Tag: Illness

Categories
Internet Culture Medical

Day 1069 and Fever

I both literally have a fever in my own body while I am watching a fever burn through one of my favorite extremely online communities in the form of effective acceleration memers versus a heavily armed establishment unit of academic utilitarians. Who would like you to know they aren’t effective altruists I’m sure.

I myself enjoy a good internecine debate as I became a Calvinist as an adult because fuck it the Reformation is the home of the institutional skeptic. Flame wars are the modern 95 theses. And naturally everyone involved thinks their counterparts are reactionaries. Tyranny of small differences.

I’d say more about this but it’s later in the day and like I said I am running a fever. My immune system is remarkably active so I’m honestly shocked a fever got through at all. I actively beat my immune system into retreat so whenever it gains ground I am annoyed and confused. So it’s probably best if I sign off as it’s never a good idea to be letting your fever dreams get the best of you.

Categories
Travel

Day 1064 and Faster San Francisco

I am energized by my day. Any residual pain from the challenges of travel have been mitigated by rest, exercise, meditation and lots of medication.

If I could to give only one argument in favor of acceleration, it would be our capacity to improve medicine. I’d like to find a cure to my ankylosis personally, but it’s bigger than all that. I believe we should do everything we can to improve the health and well being of humanity.

I do so much to balance my own health and wellbeing just so I can keep working and contributing to the startups I love so much. Often I miss so much of life that others take for granted like socializing together. Hobbies, socializing and much of the tapestry of living together is off limits to me as energy budget is too high.

I’d like more capacity in life so I can chose not only to work, but to go to meetups, dinners and whatever else folks get up to in their leisure and community hours.

I am not one for FOMO while I’m in bed recovering, but on the occasional day where I get to do leisure activities I am reminded that I could have more of life if we agreed to prioritize the acceleration of medicine. My energy budget is only limited by the state of our healthcare.

On that note I’ll be at an e/acc meetup tonight in San Francisco. If you think you see me do please come up and say hello. I’d love to meet you. I’ll be wearing the leopard dress I have come to think of as the “spot me in the wild” outfit as well as three distinct wearables.

Categories
Chronic Disease

Day 1063 and Overclocked

Since acceleration is within my meme space so heavily I am pushing myself to go faster. Predictably that introduces some instability in my Julie equilibrium. That’s a fancy way of saying I currently feel like shit.

I’ve been a bit immobile for the last couple hours from hitting some type pain wall from overclocking myself. I’d hope it would pass so I could focus and write but it’s getting late on the West Coast and it doesn’t seem likely.

It’s possible this isn’t entirely the fault of excess strain from travel and it is in some manner hormonal. I wonder if at some point an artificial intelligence will be able to deduce my follicular and luteal phases by sentiment analysis on my blog.

Feels like a compelling argument for restricting government power over your bodies doesn’t it? Imagine the unceasing eye of Sauron collecting context clues about your reproductive system and the right to bodily autonomy goes poof.

Anyways I’m out for the night to go do battle with the pain so I can accelerate more tomorrow.

Categories
Medical

Day 1043 and Differential Diagnosis Failure

I’m throwing something up here as I am fairly certain I’ll be out for the rest of the day. I have thrown back an entire pharmacy in an attempt to remedy a barrage of symptoms that are so intense I can barely process.

I thought I had a cold or potentially some kind of flu based on my initial symptoms like heightened respiratory rates, congestion and pain in my muscles. But as the day progresses I’m not so sure. The mucus is clear and was easily improved by a Mucinex and cortisone nasal spray. The remaining symptoms of lowered body temperature (which feels feverish) a migraine, and tight muscles are now much more acute. I guess the cold medicine I took was a waste of liver stress.

It’s messy and conflicting and neither myself, my husband, my doctor nor the artificial intelligence chats have managed a differential diagnosis.

My hope is that with the sheer variety of drugs that we have thrown at this that I’ll be passed out for the foreseeable future. Maybe a full twenty four hours of sleep can fix this. Hopefully you will see me cheerful tomorrow.

Categories
Aesthetics Travel

Day 1029 and Daytrip

I am in a pocket of personal heaven that I did not know existed until just now. I’m on the Tallinnk ferry to Helsinki. It’s just before sunset and briskly cold. The wind is whipping small white caps as we exit the bay.

I had not expected the serene calm that overtook me. The many shades of grey and blue where the sea meets the horizon’s soothe my autonomic nervous system. Watching the small waves crest as we roll ever so gently sends me into parasympathetic. I feel cozy.

Tallinn Bay. Passing another ferry.

I decided at the last moment to go to Helsinki for a day. I wanted to visit for my birthday but didn’t feel well enough. Since actions define who you are, I booked myself a business lounge ticket on Tallinnk ferry. It’s fifty miles and about two hours.

I have a lounge chair at the very front of the ferry. It’s as large as a cruise ship and feels as smooth. It’s clearly a premium experience. I paid 60 euro for the privilege and was rewarded with an excellent dinner of poached trout and chocolate mouse. I have a lingonberry juice in a proper glass.

We are passing other ferries with some regularity. There are routes to every imaginable Nordic destination. There is even a ferry to St. Petersburg. Google maps lists out the routes as I peel out of Tallinn Bay. Twitter mutuals note that the Nordic ferry system is the envy of the world. And I can see why. What a pleasurable way to travel.

I feel lulled into a peace I hadn’t considered possible with travel. My Bose headphones are playing Endel’s AI generated relaxation music. I have my Apollo Neuro set to relax. And I have an hour or so to contemplate the beauty of the ocean. If you ever find yourself with the opportunity to take one of these ferries do it.

Categories
Chronic Disease Emotional Work

Day 1020 and Subdue

I felt like I was on fire. Itchy skin, weeping eyes, coughing and wheezing, a sympathetic nervous system run amok. I was on my second histamine reaction in less than two weeks.

I have had two days of intense emotional work. One tragic aspect of a daily chronicle that’s public is dancing around some of the more private aspects of one’s life while still managing to write. I’ve been doing “a look ahead” exercise for the next decade with my family. Our goals and our challenges and our structures were all on the table. What do we want and how will we pursue it and what stands in our way?

So I found myself needed to sooth the systems. Reactivity is a choice. I wanted to feel my emotions but I’m less convinced I need to feel my hives.

So I downed 50mg of Benadryl, a couple other generic anti-histamines, a white girl downer, and I plugged myself into noise canceling headphones and a face mask. I did a few rounds of Non Sleep Deep Relaxation nervous system exercises. And slowly I was able to subdue reactions. I slipped into real sleep.

I feel better for it. But I also know I need more restorative time. Remaining subdued would be valuable.

Categories
Emotional Work Preparedness

Day 1017 and Crisis Chores

No matter how trying the week may have been, a day of rest is a day for chores. Fighting entropy is the fight to remain among the living. I feel more than a little bit behind on my goals and obligations. Doing chores is the way I exert my own will over a crisis.

I hope that anyone wondering why I’ve not been up to date on correspondence over the last week can glance at the last few days of posts and extend me grace. I’m not sure if I have done anyone wrong but be slow but I notice my own tardiness.

The benefit of public diaries and social media is that it provides a kind of open “what is happening” context for everyone to see why their emails and messages are not being returned.

I was able to do some amount of personal chores around the Airbnb. Then I was hit with another round of migraines and had to lay down. I am not out of the woods yet it would seem. Maybe tomorrow.

Categories
Emotional Work

Day 1016 and Carrying On

It’s been a terrible week. I feel stupid even typing it. How many times can I state the obvious? It’s as if the repetition of stating that I’m in a hard place physically, and emotionally, somehow shames me. Can’t I say or feel something new?

But I don’t have any desire to dig any deeper into the wounds of the present. I am in too much pain. I am deeply emotionally affected by the situation in Israel. In ways I frankly didn’t anticipate. Those horrors overlapping with being sick, being far from home, and having a significant personal milestone, have collectively laid me flat.

I’d prefer to remain silent but the exercise of daily writing pulls at my habits no matter the extent of the misery. And maybe that’s the point. No microcosm of personal suffering or global macro view of atrocity changes the reality. Pain is an equally shared human condition. And we walk through it no matter our circumstances.

I have to assume I am not alone. The ambient misery is both personal and collective. The human experience is terrifyingly universal. I am fearful of my own physical fragility when abroad certainly but it’s bigger than being away from home. I’m afraid of being fragile in a cruel world that is getting crueler.

I’ve struggled to maintain a level head and a healthy routine this week as the whiplash of a hostile immune reaction and steroids took me from one misery to another. Prednisone is a cruel drug. It tamps down any reaction from your immune system. It’s a hard reboot for a physical system gone haywire. How appropriate given the circumstances.

It wasn’t quite how I envisioned turning over from one decade to another. And while I appreciated the stormy Baltic solitude to savor the weight and significance of my personal milestone, I can’t help but also notice that carrying on feels like a heavy burden.

Categories
Emotional Work Travel

Day 1014 and Choices

I’m sick. I’m in a foreign country. I feel fragile. The way life, and history, keeps progressing it’s not surprising that I feel fragile, sad, and wistful.

It’s my birthday today. I’ve been looking forward to the new decade all year if I’m honest. The final official marker of middle age is now mine. The childhood yearning to be an adult is now finally satisfied. There is no youth left for me. Only the joyful responsibility of shouldering my burdens.

I’ve never been good at making the safe choices in life. I make choices that are driven by my desire to live a life that makes sense to me. Those choices don’t always make sense to others. I take risks. I suffer their consequences. I pick myself up off the floor. I start over. My regrets are few and my experiences varied and colorful.

I feel proud of where I am in my life. I’ve failed in ways both significant and silly. Any success I’ve had were paid in full by my failures.

I am trembling between excitement and exhaustion at the prospect of the next decade of my life. I have personal and professional goals that are risky. Unlikely even. But I feel as if I must take this new decade upon me with as much energy and momentum as I can muster.

If I do not speed up, then the friction of the world will slow me down. My life is filled with friction. I know the pain of a chronic disease and the curse of Cassandra.

But these are motivating factors for me. I see these risks as worth taking for an interesting life. I hope my next decade is as interesting as my last. And I intend to make the choices required to bring about that outcome.

Categories
Medical

Day 1008 and Pesky Hormones

I’m enjoying a double header of hormones today. I’m in my luteal premenstrual phase which always leaves me tired and emotional. But I am also just letting go of the last bits of adrenaline and cortisol from my travels last week.

As the last bits of stress hormones drain away and my cyclical hormones flow in all I can feel is the weight of the world. I’m sure this dramatic phrasing is merely a function of the pounding hormonal migraine that always accompanies this time of my cycle.

If this all sounds a little foreign to you, Alisa Vitti’s life’s work has been to help women understand their hormonal cycles impact. I’m always looking for ways to hack my physical performance and health so I’ve been especially focused on pesky stress hormones.

Hopefully a little bit of salmon, some greens, and more rest will get me through it. And by next week I’ll be well on my way to peak creativity and energy. The lull will pass soon.