Tag: Pain

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Biohacking Chronic Disease

Day 322 and 10x

One of my favorite hobbies used to be powerlifting. When I had to take time off to control my ankylosing spondylitis (it’s an inflammatory spinal condition) I was simply in too much pain to walk around the block let alone squat 250lbs. But as we’ve controlled my symptoms so efficiently I’ve been able to pick back up weightlifting this fall. I’m overjoyed as this represents full recovery to me.

I’ve been slowing introducing weight using the core barbel lifts using the Starting Strength method. It’s been a blast as I get to have beginner gains all over again after being sedentary. The biggest change in how I train compared to my time before managing a rheumatoid condition is timing my training around my recovery. I used Whoop and Welltory who both measure my HRV or or heart rate variability. It’s basically a measure of how well your autonomic nervous system is coping with stress and turns out to the best predictor of how well I will feel on any given day.

A recovery chart of my HRV with red marking the days I lifted.

I’ve noticed that lifting hits my HRV hard. And it takes time to get it back to a normal place. Sometimes several days. I absolutely cannot not push my recovery frame without making my HRV dip even worse. It’s fascinating to see how well correlated the two appear to be.

On days when my HRV dips my resting heart rate is noticeably worse and using an app like Welltory I can see much more stress I’m under and how damn active my sympathetic nervous system is at work. The stress of recovery is significant. And my symptoms will tend to flare. Pain and fatigue are noticeably worse.

Despite the evidence I have found it mentally challenging for me to trust this stress and recovery process. On bad days when my HRV dips I forget how well I felt on the good days which leads me to some emotional flailing. Instead of trusting the routine I’ll panic at how shitty I feel. I’ve got amnesia about how terrific & productive I can be.

I’ve got to learn to trust the numbers. Otherwise I’ll do stupid shit like push to get something done on a bad day. That activity will take hours of hemming and hawing and willpower and brute force. If I had just waited for a good day to get my shit done chances are the task will take me 5 minutes.

Forcing myself to abide by the recommendations of Whoop and Welltory gets me out of the cycle of flailing. Listening to the data can override my amnesia. If a bad HRV day happens I just don’t try to do ANYTHING. Because I know on a good HRV day I’ll be 1000x more productive. It’s a discipline I need.

Everyone has different capacity. Forcing yourself into the “industrially necessary” routine of a 9-5pm weekday only makes sense if you are in a bigger corporate system and must be reliable even if you are not performing at your best.

Freeing myself from the mentality of being available on a bourgeois schedule is challenging. I hate feeling like I disappoint people by not always being “on” and productive. I feel like availability & reliability matter more than outcome (which is occasionally true but not generally true). The reality is you can have 10x Julie or you can have consistent Julie. I’d pick 10x personally.

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Biohacking

Day 297 and Day of Rest

October has been a whirlwind for me. Or maybe it just feels busy getting back to a normal pace of life. I had a shitty end of summer as part of an effort to decide if and then when to take me off my immunosuppressive medications to get me vaccinated so I could develop antibodies. Maybe anything would feel busy after that.

I lost about six or seven weeks to the whole vaccine situation. Thankfully nobody cared since it was August. But I cared. I didn’t do anything for weeks from all the side effects and management of the process. I only bring this up (and I should write a full post about getting vaccinated as I wrote one about the decision and its risk management) because it’s been a while I needed to actively rest.

I had nearly two months where I didn’t couldn’t pursue any strain like weightlifting or even hiking because I was under enough strain from my own body. And I know this because I used a Whoop to track recovery and strain. Biohacking is a bit of a hobby. I had low strain scores and virtually no activity. I spent all my time in what Whoop calls recovery. But not this week. This week I had strain. And then I learned what a poor recovery from too much strain looks like.

A Whoop recovery score of 32% based on a terrible HRV of 13. Plus I’ve got tachycardia.

This week in addition to a significant workload (ask me about my rolling fund if you are into that sort of thing) I decided to pick back up my powerlifting hobby. I changed up my diet to eat enough protein and calculated out new one rep maximums for a basic starting strength routine.

It felt awesome. Squats are the best. And my overhead presses were better than I imagined. I had this moment of hope that maybe I was well enough to train again after several years of health trouble. I felt empowered. I was working through the delayed onset muscle soreness with a Theragum (something I normally cannot tolerate with my past inflammation levels). I was doing range of motion restoration work. I thought I had it all under control. And then on Friday I saw my resting heart rate variably or HRV start to drop.

I thought oh shit I must be getting sick. Normally a dip in HRV is a hint that my inflammation in my spine will kick back up and all the exciting secondary health stuff like fatigue (from pain) and migraines (from the shitty circulation from the inflammation) will go in circles.

But it turns out that I’m not getting sick. My symptoms didn’t flare. Instead I was tired.

Honestly I’m a little pissed. Normally I only take rest days when I feel sick. I only feel tired when I am sick. This being tired and having my heart be strained because I was overworked physically is bullshit. Normally if I am tired it is because I am fatigued. I mean that feeling you have when you are sick because your system is going haywire. It’s not the same thing as tired. Being tired isn’t debating. Being tired is actually great. I just need to take it easy today because I did too much. Not because I’m sick. Thank god it is Sunday so that day of rest is well timed.

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Emotional Work Internet Culture

Day 293 and A Good Cry

I’m a cryer. I hear the swell of trumpet from the Star Trek theme song and I’ll start welling up. I’ll read a poignant passage in a cheesy airplane novel and my chest will tighten with emotion. My eyes will tear up when I tell a friend that I’m proud of them. I’ve found myself sniffling over a set of emotional text messages. I love a good cry.

I think I’m a cryer because I bottle up my emotions otherwise. I’ll share feelings in public but the real deep down core emotions are harder for me to express openly. The fear and hurt and sadness that make up the core of my emotional unconscious take some coaxing and a lot of psychological safety to get out into the open.

One of the reasons I find social media so much fun is it is a cesspool of emotions. Much of shitposting is just rage and anger expressed with a joke. And the shitposts that are sad are often told with a kind of vulnerability that I more commonly associate with 12 step meetings or group therapy. Internet culture has become an escape valve for emotions we didn’t know we even had.

The more I see the negatives that comes with keeping emotions bottled up the more I appreciate ways to let them out. If it is a good cry then I’ll take whatever brings it on. If you need something stronger than I highly recommend a light dose of Internet emotions. Just don’t let it overwhelm. Ease into the shallow end with an anonymous shitposting account first.

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Aesthetics

Day 292 and Television

I overdid it a little today. I pushed to go for a evening walk and got overwhelmed by the appearance of some pain. It wasn’t so much the pain that bothered me, it was the anxiety that washed over me as I contemplated the pain. I struggle to juggle life with pain sometimes, less because the pain is bad but more because I let it get in my head. The surest path to letting the worry go has been television.

If I take half an hour to watch some TV and let every other thought go but the plot of some cartoon or sitcom I’ll be calm and eventually the pain will be controllable again. It’s fascinating how the mind body connection works sometimes. I wanted to let the anxiety over the pain spiral in my mind but the utterly predictable and calming plotting of a Tim Allen comedy grounded me. I can let my mind wander the simple pathways of a half an hour show and find myself more centered than after a mediation.

I’m sure I’m not the only one that finds television soothing. We wouldn’t call it zoning out to the boob tube if it didn’t do something to tamp down higher level thinking. But maybe derogatory commentary is missing the point. Maybe the dumbing down of America has some benefits. We are constantly overstimulated. In my case the stimulation can be spinal pain. Letting the high frequency worries come down to a more mellow intensity is a positive for me.

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Biohacking Chronic Disease

Day 287 and Routines

I haven’t figured out how to incorporate my routines into my busier workdays. I feel like I’ve written this blogpost at least 3-4 times but somehow I never seem to find balance easily when I make big changes to how I spend my time.

All the self care efforts that has become comfortable rhythms go by the wayside as soon as I add in new obligations. And then my body gets pissed that I’m not taking care of it and I get into the same pattern of two steps forward and one step back.

You’d think after experiencing this issue multiple times I’d be better at ramping change slowly but I remain the sort of person that loves to dive into shit head first.

After much enthusiasm and progress I’m writing todays post from a physically mediocre places. My stomach is upset. I am fighting off a migraine. My muscles are tense. I’m anxious about all of these symptoms turning into a messy cascade. So I’m turning to my pharmaceuticals, taking a mess of prescriptions, and going to bed. Maybe tomorrow is another chance to find a better balance.

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Emotional Work Internet Culture

Day 283 and Presencing

Nick Couldry uses the term ‘presencing’ in his book Media, Society, World to talk about how we go into digital or media spaces to manage our presence over time. It’s a way we cultivate a sense of wider purpose through a public presence. And because of the way suffering and trauma marginalize people, this act of making yourself more visible is even more important.

I was browsing Anne Helen Peterson’s newsletter Culture Study when the above quote hit me over the head. The interview was on the topic of ambiguous grief with a media studies professor Samira Rajabi. While the writing is almost uncomfortably academic it resonated with me immediately. I have been engaging in presenceing for the entire course of my illness. I just never had a name for why I felt like a public presence mattered to me.

While it sounds unbelievable, I never considered that I might be using social media as a way to give myself visibility in the face of the trauma of an extended and chronic illness. I’ve always been a heavy user of social media so I didn’t find it unusual that I spent significantly more time on Twitter and blogging as I went through the diagnosis and recovery process.

I had been used to being visible in my previous life. I was regularly in media for my startups and I had cultivated some amount of public presence on and off since I was in college. But I didn’t really become a Twitter personality that cultivated a presence and interactions and a voice until I got sick. Without knowing it was presencing myself.

In American culture in particular, there is a strong preference for triumphant stories. So we can conceive of suffering if it can be managed and overcome, but rarely do we know what to do with a story of chronic pain and suffering and how relentlessly it reminds a person that they no longer fit into the so-called “normal” world. To me, it becomes even more important for those people to be seen.

I really wanted my story to fit into a narrative when I first got diagnosed. I had all kinds of ambitions of overcoming and healing that were quickly dashed on the reality of my life. I was never going to be normal again. And I hated that. I still find myself overcome with grief at the prospect that there is no triumphant return.

But I want people to see that grief. And see that it’s alright. That life went on. I didn’t lose myself. Even in pain and illness, or perhaps because of it, I’ve gained ground in finding myself. The pain and degradation of illness is ugly and shitty but also powerfully transformative.

I have not given up just because the narrative isn’t clear and the story has no simple arc. Any impression we have that stories have structure is imposed in hindsight. We love our post-hoc rationalization. We love our pattern recognition. But the through line is never clear in the moment. And that’s why presence matters. We all need the visibility of the truth even if it doesn’t fit neatly into the story our culture has given us.

Categories
Media

Day 281 and Villains

This is a post that will have spoilers about the end of the second season of Ted Lasso. Do not read any further if you have not seen it. I’ll put an extra paragraph to keep it from your eyes and we can meet again tomorrow.

SPOILERS BELOW

The first season of Ted Lasso may be one of the most perfect seasons of television ever made. It’s like being inside the best session of therapy you’ve ever had. The kind where you have a breakthrough so profound that the hurt and agony of your worst childhood trauma suddenly feels not only bearable but also the reason to fully love yourself. It’s just that good on the emotional truth scale. The warmth and safety and growth is beautiful.

But season two leans into tropes and villainy where it used to rely on nuance and kindness. Rather than feeling the pride and hope of emotional truth that has been hard gotten (the truth will set you free but first it will piss you off), we are given the obvious end of Nate betraying Ted and Rebecca by going to coach for Rupert’s new team West Ham.

Nate makes a massive accusation that Ted abandoned Nate emotionally but we are given roughly thirty seconds to wrack our brains for these betrayals before it is revealed that Nate has chosen to abandon Ted. How do we feel about this? Wouldn’t we normally explore how both people contributed to the feeling? But nope it’s send Nate right into insecure narcissistic reactivity rather than mine for the potential nuance.

We could have been given a story where we see Nate and Ted equally participating in the traumas they each carry and how it affects their relationship. Ted with his fear of abandonment brought on by his father’s suicide very well may play out that pattern of abandonment on Nate. But that’s left largely unexplored. Perhaps it could have shown us how Nate intuitively sees that because of Ted’s unresolved pain with his father, Ted in fact isn’t fully there for Nate in his new role as a surrogate father figure coach.

The struggles of a young man coping with a new position and unexpected authority granted by father figure like Ted juxtaposed against Nate’s own issue with his father who doesn’t show him respect would have been an empathetic story in the hands of this show.

There was so much fertile ground for how each character could trigger emotions in the other and for how they could own and resolve these feelings. But instead it’s straight to villain don’t pass to don’t collect 200 dollars. By the end I wasn’t even sad about the loss. I’d resigned myself to the conclusion. But they could have done so much better by everyone. Even if Nate must experience his darker impulses we would have been wiling to see the full journey of how he arrived there and the pain other’s traumas has inadvertently wrecked on Nate.

I guess I’m not sad. I’m just disappointed. And that’s how you know it really mattered to me.

Categories
Emotional Work

Day 274 and Amends

If you have ever had an addict in your life you may be familiar with 12 step work. You probably know that the first step is admitting you have a problem. As anyone in recovery can tell you, the steps don’t get any easier.

I have attended Al-Anon and ACA because I’ve had addicts affect my life and I come from a family that has suffered from the dysfunction. I’ve worked the program. It’s benefited me enormously and I recommend it anyone who has experienced the harms of addictions. Because of this experience working the program when I see others in recovery I try to remind myself that working the steps is for them. I don’t owe them anything. But I do believe in grace, forgiveness and redemption is possible.

I had a formerly very close friend reach out to me to work the 9th step recently. They wanted to make amends.

Make direct amends to such people wherever possible, except when to do so would injure them or others

The 9th step is arguably the most powerful culturally to emerge from 12 step programs. While we all know admitting you have a problem and giving yourself up to a higher power is crucial to begin your recovery, making amends is about taking responsibility for yourself. It’s a step people can rush or even avoid entirely. Amends is not about saying your sorry. Amends is about taking responsibility for what you have done so you can move forward in recovery. Only by owning your past actions with those you have harmed can you begin to forgive yourself and believe that you are worthy of sobriety. It’s not really a step about other people so much as it is showing to yourself that recovery is possible.

I was overcome with sadness when this former friend reached out to me. Their alcoholism made me feel deeply abandoned as I lost what has been a close and meaningful friendship. But I didn’t feel any anger. I didn’t particularly feel wronged. Just a deep aching sadness that my friend has been taken from me and there was nothing I could do.

There are people in my life that are in recovery that have never made amends to me. Or at least they have not formally asked to make amends as part of a program. They’ve simply slowly done the work to show me I can trust them in my life. And I’ve forgiven them. But the actual step of making amends is a meaningful one. There is a reason it’s so hard to do right.

I don’t know what the future holds for my former friend and I. The fantasy I have is that they remain sober work to rebuild the trust and friendship we once shared. I missed them terribly. I mourned their loss like a death. But this is my fantasy not reality. Reality will he more complex.

I’m sad that even having been lucky enough to receive amends from them, it doesn’t mean all is well. Our actions have consequences. That’s why the 9th step is make amends and not apologize. Amends is fundamentally about owning what you have done. So while they can now begin the process of forgiving themselves, and knowing that in good faith they did make amends to me, my journey towards regaining trust in them is just beginning.

Which means I need to be responsible for my own feelings. How will my actions to accept contact, make amends, and forgive affect me, my family and my friends? There are other people that were harmed by their alcoholism. I don’t actually know yet. The sadness is still so strong. But I do know that I will attend an Al-Anon meeting, and I will pray, and I will work the steps too. And I pray willingness will come.

Categories
Emotional Work

Day 235 and Grief

One of my Twitter mutuals suggested I explore the work of psychiatrist Francis Weller and his work on grief. I spent two hours with his lecture and another hour on the writing and exercises explored in this talk available on YouTube. I found his five gates of grief particularly helpful.

1.Everything that you love, you will lose. 2. Places inside of you that have not known love. 3. Sorrows of the works. 4. What we expected and did not receive. 5 Ancestral grief

I have been exploring my childhood emotions and the unconscious way those experiences still affect me. Using Weller’s gates of grief I see I need to grieve but also understand these patterns and what I gave up as a child so I can see what to let go now as an adult but also understand what gifts it has left me with.

In the framing of the second gate, I felt abandoned and unloved as a child. There were parts of me that were never loved. It was a challenge to get attention. This has left my inner childhood fearful that love is unreliable, attention is fleeting and abandonment is always to be feared.

Francis Weller asked what are these lessons or emotional complexes protecting? Why do I feel this way and what did I gain? At the heart of every experience is a jewel of great price. I was protecting and nurturing the capacity to get my father’s attention.

As a small child I didn’t understand why he didn’t pay attention to me for the things I wanted and I liked. So I found ways to get his attention through the things he liked. I developed the expectation I would be ignored. I wouldn’t be paid attention to unless I made myself appealing. So I learned to cut deals to be paid attention. I learned useful skills this way. A pearl of great price indeed. But I was also giving up the idea I’ll be loved just for being his child.

That all the things I did to change myself to be paid attention to and to be loved never ultimately got me what I needed when I was a small child is a loss I must grieve. I’ll never be able to go back and feel like I was wanted. No change I made fixed it either. I must mourn the second gate.

To leave behind these coping mechanisms or emotional complexes, to grieve them, is to admit that they did not work. I cannot change that I felt I was not wanted or loved. They have nothing to offer me now. I have to grieve the lack of a loved childhood to love myself in adulthood.

But it is not a bad thing. Francis Well shares that the other hand of grief is gratitude. In one hand we hold grief and on the other gratitude is in our other palm. So I recognize I have gratitude that my childhood gave me the skills to see what others want. I see what they are looking to find. I know what others are manifesting. I see what others are building and making and wanting. I learned to see the power and magic of others so I can hold space for them. And I learned how to golf. Useful skills indeed.

I grieve that this was my tool for attention and love as a child. I deserved love and attention just for existing as a child. But I am grateful for what it has given me as well.

Categories
Emotional Work Startups

Day 230 and Punishment

I wish I understood why we feel the need to punish ourselves sometimes. What is it about human nature that makes us abuse ourselves? Oh we deserve it. It apparently has a social purpose as well according to Psychology Today

Self-punishment tends to serve a dual purpose as it not only relieves internal feelings of guilt but impacts how others perceive us as well.

I’ve been feeling guilty. This month is the two year anniversary of me selling my last company Stowaway to a private equity firm and pursuing a medical leave to diagnose and treat my spinal condition ankylosing spondylitis. It was a happy ending, at least mostly, with the company being put into better hands than mine. But I still felt guilty.

I felt bad I didn’t live up the expectations of our biggest dreams. I felt guilty I didn’t 100x the capital for my venture investors. I felt guilty that my colleagues had dedicated so much to me and I had failed to deliver on the outcome we had dreamed of in our early days.

So punishing myself seemed like the right thing to do. I deserved to be sick. I deserve to be in pain. I deserved for the whole world to read about my experience and my failures. I deserved to be shown in public as a weak sick woman. It sounds so abusive when I write it out. Like I thought I deserved to be tortured. But maybe that’s exactly what I felt.

I am trying to unearth why I have the self limiting belief that punishment is what I deserve. As it’s more than just the circumstance of selling a startup and not seeing the results I wanted. It’s got to be deeper than the rationalizations I’ve given.

I’ve practice family systems therapy. The basic premise is that our childhood informs how we react as adults. And by healing the rough patch’s or even traumas of those times we can live the life we choose. For me I felt abandoned as a child. I wanted my father in particular to be emotionally available. But it just wasn’t to be. But I held on to the idea that I must have deserved to be abandoned. But of course it had nothing to do with what I did or did not deserve. It wasn’t about me at all.

Now I remember that I am a capable, brilliant and above all reliable person who needs to accept what I can be and not be bound by what I learned in failure. Finding that and turning it into your superpower is where the real success comes from.