Tag: Chronic Disease

Categories
Biohacking Medical Startups

Day 1753 and Vibe Coding for Your Skin Health

Many moons ago, when I was first attempting to get a diagnosis for why I was always in pain and exhausted, I got a battery of allergy tests. I did the “gold standard of allergy testing” called patch testing which is a form of pin prick testing designed to pick up responses that may be delayed.

It was an awful experience. I barely made it through the 5 day trial between the 100 allergen pin pricks and final measurements.

I remember begging the doctor for a way to measure early. I asked if I could take some Benadryl to take the edge off. Alas the only way it would be accurate and covered by my insurance is if I gutted it out.

You are not allowed to shower, sweat, be exposed to UV rays (no going outside) or take immune suppressants that might subdue your body’s response.

I was struggling to breathe, my entire body itched and ached, and I had a migraine so bad I couldn’t see for the stars & dizziness. It’s possible I wasn’t stable enough to have adequately consented to the test but I did get my final results.

Out of 100 common allergens tested it was confirmed I was extremely allergic to 10 of them with another moderate sensitivity set of twenty or so that I should merely try to avoid as opposed to my firm “no go” list.

The dermatologist gave me a sheet with 75 different chemical names and formats that I might encounter in the wild from these core allergens:

Budesonide
Ammonium Persulfate
Benzisothiazolinone
Limonene
Oleamidopropyl Dimethylamine
Formaldehyde
Lauryl Glucoside
Methylisothiazolinone
Propolis
Thimerosal

I instructed to search ingredient lists for these names any time I purchased a household product, personal care item, cosmetic or other item which might include these ingredients which ranged from nail care to vaccines.

It was honestly quite overwhelming. And some of the above ingredients are in basically everything. I dare you to avoid Limonene for a month.

So my husband and one of our best friends did what any practical minded engineer would do and they made me simple Google sheet where all 75 varietals could be checked if I plugged in the ingredients from any item.

I used it for years. I’d plug in the INCI from every brand I encountered into the sheet no matter what. I gave away a lot of products to friends.

Today it occurred to Alex that we should probably vibe code the thing into a proper web application using Replit so other people could check ingredient lists for their own allergies.

Within two hours, most of which was waiting on the kindly AIs to do their thing, we had a fully functional web application.

You can set your own allergens or click a few buttons for common allergens and “clean ingredient standards” and run a check for an all clear.

It isn’t super fancy but it doesn’t need to be. It just needed to keep your data safe, be easy to log into so you can securely check and access your personal list and generally functional enough to change and set allergens. We’ve put it on our own little domain just to see how much this will cost to run (and we’ve set up alerts so it doesn’t go bonkers) but we figured this should be accessible and simple.

And while there are other options on the market, most are bloated, overly paranoid and designed for scaring California moms rather than quickly helping people with clear preferences for avoidance and actual tested allergies. So hopefully our pain can help you breathe easier.

Some options for chemicals and irritants you can select on our app.
My own settings of allergies and sensitivities
Categories
Aesthetics Medical

Day 1751 and On Brand with Protestant Renunciations and Wound Care

I really misjudged my healing time on the testosterone pellets even though I pretty much always assume a worst case scenario for myself. I’m not really hurting but I am pretty bruised which is typical for me.

We may have some room for improvement technique with it so I am encouraged if the is as bad as it gets. I am not seeing any benefits from it yet and ugly bruising and a bit of an opening on an incision isn’t so bad.

A lot will depend on how well I recover and how much the hormone actually helps when I’m not healing. I’m also in the luteal horrors phase where my hormones are most ridiculous so I’m curious to see the curve.

The best part of this remains that I have a world class treatment for skin wounds on hand. Hyperbaric chamber oxygen therapy’s best research has been in wound management from burns to slow healing diabetics. So if I have to nurse a wound doing it with oxygen at pressure is actually pretty baller.

And to make it even more on theme, I spent most of my time in there writing out a column on skincare and the Great Male Renunciation of Appearances as part of my beauty shopping column and excuse to write about the secret history of appearance and its power.

Categories
Biohacking Emotional Work Medical

Day 1749 and Some The Worse For Wear

Every time life gets intense I wonder to myself why am I speeding into the turn? And then I look back at the last almost half decade (which is easier than I’d expected as I’ve written every day) and I feel the achingly slow pace at which we tackle the challenges of our lives.

We’ve had really big wins and really glass chewing teeth grinding bloody inch by inch progress that barely feels like a win at all.

It’s easy to focus on the bruises when they aren’t a metaphor like yesterday’s adventures in scalpel driven hormone treatment. But the the wounds that are more emotional are just as easy to spot.

Some pain has given me relief and some has been so heartbreaking it crushes me that it’s beyond my control. Bodies and borders are often beyond the control of mortals.

So I’m just rushing headlong into fun things like shopping columns and biohacking and my portfolio companies and my political engagement and hopefully we find the money and solutions to all the bottlenecks which range from family and pain to visas. And yes the bruise on my butt is literal.

Categories
Biohacking Chronic Disease

Day 1746 and Processed Pizza Hangover

Yesterday was my birthday and we celebrated it in grand style and semi- tradition by spending two hours walking every single aisle of Costco.

Now you might think all that walking around would leave your body feeling invigorated, and honestly it did, but we finished our grand tour by eating at the Costco food court. Now there are probably ways to eat healthy there but not how we did it.

We went for the classics including the dollar fifty hot dog and soda combination (a bulwark against inflation that has stood longer than seems possible) a slice of pepperoni pizza, a strawberry smoothie and a chocolate chip cookie. I had the pizza, some of the smoothie and half the cookie while Alex had the hotdog, a root beer, the rest of the smooth and a little bit of the cookie.

Our mutual and biohacker in chief Bryan Johnson gifted me a birthday roast of this meal. Which was not only hilariously funny but absolutely true.

Happy Birthday.

We didn’t feel immediately worse but we woke up today with what I’d qualify as a hangover. We can enjoy the above roasting as we generally don’t eat junk food and when we do it’s in more of the local beef category than the hyper processed and hyper preserved category.

Before you think this is a show of virtue, this preference never did anything for my aesthetics or metabolism, it’s just that it always makes me feel bad.

I am quite sensitive to preservatives and refuse to eat most forms of American bread and most varieties of prepared meal. No matter how good the ingredients are, the preservatives just do not agree with me.

It’s not that I’m a healthy eater naturally so much as hyper palatable foods are often hyper preserved foods and that sends my histamine response soaring into cytokine storms. So it’s no wonder I woke up feeling hungover.

I did real damage to myself as Bryan pointed out. We had a lovely time and I like to think the joy and happiness reduced our cortisol enough to bring us some balance. But it was easy to quit drinking for the same reason as it is easy to quit fast food. You feel like shit afterwards.

One of the most amusing fights I recall my parents having was my father taking my kindergarten class to tour a Carl’s Jr kitchen. They gave us a kid’s meal at the end, and while I turned up my nose at the burger, I did eat the french fried potatoes. My very crunchy and wise mother was not happy. “Now she will have a taste for French Fries!”

And damned if she wasn’t right. I still haven’t ever eaten a fast food hamburger. The idea of it is revolting to me and I’ve no clue how that came to be programmed in me. I may be one of the few people in America who has never eaten a Big Mac. But I love french fries. And good potatoes fried in a decent oil never leaves me feeling awful. But bread that doesn’t go moldy? That gives me a hangover every time.

Categories
Aesthetics Biohacking

Day 1744 and A Yenta For Your Perfect Look

I am considering doing more writing, but instead of it being an exercise in creating more, I am interested in writing about how to consume well, so meet Nice Packaging, a beauty shopping column with a b side about the business of keeping up appearances.

Background on why I want to do this is below, but if you want to be a part of it getting started, I’m going to offer “founding members” for it live 1:1 time with me to craft your perfect routine. Details here

Background

I get a fair amount of joy out of being the person in my social group who everyone goes to for advice on what to buy in the areas where I am most expert. I sort of wish it just could be just category (cosmetics would probably top the list ) but I’ve developed a wide range of interests as I’ve cultivated my tastes over the years so I’m just as likely to be asked what supplements I take for my biohacking as I am to be asked for skincare and cosmetic recommendations.

Chronic disease offers very transparent revealed preferences as I do what works best for my health. A a long career in the style industry means I’ve learned a lot and how to apply it as looking good is often a side effect of feeling good.

I have been in wellness my whole career as it’s not just a matter of having clean clear skin and long hair (though I mostly do) but having been inside the corporate sanctums of everywhere from Goop to Equinox. I learned a lot sourcing for my own makeup brand and I’ve applied the depth of knowledge I have in cosmeceuticals to my own healing as naturally we humans pay more for beauty than we do for health. The cosmetics industry is often light years ahead of standard medical practice.

Other topics I will play with may be more esoteric. I oddly well informed on preparedness thanks to our Montana off grid lifestyle. I’m regularly asked about stocking pharmaceuticals and first kits as those wellness worlds overlap with chronic disease, biohacking and family preparedness. Wellness goes hand in hand with fighting for your own life.

I still travel a great deal so I’ve got travel and packing optimization stories and preferences for days. Having once owned a cosmetics brand that specialized in on-the-go makeup, I can tell you now to pack what you need to look good for any scenario from surviving O’Hare with your family to packing black tie makeup that fits through London Heathrow’s quart bag nightmare.

And finally as an avid reader in the go-to gal for science fiction and reading lists which isn’t as likely to go with the rest but I’m shockingly well read in the genre. And no I don’t mean romantasy. I read hard sci-fi from cyperpunk to space opera. Thinking about what will be popular in the future means living on the cutting edge taste of the right now.

I’ll maintain my daily blog here as this is me time or me space or whatever you might like to call it. I enjoy having the space to ramble about continental philosophy, internet cultural subgroups and their fascinating ecosystems, my own emotional work and becoming version of myself that makes me happy and healthiest.

So I’ll be considering what all this looks like, editorial cadences and how I will integrate which portions of those varied interests into what is most likely going to be a style blog.

Get Started with Me

I can also use your help in getting this off the ground, so I’m offering something special – if you join as a “Founding Member” for the first year (for $300), I’ll spend an hour with you, coming up with your perfect skincare or cosmetics routine, and even send you some products to get started with. And btw, this can be just as helpful for men as for women.

One of my greatest pleasures is putting together cosmetic routines for my friends to test and trial to get you exactly what works for them. I’ve done this for billionaires and working class dollar store shoppers so I promise you I know the market.

I typically do an intake session with you with a questionnaire and some one-one time where we yap about your look, your hopes for them and your ambitions. Then I go over all of your preferences, allergies and issues. With that in mind I create a month or so of samples total for us to experiment with.

I’ll prepare your routine from either my personal brand library of travel sizes (which is enormous) or I decant into sample containers creams, serums, lotions and lotions into one perfect routine. Don’t worry I’m a germaphobe autist.

My goal is to make a routine that matches your skin & hair, and bodily needs perfectly with hour preferences. Things like daily simplicity or complete looksmaxxing, your budget from drugstore to luxury, your comfort level with different kinds of return on investment from Pareto optimization to no routine is too much. And then you test it out and we refine it together. I’m like a yenta for your grooming.

Sign Up Here

Categories
Biohacking Chronic Disease

Day 1732 and It’s Getting Hot In Here So Take Off All Your Clothes

You might want bring towel though, as our handcrafted Finnish sauna will need some use before the cedar is completely smooth. Yes, that’s right, the MilFred family Yellow Barn now has a sauna. And she is a beauty. Just check out the view we picked for her.

Alex and the wonderful family who built the cedar sauna structure placed her under the back awning of the big yellow barn today. Wiring and electronics are underway as I write.

We’ve been slowly but surely turning our barn into our ideal wellness center both for our own use and eventually for the wider community as well. We are privileged with skills, capital and loads of very expensive personal experience with chronic illnesses.

So naturally as geriatric millennials it is always our instincts to turn our pain into something useful and also if we are lucky pay back the expenditures and turn a profit. Which we can then reinvest. It’s the circle of life for a generation who found the circle of life to be a tad more inflationary than expected.

The man of action putting the finishing touches on the electronics. We don’t have anything in our home systems connected to the cloud, so he built his own fully local controller with
ESP32 as the brains, 60a 240v contactor for heater, RGBW LED controls
UI/ final control via Home Assistant and HomeKit. You can snag the code on GitHub

In true MilFred fashion, we are building and testing everything all on ourselves. An n of 1 is good, an n of 2 is better, and if you’d like to test it out hit us up while it is a work in progress. Build in public and beta test with your friends.

Tucked under the awning of the barn so one can easily pop in from gym, HBOT or cold plunge to warm cedar comfort and mountain views

We’d like to ultimately build a space for healing, relaxation and training for those who prefer time tested modalities like heat, cold, oxygen and pressure.

Friends and family can come and test out our now very impressive range of equipment as we build this all out.

We have one of the few hyperbaric oxygen therapy chambers available outside of hospital use in the region. You can pressurize to 2 atmospheres and set a range of parameters for a range of treatments. I use it for my inflammatory condition while Alex is treating the remains of long covid. You’d be shocked what pressure and oxygen can do.

Our hyperbaric oxygen therapy chamber

If you want a work out get in some squat reps in our power cage, take a swing at the punching bag or lengthen your spine on our Pilates reformer. You can even climb around on the rock wall built into the the barn ceiling (not even kidding that is the work of the previous family).

If you are looking for a spa day you can have a sweat in the sauna, do red light therapy on your face, chill out on a PEMF mat, and hopefully soon take a dip in a cold plunge. Though if you are ambitious you can sprint across the front pasture and jump in our pond but I’ll warn you that the ducks might not love it.

The pond is fed by a creek that comes from the canyon above our house

The point being that we are building by hand and through personal experience something that improves our lives and others and that’s a pretty hot thing to do. Don’t worry, we will provide towels and robes if you do indeed take off all your clothes. Just come on over and try it out.

Categories
Chronic Disease Politics

Day 1730 and Steering The Titanic of Adult Habits When Icebergs Are Ahead

We are all us humans on the good ship Lollipop. I mean this as a stand in for Mother Gaia/Terra/Earth. We are all in this together right? Wrong? Who knows.

I happen to be on the America decks, so even if I can see the sea is perilous the orchestra is still playing. Maybe I’m rearranging the deck chairs. Is there anything that can be done to steer myself away from collision other than seeking a life raft?

It’s a kludgy metaphor but I am personally trying to move around several of my own ingrained adult habits with the hopes that I can change the direction of life for smoother sailing.

It’s hard to retrain your body after years of pain, compensating biomechanics and environmental factors beyond one’s control.

I’m putting on my life vest and trying to steer myself well so that I save myself and maybe in doing so save others.

If anyone has physical therapy videos they recommend I am working to retrain muscles that are compensating for my thoracic ankylosis. I also intend to go in person to physical therapy if possible.

And onto other topics less bleak than avoiding disasters, both personal and political, as you can indeed do more than you imagine to steer your own life here is some inspiration.

I enjoyed reading this piece on the rise of the online schizo and how to protect yourself as someone who is burdened with a strong case of apophenia. Worth a browse if you are concerned about your cognitive security online as no one wants to catch a Babylonian death cult meme virus.

Audrey Horne has a new substack called Secret Ballot where my friends and mutuals make some appearances and it includes a good calendar of social events in D.C if that’s your thing.

If you are following AI and eschatology (and really who isn’t these days) you may have heard about the Peter Thiel anti-christ lectures. I’d love to brag about being invited but I didn’t have the chance attend what with death and illness. However this two part interview with Thiel at the Hudson Institute covers the basics.

I spend a lot of time on artificial intelligence policy thanks to my advocacy on Montana’s right to compute law as well general interest in enabling more people to maintain the level of control and access they seem appropriate for their own lives. The right to repair movement is the seed for a wider right to compute movement.

On that note Alex is building automation into the sauna being built and has put the code up on GitHub if you are into that sort of thing. You have a right to build things and own them and no one is forcing you to buy convenience if you would prefer to keep your data on your own servers. Even if it’s the data for your air conditioning or your sauna.

We’re building a sauna and I don’t like anything at home connected to the cloud, so I’m building my own fully local controller
ESP32 as the brains, 60a 240v contactor for heater, even has RGBW LED controls
UI/ final control via Home Assistant and HomeKit

Categories
Biohacking Chronic Disease

Day 1728 and In Which I Jinxed Myself With Yogurt?

I must have jinxed myself yesterday by commenting on having signs of an upward physical trajectory. Whatever infection Alex has been battling for weeks hit me. Either that or my attempt to eat a yogurt to begin rebuilding my gut biome went very badly.

I woke up feeling decent but sore everywhere. Maybe it was delayed onset muscle soreness from the light yoga I did? I drank lemon water and meditated and got some sunlight. Still all calm on the western front. I had a coffee. I was feeling well enough that I thought let’s get in 20 grams of protein and go do some squats.

Within fifteen minutes my heart was racing, I was congested, and all the areas of my skin which had healed up so beautifully from HBOT sessions went from normal to itchy and red.

Had I accidentally introduced some intolerable form of lactobacillus or either supposedly friendly probiotic by eating a popular but high end brand of skyr? There is no way it’s the yogurt right?

It kept getting worse. I took my temperature. 99F. The actual fuck. My Whoop had noted my skin was warmer than average when I woke so maybe I should have seen this coming but natural fever seemed extreme.

Naturally I asked a friendly artificial intelligence to give me some input and apparently probiotic recolonization after extended antibiotics courses are not in fact regarded as a universally beneficial approach and can even be harmful. So I’ll let my my gut biome reboot without the introduction of any commercial probiotic packed processed yogurts.

Categories
Biohacking Emotional Work

Day 1727 and A Happy Fluke or Compounding Effects

Maybe it was all of the crying, rending of clothing and gnashing of teeth I’ve been doing as I stare grief in the face.

Maybe it was taking a Fluconazole after my doctor notice some tearing “downstairs” at my annual physical when he was checking out my surgical scar from July.

Maybe it’s that I am on my seventh session of hyperbaric chamber oxygen therapy and the results starting to compound. Protocols say it takes about ten to feel a difference and my full protocol will be sixty so I’ve got a ways to go.

Maybe it’s just the absolutely gorgeous fall weather filtering in the perfect amount of light for that ideal temperate middle ground of low heat and humidity that makes being outside a joy.

Maybe it’s just a fluke. But today I feel almost human again.

I felt joy in being the adult responsible for running the household today. I managed loads of laundry, housekeeping, a proper grooming session of my own body, a grocery run into town, a decent workout, and of course, time in the hyperbaric chamber.

My husband is still struggling mightily with whatever combination of infections, stress, and post-viral damage is ripping up his immune response. He is usually the one caring for me. But today I was able to care for us both.

Categories
Biohacking Chronic Disease Medical Preparedness

Day 1726 and Grief is for the Living

My husband and I are both sick. It’s the kind of “not quite respiratory, not quite sinus, not quite right” viral infection that always seems to take twice as long to clear as you expect.

Aging and stress is part of it but so is the damage we both have from covid-19 infections that turned into pneumonia. We’ve never been the same.

The good/bad news is that everyone we know seems to have the same basic set of physical degradations that we do. Varying levels of impact are met with varying levels of healthcare and wellness routines. From peptides to hyperbaric oxygen chamber therapy, no one is taking this shit sitting down.

I was already chronically ill before the world changed forever. It’s now common to have a flavor of autoimmune inflammatory chaos. I feel both less alone but much more frustrated at the crisis in American healthcare.

My medical billing codes as ankylosing spondylitis (arthritis in my spine) and psoriatic arthritis (psoriasis but it’s inside your body and it hurts!) but the tldr is constant pain, occasionally losing the capacity to walk, and the persistent exhaustion of chronic inflammation.

As we both cancel travel plans (for a charity event we’ve supported for years) and struggle to manage food and medication, I am reminded of the grief we are all carrying around.

As the world goes on with the “before times” as l memory for older generations, and the idea of any kind of positive “before” is unimaginable to the young, the grief comes and goes. The elders we stopped civilization to keep alive are dead or dying and our youth are distraught.

My own father passed just two weeks ago. I am grieving his loss, as well as how the loss is being handled by others. But my grief is mine and he is gone.

I am not the one who gets to choose how to memorialize him. Life goes on and we make precious few decisions about how and when it ends.

I remember being so angry and afraid for him when he left for cruise as lockdowns went into effect. I begged him to cancel the trip. I was afraid he would get sick or die.

He didn’t share those fears. He got stuck on the boat for an extra week or two, as no port would let them dock. He had the time of his life. I was locked in an apartment in Manhattan.

I don’t think he ever got Covid. For which I am grateful. I know far too many who did. I know many angry Zoomers grieving lost high school and college years.

Housing went up by 50% as we printed to survive the crisis. Strange times for us all and now we face the Great Ravine where the choices we made catch up to us.

My investment thesis of an increasingly chaotic world was novel when I first began and now it’s the same pitch every Tom, Dick and Harry espouses. What was once unclear is now the consensus. I am I am alive to see it and find no satisfaction in being right. The grief is all around us. Grief is for the living.