Categories
Chronic Disease Politics

Day 199 and Vaccination

I’m not vaccinated against covid-19. It’s not a political stance. I’d very much like to be vaccinated and have it work. But I’m in the small category of folks for whom vaccinations do not produce antibodies. And to make matters worse, the only way I could “potentially” produce the antibodies in response to a vaccine is so destabilizing my doctors don’t want me to pursue it right now. So before being super smug about how this is a pandemic among the unvaccinated and it’s a “choice” for a small portion of us it isn’t.

I take immunosuppressants because my immune system has gotten some dumb ideas about attacking my body. I have had anaphylaxis a dozen times and allergies aren’t even my primary medical issue. That would be swelling in my spinal column. It was bad enough at one point that I couldn’t walk.

I’ve tried a lot over 2 years since it was diagnosed to keep it controlled. I was on chemotherapy drugs for about six months (I don’t recommend methotrexate at all and not just because it’s mustard gas). I was on high dose steroids long enough to develop a chemical dependency on them that required supervised titration down. Plus it made me fat as fuck and that annoyed me. Eventually my doctors settled into the suppressant category known as IL, or interleukin, inhibitors.

These drugs fucking rock and gave me my life back. Thanks to them I can live basically like a normal person with the exception that I need to be careful as I’m more susceptible to infection. We are quite literally suppressing my capacity to develop immune responses. You kinda need immune responses for vaccines to work.

Immunosuppressants and vaccines don’t really mix. I had to go off them to get a flu vaccine and I relapsed so badly my doctor was like well I guess it’s going to be masking for you in the future during flu season. About 5 months later the pandemic hit. Fucking hilarious.

If I go off my IL inhibitors eventually I’ll relapse. It’s possible I can make myself less prone to inflammatory responses but it might all be bullshit. I go to a stupid amount of trouble and money and engage in a lot of woo to make the rest of my health as strong as possible so I am not as prone to inflammatory responses. Maybe it will work. But quite frankly I’m not interested in finding out right at this moment if I can live without the drugs that saved my life.

Why does all this matter? Because you need to be off of immunosuppressants in order to have a vaccine work. And I’m not fucking going off my suppressants. Nor is it recommend except in stable cases.

It takes three weeks to dose them out of my system, three weeks off them before a vaccine of any sort would have a chance of generating an antibody response, and then another 3-6 weeks of injections get back to a baseline of stability. (their effects tend to be cumulative). And that’s because I would only be able to get one stick J&J as I happen to be allergic to the PEGs that stabilize mRNA vaccines, so I have to do one and done. But that’s an aside.

Basically I’m looking at 3 months of intensive inflammation that will cripple me just to get a vaccine. Because of a host of other complicating factors my primary caregiver physician and rheumatologist have recommended against me getting the jab. It will be hugely destabilizing to me (which is its own risk) and even if I get it, we just don’t know if I’ll produce enough antibodies while I’m on the suppressants. It could be for nothing.

It’s basically lose lose for me. It won’t work if I’m on the drugs and if I’m off the drugs I’ll be so sick it’s a crap shoot if I need to be hospitalized for going off them. Which ironically would put me at even higher risk of covid exposure. My doctors do not love this.

With the Delta variant on the rise I don’t know if it’s actually worth destabilizing me or if it’s a risk worth taking. It’s a crap shoot. I isolate. I mask. We didn’t want to fuck me up. It feels damned if I do and damned if I don’t. And I feel super alone in this status as everyone is acting like it’s a choice. And yes it is my body and my choice. But what choice would you make? My doctors aren’t sure either.

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Chronic Disease Politics

Day 142 and Optimism

The pandemic has done more to improve my life than to it has hurt it. I have a little survivors guilt as I am not far from family and friends that have suffered but I was lucky. Part of my luck has been tied to my privileged place in society. I was able to enjoy housing flexibility and leave behind an expensive city apartment for a townhouse in my hometown. I was always able to work from home with little fear my income would be impacted by disease or even negative secondary effects. Nevertheless I haven’t felt much optimism until recently.

Part of my lack of optimism has been tied to my health challenges. It’s been two years of working to get a diagnosis, stabilize my spine, and get the secondary symptoms controlled. There were low points when drug regimens didn’t work. Or when it seemed like the fatigue or pain would keep my life away even when primary concerns were improving. I was genuinely terrified going into the pandemic as it did cut off my access to typical doctors visits and more hospital setting delivered care.

But I’ve found significant improvement over the past six months thanks to excellent remote care I was able to receive from functional medicine doctors. It’s almost as if with the operational and physical logistics of care removed the actual outcome of my care improved. I was able to get to the heart of a diagnosis and hone in on effective treatment protocols more quickly. Thanks to this improvement I’ve come to find my optimism again.

Not that I think the world is getting better. If anything I’m far more worried about the many axis of American failure. Our politics has become authoritarian. Our economy increasingly serves only the entrenched and already wealthy. Our interest in mitigating climate change remains low. It’s so bad the best we can do is chuckle at why millennials don’t have kids. It’s because they are selfish right? Nothing to do with how hard it is to trust that the system will ever work for you so why bother investing in the future?

But I am intrigued by the opportunities afforded by the chaos. There is money to be made adjusting us to new realities. Maybe by dint of accidental or unexpected changes we find innovations that change our world. Maybe those will be for the better. And maybe I can help nudge along the better outcomes. And for the first time in a while o believe my body will be up for the challenge. It’s nice to be optimistic.

Categories
Finance Politics

Day 141 and Double Indignity

I’ve always been interested macroeconomics. Even as a child I got very excited about trading and markets eating up movies & books with political themes. Precocious snot that I was I quoted the Economist in my high school year book. So was primed to be interested in Bitcoin from the start. I even had a physical copy of the ur-conspiracy theory of monetary policy “Creature from Jekyll Island” in college. Yes it’s embarrassing. Point being if you are a fiat freak you probably have some opinions about the Fed, a few of which sound utterly wild.

I’d been exposed to questions about money and what drives people to build and create. I was skeptical that we could continue printing currency because I was introduced to economics through the basics. I also had an intuition that this system was making bigger winners of the already advantaged and short term interests, while taking away from long term interests who need their time & money maintain its value on the horizon. Basically I think inflammation sucks for the young. And if you are young and poor it’s a double indignity.

This is why I find Bitcoin so appealing philosophically. The idea that those already in power can inflate their interests over those who come after them offends me. Dynastic societies become ossified. I found Steven Ross’s Stone Ridge investor letter to be a particularly compelling argument for why Bitcoin is a moral good for equity.

Money is, and has always been, technology. Specifically, money is technology for making our wealth today available for consumption tomorrow. Modern Americans with a ‘What’s water?’ mindset about money – virtually all of us – assume there is a sharp line of distinction between what is money and what is not. That’s false. Instead, throughout history, various monies (note: plural) have always existed1 – simultaneously – along a continuum of soundness, subject to competitive monetary network effects. Sound money – along with language – were the first, and have forever been the most important, human networks responsible for human flourishing. Imagine life without them.

I think Americans especially the monied elite interests are simply becoming too entrenched to the detriment of freedom here but most critically around the works. We have no incentive to let the rest of the world compete so we are rigging the game in our favor. I don’t like it morally even if it benefits me personally (though arguably not as much as it does Boomers and the old). I’d rather Earth compete as one as this drives our progress. Anything less is serving a double indignity to the least privileged among us.

Categories
Finance Politics

Day 135 and 4 Quadrants of Crypto

I’m on my own this weekend so I had some time to listen to podcasts on my daily walk. I stupidly decided to listen to a podcast entitled “best crypto debate ever” which was vastly overselling both participants capacity to engage in productive debate. Not because either wasn’t smart but simply because they were both approaching the topic from entirely different vantage points. One had reasonably well founded concerns about about the how existing powers will fight to preserve their interests and the other was too fixated on proving that the market was the only player that matters. I am beginning to think that crypto, and in particular Bitcoin, is having a “blind men and the elephant problem” that makes discourse challenging.

I’m not pretending to have a full understanding of the future of cryptocurrencies or Bitcoin, merely articulating to myself as an exercise (it’s my blog after all but maybe my thinking helps you too) the four expertises required to wrap one’s mind around how cryptocurrency will evolve and what consequences we need to consider. Because there are no “right” answers at the moment merely different vantage points to consider as we stumble into the future.

1. Macroeconomic: understanding central banking, treasuries, monetary policy and macroeconomic actors is a specialized skill set. I studied it at arguably the best university on the planet for the subject and I still find the ins and outs to be heady stuff. Who decides what money is worth? When do we change those valuations? How does one country’s currency impact another’s? You hear a lot of buzzwords tossed around like “rules not rulers” but the practicalities of it are in fact hard problems. Just tossing off that you think “fiat currency” is bad isn’t enough.

2. Geopolitical: governments need money to provide services and security which makes them economic actors in addition to being political ones. America’s political ambitions are distinct from China’s. How we make make our money and how we spend it both at home and abroad will affect how we perceive other currencies. You need to understand things like how the dollar’s reserve currency status operates (ideally it’s history) to even begin to understand the geopolitical implications of cryptocurrency. Much hay was made of Peter Thiel suggesting Bitcoin could be weaponized by China against the US. Clearly any currency, especially one not run by Americans, will have geopolitical consequences. That anyone got hysterical about it suggested to me that our understanding of monetary policy and its political implications is limited in the general population. One needs to understand how the many actors on the political stage intersect their interests, political and economic, to even begin to comprehend how a cryptocurrency, particularly a decentralized one like Bitcoin, might evolve. In other words you have to understand how it works before you can do any predictive work.

3. Technical: concepts like distributed ledgers, hash rates, decentralized computing, and cryptographic keys are all crucial subjects for understanding the mechanics of a cryptocurrency, who owns it, and how it’s transacted. The chances that you understand the above geopolitical and macroeconomic problems and also understand how to code say your own token or have the wherewithal to acquire and set up hardware for a mining rig are slim. Maybe you grok it but being an expert in all is vanishingly slim. Computer science, political science and economics are all separate disciplines. Sure Bitcoin mining basically operates like loot crates in a game and who am I to say whether it’s a better system to have dorks with a lot of hardware run our money instead of Steven Mnuchin.

4. Microeconomics: the final area expertise is how markets and all the different players in them will value a currency and use it both as an asset and as a payment system. The elaborate financial systems that exist to determine what you think something is worth versus what someone else does is elaborate. We’ve got Byzantine financial products that decide everything from your mortgage to your salary to the cost of a sandwich. And while it’s not intuitive the folks that work on currencies, monetary policies and macroeconomic issues are not equipped with the same skill sets at all as the folks who trade on financial markets, cut deals between market participants or work out balance sheets. I’m much more studied in the macroeconomic issues than the financial ones and I wish that weren’t true. It’s a lot more lucrative to work in futures, arbitrage and market making.

When it comes down to it these four quadrants all require distinct skills and very different areas of study. Much of the debate and disagreement may simply come about because we are seeing different possibilities. Wrapping your head around the whole is difficult and no matter how brilliant you are having exposure to all areas is a lifetime of work.

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Aesthetics Emotional Work Internet Culture Politics

Day 134 and A Short Guide to Being An Edgelord

As my friend Seyi wisely said; sometimes your life gets chosen for you and sometimes you choose your own life. So try to chose your own life as often and as soon possible before someone else does. This challenge seems especially relevant as the culture wars rage on and regular peons like you and I can become collateral damage.

I’ve known for a while that I wasn’t going to be a fit for institutional settings like big tech corporations or civil service. I struggle to to be anything but myself. I mouth off too much. I’m not very good at kissing the ring. It’s not that I can’t engage in behaviors or manners you’d expect, I merely find it tiring. I’m also saddled with some physical limits. I’ve got the kind of medical conditions that gets a lot of virtue signaling from corporate communications types but isn’t really all that appealing except as a token. So unless I wanted to be miserable in middle management I knew I needed to opt out of the game. And that meant winning on my own terms.

Here is a harsh truth that the panic mongers in the cancel culture debate don’t want to say out loud. You cannot expect to survive a system and certainly not a culture war unless you take sides. Humans are riddled with bias and institutional self preservation is strong. The only side you should take is your own.

But you must accept that choosing your own life has consequences. Living out loud as the full uncensored you may cut off certain opportunities just as it opens new ones. Be aware of this reality and do not complain that you are a victim of circumstances when you have more choice than you realize. I’m not suggesting all areas are open to everyone nor that we shouldn’t fight for legal rights and protections. Merely that we are limited as individuals by the cultures and institutions of our time. Social mores move slowly even when pressed by revolutionaries.

My best advice? If want to be an edgelord. Be a real one. Go full crypto. Middle finger to the law. Fuck the police. Start a newsletter with monetization. Find your tribe. Learn some practical homestead skills.

You want to play corporate ladder? Play by those rules. There are dress codes and “ways things are done” and hierarchical structures you must obey. Get their credentials and be excellent at the values the organization wants.

You cannot straddle both worlds. This didn’t used to be a controversial statement. It wasn’t an affront that you had to put on a suit and say “yes sir” until pretty recently. Sometimes you just have to play the game. Go read the 48 laws of power and get back to me.

Trying to express who you are publicly if it’s not within bounds of the institutional norms might get you fired. Or maybe you take a stand that gets you promoted if you judge what norms can be pushed. Depends on the institution. So know that if you set onto the path of “choosing your own life” the consequences might be a lack of access and options. Or it might open you up to an entirely new world where you work and live with people who like you. But straddling the middle is recipe for emotional misery.

If I were you I’d begin to do the work to walk the path of the life you want now. Before someone else chooses for you.

Categories
Chronicle Politics

Day 107 and Mountain States

My family made its way to Colorado in the 70s. That makes my brother and I second generation. While we may not have deep roots it’s not arriviste either. This is a concern as roots matter now. Every western state seem to worry about the influx of Californians on their culture. My family participates a bit in this too. Despite me having spent the last 15 years in Manhattan I have plenty of opinions about policy.

So I was fascinated by a series of essays showing what was driving the changing demographics of mountain states and who are actually the California carpetbaggers.

The thesis of the tweet storm by David Neiwart that drew me in was that Tucker Carlson and the recent obsession with replacement theory (in this case Mountain state “natives” are being replaced by liberal Californians but it’s actually code for brown people) was actually ass backwards. It’s the white evangelical population who have been moving from California and resettling in the mountains West. The actual demographic taking space from folks already there isn’t California liberals it’s California conservative!

In Colorado the urban areas of the front range won out over the deep red of the western slopes. Other states in the mountain west may have gone red but we managed to be purple without turning into a California hellscape. So our influx of red have blended with new urban blues for a relatively well governed state.

I do find the entire crisis over those coastal elites coming into the mountain states to be pretty funny. As if the politics of the west were ever really totally homogeneous. Plenty of towns have been liberal and we had Democrats and Republicans representatives. This need to always push narratives of polarization doesn’t do anything for the American people. It’s just more bullshit to entrench for us in our corners.

My politics are traditionally Western states. I’m a small government libertarian and I’m also inclined to let people to do what they want with who they want. Going too much to either side just doesn’t appeal to a lot of mountain state folks. I won’t vote for the Republicans till they drop the fascist populism so while I’m not thrilled by Democrats they have my vote for the moment. Maybe the western states are the moderates we thought were a fantasy all along.

Categories
Chronicle Media Politics

Day 83 and Tribalism

For what are probably obvious reasons (a mass shooting inside a grocery store a few miles from my home) I’ve been trying to keep off of political media the past day or so.

I’ve mostly succeeded but it’s a challenge when my primary relaxation space, Twitter, is saturated with commentary on a topic I don’t want to discuss with anyone that isn’t also living through the trauma personally. It’s not even that I don’t want to hear from folks it’s more that even if you have had a similar tragedy in your community your reaction may not be the same as ours. Every trauma is unique even when cultural circumstances may not be.

I bring this up only because I realized today when a new app claiming to analyze your news bubble filter went viral I didn’t know what folks “thought that I thought” about politics. The app said I was 100% leftist in my filter. My immediate reaction was “bullshit” in that I probably tweet once a day “as a libertarian” and regularly discuss my views on small government. So I asked folks what direction they thought I leaned. There is not a lot of consensus so far.

I follow and am followed by a very diverse group of people. I probably follow everything from alt-right fanatics to avowed socialists. I socialize with bro-science masculine fitness folks and queer chronic disease and disability advocates. So I’m not surprised I am hard to place. If you are a trad life carnivore on a homestead your opinion on my politics is probably pretty different than if you are a healthcare for all anti-ableism urbanite. I work with Silicon Valley folks and venture capitalists and the New York media establishment. Finance and the press corp are not generally politically aligned so unsurprisingly those two groups may also think I’m in a very different place on the spectrum. To someone at war with the media I may look left wing. To someone in the media I may look right wing. And yes this comes out in the wash as centrist.

The reality is that I have fairly nuanced views and your take on my leanings may say more about how much you like me and thus how much you want me to agree with you. This is for a nice reason. We tend to like the people we agree with more.

So it’s possible if you want me to like you then you may assign me views that are more aligned with yours than I am in reality. Don’t fret though we can strongly disagree and I will still like you. If we have fun together on social media I don’t need you to agree with me on social or political issues. I spend time on social precisely because I do like all kinds of people and I want to enjoy that incredible diversity of humanity. And we are all here because in the end the only thing that keeps the loneliness at bay is each other.

Categories
Chronicle Politics

Day 48 and Rush

My high school years had some ups and downs, which is how I ended up in Manhattan as an 18 year old, making up credits from the year I dropped out. I had an interest in news, so I talked my way into a job at a talk radio station 77WABC.

I’d take the 1 train down from 116th St to Penn Station and l, without even going outside, went up into one of the Penn Plaza towers where I screened calls for the block of radio programs that took the afternoon and evening hours. Some of the programs were pretty shoddy “left wing white guy vs right wing white guy” and announcing for New Jersey Devils hockey games.

But the marquee talent was Rush Limbaugh.

In the back of the rabbit warren of sales team cubicles and behind the other recording studios for B-list talent (which at the time included Sean Hannity), Rush had his own recording studio. And yes, the golden microphone was real. It stunk of smoke. His producer had somehow struck a deal with building management to allow him to smoke his cigars when the rest of the station had to plod down to 34th street for a cigarette.

The funny part of him having his own private recording studio is that Rush had already moved to Florida. Sure he recorded at the station, but even at the time he was enough of a star that he maintained multiple private studios. Such was the power of the EIB Network. Dittoheads had made Rush a fortune even before 9/11 and the rise of the neoconservatives. I can still recite the ditties. I can hear Rush recording his commercials. The way he would say Ruth Chris Steaks will stay with me till I die.

I have complex feelings about having spent time in talk radio. I didn’t stay long, I saw the money wasn’t particularly good in media and I decided a college degree was worth pursuing. Conservative chit chat hadn’t yet fully diverged from the overall skepticism of mainstream media into its own behemoth yet. 6 o’clock news on broadcast probably still mattered. Facebook hadn’t been invented. People got their hard news from real television and the side opinions of grumpy white men hadn’t fully turned to grievance culture yet. Sean Hannity was still partners with Alan Colmes.

Seeing what Rush Limbaugh wrought on America has been hard. I don’t doubt that without him January 6th wouldn’t have happened. Trump might not have been president.

But without Rush and my experience in talk radio maybe I wouldn’t have studied economics. Maybe I wouldn’t have pursued business. I might have stayed a comfortable Silicon Valley liberal. But spending my afternoon talking to the weirdos that call into talk radio was an experience I value. I had come from crunchy hippie comfortable white upper class towns like Palo Alto and Boulder. I hadn’t ever considered the kind of politics that bred Republicans and subsequently Tea Party reactionaries and eventually Trumpist alt righters. A lot of ground got covered in the years.

I doubt Rush (or Sean) would have liked where my politics landed. Libertarians are frowned on in “real” conservative circles. Probably worse than the kind of pleasantly socialist left wing politics I had when I arrived.

I hope no one takes any of this as affirmation or justification or even acceptance of what talk radio culture birthed. I’m not even sure how to feel about Rush Limbaugh’s passing. Not that we were close, heck I doubt he knew my name. I was a teenager doing shit work and I spent much more time on other programs. But I still had to take the afternoon off as social media rushed to rejoice in his death. Even knowing the scope of his legacy I just couldn’t take it. My life path might have looked very different without encountering the EIB Network.

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Aesthetics Chronicle Politics

Day 45 & Noblese Oblige

With great power comes great responsibility” is a comic book classic known as the Peter Parker principle. If you are bestowed with gifts, you must gift them back to your community. Noblese Obliege or “nobility obliges” suggests that nobility comes with a responsibility to fulfill obligations to the people who guarantee your status.

This sounds like a social good, and sure it anchors all the great heroic narratives of our modern age, but it appears to be unraveling in modernity. It used to be that we believed the morally good are the ones with gifts, if you weren’t wealthy it was because you didn’t deserve it. It was a bit of a religious and heroic tautology. But it worked! The nobles and the superheroes felt an obligation to their subjects insofar as publicly demonstrating their inherent goodness was crucial to demonstrating their nobility.

A key component of noblese oblige was showing off moral worth by giving to the people without the insistence that the people be inherently good. The people didn’t need to be worthy to get anything. Being worthy was the job of the nobility not the peasants. Which meant that all gifts from nobility to peasants were inherently gratuitous. No one deserves to be given gifts. Gifts were bestowed at random and in significant largess.

I’d suggest the reason our institutional trust is breaking down is not because we are wising up to inequality, but because the narrative arc of nobility living up to its responsibilities have broken down. America’s first robber baron class understood this with their grand social gifts of libraries, parks and endowments. Some of our Billionaires still do. But we no longer feel the gifts match the obligations. No matter how much this new nobility gifts, the rabble is still pissed.

Maybe it’s the insistence on making charity go to worthy causes. Or welfare go to people that deserve it. That is ass backwards. The nobility are supposed to be good. The peons with outstretched arms never had any worth to begin with. If they did then they would definitionally be noblese oblige too. You can’t ask everyone in the system to be good, moral, and true. That’s fucking exhausting. Even Christianity got that sin was so encompassing that literally only God could be expected to be without it. Probably why we used to let nobility get away with bad behavior. That is fine as long as they did their part. The prodigal son got shit without deserving it. That was the moral of the story.

The trouble with a time that has broken with historical arcs of goodness is that now no one is nobility or peasantry. No one is noble or good. Which means nobody deserves anything they get. Which is about as close to the war of all against all as I can imagine. Hobbes would be pleased.

Categories
Politics

Day 41 and January 6th

Thirty five days ago feels like a long time. I was only on the sixth day of my daily writing experiment. I was entirely unprepared to have to live through a traumatic national moment let alone speak to it.

Obviously none of this is incisive political commentary. It’s barely coherent. It’s the emotional rambling of a woman who was born into a stable functioning democracy who believed it would be there for her entire life. Our system of government was a given for me. I believed in the American dream.

But as we get further from the moment and I become used to regular writing I see that some core of the moment did get rendered for posterity. I was born into a stable functioning democracy.

Watching the impeachment proceedings has done nothing to make me more confident our democracy will remain stable or functional. The Republicans appear to be in a state of either venial denialism or opportunistic fascism. I don’t know which one I think I worse. And the Democrats are somehow still operating under the delusion that the right gives a shit about rules and parliamentary niceties.

I’ve got some doomer predictions about how this plays out about which I sorely hope I’m wrong. How horrible to be the generation that allows the great American experiment to fail. How embarrassing to get it wrong just as much of the rest of the world is finally getting it right. American exceptionalism on its ass.

I’m not entirely sure that what comes next is bad so much as just “is” what will come. History isn’t reversible. And we are in for a wild ride of institutional chaos as we adapt to new norms. I believe there is a way to ride on top of chaos even succeed because of it. I even think it is possible to thrive as it forces us to solve for more problems more quickly. At least for some of us.