Tag: Illness

Categories
Chronic Disease Emotional Work Travel

Day 443 and Chores

I’ve got a mix of personal and professional and familial reasons I’m spending the month in Europe (mostly in Germany). But one of the reasons was to get some time apart from my husband Alex. Yes I know it sounds kind of shocking. What a bad wife!

We’ve barely been apart during two years of pandemic living. I also had an additional year or two where he was my primary caretaker during medical challenges. My reliance on my husband is something I am very forthright about. I’m deeply grateful for what he has enabled me to do. But we both felt like our marriage would benefit from being on my own for a little as the pandemic becomes more manageable and my health has become stable.

It’s been amazing and invigorating to be on my own again. Anyone who deals with me closely has noticed how much more inspired I am to be in a new place on my own. It’s enabled me to see some of my coping mechanisms more clearly. For instance, my inner child feels safer in the chaos of new things because she got used to moving a lot when I was little. That has given me a gift for startup work, but it also means that I can become resentful and stifled if I feel trapped.

But I’d be lying if I didn’t disclose that a big factor in needing to be on my own was to learn if I could do my own damn chores. Holy shit I still absolutely hate how much I energy it takes to keep me clean, watered, medicated and fed as a moderately disabled person. My husband is a natural caretaker and I will happily enable that.

It’s so much damn energy from my limited reserves to care for myself. Alex has always done it better than I do. But if I’m apart from him I don’t have the backstop of him picking up the maintenance work of my life. I wanted to know if I could survive it. In order to freely accept his love and help I needed to know I could live without it.

And I am. This Saturday was dedicated to grocery shopping, laundry, doing dishes and tidying the Airbnb. I had to lay down and rest because of the effort of my day “off” from work. But I did it. Kinda. I still haven’t put the comforter cover back on the bed. But I’m working my way up to it.

Categories
Chronic Disease Medical Travel

Day 437 and A Mood

I’ve been struggling with allergies ever since I arrived in Frankfurt last week. The stress of travel and the constant itching affect my mood more than I’d like.

It’s a weird situation if I’m honest as I’m so happy to be traveling and on my own after two years or being in the same place and with the same person. I love my husband and I love my home but I’m sure everyone can relate at the end of the pandemic for the need to be alone.

My mood has largely been buoyant except for the constant low level misery that is these damn allergies. My eyes water. The skin around them is red and raw. My skin keeps finding new intermittent patterns to express hives and eczema. And I’ve built up quite a tolerance to Benadryl.

The allergies stress me out and then my spinal pain worsens and then suddenly I’ll find myself in just a miserable sad mood. I’m grateful I can write it all down so I can get the mood out. I just want to be comfortable in my own skin and smiling again.

Categories
Biohacking

Day 434 and Taking a Toll

I’ve been feeling engaged and energetic. The combination of a new environment (I’m in Frankfurt) and one of the most dynamic & chaotic investing environments has had me on focused.

But it would seem that my body would like me to maybe take a step back from from the current moment and care for it. As you may know I’m an avid biohacker. This is a screenshot from my Welltory HRV app which is part of my stack. And it is not thrilled with now I’m coping.

That means I should go to bed early and maybe take a day or two off till my metrics improve. So I’ll keep this post on the short side.

Categories
Medical Travel

Day 428 and Allergies

I’m staying in an Airbnb while I’m in Europe. I genuinely love the application and it’s community. I was an early adopter of Airbnb. Thanks to Airbnb I saved 60,000 dollars in one year. That cushion allowed me to quit a corporate job and pursue a startup without any anxiety.

My love for the application is pretty deep. It’s responsible for my marriage in some ways. I would only rent if I had another place to stay that allowed me to turn a profit. That usually meant I would rent while I traveled or if a friend has a place to crash. Alex was fascinated by my side hustle immediately. We’d only been on a couple dates when he offered to let me stay in his apartment while he traveled if we split the profits from my Airbnb. Naturally I said yes. I never moved out. And yes now we are married.

So yeah I really love Airbnb. But you do need to be aware of the community’s idiosyncratic norms. You are staying in someone’s home. That’s part of the charm. But also can can occasionally turn out in unexpected ways.

Since I arrived I’d been struggling with allergies. I broke out in hives. I had to figure out acquiring hydrocortisone in a foreign language. I was popping Benadryl like candy so I could barely stay awake. I was getting a little desperate to be honest. So I went on a long walk. Everything cleared up. I returned to the apartment and immediately started breaking out in hives again.

I texted my host to ask if he has any ideas. It turns out the host of my Airbnb loves scented candles. And he’s got great taste. The apartment has tons of candles and diffusers. But he’d put them into a cabinet so I didn’t know they were there. Alas I am extremely allergic to the chemicals that are often used in scented candles. Limonene in particular. So my body was going haywire over these candles but I had no idea they were there.

Thankfully we figured it out and moved them outside. But it’s a good reminder that context matters. At an Airbnb you are in a home furnished by a person with different needs and tolerances from you. And that’s ok. We figured it out. But me being upfront about my allergies from the start might have saved me a day of misery. Lesson learned.

Categories
Internet Culture Medical Startups

Day 415 and Accessibility

I don’t think of myself as disabled or requiring special accommodations, though I have a well controlled medical condition that swells my spinal cord called ankylosing spondylitis. But for the first time since my diagnosis I really felt like I was handicapped. And I am feeling so much sadness over the idea that I might genuinely be disabled.

I’m attending ETHDenver and it’s wildly over capacity. No consideration has been given to any kind of basic accessibility. I didn’t think it would effect me though till I got here. I can walk without a mobility aid and if you met me you’d never know I have an issue. But I can’t stand in line on cold concrete for two hours. It turns out I would need a wheelchair for that kind of activity. And even if I had a wheelchair the first two days were in the cold and snow so I couldn’t have wheeled over or around the slush and water.

So I have only attended private parties and small events and group outings. This is great for me as I’m a well networked established member of the startup ecosystem. I’ve got a popular Twitter handle and can easily reach out to people. But I’m noticing just how much a bit of inaccessibility will gatekeep the crypto and web3 community. If you don’t have my heaps of privilege there is no way you could navigate this conference.

And we really need web3 to be welcoming and accessible. To build a better future with infrastructure and economies we all collectively own and benefit from we need an order of magnitude more people participating. But if no one can get in and experience things first hand than web3 will just be a repeat of the oligarchy of web2. It’s honestly my worst fear for crypto. We will accidentally exclude the people who will benefit the most from our innovations.

Categories
Medical

Day 408 and Getting Ahead

My first piece of international travel since the pandemic began is coming up. I’ve not been on an airplane in over two years which is wild. But I needed to get a booster shot for my travel papers.

I was a bit nervous about how I’d react. I didn’t have the easiest time getting vaccinated. But I had a mild case of Omicon in December which made me slightly more optimistic about it.

I got caught in a snowstorm getting the booster yesterday. Which is so far the only inconvenience. I slept fine last night. I didn’t appear to spike a fever. I had no aches or pains other than the ones I live with normally. I’m so far enjoying having little to no reaction.

I did however take very good care of myself. I felt a migraine coming on mid-morning and I rushed in with all the good drugs. I wasn’t going to let myself suffer at all. And I am suspecting that keeping any and all stresses away has in fact been excellent for my body. Just another reminder that drugs are in fact good. Loving yourself can often mean mean treating yourself kindly. Removing the option for suffering and maybe all recovery can be this easy.

Categories
Internet Culture Startups

Day 404 and My Process

Being sick gave me an investing process. I have ankylosing spondylitis which is an inflammatory condition of the spine. It’s well controlled but still affects my day to day routines. It means I spend a lot of time in bed on my phone online. And this is how I generate alpha.

I spend my entire day on Twitter, in Discord, in DAO governance chats, in news RSS feeds and on Reddit. I’m extremely online. Terminally so. Like a LOT. I’m talking twelve hours a day. Which has turned out to be great for deal flow and diligence.

Being extremely online gives you some significant tactical advantages as an investor.

  • Persistent read of zeitgeist
  • Always online intaking discourse that will move market sentiments
  • Omnipresent availability to founders and ready to interact

Being online and intaking discourse gives me additional time and analysis with emerging trends, personalities and opportunities. By the time something has gained traction I’ve already made a move. I can move fast and confidently ahead of others because I’ve just had more time with the materials.

In somewhat bleaker terms I already live in the metaverse. Having a disability gave me early access to new ways of living online by forcing me to live a lot of my life virtually. If I wanted to socialize I had to do it in bed. I had experience with this before the pandemic. And I’m already been living where the rest of the world will be migrating now. You are gentrifying my neighborhood.

Categories
Biohacking

Day 374 and Intolerable

I’ve always been prone to extremes. I don’t like to do things half way. Half-assing things is pointless when you’ve got a whole ass. But sometimes this tendency to pull a “Peaches” and go full on even if it physically harms me.

I’ll look for any excuse to push myself. If a diet app tells me to eat whole foods I’ll stress myself on the perfect blend of clean eating. If it’s good to walk 7,000 steps a day I’ll set a goal for 12,000. If I want to write more I’ll commit myself to writing every single fucking day for a whole year. Commitment isn’t my problem. Excess is my issue.

On Friday I had physical therapy for my ligament tear. The therapist was working on evening out the tension points I had from overcompensating. She told me to work a lacrosse ball into my muscles until the pain wasn’t tolerable.

Now for most people this would be good advice. You’ve got to release the tension and work out the tenderness in the fascia. For me it ended up being terrible advice. I pushed so hard I have enormous bruises up and down my leg. But the poor therapist had no idea I’m so dedicated to extremes I’m willing to hurt myself to follow advice. The average person probably shies away from the necessary pressure. Me on the other hand? I’ll push till my body gives up on me.

Categories
Biohacking Emotional Work

Day 368 and Eating Disorder Season

Warning! Before you go any further this post will discuss food, emotional relationships with food, disordered eating, diets and diet culture.

Today is the first Monday of the New Year. That means it is weight loss season online. Despite me having many positive healthy habits including walking, weight lifting, meditation, supplements, sleep hygiene and a moderately nutritious eating routine I found myself upgrading my wellness applications and panicking at stepping on a scale. January is the month where the “wellness” industrial complex gets you. Even though I spend a small fortune on my health even I am vulnerable to the season’s exhortations.

December was a little rough for me so I put on some fat and lost muscle mass. I had an injury that kept me off my feet and then I had Covid. So my routines got a little fucked. Also two towns next door completely burned down in a terrifying urban firestorm. So like it was ok that I lost some progress.

But rather than reintroduce slowly and moderately my good habits, I’m finding myself desperately tempted to go over board on January changes. I spent $199 upgrading Gyroscope to get their nutrition tracking and a health coach. Despite knowing full well what I need to do in order eat better. The trouble is that I fucking hate doing it. So I thought let’s try a health coach why not!

I’ve had a mixed relationship to food my entire life. One of the defining traumas of my childhood was my pediatrician telling my mother I needed to eat more dairy. I hated the stuff and refused milk & yogurt as small child. My doctor’s solution (and I am not making this up sadly) was to not allow me any food till I ate dairy.

My mother attempted to follow his instructions but was stymied by the fact that I wouldn’t budge. I was a stubborn child. I didn’t care that I would be allowed to eat if I just had a spoonful of yogurt or a sip of milk apparently. I went on a full hunger strike. Fearing the worst as her daughter went days without eating, my mother eventually caved but the damage was done. Baby’s first eating disorder!

I continue to have all or nothing attitudes on food. I love to fast because it’s a total solution. I feel in control. My inner child continues to see it as an act of setting emotional and physical boundaries when the adults around me overwhelmed mine. Is also happen to hate running kind of caloric deficit. I’ve got health challenges that do better if I’m at maintenance calories.

Now I’ve successfully managed to heal an out of control immune system and I’ve overcome a significant rheumatoid condition so you’d think “being fat” wouldn’t be a worry of mine. I am proudly an avid biohacker. I actually enjoy taking care of my body these days. But it’s so very easy to slip up in a culture where we treat our bodies as moral failures. Just take a look at Covid discourse and you will see America’s obsession with categorizing each other’s health decisions as “good” and “bad”!

So I urge you to be gentle with yourself in this environment. I’ve written extensively about how to slowly introduce healthier habits in ways that are measurable and kind to yourself. Because I know how hard it is to do so. There is a joke in fitness communities that you should only ever trust a former fatty because the naturally slim just don’t get it. It’s insulting and moralizing in its own way, but it’s also a bit true. Trust your health to the chronically ill as they know how to survive the system.

January can feel like eating disorder season (or at least the first two weeks or so) and it’s alright to participate in your own wellness experiments just as it’s alright to do nothing at all. Be gentle with yourself. I know it’s a tall order. I just spent $200 in a panic about being fat so I know of which I speak. Good habits and a healthy body aren’t made in the first week of the year. That actually takes a lifetime.

Categories
Medical

Day 361 and Once More For The Cheap Seats

I was starting to feel pretty good on Saturday and Sunday. I thought maybe I’d kicked the worst of my breakthrough Omicron Covid case. I went down a crypto rabbit hole with the SOS token airdrop and it’s implications. Then on Sunday I was getting excited to launch a fun new project my bff Phil and I have been working on called Vibrations on Solana.

But I had a difficult night. I got woken up multiple times with tachycardia. I tried meditating at 1am. An hour later I was back at 140bpm while asleep. The heart rate alert woke me up. I tried some Wim Hoff breathing. Still couldn’t get it down. I took an Ativan I was getting so concerned. That knocked me out but it didn’t do much for my heart rate. I woke up to these readings on my Whoop.

Whoop capturing 125bpm heart rate at rest. Elevated respiratory rate. Elevated RHR

It seemed clear that all the fun and games I had planned for the day were not going to manifest. I went to get additional readings. My pulse oximeter gave me a 94 reading which isn’t awful but it’s not great either. I then went to Welltory and did a long HRV reading. So I’ll be in bed if you need me.

Welltory reading of my HRV suggests my Covid case requires rest