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Chronic Disease Emotional Work

Day 527 and Accomodation

Last night I was lucky enough to attend CoinCenter’s annual dinner. I’m a big fan of the work they do to advocate for better crypto policy. And their entire team is funny as fuck on Twitter.

But I had a moment of utter embarrassment when I arrived early in the cocktail party hour that was taking place outside. It was over 100 degrees and Austin City Limits has hard concrete floors. There was no way I was surviving 45 minutes on a hard surface standing without a chair in the heat. But they had not opened the doors to the dinner space.

I got completely flustered. But my husband Alex was able to immediately take control of the situation. He asked a security guard if we could go inside. It was a no go. Talk to the front of house. The head publicist was immediately sensitive to the situation. Alex explained that I have ankylosing spondylitis which makes me invisibly but variably disabled. Heat swells my spine and makes it a struggle to stand.

I was absolutely mortified that I couldn’t manage being outside for the cocktail hour. The embarrassment and shame of needing to asl for a special accommodation felt overwhelming. But it was too hot for me to be comfortable and there was no place I could rest comfortably. It was either ask for help or go home. And blessedly my husband has the wherewithal to ask.

The publicist brought us back. The only other person in the dining was Senator Gillibrand getting settled by her team. And then suddenly it wasn’t awkward. The staff completely understood. It wasn’t putting anyone out to be let in early. It was completely fine. I had been willing to leave rather than put anyone out. It no one was put out. Everyone just wants to help.

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Emotional Work Travel

Day 523 and Logistics of Appearing Professional As A Woman

I’ve never liked packing. It brings back childhood memories of moving which I did once every two years until college. And even then it was only a three year reprieve. I’ve moved thirty eight times in my life and I’m about to do my thirty-ninth to Montana soon.

I’m headed to Texas for Coindesk’s Consensus conference. I’m giving a talk called InDAOstrial Revolution about the history of corporate governance and recent large scale macroeconomic innovation cycles. I swear it will have some memes and it’s a pretty degen talk overall (why how do you do my fellow kids). But no seriously one of the arguments I make is that American government arose out of fascism so it’s pretty lit.

Unfortunately Austin is literally pretty lit. The predicted high for the entire week is over 100 with a couple days over 105. I’m moving from Colorado to Montana as I find the weather to be too hot in Colorado with global warming. So that gives you some idea of how I tolerate heat. I really don’t have a wardrobe for this kind of shit. I have a couple items I bought for Miami for the last crypto conference I went too but it feels a bit flashy for Austin.

I spent a couple hours in my closet trying to figure out what the fuck might be tolerable and basically ended up with exactly what I packed for Miami. I brought a more professional navy wrap dress for my talk as I figured I should look the part. Though I did seriously just consider wearing an Obi gown just for fun. If my body cooperates maybe I’ll wear it out to a party.

Then I had to contend with what kind of skincare and makeup was going to work on the surface of the fucking sun. I rummaged through quite a bit of sunscreens. Then I pulled out all my favorite skin oils and replaced them water creams and essences. Because I’ll be on a stage I also had to find my power foundations. I rarely used powder anything on my face. I’m totally a cream woman. But being under lights meant I needed to consider some melt-proof polished options. I typically wear very little makeup these days as I’ve got great skin so I may as well show it off. But that reads poorly on a stage and on camera so it requires a bit of planning.

Honestly the logistics of being a professional woman in public are extensive and it’s a set of obligations no formal education ever covers. It’s not like there is a class in 10th grade about applying professional looking makeup. But there should be! I say bring back home economics and add in the feminine arts. I want manners and grooming and styling so everyone has the chance to do the right social signaling that puts you on a track for upward mobility. It’s every bit as a crucial a skill as being numerate. If I ran a school I’d include it in my curriculum and I’d be sure to pass it in to my daughters. If only because you need to know the rules to break them well.

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Emotional Work

Day 519 and Dogged

I am a obsessive. I latch onto shit. If I’ve got a problem in front of me I will absolutely fixate until the every blocker to solving said problem is removed. If a blocker cannot be removed, say it’s 11pm and shit is closed, then I hope you want to hear about it all night. It’s absolutely one of my most annoying personality traits. I just do not let up.

I had a bulldog as a kid. Her name was Maybelline. If she was playing tug you better believe you were going to lose. Bulldogs were bred to latch onto a bull’s nose and not let go till they had brought it down. An 80lb dog could corkscrew and thrash its body till it brought down a thousand pound bull. Don’t play tug of way with a bulldog. They just don’t fucking let go.

You are actually discouraged from playing tugging games with a bulldog because it will only excite them. And you don’t want to encourage a dog that can fuck you up to engage in behaviors that will fuck you up.

Equally if you see me latching onto something you should not engage. I will not let it go. I was looking at Airbnbs today as I’ve got some travel coming up. I knew I wasn’t going to book anything as I needed to get answers from a few hosts on basics like air conditioning. I had a few criteria I knew I wanted met so I just kept scrolling.

Suddenly I’d gone through several hundred properties and several hours has gone by. Sure I’d narrowed it down but I hadn’t actually picked a place. I couldn’t till I heard back. And so I just kept scrolling. Maybe if I kept at it I’d find something matching every single one of my criteria.

Eventually I had to be pried away. The bull wasn’t going down. I wasn’t going to be able to book as it was past midnight in Europe anyway. I’m pretty sure I’ll have the perfect place to book when I wake up. I did the work. I have lots of chalices. But fuck I cannot let it go. And it’s getting in the way of me thinking about other productive shit. Which is a metaphor for how something I’m sure. Being dogged is good. Until it’s not.

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Media

516 and Shoot the Puck

There is a Canadian comedy called Letterkenney that has absolutely won my heart. It has snappy writing that shines through characters that are given real depth over multiple seasons. It’s funny as shit and absolutely vulgar. I couldn’t recommend it more highly. It’s about a small town living and being a hick, but that’s almost besides the point.

The show had an ancillary character, Shoresy, played by the creator of the series Jared Keeso ,who is a foul mouthed hockey player. Shoresy was spun out into its own series and recently premiered. I binged it over the long weekend with my husband. I won’t spoiler any of the plot, it except to say it’s got one of the strongest season endings I’ve ever watched.

What started as a truly disgusting bit of scatalogical humor ends up being the basis for a show with real heart. I found myself getting teary eyed as a story of teamwork unfolded. There is some classic underdog (literally the team is called the Bulldogs), tropes but you genuinely don’t mind. The emotional journey still works.

I’m a startup person so I’ve got a soft spot for watching something messy come together. And nothing is messier than a team that is dysfunctional. You root for them. As teams coalesce and a sense of identity forms, you cannot help but root for the improvement.

I’ve got a theory that the emotional rollercoaster of that process makes you prone to latching into aphorisms and simple wisdom. Its got something to do with the humility that comes from learning shit and being being bad at that shut. I suspect because everything is so chaotic when it’s new. The process of “becoming” so simply do mind shattering that koans and just-so story pearls of wisdom have added weight. They anchor you in the chop of uncertainty.

For Shoresy, the aphorism that tugged most on my heart strings was “you can’t score a goal if you don’t shoot the puck.” A simple sports metaphor so evocative you probably saw it on Naval’s Twitter account. Well ok maybe in just in second stringer venture capitalist sincere post. Clearly Ted Lasso isn’t the only sports sitcom show that can teach us something about becoming our most best empathetic selves.

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Emotional Work

Day 515 and Rules

I’d never really thought of myself as a rules follower. I wasn’t a particularly troublesome kid but I had a healthy disdain for authority. I made a lot of teachers really miserable and confused the fuck out of my parents with some fairly radical choices.

And to my parent’s credit they just absolutely rolled with the punches. My mother was a champion at the sport of coping with teenage girl shit. Which lets be real should absolutely be an Olympic sport.

But I do think I give way more deference to social mores than I fully appreciated. I’ve got plenty of shame about how I’m not doing things right and that I’ll be judged by everyone for utterly failing. So I try to abide by certain expectations so that I won’t be judged.

I’m sure this is wild to plenty of people that know me who don’t see any of this shame or fear. I’ve got a big loud public persona. Im a shitposter. I’m not exactly going along with a lot of popular opinions.

But I am still strangely really worried about being seen as too radical, too much, too angry, too crazy, too weird. I don’t want to follow all the rules but I am afraid I’d I deviate too far something bad will happen. Though what I am not entirely sure. And that’s probably an assumption worth questioning for all of us.

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Emotional Work

Day 514 and Get Your Mind Right

Back when I was in my twenties Gawker was at the height of its power to anoint local stars in New York City. There was one personality I just thought was the funniest and most incisive judge of the human condition. She was woman whose slogan was “Girl, Get Your Mind Right!”

Tiona Smalls had a column on Gawker and eventually turned it into a burgeoning self help empire with tv shows and books. It looks like she is now a realtor so maybe internet game is fickle. I didn’t see any of her later pop culture work. But I did read her Gawker column religiously. I liked her no nonsense attitude.

The premise of her first book, which landed her the Gawker column, was that you’ve got to stop doing shit that isn’t getting you what you want. Hence “girl, get your mind right.” It was nominally a dating advice book. I mostly took it as a basic kind of self help.

I feel like I could use Tionna right now. I’m just emotionally so fucked by the last month. Granted I’ve made some pretty major life decisions in the last thirty days but it doesn’t feel like I should be so wrecked. I am absolutely blaming the flu for kicking up chronic inflammatory shit. Watch out for long Covid folks! Viruses have a weird tendency to go latent. But like really being sick isn’t an excuse to have a bad mental state. I’m practically professionally sick so this shouldn’t phase me.

I’m thinking of maybe going to Europe for a bit. Enjoy that the turmoil in the markets means things are a bit slow for work. While everyone figures out how much to freak out about a recession I might as well reset my central nervous system with some down time. But whatever happens I’ve got to get my mind right.

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Emotional Work

Day 512 and Not So Glamorous

Remember that respite I had yesterday from the flu? Yeah me neither! I barely crawled out of bed this morning after some pretty gnarly dreams. My subconscious was going through it.

I had a three hour session of biofeedback yesterday working through some of my self limiting beliefs. It’s truly wild how you will just perpetrate the worst emotional violence on the people we love the most. Alex and I in particular love acting out various O’Henry stories in our marriage. Gift of the Magi is a particularly favorite where we will actively sacrifice something we love for the other only to discover we’ve destroyed the very thing that our partner loved. It’s a super fun cycle and every time I think we’ve found a way out of the cycle we manage to do it all over again. The problem is the glue.

So I was a bit frazzled today from working through all the emotional stuff. I need to stop giving Alex power by letting him take care of me. He needs to drop care taking me. You know standard marriage stuff. I can write whole love letters about it. Anyway I digress.

I was a bit fried today as I was recovering from pushing yesterday. I happened to have a friend that wanted to talk about how I was doing. I think he was expecting a more glamorous even sexy answer. People often think I’ve got a more interesting life than I do. Which is funny as I feel like I write about the mundane details of chronic disease with some frequency. But today I was not swanning about in Europe or writing love letters. I was in a dark cold room fighting off a migraine and some spinal pain. Because sometimes life just isn’t all that glamorous. And honestly that’s ok.

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Emotional Work Startups

Day 505 and Deadlines

I’m trying to stave off a cortisol spike that my body simply does not need. I’ve got a talk coming up for Consensus in June and I owe an editorial with my main thesis along with any visuals I may need for the talk due next week.

I know the area I plan to speak about quite well. It is titled the InDAOstrial Revolution and I plan to cover some far future possibilities for what the new organizational structure can bring. And I do mean far as I’ll talk about some radical ideas like data collectives for rare diseases and networked nation states. I’m really excited as I think decentralized autonomous organizations offer us a new path for how we can pool different kinds of resources. I think DAOs give humans a chance to build better bigger weirder things on totally radical timelines just like the advent of the corporation did before in the industrial revolution.

I’ve been watching Gilded Age as I’m a sucker for set pieces but also because I love stories of wealth and power and cultural mores being pushed. I think DAOs have the chance to do that for society and the family in a way that is just as unsettling and ultimately wealth creating as anything we saw in the Gilded Age. And the changes we see to cultural norms will be every bit as revolutionary as the ones we see with inventions or investments. When times change, we push all of the ideas we have about how to properly organize individuals and citizens with it.

What I’m saying is I’m obviously passionate about the topic and even when I’m home with the flu I’m thinking about ways to knit together different worlds and metaphors. I might not be the best expert on DAOs nor am I remotely close to being one of the earlier people to get into them, but I’m absolutely an informed and enthusiastic professional with the training to think about this holistically. So I’d listen to me if I had the chance.

Nevertheless I’m worried I’ll botch the talk. My mind wants to worry I’ve run out of time to do a good job (I obviously haven’t) and that even if I put in a lot of hours it could have been more. I could have started sooner.

But honestly I’ve got to let that self defeating talk go. What I bring will be enough. And a deadline looming even with a sickness is no reason to worry when you know and love a topic well. So I’ll trust myself to bring you something good.

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Emotional Work

Day 504 and Write Down

I woke up coughing so hard I couldn’t catch a breath. I’ve forgotten how exhausting being sick feels. I legitimately completely forgot how it felt to be tired and in pain. And what a fucking luxury that is to realize.

I was in a miserable mood this morning. Why was I losing an entire week when I’ve been functional and dare I say normal since the new year? I haven’t had any issues since I got Covid over Christmas break with the exception of a couple nasty migraines and a few modestly shitty days. But today was Thursday and I haven’t felt even modestly human since Monday. It looks like I just have to accept in having a bad streak.

My husband very sensibly pointed out that I didn’t need to act like this was a catastrophe. I’m always looking over my shoulder in fear that I’ll have a relapse and be reminded of he limits of chronic disease. And truth be told I will have them. But I’ve been making the choices that shorten those bad days. I’ll be living a life in the country in support of keeping a strong body. It’s almost comical to type that as it feels a bit like tuberculosis and moving to the west. But then again I’ve always been a mountain woman at heart. It was only a matter of time till I returned to the terrain of my family. Maybe I’m a bit of a traditionalist after all.

Nevertheless this week is a write down. It won’t matter in the grand scheme of things. I’ve made the good long term choices. I’ve accepted that the fight is long and the odds aren’t great but this is America so you’ve got to fight like you might be one of the lucky few that win. I can only hope I am treading a path that gives me the chance to make a better life. And that I’m being reasonable clever and reasonably hard working and that’s often enough.

It’s actually quite hard to trust the math. You want to give in to all sorts of silly biases. Like that every second counts. When no it’s mostly just how your habits add up over time. The mind really strains against basic math like compounding. But I’ll try not to get my fear get in the way and trust that the figures probably add up and I’ve generally done the homework to trust my inputs.

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Emotional Work

Day 500 and Halfway There

Five hundreds posts is a nice even number. In my heart I find myself fantasizing that I am halfway there. Halfway where? The emotion of a midway point is somehow powerful to me. That I could have known when I started that I’d make it even 100 days let alone 500 seems preposterous. And yet now that I am here I have the quiet confidence to say that yes I will make it to one thousand. That is what I’ve learned from writing every single day. I’ve learned I can do what I set out to achieve.

Writing every single day has transformed my life. I say this without guile or metaphor. I just drove back from Montana to Colorado today. I left Bozeman with the expectation that I’d be returning to spend my next decade in Montana. When I set off on this experiment to write something every single day I didn’t expect tangible impacts. I did it because I thought the exercise would be good for my thinking and my writing. And instead I found that the daily discipline pushed me to life my life more honestly.

It’s been good for my emotions. To have to bring some part of myself to every day and genuinely be present has quietly and slowly grown capacity to be present in the world. I’ve learned more about who I am as a person. I’ve learned more about my needs and wants and boundaries. I learned about how I love and who I love. By ruthlessly prioritizing one activity, I came to see what my actual priorities could be with some investment. Writing is the discipline that gave me the framework to become myself.

And so here I am picking a place to spend the next decade. It will be a huge transition. We are going to be rural people after decades of city living. Because finally we can.

I can’t tell you that all of this emotion about moving is about the pandemic and how much I’ve experienced it as profound sense of displacement. It’s all true. But also I’d been unsettled by illness and medical leave long before lockdown. I have felt like my life was unanchored for sometime. Previously I’d been a Manhattan woman through and through. And then an escape presented itself and I found myself longing to go through to see what else I could find.

We didn’t commit to rural living at first. We went to the Hudson Valley. The first foray out of the city after a decade didn’t stray too far afield. We’d seen friends of ours find farm houses nearby. But it wasn’t enough. It didn’t have the mountains we longed to see.

As our first summer wore down, we after an intense two weeks, decided on a townhouse sight unseen in Boulder. We’d discussed a move to Colorado for almost two years prior to that. We’d run scenarios on how we could pull it off. But it seemed like a fantasy. But then the pandemic made work remote possible. Plus telemedicine meant I could leave my doctors beyond a days drive. I was finally free to do what I wanted without it being a huge risk to my health.

And this is why I say the writing was so crucial. Doing it every day slowly focused my mind.

I’ve had five hundred careful days of assessing the life I was living. I had five hundred days where I thought about what I valued and what I wanted to invest in. And it paid off. Suddenly the things that I’d never quite seen clearly were manifesting themselves in our lives perfectly formed. And it was clear that we needed to make the leap to take these dreams and make them real.

After five hundred days of writing, I have a new sense of clarity on my desires. I am shedding the weak and thin desires. And I am honing in on where I want to build and with whom. And yes much of it centers on being in Montana and living a life of resilience.

I’m totally serious about the chaotic.capital thesis. I am preparing for a more volatile world and I plan to be as present and grounded as possible in it. I’m an American and I’m proud of what that used to mean. I’ll be building out there with everyone else who makes the choice to live a real life and make real things. It’s not going to be easy but I’m not going to live life on anyone’s terms but mine.