Tag: Illness

Categories
Internet Culture Media

Day 1393 and Babylonian Memetic Death Cults

We call catchy songs “ear worms” but instead of calling catchy ideas “brain worms” we went with Richard Dawkins’s coinage “meme” and I think that’s a pity. Normies find it simple to grasp the term brain work while meme remains coldly academic.

According to this synopsis from Perplexity, Dawkins proposed memes as the cultural parallel to genes, acting as self-replicating units that spread ideas, behaviors, or styles from person to person within a culture.

Thankfully, the extremely online regularly use the term “brain worms” to describe people infected by any number of ideas ranging from the political to the aesthetic. They aren’t good or bad ideas necessarily. I’d include Trump Derangement Syndrome, girls with septum piercings, the uptick in jhanna meditation as flavors of memes that infect different types of minds.

I’m sure I’m infected with at least half a dozen brain worms (hopefully the memetic variety unlike RFK Jr) despite good informational immunity. There are benefits in having hippie parents and media literacy but the occasional infection is inevitable.

Our minds, our bodies, our computers and our networks can get infected with parasitic diseases and carry viral loads. From Covid to e/acc to the Goatse Singularity (safe to click) we’ve had a lot of novel pathogens recently and some of them are even good things.

Programmers and early Internet citizens have probably have more exposure to the modern theory of memetics than most.

Dawkin’s original coinage, while still a helpful theory, has been surpassed by the colloquial understanding of meme as popular cultural detritus that spreads online.

Given Internet network density, smart phone ubiquity, and algorithmic driven feeds, we’ve never been able to spread memes more readily. The topic is particularly interesting where it intersects with artificial intelligence and cryptocurrencies. Make something worth sharing and it has value.

Neal Stephenson’s Snowcrash has a neuro-linguistic virus derived from Sumerian mythology where natural language programs the human mind like we now program computers. It gets used in nefarious ways.

This of course makes you wonder if it’s so easy to make people share ideas how hard is it to make people forget them? There is no anti-memetics division right?

An antimeme is an idea with self-censoring properties; an idea which, by its intrinsic nature, discourages or prevents people from spreading it.

I wonder if my brain worms have made me memory hole anything recently. Given that we have an election coming up seems worth considering.

Categories
Biohacking Medical

Day 1375 and Titration

My joyful excitement over finally wearing a bathing suit I’d never worn? The peaceful swim in the salty sea ended in disaster within just a few days.

On Friday the allergic and autoimmune symptoms were so bad I took 5mg prednisone. On Saturday they were no better and I upped the dose by 2.5mg to 7.5mg. I moved forward my absurdly expensive biologic injection by a day. I haven’t been able to convince my health insurance to get them more frequently so it’s a risk.

I’m doing better today. My pain is abated to an almost unnoticeable level at a 2. That’s rare for me. And it makes me want to rush into as much work, chores and activity as possible just to enjoy it.

I’m typically working with a 5-6 level of pain on any given day but I can work (with medication) up to a 7 within reason. Past 8 I’m in bed and struggling.

The downside is of course that prednisone just sucks. It messes up your appetite. You balloon up almost instantly with side effects like moon face. And your body develops a dependency quite rapidly.

Titration off of steroids like prednisone require a steady and slow discipline so you don’t get “blow back” as it can make your symptoms even worse.

I’ll have titration for a few days ahead of me. But maybe I’ll get to enjoy the lack of pain. Already I’ve cleaned for an hour, done laundry, checked off a number of small “to do” list items and I am blessedly free of the exhaustion that comes from working with moderate to severe pain that is my normal daily experience.

I was sent a study in the journal Nature about a team who used CAR T therapies to achieve total remission in 3 patients. And I see hope on the horizon.

One woman and two men with severe autoimmune conditions have gone into remission after being treated with bioengineered and CRISPR-modified immune cells1. The three individuals from China are the first people with autoimmune disorders to be treated with engineered immune cells created from donor cells, rather than ones collected from their own bodies. Nature

Categories
Biohacking Medical

Day 1367 and Proper Names

My mother always insisted pharmaceuticals and supplements be called ny their chemical composites rather than a company’s brand name for it. She believed medicine shouldn’t requiring marketing & branding.

Instead of Benadryl it was diphenhydramine. For a headache we used ibuprofen not Advil. Acetaminophen was the proper name not Tylenol.

She taught me what went into popular brand name medication like DayQuil and I learned the ratios of guaiphenesin to dextromethorphan. Always take the minimum viable dose she’d say. And if I only had a cough I didn’t a fever reducer.

America is lucky to have a thriving generic medicine market. If you are a Costco shopper you can buy thousands of tablets of every crucial over the counter medication at just a few cents per dose.

There is a new series from healthcare publisher Trade Offs about issues in generic medicine manufacturing. It’s well worth your time getting to know more about how we came to have generic medicine (the Hatch-Waxman Act) and where the weaknesses are in the business of supplying these crucial medicines.

Take the time to read more on the issues as it’s been forty years of struggle for access and safety and we are experiencing shortages and supply chain risk that is unprecedented.

Categories
Aesthetics Culture

Day 1366 and Interior Life

For a woman raised in the Rockies and settled down in Montana, you’d think I’d be more outdoorsy. And yet I can spend days at a time in just one room with little trouble and even enjoyment.

Even with that wholesome “National Parks” backdrop, I was always a bookish and imaginative child. I was once derisively described as having “a particularly pictorial interiority” by a babysitter.

I don’t have the energy I once did as a girl when I’d spend my time at the barn and loved camping & hiking with my Outward Bound going army surplus shopping Eagle Scout achieving band of hippie environmental teens.

Setting aside the humor of a toking Austrian anthroposophy student projecting onto an elementary student, I am a long winded introvert who writes a lot. They really nailed me.

When the pandemic forced us all inside I had no problem with being home. I did a full three months without setting foot outside the apartment.

There is, of course, an entire culture of women’s writing dedicated to the interior lives of the home and within that a multitude of stories of illness.

As a choice I make for health & preference, it’s a far cry from cultures where women are forced indoors. I’d prefer to be outside more when circumstances allow. They haven’t for quite a few days. But it’s ok, I like being an indoor cat.

Categories
Medical

Day 1357 and Light It Up

It’s been a weird couple of days for me. It’s been a weird couple of days for just about everyone. At least all of my electronics are intact and no one has tried to kill me right?

I was hoping I’d be on the mend for this pneumonia like thing I’ve had for a few days. I took a Z pack on advice of my doctor. It’s a bit better but I’m still coughing. I’ve got my voice back at least. I keep hoping better medicine will arrive but I’m not getting my hopes up.

I’m going to lay low. I’ll keep it short. Maybe tomorrow I will have more to say and better lung capacity. I’ll keep it light. Lightening up. It’s better than lighting it up.

Categories
Medical

1354 and Better Access

I get some comfort when I see someone with substantially more resources than me use the same tools as me. Bryan Johnson tracks his sleep with Whoop. So do I.

You’d think there would be more variance but largely the tide of turning health technology into consumer technology has been to increase access. If you are interested in building better health habits we can use the same tools.

I am so grateful for the access I have to understanding my own body. It used to be considered quite rude to question doctors but as with any profession some are better at it than others.

Thanks to the work of the open internet and the tooling of artificial intelligence I cross check an astonishing amount of medical information. With a little work and the right questions and intelligent person can do basic differential diagnostics using Claude and Perplexity.

Networking together public papers, handy upper funnel content strategy of the Mayo Clinic, and the database of Drugs.com has been a real boon to involved patients who want to double check things.

Be skeptical of credentialism and gatekeeping in medicine. While everyone wants safe and responsible medical care there are plenty of well entrenched interests that don’t want you to do more for yourself. We deliberately keep the population of doctors limited in America. Professional organizations exist to protect themselves. But everyone deserves the tools to be healthier.

Categories
Medical

Day 1352 and a Dry Cough

I don’t know where I picked it up but the back to work and back to school season seems to also mean back to petty respiratory infection season. I’ve got a bad dry cough that is so intense I feel like I pulled a muscle in my left intercostal rib area.

I don’t feel terribly sick and all of my biometrics are within normal range. It’s just this horrible rough dry cough that seems to have tweaked my side so badly I’m contemplating wrapping my rib cage with a bandage.

I haven’t had a broken rib in sometime but this is as close to the feeling as I recall. I’d lost my voice a bit yesterday (been doing a bit more taking than usual as it’s fall) and pushing through it might have been a poor decision.

The other possibility is that the left intercostal pain is related to my inflammatory condition and it’s moved from its normal residence in my spine. I have very low pain in my spine at the moment so anything is possible.

I’ll lay low this weekend and hope it goes away on its own. Maybe the antitussive cough syrup will provide some relief.

Categories
Medical

Day 1331 and Reboot

Yesterday was a bad day for me physically. Unexpectedly awful pain caught me off guard. I went to a doctor today. It’s always hard to say what anything is about with bodies.

I am sleeping all of it off today. I figure no matter how overwhelmed one might be physically, if you can sleep it’s bound to help.

It’s two days in row where more than the basics of putting down a few paragraphs is a struggle. If it comes to three days I’ll probably have to dig in on it. I don’t want to write nor do I have much to say. I want to feel better.

Categories
Chronic Disease Medical

Day 1330 and Unexpectedly Awful

I’ve been on a very steady health trajectory for the last six weeks or so after I kicked my lingering Covid symptoms from an infection I picked up at the beginning of the summer. Alas today I found myself with a significant pain flare.

I can barely focus on simple tasks like writing the pain is so forceful. Usually I have some warning with pain as it’s a symptom of an autoimmune inflammatory condition. If I over stress myself I’ll have consequences a few days later just like a regular person.

But today I went from working out to flat on my back in bed taking the highest doses of medication I’ve got. And I still at a 7 or 8 pain wise. I don’t quite know what to do about it expect as I’m not comfortable taking more medication.

I’m hoping it’s an anomaly and I’ll feel better tomorrow. I wish I could provide a better accounting of the sudden misery. But honestly the pain is so bad this is the best I can manage. Please no one worry as I don’t have the capacity to respond right now. I just can’t think clearly enough to write about anything but the pain so I’m stuck with chronicling it. And I’ve got a habit to maintain here where I write every day.

Categories
Preparedness Reading

Day 1307 and Smoke Dusk

I’ve been having some unwelcome negative emotions over the past few weeks of political turmoil. It could be a function of long Covid or some variant of season affective disorder. I got introduced to an even worse environmental trigger.

Wildfires burning both in state and across the west gave us low cloud cover. You could barely see the next road let alone the mountains. The whole day felt like dusk. A long dim suffocating presence that felt like it would resist nightfall. It was smoky perma-dusk day where neither horizon nor blue sky could be seen.

“The sky above the port was the color of television, tuned to a dead channel.”

William Gibson Neuromancer

Probably his most famous piece of prose, this introduction manages to evoke something beyond the literal color and into an expansive image of otherworldly nothing.

He apparently “imagined an ancient TV … that grey/ haze as the tube warmed to a channel that was ‘active’, but sending no programming” which was “the black and-white video-static of my childhood in mind, sodium-silvery and almost painful”

The pain of a sky blocked out by smoke from wildfires even at high noon is unsettling and uncanny. It’s hard to feel right when what you see is so destructive.

We are safe inside the house with air purifiers in every room. The Conway HEPA filter went from one crisis to the next as a pandemic purchase that works on pollution too. The custom software that Alex uses to manage our smart home is showing perfect interior quality as the purifiers run day and night. Outside the AQI score was 118 “unhealthy for sensitive individuals.”

We’ve got a few more hours to sunset but a thunderstorm might be moving in.