Tag: Anger

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Homesteading Politics Preparedness Uncategorized

Day 783 and The Alliance

Yesterday was a bit of a busy day for me. A splashy wandering “state of culture in America” piece in a glossy cultural firmament like Vanity Fair is the ultimate validation of one’s thesis. I am taking a little bit of a bow on it. I’ve been on about this chaotic future and here are my receipts.

And it’s potentially a good thing that so many people are seeing the alignment that a muddy middle ground of chaos means “the rest of us” have to get on with building whatever the chaotic future looks like. We’ve got families, jobs, and health problems. Life goes on even during times of contested authority. Honestly it’s usually where fortunes are made.

Because it’s a surprisingly large cultural alliance. It has a key truly America things in common. That thing? It’s the most American a shared value as I can imagine. We believe the frontier can be tamed and that civilization is a good thing. Americans have always had a pragmatic streak to them thanks to our Protestant work ethic fetish.

“Preppers, techies, hippies, and yuppies are converging on the American West, the safest place to “exit” a society gone haywire.”

The Dissident Fringe

Because look, nobody asked for a million stupid cultural schisms and endless battles over basic human rights and who shares in the spoils of civilization. Just find a damn common ground. Because right now we’ve got problems to fix. Nobody is sharing in anything unless we build shit. Building shit is the beginning of shared prosperity.

If we cannot align on that fact, then yes of course we are going to continue fighting in the grey zone politics of civilizational values. Because you know what progressives have going for them? A shared legal framework on which to resolve disputes is always better than vigilance. Everyone should want that. Sorry accelerationists.

I don’t know what systems will evolve. But if we don’t start investing in them now we are in serious trouble. I’ve been investing in solutions that are venture scale for sometime. Ifyou want to join me on this journey, DM me on Twitter or join as an LP.

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Homesteading Politics Preparedness

Day 782 and Vanity Fair

I am extremely proud of being a subject in Jame’s Pogue’s new Vanity Fair piece. It is about managed decline, the death of state capacity, and whispers of a post state world. I’d say it’s a bombshell except I think there are some very sober people discussing how life in a chaotic world filled with distrust might work out. Spoiler alert, not great.

“Preppers, techies, hippies, and yuppies are converging on the American West, the safest place to “exit” a society gone haywire.”

The Dissident Fringe

I worry that the next frontier in American cultural battles will be figuring out how to stay out of our versions of “the troubles.” And I don’t like the sound of that.

I think you may find yourself agreeing with me. I don’t want a culture war and I certainly don’t want it to turn into a hot war. Apparently that makes anyone who agrees with the above premise a dissident fringe. Didn’t realize it was controversial to enjoy civilization. But I am in fact comfortable saying I don’t want any kind of war.

But I’m not sure everyone feels that way. So in a show of our seriousness we’ve decamped to the imagined demilitarized zone of the Rockies. I don’t want any chaos but I am literally betting the house on us having a bumpy ride maintaining course in America as we deal with long delayed issues from infrastructure, education, logistics and supply chains to capital markets and trade. I intend to capitalize on this uncertainty. You can do so with me if you’d like as an LP in chaotic capital.

If you are curious about how it might play out, in this nearly 9,000 word opus, every angle of how to survive in the American West in the near future is captured in empathetic detail by Pogue. It’s almost like reading William Gibson in how it shows a present that feels a bit off. Cyberpunk right before the Jackpot, but make it from a gonzo Hunter S Thompson type. I appreciate it on purely aesthetic grounds. You should read it.

But practically how do we all muddle through a greyzone war that has no agreed upon values, including whether the enlightenment & liberalism are worthwhile?

As we fight it out as a nation, most of us are just going to continue living our lives as crashing stare capacity and war over institutional norms gets in the way of raising a family and doing business. And it’s this scenario—a muddling, unhappy, middle course—that most people in this sphere tend to predict is coming. It’s not fun but it’s not the end of the world.

It is my personal belief that we are struggling to find any alignment because regardless of your personal politics, religion, or even overriding philosophy, your actual physical body is just fucking done with this bullshit. I mean it literally. We feel it in our bodies.

Endocrine systems get fried. There’s too much cortisol, you’ve been running on adrenaline, eventually you tap out. Everyone feels nuts right now,” she said, “because what on earth are we supposed to do with the fact that we’ve had this incredible rate of change for so long.”

Julie Fredrickson – Vanity Fair March 2023

We think we’re keeping up with it, but our bodies are like, ‘Oh, actually no. We have no idea what’s going on.’”

It’s too much stress on the system and something is going to have to change.

If you read the piece you will see just how much trust is lost amongst all parties that make up the American experiment. The cherry on top is that our nation state distrusts our foes & but they also distrust us the citizens and their desire for more freedom. It’s a messy battle for meaning and power.

And as Americans we’ve had the exorbitant burden of the dollar being the global currency. What happens when we no longer trust any actors on the global stage? Distrust our fellow citizens, distrust our currencies, distrust our institutions, distrust our enemies? It sure gets hard to run an economy without trust.

We need to build new systems we can trust or our bodies and minds will give out. Simple as.

I don’t know what systems will evolve. But if we don’t start investing in them now we are in serious trouble. I’ve been investing in solutions that are venture scale for sometime. Ifyou want to join me on this journey, DM me on Twitter or join as an LP.

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Medical Politics

Day 776 and Informed Consent

I’d really like to write about informed consent and whether it is a convenient fallacy to obfuscate the harsh reality that medicine isn’t as black and white as we have been led to believe.

It’s a complex topic so consider this my notebook of scraps and gently judge it’s content as it’s not a full cohesive argument so much as a collection of thoughts I’m working through here. If you feel you are reacting to it strongly please work through why on your own time.

I am on this topic as I am reaching a point of frustration with the discourse around transgender issues and who is responsible for informed consent. We’ve got a spiraling culture war where everyone is ignoring basic facts like children are below the age of consent and thus their parents are responsible.

Our entire legal system is based on the premise that before 18 you have not reached the age of reason and are not fully responsible for your actions. Yes it’s flawed and doesn’t always work that way and we try minors all the time but the fact remains parents are the guardians of their children.

I am oddly both well read and well cited on issues related to informed consent and substituted judgement as I was a medical ethics research assistant at the University of Chicago. I got paid $10 an hour for my troubles so you know my credentials check out (in sarcasm font). Seriously go look I’m an author on a few papers.

Making a choice to engage in almost any medical procedure is risky in ways no one, not even doctors, can fully articulate. Bodies are complicated and abiding by a simple principle like “first do no harm” turns out to be hard calculus.

Sure you can get awfully close to the right answer but you will be pretty far down the calculating differential equations path once it dawns on you that we can get infinitely close to certainty but certainly itself cannot be reached. Turns out math is useful in daily life.

Patients have a right to chose their own risk parameters. Doctors do their best to inform. But the grey area is so wide it’s practically an abyss. Add in making decisions for a minor and it’s all best guesses and other people’s facts. Believe the science means you’ve got to do your own math and it appears most people are innumerate.

I am willing to make big criticism of the transgender panic crowd because they’d prefer to pick and chose convenient narratives like “think of the children” as a defense. I’ve heard that tune before in every other moral panic. And yet it’s still not the government’s job or the doctors job to make the call. It is the parent’s call because children require the substituted judgement of their parents for informed consent.

If this is annoying or unsatisfying to you well that’s a bummer for you. I’d encourage you to read up on how we’ve scapegoated populations in the past to make sure the in-group’s priorities and social mores are sustained. Every moral panic has one. I’d recommend René Girard’s work here.

When we fixate on a vulnerable population the story is always the same. And I believe anyone who is reading this blog is smart enough to grasp that in good faith. And we’ve got a long history of scapegoating people who don’t conform to our majority population’s comforts.

The transgender issue is no different and trying to wedge it into a “but the children” argument runs up against two issues. Most of our American historical moral panics have scapegoated in this exact way. And medicine is simply not so concrete that any treatment for any condition is risk free.

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Emotional Work

Day 772 and Spoiled

For as much as I write about pain, both emotional and physical, so much of my life is saturated with joy.

I was asked this week “when will you accept that you are happy” and I was thrilled to find myself blurting out in agreement “It’s true I am so happy.”

Crawling your way back from a life event that gave you ego death is no easy journey. You either accept that you are responsible for yourself or you don’t. And really bad shit happening to us like illness or divorce or death loss tend to be deeply clarifying.

I feel so spoiled by the life that my choices have given me. For all the mistakes I made, and they are numerous, I on balance made the right calls. I have never felt more loved in life than I do right now. I’ve got what I need and I felt brave enough to go after what I wanted.

I’m surrounded by people who care about me for me. And it’s such a luxurious feeling to be given the space to be yourself. It’s even better when being yourself is the thing that everyone loves.

A Friday night surf and turf feast with filet and crab.

I spent so much of my life fitting myself to my circumstances. And now here I am stretching out to become more of myself and I find myself rewarded for it. Last night my husband and a dear girlfriend made a magnificent surf and turf dinner. Just a restaurant quality meal made by my loved ones at my own home in Montana. And then we all watched one of my favorite movies Margin Call

Crab with lemon & parsley
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Emotional Work Politics

Day 768 and Memory

I’ve not ever read Proust in its entirety, because what am I, an eternal being who exists outside of linear time? But, thanks to Wikipedia and university survey courses, I am familiar with its basic themes of memory and it’s frustrating insufficiency.

Anyways, when not pondering madeleines, I am often confronted by how resilient the mind is in protecting us from the horrors of the world. Memory is a very funny thing. As good a reason as any to maintain diaries or engage in hagiography, is that you’d be surprised at what you forget if you don’t write it down.

A doctor asked me to get a pelvic ultrasound. I surprised myself by saying absolutely not unless it’s an emergency life or death situation, I am not doing that. And she, in sincere surprise, asked me why not.

And, because I guess therapy works, I recalled a pelvic ultrasound from maybe 10-12 years ago. I’d been referred in to a specialist as there was concern about a uterine cyst. This doctor, a gentleman over 50 in the kindly white patrician archetype, who I did not know know, proceeds to tell me this won’t hurt a bit.

But it does hurt. I am screaming bloody murder. It hurts so much I cannot stop. He tells me he will call security unless I quiet down. I cannot and I am in tears hysterically trying to convey the pain to him. I pass out.

I had utterly suppressed the memory till today. It happened to coincide with my husband mentioning a think piece in New York Magazine about women who empathized with the Clare Danes character from Fleishman Is In Trouble. There is a profoundly violating scene around reproductive health and consent that culminates in dark emotional trauma.

And of course, because it’s happening to a striving insecure aspirant white bitch, it totally doesn’t count right? The internet is not sympathetic to whining Clare Danes types. Fucking Karens. It’s super cringe to consider where the system hurts you, because, you dumb bitch, you benefit more than anyone else except the men.

So I guess I am not surprised I had banished the experience of something bad happening to me at a doctors office, but you know, it was not so bad that I am allowed to complain about it. And that is how the patriarchy perpetuates itself. Shut up you are rich. Look at the skulls upon which your empire is built you witch.

What I’m saying is that maybe you need to remember who it is that benefits from you not remembering the pain. Who benefits from forgetting? And trust me they are very scared when you realize that you remember. Even the rich striving white bitches have scares from this system.

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Chronic Disease Emotional Work

Day 767 and Abandonment

I called someone today with whom I have a standing appointment. They didn’t pick up at first. I called back a few minutes later when they didn’t return my call.

They picked up on the second call back. They didn’t seem entirely healthy. I found myself scared. My inner child dove immediately into a pattern of abandonment and distance as I tried to cancel and give them a way out. I blathered on about how it’s usual time and I hoped I wasn’t invading their privacy but if they were sick I could rescheduled as it was obviously no big deal.

“Julie” they said to me firmly but kindly. “Stop telling me how I am.”

I sat back on my heels at that. I hate it when people make assumptions about how I feel. Rather than listen, people will simply make assumptions about how I am and what I can or cannot do. If you hate feeling pitied then this will probably seem quite familiar to you.

It’s not uncommon for people to work through their own issues on illness, pain or disability when talking to me. While I have an invisible disability from a chronic disease called ankylosing spondylitis I do make it known that I have this diagnosis. I even treat it as a part of my edge at work. But it’s just a fact that I’m in various degrees of pain because I have swelling in my spine. It’s arthritis basically just inconveniently located.

But despite it being a public part of my identity, most people have no idea. I don’t look sick and I mostly don’t act like it in public as it’s kept under control with modern medicine. But I’ll have bad days. Or I’ll have to ask for an accommodation like sitting down.

And that’s when I learn a lot about a person’s relationship to illness. I’ll get pitied. I’ll get babied. I’ll get pep talks. I’ll get praised. I’ll get ignored. I’ll get written off. It’s never about me but entirely about the other person. It’s a little bit like seeing someone’s tell in poker. Most people have got one.

In the past I’ve let myself be invaded by these feelings from others. And it made me sad. I felt abandoned by all these people around me who couldn’t see me for me but instead saw their own feelings mirrored back to them. I felt invisible. I got treated like a cipher for disability or illness.

But underneath that little drama, an the actual person names Julie would be left alone to watch them play out their emotional theater. But I am done feeling abandoned by it. I don’t have to let anyone else tell me how I am. And it’s entirely up to others to decide if they can manage around me. I don’t need to make it my problem. I’ve got no need to abandon myself for them.

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Emotional Work

Day 766 and Friends

The worst part of getting back on Instagram has been the number of people who said welcome back. Now you might say that sounds kinda nice. And for the extended universe of people with whom I casually socialize, yes it was nice. But for the people I considered to be friends it was fucking insulting.

I left Instagram before my health troubles but the overlap on the timing on the two isn’t wide. Its mostly concurrent. It’s hard to post the kind of aspirational lifestyle bullshit that the algorithm prioritizes from bed rest. There is a reason Twitter and long form blogging on WordPress are where I spend my social media time.

A significant portion of people in my bucket of friends simply disappeared from my life when I disappeared from their lives. When I stopped reaching out they stopped reaching out. My timing certainly wasn’t great as my health imploded around the time a lot of my peers got married and had children. Totally acceptable reasons to be busy.

But I also I learned the hard lesson that most people are so busy keeping themselves afloat they don’t give a fuck if you are dying. Because they are struggling too. Yet it’s hard not to have a sense of abandonment when people don’t reach out across any medium except what’s proximate and convenient for them.

I went to so much trouble putting myself and my entire journey online. I knew I was harder to reach as I couldn’t leave the glide let alone my own bed. So I reached out from the pit of my own despair and hoped someone would see my hands reaching. And a whole world of people did. I made a lot of new friends that way.

I’ve literally written hundreds of thousands of words about my journey. And all of it is conveniently tagged and linked and is searchable. If you wanted to read about pain management or biohacking or my medicine regiment it’s all here. I’ve even written an FAQ on how to reach me. I am one of the most accessible people you will ever reach. I made this this space because I knew I had to reach out lest I be abandoned.

So when a bunch of socially networked acquaintances said “welcome back” on Instagram, what I really heard was you were never my friends in the first place. And that felt sad in a way I wasn’t expecting. I’m sure was true that most people were not my friends. I always knew was true for the vast majority of people. But it was sad to learn it was true for people I’d felt close to in the past.

For the handful that were actually friends, it was a bit disappointing to see what distance, time and sickness has yielded for my expectations. I hadn’t heard from them in years but they still think we are friends. And I don’t know how to break to them that no actually we aren’t. I have come to expect more from people.

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Emotional Work

Day 747 and Defeat

They say you shouldn’t make big decisions after a failure or a defeat. I failed during my trip to Prague. And I’ve been trying to let go of the sting of the failure. I was trying to help a family friend secure a visa to America. It was my second attempt and second failure. I’ve been working on it for two years.

I don’t know what to do next. I am unsure if I am able to do more to help. It’s humiliating to keep failing at securing a visa. Americans have little to no idea how hard it is to get into our country. Only 40 countries of 195 can travel to America without going through our Byzantine maze of rejection and waiting.

Maybe I need more time to pass before I’ll come up with another idea or solution. Every time I write about visa issues I get back a bunch of comments from folks and alas few of them appear capable of fixing the situation. I’ve got a few leads ranging from fixers to number one ranked legal firms. We’ve reached out and secured help from congressional representatives and ambassadors.

I don’t accept defeat easily. I chew on failure like a dog on a bone. I want to find a way to a solution for our friend but at this point it’s not just about them. I need to find a path forward for myself as well.

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Emotional Work Travel

Day 746 and Control

When I feel afraid I seek control. I have rituals and rhythms that help sooth the fears of my inner child.

This morning I was in my least favorite fear control pattern. I had to leave a temporary hotel for a new Airbnb as a mold issue destabilized my first week. Hives and prednisone and such. I hate packing and I hate the logistics of it. It reminds me of my childhood nightmares.

I set my alarm early enough to get breakfast and packing in before the slightly too early checkout. I was racked with anxiety I couldn’t repack everything as I’d acquired new items meant for an apartment stay and my suitcase overflowed.

I had vitamins and medicine to take but I couldn’t do more than choke down a croissant. I ordered fruit and cheese and than was too worked up to eat it. I hate wasting food so I wasn’t thrilled. I beat myself up for being a bad person who can’t take care of herself.

As soon as realized how had it was getting I took an Ativan. Joke all you want about benzodiazepines but occasionally they are the barrier between a traumatized woman and the history of her fears. Probably why it’s such a cliche. Just the sort of thing you learn as you are alone in a foreign country where you don’t speak the language.

I felt so rushed by the need to be out at a certain time. Each knock on the door a reminder of my failures. Each internal call to calm down a criticism I recalled from my father, my coaches, my bosses and my lovers. A hysterical woman is a shameful thing.

Each “hurry up” a reminder that I am someone who is policed and polite and controlled for other people’s convenience. I am not allowed to be scared or cry or reactive. A hysterical woman woman is, again, a shameful thing.

Finally after the tension and anger and shame bubbled up, I threw the first thing I could get my hands on to release the tension. Better than hurting myself a dim quiet voice said. I cracked my watch face. And immediately felt better. And so embarrassed I’d boiled over.

I’d only needed five more minutes to get myself together. Just a moment. Give me a second. Please just let me be. And each time my preferences had to accommodate someone else I lost more of myself.

I was able to exert the seamless self control over my emotions eventually. I checked out. I tipped. I’m swanned over to my new digs. I executed exactly what I needed and got on with my workday. But the shame stung and the control soothed it like a cold aloe gel.

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Politics

Day 740 and Immigration Failed Us Again

My second attempt at a securing a tourist visa for a friend failed this morning. If you’d have asked me a few years ago if I thought the American immigration basically worked, I would have agreed that, sure I thought it probably worked ok. No reason to think otherwise right? Phew I was wrong.

But after years of being humiliated over and over again by the state department for “the crime” of wanting a family friend to come visit us for vacation, I’ve never felt more ashamed of myself and my country.

I’m ashamed I was such a sucker. I thought we would still do the basic work of being a functional state. I’m ashamed that America treats people who want to visit us this badly.

We have well off, interesting, curious guests that want to explore our culture and spend their time & money seeing our land. We spit on our guests by turning away anyone who isn’t on a Schengen or ESTA waiver. You probably think that includes most people. I did. But we are wrong.

Only 40 of the 195 countries on the planet are granted travel visas without going through the visa embassy approval process. Most people have bad passports. Latin America, Africa, the Balkans, the former Soviet blocks and most of Asia have “bad passports” that require a tourist visa that requires years of waiting for appointments and almost assured disapproval at the Embassy.

I’ve never met a system so broken I couldn’t find a workaround. But here I am at the of my workarounds in tears at how I’ve let down my family and friends. The visa I’ve been helping with was denied a second time today after waiting since March for a second chance to re-apply. That first meeting at which we were also denied also took years of waiting.

And it is getting better. This round after flying to Prague, we got two minutes instead of thirty seconds in Frankfurt. In those minutes they still didn’t look at any of the materials prepared. Just a generic we don’t like the look of your people rejection. We got some boilerplate language about strong ties or weak ties and no we won’t read the 200 pages of supporting documents you brought.

I was a mess yesterday about how afraid I was we’d get down turned down again. But I thought surely I was being too paranoid. The lawyers we paid thought we had a good chance. We’ve brought everything possible for paperwork from mortgages to W2 forms. I’d taken personal financial liability for our friend. I let the government have an invasive look at our finances. I gave the consular offices the deed to my house. I worked for months to get a Congressional letter asking for a fair review of the application. None of it was reviewed.

Now in the aftermath, I’m not even sure if it’s possible to get a consular officer to do a fair review. Our congressional representatives wrote the consular office and they send back boilerplate with no details. No one reads the applications I guess. We can apply again. And again. But would good would it do?