Categories
Aesthetics Travel

Day 548 and Shame

I’ve got a pit in my stomach. My throat has the constricted feeling of embarrassment that gets trapped in your gullet. I failed and lost money on something stupid. I tried to do a pleasant vacation sort of choice over a long weekend. A “nearby” Riviera town was supposedly within driving distance. I thought what could go wrong. Let’s go to the Ionian Sea! I briefly thought I could enjoy something like a regular person.

I said yes as everyone was so excited by the fresh air and the beaches. It will be healthy and fun! I was worried it would be without the basics I need to keep standing upright but I wanted to try anyway. Consistent air conditioning is really important to keeping the rest of my bodily system’s functioning. It’s a very Marie Antoinette need, but once my spine swells it can go very wrong very fast. Summers are hard for me.

My system begins to cascade within a pretty short window. About half a day. Eight hours without being able to lay flat for a break ended up fucking me up badly in this case. The “oh it’s close, just a three hour drive” ended up being a ten hour ordeal over badly maintained roads. I was sick to my stomach and in pain as we took hairpin turns and popped over potholes. I was in so much pain it was over a 10. It was “lose consciousness” levels of pain as my body knew I shouldn’t be awake for it. I was afraid it would get so bad I’d need a hospital. Instead I settled for opioids. Keeping out of the hospital was probably wise.

I hate needing those kind of drugs. The “your pain is a 10” drugs push me off the plane of reality by a few ecliptic degrees, and suddenly I can tolerate the pain and discomfort again. I understand how addicts get made now. It’s not real comfort. It’s synthetic but most people can’t tell just by watching. The fake relief looks real.

I’ve never felt tempted to take pain medicine recreationally. It’s usually only when a pain is too big for my reality that I tap out in defeat and take an opioid. It’s when reality crushes my soul as one variable starts to degrade the whole machine. I only use it to stave off collapse. And I was very close to collapse.

What is fucked up is that people like me off the axis of reality. The hazy hyper vibe’d unreal “reality” of encroaching nihilism is bop. Dystopia seems cool and consumable.

But it’s not an adventure for me. Living when sick is a daily dance with the devil who could use any chance encounter to end it all for you. The kind thing might be to stop fighting. But I rarely give up so I must enjoy the sticky Sisyphean crawl towards towards reality and the search for my own dignity.

I’m ashamed because I couldn’t make good decisions in that kind of pain. When the first hotel turned out to be a scam I happily laid down a card to stay till Monday at another hotel. Anything to get me relief. I just needed a safe cold place to heal.

It was a bad decision. The air conditioner didn’t work. I couldn’t get comfortable. I was sleeping in a dark sort of cold room as I couldn’t work up energy to go to the beach or even see the rest of the hotel. Not that it mattered as none of it was air conditioned anyway. I decided to go home after I had built up energy reserves back from sleeping for hours. I couldn’t tell you how long I passed out for but it might have been close to a whole day.

Alas I was again scammed for my efforts. The hotel clerk says no you paid for four days so you cannot get a refund even if you leave early. No refunds ever. No early checkout. No one cares if you are sick. Fuck her but I said hotel California for me. I was sick and needed safety.

I made some efforts to get receipts and documentation. I asked a receipt attesting that they wouldn’t let you cancel for any circumstance and that I was sick but it made no difference. Maybe I can take to the credit card or even the health insurance to show that I crashed. I’ll work it out on the backend.

I often wonder why I need special care. Surely I can try to do regular things like drive to the beach. But I couldn’t. I lost 48 hours to driving and bad air conditioning and pain. I didn’t have the health to stay at the beach. I needed to go back to the city with air conditioning.

I felt so stupid. I tried to fight to hold space that maybe I was a person that could do a vacation. That I was normal. And it was firmly corrected by reality. And then you think this is why I don’t go on vacation. The additional friction makes it a hell. It’s not a joy it’s a visit to hell.

I cut bait quickly this time.I’m ashamed at now much I must firmly maintain the no. No I don’t want to go to the beach. No I don’t have the energy got a full day road-trip. And definitely no on an empty stomach.

I feel like I’m not fun. That being friends with me is joyless because I can’t agree to fun things like a weekend at a beach. I find myself in tears having failed again at trying to do a nice normal fun thing. I ruined the weekend for myself and everyone around me.

Fun with me is being in a dark room. We watch television. Or maybe a movie. We make fun of a plot hole or bad casting. We sleep a lot. If we are at my home we do the chores. We keep up with the farm. There is no reason to turn consumption of recreation into a thing. It just hurts me. No cheap facsimile of an American vacation in a resort in a cheaper country.

That hideous example of colonial expectations of western domestic standards turn out to be required for a disabled woman. Air conditioning and short trips keep me alive. And at quite a cost. Since no one will refund me any of these damned scam hotels. I should have known better. It will probably take me a week or so to recover. And I’m so ashamed.

Categories
Politics

Day 543 and Complicated Country

America has always been a complicated country. We’ve perpetrated some of history’s great evils. And at the same time we’ve achieved the greatest set of freedom ever known. Dickins didn’t fucking know best and worst of times. That’s always been the great American novel’s thing. The remix is better sometimes.

And I am feeling this tension in my body this week. To have always believed in the forward progress of this nation. Even when one grew up, perhaps most uniquely among generations, aware of the sins. We had Adbuster’s and Zinn’s People’s History and every politically aware piece of Hollywood awards bait.

You know how weird it feels to be optimistic about capitalism and the mess of democracy when you know it’s fucking blood magic that bought its riches? Everything has a cost. But who am I to know the cost. And would I bear it myself if I thought I could enjoy it’s fruits only? I doubt it. Everyone loves a fucking deal. And white people love the meritocracy. Because it means we’ve got merit by being winners. Whatever your ego needs.

It’s no wonder we love horror movies in America. We like a nightmare on Elm Street. And we love our monsters. What if racism was the monster all along we laugh. Our art has always recognized the victims in the system. It was only very occasionally that our laws did anything to protect anyone though. Amendments were hard fought and fiercely opposed. Reconstruction of what exactly? Did we even try?

So I’m not surprised that my body is on the line. Because someone in my lineage knew the cost. They came to America willingly. The freedoms we bought for ourselves as immigrants. We knew they weren’t free. But maybe we misunderstood the cost. Didn’t pay the bill in full.

But if the promise isn’t worth it. If the dream cannot be attained? Then what happens. Who pulls back from contributing our best. Who gives up a little on working harder. And how do we slowly decay just a little bit over time. Slowly at first. And how does that compound. What little failures add up to the final cynical calculation that anyone who has lived under an authoritarian can smell.

It dawns on me that we should have been fighting my entire lifetime to secure every inch of freedoms we could. That every single instance would matter because we’d be losing ground the moment we stopped. Because shame is unrelenting. And we must hold our ground against it every day. Ever vigilant.

Categories
Internet Culture Uncategorized

Day 541 and Doomscrolling

I love internet culture. While I’m an American, if there were citizenship for the internet I’d consider myself fully naturalized. Millennials aren’t natives like Gen Z, but we definitely moved online when we were kids. I’m a proud immigrant to the internet.

I engaged in one of the internet’s proudest exports yesterday. After the news about Roe v. Wade hit I was glued to my phone watching for tractions. I spent easily five or six hours Doomscrolling. I’m not proud of it but what else are you going to do when American implodes around a topic as emotional as abortion? Do something sensible like go for a walk. Nah.

Doomscrolling probably doesn’t have a an exact IRL analog. If town squares were still a thing that existed, maybe we’d crowd in and listen to people scream and heckle the town criers. Maybe it’s more like going to the mall and chatting up your peers.

Though I can’t really imagine anyone engaging in the kind of brawling that goes on when Doomscrolling turns reactive. And boy was it reactive when this mess hit America. People were feeling a kind of way. I saw various colors of shock. That surprised me as all I had felt for years was cynicism curdled into disgust. It has been clear where some demographics wanted the issue to land. We had taken too much for granted.

I’ve got an ambition to stay off the internet for a bit. But I know that my reflexive habits will put me back on Twitter if I don’t monitor my usage constantly. When I am anxious I like to surf sentiment. Taking a gauge gives me some sense of false control. That if I can just read the tea leaves right that maybe I’ll protect myself.

But it isn’t really that is it? You know at any minute you could be treated like a second class citizen. That unbearable cruelty could be casualty meted out on your body. And that so many people simply do not care about that pain. And fuck me if that doesn’t shatter your faith in humanity a little.

Categories
Travel

Day 538 and Anticipated Anxiety

For someone that dedicated years of my life to making travel better, I sure do hate it. I’m a country mouse, and a homebody, these days. The prospect of having to travel is making me nauseous today. It’s the anticipation that is getting to me.

I’ve been having nightmares for days. It’s probably the Melatonin I started taking to improve my sleep quality but it ironically appears to have has the opposite effect. I think I’ll stick to Magnesium.

I’ve never be a good traveler. I get terrible anxiety about all of it. The packing, the waiting, the transit that isn’t flying, the flying that isn’t the part of the final route; all of it makes me anxious. I only really relax once I’ve made it though customs on the other side.

You can see it in my biometrics. My average heart rate goes up. My respiratory rate ticks up. I get sick to my stomach. My body clearly keeps the score. I was prescribed Ativan for long haul flights but I’m just as anxious to take it as I know the dangers of benzodiazepines.

The irony is of course not lost on me. My doctors and my husband try to remind me that elevated cortisol levels for extended periods are just as bad for me as the occasional Ativan. The impact of being stressed is not great long term.

My upcoming trip seems like it might be a bit worse than usual as I’ve been reading news story after news story about how bad flying is this summer. A flight attendant did a remarkable job laying out all the ways you can survive the tumultuous times.

I’m doing everything she suggested and then some. I’m not taking any chances. I under-packed. I have long layovers. In one instance, I opted for an overnight stay on the return so as not to struggle with a late evening connection that could easily be canceled.

But I still suspect I’ll find new and exciting ways to learn how travel is a mess this summer. But isn’t that just the theme of the moment. Everything is a bit of a mess. And we are all a bit anxious about what any of it means and how we are meant to cope with the crumbles.

Categories
Emotional Work

Day 535 and Daddy’s Girl

I hate Father’s Day. I find myself debating if I can get away with a text or an email marking the occasion. I do this as I’d like to make it through the day without crying. I almost never can. Sometimes I just ignore it entirely.

I’ll reach out to my brother and ask how he is doing. He’s the only one that seems to have a better grip on the “our father” feelings. They are complex for me and untangling them is always painful.

I am a Daddy’s Girl. Everything that’s good (and some of what is bad) about me is a refraction of my father’s ambitions, interests, desires and personality.

I got my love of technology from him. I got my career in startups from him. I learned to socialize and leave a good impression from him. I got my optimism from him. I also got my need for distance from him. My preference for keeping my loved ones a little further away is from him. My struggles with intimacy and emotional availability are his too. I am my father’s daughter. I suspect I’ve also acted as a proxy for what he wanted in a son as well.

Even after years of therapy, unpacking how I feel about my father has not made the tender feelings any less acute when I touch them. I merely understand that my trauma is my father’s trauma and his trauma is his father’s and so on stretching back to who knows when. We carry our heritage.

I tell my father I’ve forgiven him for his mistakes. That I understand he did his best. I don’t think he believes me. I hope he does one day. He done what he could.

I am the absolute best of my father’s good traits. I am also the absolute worst of them too. Most of the good I have is because of him and most of the bad too.

Which makes me so angry. The steam rising up that my mother did all of the emotional work, gave me all of the love, and yet here I am a reflection of him and not her.

I’ll never understand how divorced parents can live with that kind of betrayal. To have done all the emotional work of parenting and yet see their child as a reflection of the other one. Anger is usually just hurt. And I do hurt. Not on my mother’s behalf. She is fine. I hurt because I wanted my father to be there too.

My father tried so hard to be a good father. My dad paid the bills. My dad was funny and well liked by everyone but his immediate family. My brother and I love him, but for a long time I don’t think we liked him. Maybe I’m wrong as my brother has been working through his feelings longer than me. Maybe he always liked him. I know we always loved him. I still love him.

I like my dad now. I can see him as a human as I get more distance from my childhood. He can be an old man now and not the father figure that let me down. Which is a relief when I can hold that thought. I see all his good and how he passed it on to me. And I can see how even the bad, perhaps especially the bad, what made me into the woman I am.

He is smart and loves technology. He has never missed a Comdex or eventually a CES. He always has the newest gadgets. His enthusiasm for new things has never waned.

Like other Boomers, his belief in the future and in youth, let him retain a kind of enthusiasm for what’s next even in hard times. And that inspired my entire life’s trajectory.

There will never be a time in my life when I don’t seek his approval. He loves the future and I want to create the future for him. The new and the next will always be for him as much as it is for me.

Which is impressive as the “new” hasn’t always been kind to him. He suffered for his optimism. I have no fear going into this recession because I saw him be broken by one and come out the other side. He is still the same enthusiast he was before the markets crashed and bankruptcy hollowed out his American dream. He got it all back and more. And that belief that we can build back always stuck with me. I’ve never been afraid of hard times because of him.

I’m moving to Montana soon. He moved there first. He’s like that. Always seeing one step ahead. I fought against the idea of Montana for a bit as I wasn’t sure I could make the same decisions he did. Even though I often do.

But I do believe he is right about the last best place on earth. And true to our preferences for distance he will be a comfortable five or six hour drive away. Neighbors in the end but with plenty of space.

Fathers and daughters have it tough these days. Sexism and expectations for how to live are in flux. My father did his absolute best to never let me see myself as anything less than equal. Which isn’t always an unqualified good but I’m still grateful for all of it.

If you’ve ever felt let down by your father even as you know he’s buoyed you up your entire life, then this post might make perfect sense. If not then it may seem offensive to codify the complexities of a familial relationship in public. How could she write something like this? To which I say sometimes the only way to love someone is to say your truth out loud.

Happy Father’s Day Dad. I love you. And I know that to be true because love is having someone betray you, utterly let you down, or even do the unforgivable, and yet you still love them all the same. I forgive you. I am still Daddy’s Girl.

Categories
Emotional Work Travel

Day 533 and On My Own

It’s funny how marriage shapes your routines. Before the pandemic, and before my health struggles, my husband and I were apart regularly. We traveled and socialized on our own often.

Now it’s quite rare for us to be apart. With work from home and our new adventures awaiting us in Montana, our lives will remain close. We even tend to speak at the same conferences. Our work travel since the pandemic has coincided almost entirely. It’s a good thing we really like each other’s company as we’ve very much opted into a life together. It’s good advice to marry your best friend.

We have to deliberately take time apart. I even took a trip to Europe in March so we could remember what it was like to have a bit more space. We can’t let ourselves give in to little habits that encourage codependency. A little independence goes a long way. Absence makes the heart grow fonder. Whatever aphorism you prefer really.

The only downside the our attempts to regain a little space is that it’s easy to forget how much the other person does in your life. I will neglect entirely to to eat lunch without Alex. I have been known to mix a bunch of protein powder and supplements into a glass of water. By the time dinner rolls in I’ll be starving and not entirely lucid. It turns out it takes a bit of remembering to bring back ones old skills and capacity. Marriage allows you find new independence and competence together. But it’s nice to remember you were whole and capable on your own before as well.

Categories
Emotional Work Preparedness

Day 532 and Mortgage

I signed the mortgage paperwork for my first house today. We are moving to Montana. I don’t know how I made it well into my thirties without every owning real estate but I’m going to guess it involves the Great Recession.

Hell if you go further back it probably involves the bankruptcy my parents endured when Web 1.0 crashed. Point is that millennials haven’t had the best hand when it comes to home ownership. We were either totally broke or housing was so expensive it was comical to consider purchasing anything.

I was quite opposed to it for a long time. Why would you tie up your precious capital? Why would you lock yourself into one place? Why would you cut off optionality? And then the crumbles began. The pandemic hit and we were no longer constrained by geography. We could actually assess long term priorities and ambitions for how we’d live our life.

Which ironically made it even harder to decide. Do we want to live in a city? Do we want a suburb? What states will we consider? How does climate change factor into a purchase. How about resilience issues related to power and water? What about sociopolitical risks? We invested nearly two years into working through these questions.

Montana ended up topping the list even though we considered Washington, Oregon, Colorado, Michigan, New Hampshire, New York and Connecticut. Our goal was a colder climate with a bit of remove from the world with minimal invasive politics. We also wanted some yuppie amenities like decent grocery stores and a good airport. My husband doesn’t like New England and I don’t like heat. But we do love mountains. Montana just kept coming up to the top of the list.

I feel relieved that after all of this effort we were finally able to buy a house. Would I prefer buying without the almost certain knowledge the house will be under water during a recession? Maybe. It’s not optimal. I don’t love the idea of having a mortgage at all.

But the idea of having a home I can rely on for years to come fills me with relief. I’ve quite literally never experienced it. But I think it’s going to be good. My body sure seems happy about it. I felt like I could actually plan. The second we were done with the notary I felt a weight lift. My mind cleared. I felt optimistic. I wanted to plan. I wanted to build.

Categories
Chronic Disease Emotional Work

Day 527 and Accomodation

Last night I was lucky enough to attend CoinCenter’s annual dinner. I’m a big fan of the work they do to advocate for better crypto policy. And their entire team is funny as fuck on Twitter.

But I had a moment of utter embarrassment when I arrived early in the cocktail party hour that was taking place outside. It was over 100 degrees and Austin City Limits has hard concrete floors. There was no way I was surviving 45 minutes on a hard surface standing without a chair in the heat. But they had not opened the doors to the dinner space.

I got completely flustered. But my husband Alex was able to immediately take control of the situation. He asked a security guard if we could go inside. It was a no go. Talk to the front of house. The head publicist was immediately sensitive to the situation. Alex explained that I have ankylosing spondylitis which makes me invisibly but variably disabled. Heat swells my spine and makes it a struggle to stand.

I was absolutely mortified that I couldn’t manage being outside for the cocktail hour. The embarrassment and shame of needing to asl for a special accommodation felt overwhelming. But it was too hot for me to be comfortable and there was no place I could rest comfortably. It was either ask for help or go home. And blessedly my husband has the wherewithal to ask.

The publicist brought us back. The only other person in the dining was Senator Gillibrand getting settled by her team. And then suddenly it wasn’t awkward. The staff completely understood. It wasn’t putting anyone out to be let in early. It was completely fine. I had been willing to leave rather than put anyone out. It no one was put out. Everyone just wants to help.

Categories
Emotional Work Travel

Day 523 and Logistics of Appearing Professional As A Woman

I’ve never liked packing. It brings back childhood memories of moving which I did once every two years until college. And even then it was only a three year reprieve. I’ve moved thirty eight times in my life and I’m about to do my thirty-ninth to Montana soon.

I’m headed to Texas for Coindesk’s Consensus conference. I’m giving a talk called InDAOstrial Revolution about the history of corporate governance and recent large scale macroeconomic innovation cycles. I swear it will have some memes and it’s a pretty degen talk overall (why how do you do my fellow kids). But no seriously one of the arguments I make is that American government arose out of fascism so it’s pretty lit.

Unfortunately Austin is literally pretty lit. The predicted high for the entire week is over 100 with a couple days over 105. I’m moving from Colorado to Montana as I find the weather to be too hot in Colorado with global warming. So that gives you some idea of how I tolerate heat. I really don’t have a wardrobe for this kind of shit. I have a couple items I bought for Miami for the last crypto conference I went too but it feels a bit flashy for Austin.

I spent a couple hours in my closet trying to figure out what the fuck might be tolerable and basically ended up with exactly what I packed for Miami. I brought a more professional navy wrap dress for my talk as I figured I should look the part. Though I did seriously just consider wearing an Obi gown just for fun. If my body cooperates maybe I’ll wear it out to a party.

Then I had to contend with what kind of skincare and makeup was going to work on the surface of the fucking sun. I rummaged through quite a bit of sunscreens. Then I pulled out all my favorite skin oils and replaced them water creams and essences. Because I’ll be on a stage I also had to find my power foundations. I rarely used powder anything on my face. I’m totally a cream woman. But being under lights meant I needed to consider some melt-proof polished options. I typically wear very little makeup these days as I’ve got great skin so I may as well show it off. But that reads poorly on a stage and on camera so it requires a bit of planning.

Honestly the logistics of being a professional woman in public are extensive and it’s a set of obligations no formal education ever covers. It’s not like there is a class in 10th grade about applying professional looking makeup. But there should be! I say bring back home economics and add in the feminine arts. I want manners and grooming and styling so everyone has the chance to do the right social signaling that puts you on a track for upward mobility. It’s every bit as a crucial a skill as being numerate. If I ran a school I’d include it in my curriculum and I’d be sure to pass it in to my daughters. If only because you need to know the rules to break them well.

Categories
Emotional Work

Day 519 and Dogged

I am a obsessive. I latch onto shit. If I’ve got a problem in front of me I will absolutely fixate until the every blocker to solving said problem is removed. If a blocker cannot be removed, say it’s 11pm and shit is closed, then I hope you want to hear about it all night. It’s absolutely one of my most annoying personality traits. I just do not let up.

I had a bulldog as a kid. Her name was Maybelline. If she was playing tug you better believe you were going to lose. Bulldogs were bred to latch onto a bull’s nose and not let go till they had brought it down. An 80lb dog could corkscrew and thrash its body till it brought down a thousand pound bull. Don’t play tug of way with a bulldog. They just don’t fucking let go.

You are actually discouraged from playing tugging games with a bulldog because it will only excite them. And you don’t want to encourage a dog that can fuck you up to engage in behaviors that will fuck you up.

Equally if you see me latching onto something you should not engage. I will not let it go. I was looking at Airbnbs today as I’ve got some travel coming up. I knew I wasn’t going to book anything as I needed to get answers from a few hosts on basics like air conditioning. I had a few criteria I knew I wanted met so I just kept scrolling.

Suddenly I’d gone through several hundred properties and several hours has gone by. Sure I’d narrowed it down but I hadn’t actually picked a place. I couldn’t till I heard back. And so I just kept scrolling. Maybe if I kept at it I’d find something matching every single one of my criteria.

Eventually I had to be pried away. The bull wasn’t going down. I wasn’t going to be able to book as it was past midnight in Europe anyway. I’m pretty sure I’ll have the perfect place to book when I wake up. I did the work. I have lots of chalices. But fuck I cannot let it go. And it’s getting in the way of me thinking about other productive shit. Which is a metaphor for how something I’m sure. Being dogged is good. Until it’s not.