Categories
Emotional Work Medical Politics

Day 765 and Kobayashi Maru for Women

I woke up to a totally off handed tweet of mine going viral. I had done some googling on the cost of pregnancy surrogacy and learned that it would probably cost $200,000 a pop. I’d never really considered the cost as to be honest as I didn’t think I’d be having children that way. The responses to the tweet left me feeling despondent.

Five years ago I did IVF to freeze embryos (and eggs too) and it kicked off a massive health crisis that I only feel I’ve gotten under control recently. It took everything from me. I was on medical leave, I sold my startup, and my marriage got to learn what “in sickness and in health” really means. It was awful. I am crying just remembering.

It took years to get healthy again. Of course, I first had to get stable at all. I spent years, and a huge chunk of savings, biohacking my way back to a body healthy enough to work. I’m thrilled to be back doing what I love most which is working with early stage companies. But work wasn’t the only goal of getting healthy.

I’ve had a fantasy that if I just kept at my biohacking that one day I’d be off all these medications. That I could truly be healed. That all this trouble and heartache wouldn’t be permanent. That I could heal myself. Unsaid in all of that, is that I cannot be pregnant and on the medications that saved my life. How is that for a kick in the teeth.

I’ve got two embryos and ten eggs and a fleeting dying ember of hope that I could ever carry them. I don’t know if having them via a surrogate is my path forward. Maybe there is still hope I could be healthy enough. I frankly don’t know and I’m not ready to say where my fertility is headed.

All I know is that this feels like a no scenario. That having a child in America is a fraught and expensive endeavor even when everything goes right and you are healthy and young. There is no winning as a woman as any decision around family is going to upset someone.

It’s the Kobayashi Maru for American women. Juggling your partner (or partners), your money, your home, your health and your fertility means balls get dropped. You are going to lose somewhere. And it really hurts.

Categories
Internet Culture Politics

Day 764 and Natalism

There are a number of cultural streams in American life that have all aligned around being natalist. You want your country to have babies because it’s good for the economy. And presumably also good for national security.

This fairly basic insight means everyone from techno-libertarians to Catholic homesteaders believes that Americans should be having more babies. It is not just the Quiver-full types having six babies anymore, so are our wealthiest aristocratic titans of industry.

But this alliance is missing some crucial basics. Like for instance the fundamental civilization level things we need to do to make it desirable and affordable to have children. It’s expensive to be pregnant, it’s expensive to raise children, it’s expensive all around to be parents. I spent $40,000 on IVF and it ruined my health. If I counted lost wages and being forced to sell my startup I’m the total costs is seven figures.

I don’t know if you’ve looked at just the costs around having a baby but it will shock you every time you turn a new corner in the fertility space. I learned today you will spend between $100,000 to $200,000 to hire a surrogate. It’s a person’s salary and a lot of medical care so sure that seems right but damn.

I guess I am interested in the math of Natalism to see if I could afford it. I am one of those “tech elites” that thinks we have to have children to drive the innovation of tomorrow. Our future is based on an optimistic hope that maybe we can push for a better future. Humanity won’t continue without children.

But I don’t have a body that is all that healthy without medical intervention. I live a normal life now and can work full time again because I take some exceptional medicine.

But it’s not medicinal regime that can be combined with pregnancy. So if I want to carry a child I have to go off what amounts to life saving medicine. Without it I’d be on bed rest. You can imagine the math I’m doing in my head? Do I want to pour another million into having a family?

So what’s a girl like me to do? Surrogacy right? But I’ve got 10 eggs and 2 embryos so assuming a third of them make it, that’s nearly half a million dollars in surrogacy fees. To get three kids. That’s a heavy price tag on the future. If more of them take it gets even wilder.

Now ok sure I’d rather we encourage a world where younger healthy folks do things naturally but don’t we want everyone going at maximum effort for a better tomorrow? Shouldn’t we want technology to solve this? Where are my artificial wombs at?

Categories
Emotional Work Medical

Day 762 and If It’s Not A Yes Then It’s A No

I was supposed to drive my husband to an appointment today. I’d put it on my calendar and was prepared to make sure it happened because that’s what wives do right? It was an easy and obvious yes. I didn’t think anything of it.

Around noon I noticed I was becoming intensely sound sensitive. I asked my husband if it felt really bright outside even though we had cloud cover. I felt a little bit nauseous but I’ve been taking some antibiotics so I dismissed the symptom.

It was only when some silverware clattered onto our wooden dining table I realized something was wrong. I full on screamed. I jumped and shrieked liked like a poisonous spider had just bit me. A massive overreaction to a noise that objectively was neither that loud or that threatening.

“Honey, is it possible you have a migraine?”

Alex Miller

Despite the litany of easy to diagnose symptoms, I had managed to ignore the obvious. I had a migraine. And from the looks of it a pretty severe one.

I’d woken up feeling amazing so I wanted to tackle the day with all the energy I had. But as it waned I got angry. If I’d bothered to look at the emotion I would have seen that underneath the steam of the anger was hurt. I felt betrayed by my body. I had a 95% recovery score on my Whoop. How dare it let me down? So I just ignored it.

The kicker to the story is I kept trying to ignore it. I took one Imitrax even though it seemed like a two Imitrax migraine. Alex asked me if I was sure I would be OK to still drive him this afternoon. I waffled a little bit and said I dunno I am sure it will be fine once the migraine medicine kicks in.

I don’t like to drive after taking Imitrax as it tends to make me a little sleepy. And I really wanted to help Alex by driving him. So I just took one and hoped for the best.

An hour later Alex came into the dark bedroom and said “honey you know if it’s not an immediate yes then it’s a no, right?”

Apparently I did not. I took another Imitrax and Alex found another ride. Hopefully I learned my lesson.

Categories
Biohacking

Day 742 and Careful Balance

I don’t think I’ll be getting my best writing out today. I’m plugging through my work while balancing out my personal chemistry against my obligations.

I am a bit scared to find myself balancing a delicate body chemistry in a foreign country. I don’t care much for taking a steroid like prednisone but when it’s a choice between hives and yellow weeping eyes or a modicum of comfort, you pick comfort.

It’s of course not without its side effects. Steroids make you feel great till they make you feel a bit crazy. They are very good at tamping down every reaction your body has which can ironically give you some autonomic issues. For me it can feel like I’m in fight or flight.

I left my Airbnb as the more I tapered the steroid dose the worse my symptoms got. I’m a little concerned about fighting Airbnb for a refund but better to lose a few hundred dollars than need steroids. I did find a very nice and crucially clean hotel that will do the trick for now.

Categories
Travel

Day 736 and Liminal Civilization

It must have been somewhere in the late nineties or early aughts that I first learned about the concept of liminal spaces. I’m fairly certain I got it from William Gibson. I’ve associated it with travel and the in-between spaces like corridors, escalators to nowhere and empty lounges. But it really means any in-between space that is not clearly claimed as one type of space or another. The rules of the space are unclear as it doesn’t have an identity.

After my most recent flight to Germany last night, I am wondering if manners and social contracts can be liminal too. Between the spaces where rules and social probity apply, and where we believe we can we can engage in bad behavior, is liminal civilization.

You are not quite bounded by the rules of your friends and countrymen nor are you fully bound by agreed upon civilizational manners when traveling. And nowhere is this truer than traveling when sick.

On the first leg of my flight a white twenty something gentleman sat next to me. He had an awful cough. He would sniffle, hack and then snurg up a ball of snot and swallow it down on repeat. I hadn’t put on a mask as the airport was mostly empty and so was the flight.

But I was next to a gentleman who was clearly in the grips of some type of viral infection. I put on a KN95 and didn’t remove it. He stated daggers at me. Like I was the rude one. But frankly I had no intention of getting his cold.

On my second flight I encountered a couple even further removed from decent manners and leaning full into liminal incivility. United had a huge fuck up on my flight which had them scrambling to reseat me after they gave away my seat when their own flight didn’t make it to Denver. I had bought another ticket on another flight and checked in at the lounge and has my husband call to confirm but alas I almost didn’t make it onto my flight. After pleading, I was reseated next to these two chumps.

I noticed the wife coughing first. A polite hem hem cough sniffle sniffle. She asked the flight attendant for a tissue. But her companion was far sicker. He coughed every 8-10 seconds while he was awake. A wracking hacking wet cough. And neither one of them had masks. A passenger with a baby asked if they would consider one. I said I had masks still in their wraps and NyQuil if it might help.

Whatever liminal edge of society in which they live, it is clearly one where the politics of masking has taken them so far beyond the bounds of basic decency, no one on the flight could convince them to cover up. Not even while the flight circulator was off during take-off, landing and taxi. These were visibly sick people. It wasn’t Covid paranoia. It was simply please keep your germs contained.

The gentleman thought it was so rude. Unless someone has cancer or another immune disease it was ridiculous for anyone to wear a mask. He explained has anti-bodies so it was clear he couldn’t get any of us sick. That’s how antibodies worked he explained. We stated incredulously. His argument was because he has had“it” before his immune system was fine. He couldn’t get us sick. In fact he wasn’t even sick really, just showing symptoms right? Needless to say this isn’t how infection works.

Furthermore, if he could get any of us sick from these coughing fits, it was because we were weak. I told him I took immune suppressants for a spinal condition and an infant was one seat away from him. The parents of the child and I both wanted to avoid a cold or flu if possible. He just laughed and said we were idiots.

I can’t really fathom living this far out of basic civilizational norms. It used to be impolite to cough in people’s faces. You were encouraged not to travel when ill. Other cultures introduced masks so the ill wouldn’t infect the rest of us. But since COVID’s disastrously overdone masking policies, we’ve now lost a basic tool of hygiene and human decency to keep those infected from harming others.

One reason I identify as a doomer is because of how often I see people like these three travelers completely ignore the needs, wants, desires and safety of others. It’s like they have their own bubble and fuck any of us with our needs and boundaries my desire to not get sick is just my opinion man. And it’s rude of me to ask.

I ended up masking till the air circulators came on. I slept without one. I hope the baby managed. If I were their parents I’d be furious some asshole decided his right to engage in society when sick was so much more important than theirs. Travel might be full of liminal cultural spaces where the rules of civilization no longer matter. Covid broke everyone’s brains.

Categories
Biohacking

Day 734 and Personal Maintenance

The culture of planned obsolescence in Silicon Valley is a pernicious mentality.

A policy of producing consumer goods that rapidly become obsolete and so require replacing, achieved by frequent changes in design, termination of the supply of spare parts, and the use of nondurable materials

If you’ve ever bought an Apple product you are familiar with the term. Show me someone who hasn’t cursed an Apple charger change and I’ll show you someone who has accepted the lower standards of American consumer goods. And this includes almost all of us. I’m packing for a trip which requires a laptop charger, an Apple Watch charger, and an iPad charger so it’s in my mind.

I would much prefer we engage in a culture of maintenance and repair. If you aren’t familiar with the right to repair movement I’d encourage you to do so. We may never fully return to an era of simple machines and regular repairs but it’s worth a shot.

My bigger fear is that we’ve come to accept planned obsolescence for our own bodies. If you are older than thirty, I bet you’ve been told by a doctor “that’s just aging” about minor complaints from fatigue to aches. It feels incredibly dismissive and also potentially downright stupid in the age of post-viral illness.

But what if we didn’t have to accept inevitable breakdown? It might not be as simple as a pill and a ten minute appointment to fix some of your more typical bodily degradation, but it’s not impossible either.

I try to incorporate as much personal maintenance into a given day as is feasible. I took a battery of supplements today. I went outside for a leisurely forty five minute walk in the sunshine with my husband. We multi-tasked and ran through our to-do list. I stretched and used a Theragun to work out tension aches. I meditated. I used two devices I’ve got that are kinda woo-woo but the academic literature is promising. I did cold therapy.

Doing personal maintenance every day on your body is how you avoid having a doctor tell you that your issues are planned obsolescence. Don’t accept a lower standards of living. We may age and diseases will continue to ravage us but you can promote better health with simple habits.

And if you want to make an excuse for how time consuming it is, ask yourself how time consuming is it to have a health crisis. How time consuming is a chronic disease manifesting after years of neglect. An ounce of prevention equals a pound of cure. So go drink a full glass of water and stretch before you move onto your next activity.

Categories
Biohacking Emotional Work

Day 727 and Low Recovery Scores

I am chuckling at how excited my former self was for a productive holiday season. I was just overcome by enthusiasm for getting ahead over the break. I was so sure the relaxation would lead to creativity and connection. Pride comes before a fall I guess. But according to my Whoop & Apple Watch, my heart rate variability has been significantly worse than usual.

Maybe it was the extreme weather. Montana had a temperature swing of 95 degrees over the last week. Perhaps I’ve simply been overdoing it with cortisol and overstimulation, as I’ve had an exciting couple of days online.

I’ve wrote up a product road maps for Twitter’s messaging service and gone viral for therapy poasting. Those two activities are tied together. You can guess who the audience was for each of those and enjoy a chuckle.

I’ve got at least one post I’d like to get done before I wrap up year two of writing every single day. I think it’s important to do a year end “best of” overview. But that will require focus and time to get right. But I won’t be doing it today. Today I will listen to my body and let it recover. 2022 was by all measures a hell of a year. I look back on it and see a huge level up in my personal life across multiple dimensions. So if my body wants a little extra recovery time it earned it.

Categories
Emotional Work

Day 703 and Day of Rest

I love a good Sunday. I love a good Sabbath. I love a stolen afternoon away from the demands and observations of the wider world. Getting away from it all, even if it’s a just a few moments stolen away from the world for a private reflection, is in fact a great gift.

I’ve got a tendency to engage in unproductive self talk when it comes to relaxation in particular, but more generally with feeling like I can take time for myself. I’m sure this is a relatable trouble in the hustle bound addiction driven workaholism of startup land.

The guilt I feel about being unproductive overshadows the enjoyment of necessary restorative activities. I’ll “should” on myself. My ego protection insists on it. But I am trying to stay in the adult portion of my mind which can remind my inner child that it’s alright to have a little fun.

And I did have a little fun today. Not because I engages in any hobbies or particularly exciting fun activities. I just took care of myself. I lifted weights. It was leg day so maybe that counts as fun. I took my once a week extended shower where I scrub, exfoliate, shave and condition every applicable inch of my body. Obviously I’m not shaving my head use common sense. Then I spent 90 minutes immobilized a foot masks. No winter feet for me! I meditated. I did some heat therapy. I used the Theragun. I got a little bit high and ate lunch. I took a nap.

I am feeling rested and happy about the entire day. How nice that I was able to enjoy being in my own body. How nice I could take enjoyment from something restorative. Yes I want to justify it with promises of added productivity to come. But it’s ok to just enjoy the pleasure for the thing that it is. Enjoy your life.

Categories
Aesthetics Politics Preparedness

Day 679 and That Escalated Quickly

My week started out great. I was focused, energetic and on my game. And well, I think we all know how the last 72 hours have played out. Chaotic as hell.

Twitter is having a meltdown. Crypto keeps discovering how badly centralized over levered balance sheets can go. Fuck you very much Sam Bankman Fried for setting back the cause. Really the only bright spot is America’s swift decline into a regressive reactionary right wing state is in its entropy and reversion to the mean phase. Guess no one felt like rewarding Republicans even though we all kind of hate Joe Biden.

And lest you think I’m happily sitting pretty having mostly predicted we’d be entering a newly chaotic age, I woke up this morning covered in hives. That haircut I was so excited about yesterday? Turns out I was allergic to all the styling products.

And because we had some as yet unresolved issue with our well pump, I couldn’t even shower it off immediately. I woke up to the water being out. Neat. Thankfully a hacky solution got me a hot shower before noon to rinse off all the itch inducing salon products. I might still be a little high from all the Benadryl

The funniest part is I knew I might have some trouble with products at the hair salon. I just didn’t want to be that white lady that comes in with all her own products and a sob story about allergens.

I thought how bad can it be if I just let the stylist use the salon products? And boy do I regret that. Let that be a lesson to everyone to always take up the space and resources you need to stay healthy. It may be cringe as fuck to explain an allergy but you know what is even more cringe? Giving yourself hives and Benadryl brain because you didn’t have the energy to be a little bit of an asshole and insist on protecting yourself.

Categories
Biohacking Chronic Disease

Day 668 and Health Multitasking

I didn’t take my own advice recently. When folks ask me how to begin biohacking I tell them to take it slow. You should change only one variable at a time.

Biohacking requires that you don’t change up your variables too often or too quickly. You need to establish trend lines. The biggest mistake you can make is being “noisy” as you will never isolate the meaningful variables. And you won’t stick to it. So it’s a double fuck up. Clean reliable data matters. Don’t change too much too fast.

Day 91 and A Beginner’s Guide to Biohacking

My biohacking has been focused on improving my core inflammatory markers for several years. Secondary metrics like pain and energy got better as my erythrocyte sedimentation rate and C-reactive protein went down.

What I did to improve those metrics was complex, time intensive and expensive but it was pretty clear what outcome I was pursuing. My broad goals were simple. The tactics merely a function of one overarching strategy to lower inflammation.

Recently I’ve been a bit sloppy about my goals as my SED rate and CRP approach normal. I got excited that I might be stable enough to pursue some new goals. I am always looking to lower my doses of pain management medications. But the real shiny object for me has been fat loss.

I’ve struggled to stay lean as several medications that improve inflammatory markers have weight gain as a side effect. I struggle with shame about my weight. So much of popular culture portrays weight gain as a function of poor impulse control. It embarrasses me on some deep core level that others might think I’m lazy. If immediately trigger’s defensiveness for me.

I can rationally know I was pursuing a responsible health by taking prednisone during acute phases of my illness, but a part of me is still so embarrassed by the side effects. What must people think of me? Even if I explain that it’s a side effect of medication I fear that it’s still perceived as been slovenly.

So I decided to go back on metabolic drug called ozempic because I just hate carrying excess fat. I thought I could add it into my routine. But I am not doing as well as I’d like with the side effects of the injection. I’ve now vomited two Sundays in a row and been unable to eat. That is destabilizing enough that it is impacting my other goals like a slow dose down of non-steroidal anti-inflammatory drugs.

Maintaining low inflammation rates with lower pharmaceutical intervention is obviously a huge goal of mine and far more crucial than dropping a few pounds of fat. Especially because my metabolic markers are all in the clear.

I just so badly want to put behind some of the visible markers of my disease. It was hubris to pursue ozempic when I know I have other metrics that are more important than my shame about having steroid fat. So next time you see someone who is overweight I encourage some empathy. You never know the whole story of someone’s health.