Tag: Extremely Online

Categories
Politics Preparedness

Day 779 and Future Shock

It feels like a lot of people are finally catching up to what a shit show institutional distrust has wrought on American society. Nobody trusts anyone and everyone is going tribal. The level of panic is feeling palpable across media narratives and we are being offered a choice to either get worked up or get on with our lives.

I will admit I feel a little bit smug on this point as I’ve been prattling on about doomer shit forever. But I also got off my ass and moved to Montana and starting picking up some skills so I could continue to feel like my life had some measure of resilience to it. I ain’t getting all worked up about the end of the world because I can’t live in perpetual anxiety.

Maybe it’s because my parents are hippies that it’s not a big stretch for me to imagine what happens when cultural conventions break down. The post war generation had a whole other set of traumas around social change. And a lot of splinter subcultures emerged from how they were specifically betrayed by all major institutions as well.

So I am reluctant to say this is new. Decline is a long slow managed process and new revolutions turn up all the time to solve our problems. I believe in human ingenuity.

But I do think we’ve sped up the pace of culture as we ramped up new technology as each new instance of connectivity has somehow also wrought alienation and anxiety. It’s hardly surprising that half of the internet is in a complete panic over what rules of the game changed.

What can I say except that it’s so satisfying to lie to yourself about how you benefit each time a cheat code is revealed. Perhaps just enjoy the power and get on with it. I don’t know what to tell you to do but find a way to make peace with it. Because otherwise you will be preyed upon. There are thousands of kinds of power and I suggest you find yours.

But I am genuinely concerned that we are headed to a further and faster and new types crisis of meaning as new rules get introduced, and every actor that desires to hold power will be running to capture it.

And I do mean everyone. It’s not that your tribe is good and the other tribe is bad, rather it’s hard for humans to trust each other with too much power. Independence is a very heavy burden and it’s insulting when you won’t carry your share. We’ve been negotiating the boundaries of it since Socrates got poisoned for corrupting the youth of Athens. And we still don’t have a good answer to what constitutes human excellence.

Categories
Internet Culture

Day 778 and Touch Snow

I am so all typed out right now. I’ve been firing on all cylinders on text and direct message and group chats and Signal and Telegram and fuck now on WordPress.

So much shit is happening and I need to maybe get offline for a bit. Even if I’m just bringing it back down by a couple hours I think I’d be in good shape. I just literally cannot believe how much shit I wrote today.

I have had a few too many things click into place. So I am going through a bit of a level up while at the same time trying to remember to take care of myself. I am a creature that lives off the acuity of my endocrine system. So I can’t let myself get too stressed or I will literally fuck up my work.

So I will keep today brief except as a reminder that it is possible and desirable to maintain a certain stand of rhythm within your day. Because if you cannot regulate your autonomic state you’ve got no business even being in the game.

Categories
Emotional Work

Day 777 and Filter

I like to say I’ve got no filter. It sounds cool to just casually admit you’ve got the balls to say whatever you like. I’m a prolific shitposter. Heck, I’m a prolific poster. Just look at the beautiful seven hundred and seventy seven day marker on this post. I write a lot.

But it’s a bit of an obfuscation to say I’ve got no filter. It’s true that I don’t self censor. I do however sift through what I’m going to say and make sure it’s appropriate for the the audience. I don’t edit necessarily (long time readers have probably noticed the numerous typos and grammatical errors), but I do think about who I am talking to when I write.

I am a big believer in meeting people where they are. Maybe it’s a function of how much time I’ve put into therapy, but I’ve become much more aware of how sometimes a person simply cannot see your point of view. Trust is fragile and we’ve not always earned a right to discuss topics that make a person upset. Through empathy you can get closer though.

Perhaps you’ve been the one with the overly emotional reaction. I’m sure you can relate to the kind of irrational reactionary feeling that comes out of nowhere. You aren’t sure why but certain people or topics or phrasings set you off. Maybe you know why. “Oh that reminds me of my overbearing mother or absent father” you might think. But as feelings are not facts, being rational can only help so much.

So I will do what I can to address the person, or in the case of social media the audience, with language and framings that work for who they are and where they are at emotionally. But I always hold onto my truth and my boundaries. Showing empathy means you can be present for someone you disagree with. And I hope everyone can see the value in that.

Categories
Medical Politics

Day 776 and Informed Consent

I’d really like to write about informed consent and whether it is a convenient fallacy to obfuscate the harsh reality that medicine isn’t as black and white as we have been led to believe.

It’s a complex topic so consider this my notebook of scraps and gently judge it’s content as it’s not a full cohesive argument so much as a collection of thoughts I’m working through here. If you feel you are reacting to it strongly please work through why on your own time.

I am on this topic as I am reaching a point of frustration with the discourse around transgender issues and who is responsible for informed consent. We’ve got a spiraling culture war where everyone is ignoring basic facts like children are below the age of consent and thus their parents are responsible.

Our entire legal system is based on the premise that before 18 you have not reached the age of reason and are not fully responsible for your actions. Yes it’s flawed and doesn’t always work that way and we try minors all the time but the fact remains parents are the guardians of their children.

I am oddly both well read and well cited on issues related to informed consent and substituted judgement as I was a medical ethics research assistant at the University of Chicago. I got paid $10 an hour for my troubles so you know my credentials check out (in sarcasm font). Seriously go look I’m an author on a few papers.

Making a choice to engage in almost any medical procedure is risky in ways no one, not even doctors, can fully articulate. Bodies are complicated and abiding by a simple principle like “first do no harm” turns out to be hard calculus.

Sure you can get awfully close to the right answer but you will be pretty far down the calculating differential equations path once it dawns on you that we can get infinitely close to certainty but certainly itself cannot be reached. Turns out math is useful in daily life.

Patients have a right to chose their own risk parameters. Doctors do their best to inform. But the grey area is so wide it’s practically an abyss. Add in making decisions for a minor and it’s all best guesses and other people’s facts. Believe the science means you’ve got to do your own math and it appears most people are innumerate.

I am willing to make big criticism of the transgender panic crowd because they’d prefer to pick and chose convenient narratives like “think of the children” as a defense. I’ve heard that tune before in every other moral panic. And yet it’s still not the government’s job or the doctors job to make the call. It is the parent’s call because children require the substituted judgement of their parents for informed consent.

If this is annoying or unsatisfying to you well that’s a bummer for you. I’d encourage you to read up on how we’ve scapegoated populations in the past to make sure the in-group’s priorities and social mores are sustained. Every moral panic has one. I’d recommend René Girard’s work here.

When we fixate on a vulnerable population the story is always the same. And I believe anyone who is reading this blog is smart enough to grasp that in good faith. And we’ve got a long history of scapegoating people who don’t conform to our majority population’s comforts.

The transgender issue is no different and trying to wedge it into a “but the children” argument runs up against two issues. Most of our American historical moral panics have scapegoated in this exact way. And medicine is simply not so concrete that any treatment for any condition is risk free.

Categories
Culture Internet Culture

Day 771 and The Chaos In You

I’m a high school drop out. But in a sort of non-traditional sense. My first encounter with disability happened in the wake of living abroad as a sophomore. I found myself simply not attending my junior and senior years of high school. It was a complex situation.

My mother battled against teachers and administrators using the ADA and standardized tests as her weapons. The College Board as a series of 34 tests called the CLEP that gives you credit for having college level knowledge. It’s a very good short cut for self learners & autodidacts to get credit for what they know. And it’s way cheaper.

Between CLEP and AP exams I was able to provide a pretty convincing portrait of competence to both colleges and my shitty college preparatory school. It was enough to get me into university and to extract a high school diploma despite a record of non-attendance. Reasonable accommodation wasn’t really a thing at the time but you could bury the fuckers in paperwork. A tactic less ethical parents than my mother have surely realized by now.

I was a bit of an orphan in my class as I was quite frankly never there. What teacher could possibly vouch for knowing me? It’s because of this lack of attendance that don’t really consider myself a graduate since the diploma is merely function of testing out. A fancier version of getting one’s GED as it were. So when it came time for various teachers to do things like writing quotes for graduating seniors nobody wanted me.

My French teacher from my sophomore year (otherwise known as the year abroad) must have grabbed the short end of some straw as she ended up having to say some shit about me and opted for the Nietzsche dancing star pablum.

One must still have chaos in oneself to be able to give birth to a dancing star

I felt terrible for her. She had to find a suitable quote for a troublemaker of the worst sort. I was institutionally non compliant. We hate when people have too much chaos in themselves. Sure culture is mostly made from outliers but don’t be too weird.

Sure dancing stars sound poetic but these days Nietzsche is just another coded message board signal for Leopold and Loeb Part 2 Ubermensch Trad Rad Cath Boogaloo. Naturally some of his current fans are fuck ups because institutional power is always going to push back against chaos until it proves profitable to absorb it. But it’s not always clear who will become absorbed into the mainstream as acceptable.

I’m a careful watcher of who is considered dissident as I’ve been that chaotic kid basically since I was born. I was protected from so much of the sanding off that comes from social acculturation thanks to my parents.

But it’s almost impossible to protect oneself entirely. Much of the work of going to therapy as been about recovering the soul of that chaotic child. I hope I’ve gained the skills to protect her from being beaten down any further.

Categories
Emotional Work

Day 766 and Friends

The worst part of getting back on Instagram has been the number of people who said welcome back. Now you might say that sounds kinda nice. And for the extended universe of people with whom I casually socialize, yes it was nice. But for the people I considered to be friends it was fucking insulting.

I left Instagram before my health troubles but the overlap on the timing on the two isn’t wide. Its mostly concurrent. It’s hard to post the kind of aspirational lifestyle bullshit that the algorithm prioritizes from bed rest. There is a reason Twitter and long form blogging on WordPress are where I spend my social media time.

A significant portion of people in my bucket of friends simply disappeared from my life when I disappeared from their lives. When I stopped reaching out they stopped reaching out. My timing certainly wasn’t great as my health imploded around the time a lot of my peers got married and had children. Totally acceptable reasons to be busy.

But I also I learned the hard lesson that most people are so busy keeping themselves afloat they don’t give a fuck if you are dying. Because they are struggling too. Yet it’s hard not to have a sense of abandonment when people don’t reach out across any medium except what’s proximate and convenient for them.

I went to so much trouble putting myself and my entire journey online. I knew I was harder to reach as I couldn’t leave the glide let alone my own bed. So I reached out from the pit of my own despair and hoped someone would see my hands reaching. And a whole world of people did. I made a lot of new friends that way.

I’ve literally written hundreds of thousands of words about my journey. And all of it is conveniently tagged and linked and is searchable. If you wanted to read about pain management or biohacking or my medicine regiment it’s all here. I’ve even written an FAQ on how to reach me. I am one of the most accessible people you will ever reach. I made this this space because I knew I had to reach out lest I be abandoned.

So when a bunch of socially networked acquaintances said “welcome back” on Instagram, what I really heard was you were never my friends in the first place. And that felt sad in a way I wasn’t expecting. I’m sure was true that most people were not my friends. I always knew was true for the vast majority of people. But it was sad to learn it was true for people I’d felt close to in the past.

For the handful that were actually friends, it was a bit disappointing to see what distance, time and sickness has yielded for my expectations. I hadn’t heard from them in years but they still think we are friends. And I don’t know how to break to them that no actually we aren’t. I have come to expect more from people.

Categories
Internet Culture Politics

Day 764 and Natalism

There are a number of cultural streams in American life that have all aligned around being natalist. You want your country to have babies because it’s good for the economy. And presumably also good for national security.

This fairly basic insight means everyone from techno-libertarians to Catholic homesteaders believes that Americans should be having more babies. It is not just the Quiver-full types having six babies anymore, so are our wealthiest aristocratic titans of industry.

But this alliance is missing some crucial basics. Like for instance the fundamental civilization level things we need to do to make it desirable and affordable to have children. It’s expensive to be pregnant, it’s expensive to raise children, it’s expensive all around to be parents. I spent $40,000 on IVF and it ruined my health. If I counted lost wages and being forced to sell my startup I’m the total costs is seven figures.

I don’t know if you’ve looked at just the costs around having a baby but it will shock you every time you turn a new corner in the fertility space. I learned today you will spend between $100,000 to $200,000 to hire a surrogate. It’s a person’s salary and a lot of medical care so sure that seems right but damn.

I guess I am interested in the math of Natalism to see if I could afford it. I am one of those “tech elites” that thinks we have to have children to drive the innovation of tomorrow. Our future is based on an optimistic hope that maybe we can push for a better future. Humanity won’t continue without children.

But I don’t have a body that is all that healthy without medical intervention. I live a normal life now and can work full time again because I take some exceptional medicine.

But it’s not medicinal regime that can be combined with pregnancy. So if I want to carry a child I have to go off what amounts to life saving medicine. Without it I’d be on bed rest. You can imagine the math I’m doing in my head? Do I want to pour another million into having a family?

So what’s a girl like me to do? Surrogacy right? But I’ve got 10 eggs and 2 embryos so assuming a third of them make it, that’s nearly half a million dollars in surrogacy fees. To get three kids. That’s a heavy price tag on the future. If more of them take it gets even wilder.

Now ok sure I’d rather we encourage a world where younger healthy folks do things naturally but don’t we want everyone going at maximum effort for a better tomorrow? Shouldn’t we want technology to solve this? Where are my artificial wombs at?

Categories
Startups

Day 761 and Calls

Yesterday ended up being a big day for me. A couple projects that have been in the works for months for final confirmations. That meant I spent a lot of time on phone calls yesterday.

I hadn’t planned for Monday to be so busy. I have therapy in the late afternoons so I tend to back my mornings but I still leave enough breaks to come down from the energy and excitement of a big call. I find synchronized communications to be a little overstimulating so I like to meditate and do Wim Hoff breathing to break down my cortisol levels.

But I couldn’t make it happen yesterday. It was too much back to back. I went from an hour long fact checking media call right into my two hour group therapy session. I’d had a few other smaller calls before it as well.

My earbuds were the first to note the issue. With about fifteen minutes left in my two hour Zoom I got the 10% battery left warning from my AirPods. My technology realized it was time to recharge before I did.

And boy was the decay quick. The AirPods went bwoooop and went dead. I could feel myself getting a little dazed myself. As soon as I was off the call I checked my HRV using Welltory and found all my systems were drained. Too many calls has called on too few resources.

Categories
Internet Culture

Day 760 and Beginner’s Mindset

I recently decided to boot back up my Instagram account. I’d let it lay dormant for almost five years. A lot has changed since I stopped using it. I’ll withhold judgement on whether it is for the worse or not. Right now it’s mostly just modestly confusing. I feel like a beginner again.

Amusingly one of the first genres of advertisements I got was for Instagram editing tools. There is a whole cottage industry of paid applications that help you put together Reels and Stories.

Many of them are relatively sophisticated with templates that help you overlay text, audio, music and advanced video techniques. Being a creator these days requires a fair amount of sophistication so I’m not surprised to find $10 a month editing applications.

I am struggling to find to find the joy in the experience. It feels like like a lot more work to make visual content than written. Now, I grant that it didn’t feel easy writing at first either. Twitter was stop and go for me for years.

But Instagram is a more natural place for some of my interests like cosmetics and shopping. I want to give it a fair shake. And maybe I’ll find joy in the space with some time. But becoming fluent in the language of Instagram’s visual literacy makes me feel stupid. But I guess that’s what it feels like to be a beginner again.

Categories
Aesthetics Internet Culture

Day 758 and Two Sides

I somehow missed watching the Mandalorian when it came out. My husband isn’t really into Star Wars and I’m a Star Trek person so as just missed it. I started watching it today for the first time and I’m experiencing it somewhat fresh of its original release context.

But I’ve got a vague memory of the culture war issues that it triggered at the time. Somehow Gina Carano got coded to team red and champion of the downtrodden right wing. I honestly couldn’t tell you why except I think she mouthed off on Twitter. She sacrificed her career as a main character on prestige Disney tv show for shitposting. She thought she had social latitude that she just didn’t when working for Big Mouse. Shockingly naive if I’m honest.

That somehow everything has a side in the culture wars is a real tragedy of our time. Because a couple years pass and whatever dumb stunt that got you put on team red or team blue probably gets forgotten. Normal people have moved on and the discourse gets digested eventually into common knowledge. Memory is a fickle thing. Madeleines and Proust or something in that direction.

If you are team red you go into an alternate universe where apparently being a dick with a right wing slant on YouTube gets you 50 million dollar media deals. I assume there are as many opportunities as now being on team red is a real badge of honor and whole media ecosystems arise because it’s an actual demographic. Shocking somehow to some people but I guess I’ve always lived adjacent to team red. I’ve be always known you could make money on that audience.

I suppose the real tell is that if you are team blue you don’t really change ecosystems at all if you pick their side in the culture war. You get to maintain your plum gig at Disney. You do not have Ron DeSantis gunning for you. I hear that woke mobs come to get you but I’ve never actually seen it in action. The worst part of my chaotic evil leftist Twitter bubble stops at Taylor Lorenz though I am aware that a murky left exists beyond Chapo Trap House and I know about Tankies.

It just seems so strange to take sides in any of this nonsense if your aim is to make a living as a performer. Sure maybe you can cater to one niche or another. But really isn’t the whole point finding the things that bind us all in the human experience? I always assumed art was meant to transcend whatever petty shit happened while making it.