a walk. I took a long leisurely shower with every possibly form of exfoliating and conditioning I could imagine. And now at the end of the day I think I might have pushed my case of terminally online back to a place of merely extremely online. Let that be a lesson to everyone.

Categories
Biohacking

Day 652 and Startled Awake

There are few things more disorienting than waking up without realizing where, or even when, you’ve fallen asleep.

The first few moments of regaining consciousness are the stuff of genuine terror. As your senses do their best to bring their data to your brain, there are a few agonizingly slow beats where you genuinely have no idea what the fuck is going on.

I imagine this phenomenon is where our vocabulary of phrases like “startled awake” get their origin. Perhaps you weren’t awoken by anything surprising, or particularly startling, but the small gap in processing between sense and mind is such a chasm in that singular moment that it all feels startling.

I had lay down to wait for a Midol to kick in to ease my first day of menstruation cramps at around 1:30pm. I remember asking my husband if he could find a heating blanket. I don’t remember much past that except a few hazy details of wrapping my entire lower torso with a heating blanket.

I had not turned off any lights. Nor had I thought to put on a sleeping mask. I thought I was simply waiting for the sweet relief of caffeine, Tylenol and diuretics. I had even told my girlfriend Ellie who had been expecting me to come up upstairs to hang out that I just needed a quick lie down. Turns out the lie part was true. It was not quick however. Which is some fun wordplay.

When I regained consciousness I had no sense of how much time had passed. As I fumbled about for my cell phone I swear I felt my neurons firing off rapidly in an attempt to gain data points for my poor addled mind to do some damned interpreting.

I was wrapped in something hot with a cord. Did that mean I wasn’t in my own bed? I didn’t generally sleep with anything electronic. I briefly panicked as I felt trapped in what was previously providing my body with comfort. I’d forgotten about the electric heating blanket, leaving the cord with no other function but to panic my hind brain with a fear of being strangled.

As all my lights were on, the various lamps were washing out any indication of the hour. I could hear noises above me so perhaps someone was awake. Did that mean it was the afternoon? What was with all the stomping above. It felt like it must be day.

I simply wasn’t getting enough orientation information from my initial position and I couldn’t seem to find my phone. I doubt more than a second or two has passed as I went through my startled awake process.

As I attempted to make sense of all these inputs I finally realized that I had passed out on top of my phone and I’d let it slip under my pillow. It was a bit past 3pm. I texted Ellie to let her know I’d accidentally passed out. The brief pumping of adrenaline and cortisol was easing back. I was at home in bed quite safe and a bit overly warm. But I certainly felt a new appreciation for the limits and frailty of my human mind.

Categories
Emotional Work

Day 648 and Open

I share a lot of myself online. For an introvert with more than a hint of Autism you’d think I’d find it mortifying to be as open as I am online. My therapist would probably say it’s because I like the distance provided by sharing online and it’s hard to disagree. But I like being open to the world. I want to be a little beacon in the storm so that you might find me if you are looking.

But while I am so open to the public online, I am protective of my personal space for a number of reasons. I guard my health and my body as I manage a chronic disease. I prefer to operate from a place of non-reactivity as I like my central nervous system to maintain eustress. And I am not generally energized by spending time with others. I am energized by alone time.

But like any other human I do want to be seen. And I want others to feel like I am seeing them. I prize empathy and openness. Showing my vulnerability and weaknesses with the world is part of how I try to be seen and also let others know I see them.

My efforts to be healthy and my struggles with pain and fat are human problems. Maybe other aspects of my life are less relatable, but being worried about my weight and struggling with physical discomfort is the stuff of being an average woman.

I am perhaps overly sensitive to what I perceive as failures and short comings. I project confidence but it isn’t always natural. But I also recognize that, even if flaws terrify the part of me that is still emotionally a child, these supposed failings are the human condition. Everyone has elements of their bodies, their emotions and their intellect that they occasionally feel shame about. We are all working to let go of that shame.

I want the people I work with, especially the founders who are pouring their lives into their companies, to know that they are psychologically safe with me. Doing new things is hard. Creation is hard. Building is hard. Startups are hard. Shouldn’t your investors and advisors be a safe harbor to share those challenges with?

If you are feeling scared or ashamed or angry about yourself, I want you to know you are not alone. It’s ok to be open about your power and your accomplishments and your unique genius. And it’s also ok to be open about all the things you struggle with as well. You contain multitudes.

So if you see me putting out huge asks online or sharing incredibly embarrassing details, I want you to know it is because I see you and I trust you to see me too.

And if we are meant to be in each others lives then it will because we are capable of seeing the multitudes in each other. And if that is not for you that’s ok too. We all deserve to be loved as we are. I trust you. And I hope you might trust me too.

Categories
Biohacking

Day 642 and Feast

WARNING: I am discussing food and my relationship to food for anyone that has any triggers around food, eating disorders, or disordered eating.

I accidentally didn’t eat anything of substance today. I had some coffee and a banana so just enough to break my fast but not quite so much that I had a meal. The weekend was packed with meals in huge portions due to slightly more socializing and being out of the house than was wise. I really felt it yesterday as we had two very hearty meals planned and I managed to eat maybe a quarter of it.

I have always been a bit of a feast or famine type. Some of this is probably related to some childhood incidents. I’d much rather eat as much as I’d like and then fast for a day or so. I like the feeling of choice and control.

Some of worst parts of having to combat an autoimmune disorder is sometimes being put on medications that need to be taken with food. I hate when any outside force interferes with my body. Even medication.

I also happen to buy into the research that fasting is a a generally positive force for good health. The intuitive notion that we evolved for feast or famine is slowly being proven out. Every major world religion incorporating fast as a component also reassures. Nothing is more lindy than fasting.

But as I come to the end of my day it is probably time to eat a proper meal. My stomach is rumbling. I can feel my focus faltering. I don’t have much of an appetite but I will need to find the middle ground between feast and famine today.

Categories
Emotional Work

Day 641 and Recovery

This might sound a little shocking but I sleep at least 9 hours a night. Sleep is one of the obsessions of the biohacker. If I’m lucky I might be able to get to ten. It’s always a sign of me doing poorly if I am not sleeping a TON.

It’s usually the first sign I am not adequately reserving time to bring down my central nervous system into rest and digest. I’ll stay up till 11pm and then it’s a hop skip and a jump to only sleeping seven hours.

The best combination of effort and exertion for me is only adding in specific necessary stressors during the day and give ample time to recovery. Much of my work requires focus and information processing and synthesis. And that isn’t improved by overwork and exhaustion.

Nevertheless I am still carting around a lot of lessons from my childhood about the value of hard work. More is better. More hours is best. And this is a fine and noble thing if you do work intelligently with your goals in mind. Simple exertion is sometimes the best option. But not always.

Categories
Medical Preparedness

Day 627 and First Responder

My hands are stained blood red. Despite a good scrubbing, my cuticles definitely show that I spent time packing wounds today. Ok, fake wounds. And it’s fake blood. I am taking a wilderness medical incident certification course. And it is very hands on. Literally.

A firefighter packing compressed gauze into a femoral artery simulator

I got the opportunity to take a spot in a course that one of my friends teaches. I’ve got so much exposure to medicine after the last several years of health challenges that I’ve been yearning to upgrade my knowledge to something more practical than my own personal biohacking. So when Tom offered up a spot in his medical incident certification course for wilderness response, I said you know what fuck it I’m going to do it.

And I’m so glad I did. Not because I anticipate needing to apply a tourniquet in the back country of Montana. Or that I’ll be faced with packing a groin wound to stop someone from bleeding out when they are hours away from the hospital. Though I am glad I now know how. But because I think hands on experience with a rougher world is experience I need to do my job investing in an increasingly complex, chaotic and unstable world.

I was absolutely enthralled by the first day. It was me and a bunch of other much more experienced EMTs, paramedics and wildfire fighters. I also met a number of extremely savvy folks who special in fire and emergency incident response.

I was very much thrown into the deep end of first responder world and I’m not ashamed to say I “died” on the very first scenario test as I’ve got no idea what I’m doing. But I’m soaking up as much information as I can as fast as I can. Though not quite as fast as arterial blood gushes. Yet. Ask me on Friday if I’ve improved.

I couldn’t tell you precisely why I think this kind of hands on exposure to emergency response is so crucial but something deep in my gut says that I cannot possibly invest in a changing world without having some on the ground exposure.

The folks who are fighting our worst wildfires and responding to our most intense natural disasters know something visceral about chaos and the fragility of modernity that the rest of us do a lot to suppress.

Just casual conversations as we went through lessons and practice opened up my mind to new areas of opportunity. I found half a dozen blind spots I didn’t know I had. The world is much more chaotic than the media and our social channels let on. But it’s also possible to tackle them head on. We are not helpless. And it’s not hopeless. And I’m feeling fully empowered to deepen my relationship to chaos as I learn just when and where I have more agency.

Categories
Aesthetics Biohacking

Day 624 and Goblin Mode

A trigger warning for folks. This post contains discussions of poor eating habits, food trauma and possible eating disorders.

As much as I like being a bit of a loner, I am often comically inept at having to take care of myself. My husband has been busy with work and I have been left to my own devices to manage cooking this week. Let’s just say it went a bit poorly. Or at least it was comical. My husband is practically a chef and I can barely microwave a hot pocket.

I’m exactly the sort of person that Soylent, the tech bro reinvents NutriSlim beverage, was designed to appeal to. I am easily overwhelmed by the thought of even basic cooking. I’m extremely picky about texture, smells and presentation (thanks autism). And if I’m really honest I just don’t want to eat anything that isn’t perfect. So if it’s not exactly what I want, I might has well have a nutritional slurry. I hate to waste calories in unappealing food so I’d rather get in my macronutrients and vitamins.

I’m embarrassed to say that I did exactly that for a few meals this week. I tossed 2 scoops of protein powder, a scoop of vitamin mix, and some GI stomach support into a glass of water and called that dinner. Even lower rent than a packaged shake but probably healthier. I got 35 grams of protein out of this bad boy.

A protein slurry in water.

I realize this sounds like I’ve got an eating disorder. And maybe I do. Before anyone has a clue that I might be autistic I had some knock down drag out battle of wills with doctors.

One of the defining traumas of my childhood was my pediatrician telling my mother I needed to eat more dairy. I hated the stuff and refused milk & yogurt as small child. My doctor’s solution (and I am not making this up sadly) was to not allow me any food till I ate dairy

Julie Fredrickson from Day 368 Eating Disorder Season

That story doesn’t end well. I didn’t eat the dairy. I passed out. Starving kids into compliance is perhaps a bad idea. But it did leave me with a sense of comfort and control with fasting. If I cannot eat for any reason I know I will be able to manage feelings of hunger. So not a total loss.

I have enjoyed some of this feral goblin mode stuff but I’m glad that Alex is back at his cooking now that the week is over and it’s Friday. Pulled pork is definitely better than nutritional slurry. Well, sometimes slurry has its place.

Categories
Chronic Disease

Day 621 and Pain’s Anxiety

Before I was diagnosed with my spinal condition ankylosing spondylitis, I didn’t really understand that I was in pain. I know that sounds weird, but I just knows I felt like shit. I hadn’t yet pinpoint the origins of the crisis in my own body. I was a stranger to myself.

Back then getting a diagnosis involved a lot of questions about my mental health. Are you anxious? Would you consider taking an anxiety medication just to see if it help? Are you sure it’s not all in your head? No doctor I’m not sure of anything that’s why I’m asking you.

The thing is I did feel anxious. My central nervous system was in a perpetual state of fight or flight from the pain. I had tachycardia. I was twitchy. I wasn’t a sleeping well. I didn’t want to be touched. It hurt too much. I was exhausted all the time and felt overwhelmed that no one seemed to know what was wrong with me. I’m lucky no one asked me if I was depressed or I might have been put on Prozac.

I’m one of the lucky ones. My chronic disease has a simple blood panel and physical exam to diagnose it. It only took me a few specialists to get to a rheumatologist.

I fear I would have been given an anxiety diagnosis and told it was all in my head if I’d had something more complex. But thankfully we untangled that any anxiety or depression I felt was simply a function of being in an inflammatory condition so acute every movement was painful. You’d have a racing heart and a fear of movement or touch too if everything was painful to the touch

The thing is I am scared of my pain. I do regularly get caught in fight or flight fear responses if the pain appears and I’m not prepared for it. I am militant about certain aspects of self care and my biohacking as I fear flares. I fear the drugs that are required when it isn’t controlled. It makes me anxious to need drugs at all to control my symptoms. Especially in America where a war on drugs has made it hard to need anything stronger than Advil.

Everything about pain and it’s treatment is anxiety inducing in America. And that’s a hard comorbidity to live with in a disease. As if pain wasn’t enough, the latent fear that you might not be believed lingers.