Tag: Health

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Chronic Disease Medical

Day 1094 and Small Progress

I am clinging to the small progress in my physical condition. I feel numb and exhausted which is an improvement over being so much pain I can’t think while also breaking the variance ranges on my Whoop.

It would appear as if I missed Christmas and much of the week off even though I did enough doing some work when I had a few good hours.

I figure if I aggressively pursue a program of medication, rest and positive inputs I can make the small progress that should have been back if I just don’t rush it.

No one is looking for 2024 to get here and faster than necessary. Cling to the last moments of the year and cling to small progress. Who knows what happens next.

Categories
Chronic Disease Medical

Day 1092 and Responsible

Being responsible for your own life sounds like it should be a shared cultural goal. I was raised to view America as a place where we placed high cultural value on personal responsibility. Now I’m not so sure it’s a shared value for Americans at all.

I have been struggling this week with the responsibility I have to myself. I’ve been up and down with pain so excruciating I’ve struggled to think. And I’ve had a few glorious respites from the intensity. My afternoons have been a misery as my pain gets worse as the day goes on.

I don’t seem to have fully resolved what is causing my pain to be so much worse this week and I am praying it is just exacerbated by my end of year fatigue.

With that in mind I will be responsible for myself and keep this short. Hopefully I’ll be up for a year end review before the year is actually over.

Categories
Chronicle

Day 1090 and Winter Breaks

I would very much like to take an extended break to restore my mind and my body. I feel as if I could use a week or two offline.

The holy nights have held a place in my heart and mind as the season for introspection. I like doing fasts during this time, but it’s not been physically wise to take an extended fast recently.

I expect 2024 to be a big year. I had lots of little things to wrap in 2023 which is impacting my capacity to fully check out for the remainder of the year. Duty calls I suppose. I am keeping my obligations to others but I may need to find a way to keep obligations to myself.

On that note, I’ll keep this short. It’s better to get back to reading and resting when my capacity is diminished.

Categories
Chronic Disease Medical

Day 1089 and Silencing Inputs

I am doing very poorly today. All inputs into my system are being read by my senses as pain.

I’ve spent the last two or three hours in a dark room without any systems inputs but background. I’d hoped to become unconscious but was unable to sleep. It was an extended period of consciousness doing battle with pain. I didn’t set a timer or I’d be able to tell you for sure how much time I spent in this state.

I couldn’t read text on paper or watch visuals on a screen, I couldn’t listen to audio or intake spoken word without difficulty and intense focusing, nor could I tolerate novel or new smells. You’d think this would be very boring except that the intensity of the nerve outputs clouded all thought.

My body seems to be reading all changes in systems inputs as painful. I am unsure where the proximate source of my pain might be as it’s both too intense to get outside of and too diffuse to respond to mindfulness.

Typical locations like my thoracic spine hurt but I feel it in every joint as I take inventory. My intercostal muscles across my rib cage and chest are so tight I’d swear I have several broken ribs if I didn’t know better.

I’ve taken several pain medications of varying strengths (anti inflammatory and analgesic) to little effect. I had to stop watching Christmas movies with my husband sometime in the afternoon as I simply couldn’t handle the noise and sound coming from the tablet.

I don’t know how coherent my writing is at the moment and I feared I wouldn’t be able to muster any focus. I am finding it hard to look at my mobile phone screen even at the minimum brightness setting. This usually indicates a migraine but that seems like a secondary issue.

I hope this passes as I do not have time to manage this kind of symptomatic intensity. Perhaps my body knows this and is simply allowing a breakdown on a day where it’s safest to do so. In which case I may need another holiday or two to actually find a break restorative instead of as emergency maintenance.

Categories
Biohacking Chronic Disease

Day 1086 and Body Language

When I was younger I spent a lot more of my time in my body. As I’ve aged I’ve become more cerebral and this has had a negative impact on my overall health.

I had the opportunity over the last two days to do some bodywork with very present people. It was frankly much needed. I haven’t felt entirely in my own body and was as reactive.

It helped to be with someone who was very present and attuned to body language. I spend so much time communicating in virtual spaces recently that I’ve felt further away from my body than I’d like.

If you haven’t had cause to get in better touch with your body this week might be a good time. There is something to be said for simple communication between humans that isn’t captured in our writing. Maybe artificial intelligence can work entirely without being embodied but human intelligence is still very much embodied.

Categories
Biohacking Medical

Day 1084 and Tension

For the last week or two I’ve been getting tensions headaches. While I have migraines that manifest mostly around hormonal cycles, I can’t say I’ve had a tension headache before.

Migraines make me sensitive to light, sound, and smells but this new headache type was more like a pressure inside my cranium. Typical migraine medicine like Imitrax didn’t do much but neither did Advil or Tylenol. I tried caffeine to minimal effect. Exercise seemed to exacerbate the issue, especially if I was getting my heart rate up.

After discussing it with my physician I’ve got a suspicion that I’ve done something compensatory that has caused tension in my upper spine.

I have ankylosing spondylitis in my thoracic spine so it’s a decent hypothesis that to protect myself from the chronic pain there I’ve added additional pressure further up my spine. A inflammatory issue causing a complete different mechanical issue is a logical differential diagnosis.

I’ve got a couple of approaches to fixing the problem. I can get some body work done to relieve some of the pressure in my neck and shoulders with a massage, physical therapy or craniosacral therapy. I can take more magnesium as it is nature’s muscle relaxer. I also can take muscle relaxers.

I think this development is coming now as I’ve been really upping my intensity professionally this fall. I’ve traveled a lot, attended a number of conferences and meetups, and generally applied acceleration to everything in my world. It’s a good thing that Christmas is almost upon us as it seems like it could use some time away from the world. I will be turning within.

Categories
Emotional Work

Day 1074 and Go Go Go

I feel as if I had a lot more trepidation about the future before the pandemic. I wasn’t so sure if I had a clear view of how my own personal philosophies were meant to engage with the scramble of building, and then surviving, my own life. That seemed like a luxury for people higher up the hierarchy of needs than I was.

I feel like I got a lot wrong even as I see how I was equipped with so many tools that I used clumsily. I wish, in some ways, that I’d been surer of my own knowledge earlier. I didn’t trust myself. I felt like a Cassandra doomed to see dire outcomes.

And yet I retained some sense of optimism. You can see my doomer arcs clearly across the written records as systems failed me and then failed others. Natural disasters and chronic illness in very real ways forced me to overcome any inclination towards a culture of nihilism. I found that I couldn’t give up.

There was no comfort to be found in saving myself but I did. And now I find myself simply done with trying to muddle along. I am getting much louder about my own alliances and beliefs. I am updating my priors and throwing myself into fights. I am choosing sides even when I don’t care for all my compatriots. Neutrality is easier to maintain at the edge of an empire surely but I hard limits on what I find to be acceptable compromises in a free society.

Categories
Internet Culture Medical

Day 1069 and Fever

I both literally have a fever in my own body while I am watching a fever burn through one of my favorite extremely online communities in the form of effective acceleration memers versus a heavily armed establishment unit of academic utilitarians. Who would like you to know they aren’t effective altruists I’m sure.

I myself enjoy a good internecine debate as I became a Calvinist as an adult because fuck it the Reformation is the home of the institutional skeptic. Flame wars are the modern 95 theses. And naturally everyone involved thinks their counterparts are reactionaries. Tyranny of small differences.

I’d say more about this but it’s later in the day and like I said I am running a fever. My immune system is remarkably active so I’m honestly shocked a fever got through at all. I actively beat my immune system into retreat so whenever it gains ground I am annoyed and confused. So it’s probably best if I sign off as it’s never a good idea to be letting your fever dreams get the best of you.

Categories
Biohacking Emotional Work

Day 1068 and Routine Versus Speed

I always find myself disappointed by how much time I put into health. Perhaps it’s a sign of how high expectations are for performance in the tools we use daily that it seems preposterous that it should require a third of your time in maintenance.

Perhaps this is an unfair intuition on my part. For every hour of flight the F-16 needs around 17 man-hours of maintenance. I’d prefer to not be quite so resource intensive as a fight jet but maybe fighting entropy does require 8-10 of my day.

As I try to do more with my days and push myself to do more in less time I still have to put in the effort to stay at my old baseline. I put my faith in the miracles of compounding. What was once a huge effort is now a habit.

I try to fight my tendency to optimize even as tracking my own data has its benefits. Most of my inputs are just a refinement on existing heuristics. Occasionally I’ll find someone who has a fix so might better than what I’ve been doing it fundamentally resets my understanding of my works model. It happens more than you’d think.

In accelerating I must apply more energy to my existing systems. Or course the old systems seem to call out depending more. As I push for performance my body demands its sleep, its fuel and any other number of needs. Sometimes it’s a want. It’s not always clear so I test.

Categories
Travel

Day 1064 and Faster San Francisco

I am energized by my day. Any residual pain from the challenges of travel have been mitigated by rest, exercise, meditation and lots of medication.

If I could to give only one argument in favor of acceleration, it would be our capacity to improve medicine. I’d like to find a cure to my ankylosis personally, but it’s bigger than all that. I believe we should do everything we can to improve the health and well being of humanity.

I do so much to balance my own health and wellbeing just so I can keep working and contributing to the startups I love so much. Often I miss so much of life that others take for granted like socializing together. Hobbies, socializing and much of the tapestry of living together is off limits to me as energy budget is too high.

I’d like more capacity in life so I can chose not only to work, but to go to meetups, dinners and whatever else folks get up to in their leisure and community hours.

I am not one for FOMO while I’m in bed recovering, but on the occasional day where I get to do leisure activities I am reminded that I could have more of life if we agreed to prioritize the acceleration of medicine. My energy budget is only limited by the state of our healthcare.

On that note I’ll be at an e/acc meetup tonight in San Francisco. If you think you see me do please come up and say hello. I’d love to meet you. I’ll be wearing the leopard dress I have come to think of as the “spot me in the wild” outfit as well as three distinct wearables.