Tag: Illness

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Biohacking Emotional Work

Day 368 and Eating Disorder Season

Warning! Before you go any further this post will discuss food, emotional relationships with food, disordered eating, diets and diet culture.

Today is the first Monday of the New Year. That means it is weight loss season online. Despite me having many positive healthy habits including walking, weight lifting, meditation, supplements, sleep hygiene and a moderately nutritious eating routine I found myself upgrading my wellness applications and panicking at stepping on a scale. January is the month where the “wellness” industrial complex gets you. Even though I spend a small fortune on my health even I am vulnerable to the season’s exhortations.

December was a little rough for me so I put on some fat and lost muscle mass. I had an injury that kept me off my feet and then I had Covid. So my routines got a little fucked. Also two towns next door completely burned down in a terrifying urban firestorm. So like it was ok that I lost some progress.

But rather than reintroduce slowly and moderately my good habits, I’m finding myself desperately tempted to go over board on January changes. I spent $199 upgrading Gyroscope to get their nutrition tracking and a health coach. Despite knowing full well what I need to do in order eat better. The trouble is that I fucking hate doing it. So I thought let’s try a health coach why not!

I’ve had a mixed relationship to food my entire life. One of the defining traumas of my childhood was my pediatrician telling my mother I needed to eat more dairy. I hated the stuff and refused milk & yogurt as small child. My doctor’s solution (and I am not making this up sadly) was to not allow me any food till I ate dairy.

My mother attempted to follow his instructions but was stymied by the fact that I wouldn’t budge. I was a stubborn child. I didn’t care that I would be allowed to eat if I just had a spoonful of yogurt or a sip of milk apparently. I went on a full hunger strike. Fearing the worst as her daughter went days without eating, my mother eventually caved but the damage was done. Baby’s first eating disorder!

I continue to have all or nothing attitudes on food. I love to fast because it’s a total solution. I feel in control. My inner child continues to see it as an act of setting emotional and physical boundaries when the adults around me overwhelmed mine. Is also happen to hate running kind of caloric deficit. I’ve got health challenges that do better if I’m at maintenance calories.

Now I’ve successfully managed to heal an out of control immune system and I’ve overcome a significant rheumatoid condition so you’d think “being fat” wouldn’t be a worry of mine. I am proudly an avid biohacker. I actually enjoy taking care of my body these days. But it’s so very easy to slip up in a culture where we treat our bodies as moral failures. Just take a look at Covid discourse and you will see America’s obsession with categorizing each other’s health decisions as “good” and “bad”!

So I urge you to be gentle with yourself in this environment. I’ve written extensively about how to slowly introduce healthier habits in ways that are measurable and kind to yourself. Because I know how hard it is to do so. There is a joke in fitness communities that you should only ever trust a former fatty because the naturally slim just don’t get it. It’s insulting and moralizing in its own way, but it’s also a bit true. Trust your health to the chronically ill as they know how to survive the system.

January can feel like eating disorder season (or at least the first two weeks or so) and it’s alright to participate in your own wellness experiments just as it’s alright to do nothing at all. Be gentle with yourself. I know it’s a tall order. I just spent $200 in a panic about being fat so I know of which I speak. Good habits and a healthy body aren’t made in the first week of the year. That actually takes a lifetime.

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Medical

Day 361 and Once More For The Cheap Seats

I was starting to feel pretty good on Saturday and Sunday. I thought maybe I’d kicked the worst of my breakthrough Omicron Covid case. I went down a crypto rabbit hole with the SOS token airdrop and it’s implications. Then on Sunday I was getting excited to launch a fun new project my bff Phil and I have been working on called Vibrations on Solana.

But I had a difficult night. I got woken up multiple times with tachycardia. I tried meditating at 1am. An hour later I was back at 140bpm while asleep. The heart rate alert woke me up. I tried some Wim Hoff breathing. Still couldn’t get it down. I took an Ativan I was getting so concerned. That knocked me out but it didn’t do much for my heart rate. I woke up to these readings on my Whoop.

Whoop capturing 125bpm heart rate at rest. Elevated respiratory rate. Elevated RHR

It seemed clear that all the fun and games I had planned for the day were not going to manifest. I went to get additional readings. My pulse oximeter gave me a 94 reading which isn’t awful but it’s not great either. I then went to Welltory and did a long HRV reading. So I’ll be in bed if you need me.

Welltory reading of my HRV suggests my Covid case requires rest
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Medical

Day 358 and Hanging On

I was feeling pretty good this morning. Like maybe I had finally kicked Covid after four days of moderate symptoms. But as the evening comes in I feel tired, achy and a bit disoriented. I’m swiftly deteriorating into some kind of sundown syndrome. I just want to go to sleep and wake up feeling better. I haven’t cleared Covid just yet.

I’ve been waiting a few hours, hoping I’d feel well enough to write something coherent. But it doesn’t seem to be lifting. So I’m left with chronicling where I’m at. I did some work this morning wrapping up some deals that we are trying to close before the end of the year. There is something amusing to me about working on Christmas Eve while sick with Covid. It’s like I’ve got an inverse of my very festive Christmas last year. This year instead of focusing on home and the holiday I’m focused on the future and the outside world.

Aside from feeling shitty I’m in a great place. Deals are coming together. I’m optimistic about how I’ll spend my time next year. I’m happy about so much of what I’m being given. So feeling sick on Christmas Eve isn’t so bad. Sure I’ve got a killer headache. And my whole body hurts. But I’ll make it through.

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Aesthetics

Day 357 and Festivities

I’ve had a bit of a comically disastrous holiday season. Early in December I tore two ligaments in my ankle. I was immobile stuck on the top floor of the house for about two weeks. Just as I was getting back my ability to bear weight on my feet my husband Alex got really sick. At first we thought it was a cold. But surprise we both had Covid! Cue quarantine.

Tomorrow is Christmas Eve and we’ve done nothing remotely festive all month. When I was off my feet it didn’t seem achievable to go get a Christmas tree. We had this idea we’d get it once I was walking because well picking out the tree is part of the fun right? Turns out this was a tactical error as now neither one of us can go anywhere as we are isolated at home so we don’t spread Omicron. No pine scents and twinkling lights for us!

The funny think is Christmas I went all out on making our home as cozy as I could. With the pandemic isolating us I felt like it was the perfect opportunity to enjoy a season of light at home.

And I went all out. I spent like $200 on shipping IKEA ornaments & candles. I bought out the entire seasonal line up at Trade Joe’s. I bought a fucking stand mixer and made five types of Christmas cookies. I stuffed boots for St Nick’s Day. I baked rolls and light candles for St. Lucia. I made an elaborate 3D advent calendar. I sent hand written Christmas cards. And lest you think I ignored Chanukah we made latkes from scratch. We lit the menorah and said prayers each night. We did the traditional Feast of the Seven Fishes for Christmas Eve. We did stockings. We made a roast. We watched Die Hard. We got Chinese delivered.

But this year we’ve done nothing. Absolutely nothing. I haven’t even do much as done a boxed cookie recipe. No candles have been light. No advent doors opened. We haven’t eaten anything I’d qualify as even remotely seasonal. I’m not even sure what we’d do at this point we are both too exhausted to cook.

But I don’t feel bad about it. Maybe I’ll get a pie from Whole Foods. Maybe it’s because I did so much last year that I don’t feel like I’ve got to celebrate in any particular way. For me Christmas has always been about receiving the quiet optimism of a better future. The end of the year and the transition to a new one is a reflective space. I don’t need it to look any particular way to feel the spirit of the season. I’ve been so incredibly lucky this year. And even in the last month, bad as some of it was, I’ve achieved more then I could have imagined. I’m going to be alright no matter what.

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Medical

Day 356 and Sleep

I wonder if people who are unconvinced by a mind body connection have simply never been sick. I’ve never been convinced by clean theories that suggest our mind is somehow independent of our flesh. I say this today mostly because the needs of my body are very much privileged over that of my mind.

I happen to have Covid. It seems the easily transmissible omicron variant has found it’s way to me. And I’m quite tired. I thought I felt fine this morning but my Whoop suggested an alternate theory.

A screen capture from a Whoop tracker showing my respiratory rate is elevated.

I took it easy today but I still took a phone call and a meeting. I felt fine. And then as I attempted to stay awake for a movie for a restful afternoon I just simple didn’t. My body overcame any intentional acts from my mind. It was time to rest. I was in a phase of recovery. It’s wise to honor that.

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Medical

Day 355 and Not That Bad

I made one of the rookie mistakes in coping with illness today. Yesterday I came back positive for Covid. It was pretty mild. So I didn’t cancel any of my appointments. I went to therapy. I still had an on and off work day with a few obligations. And now I feel like shit

Basically I ignored my own advice. I wrote a post about how to effectively beat back an illness in a post I called “How to be sick.” And just a few days later I forgot everything I said. I feel very on my own bullshit.

My experience of Omicron has been quite mild. It feels much more like an inflammatory condition than a respiratory one for me. My whole body aches. I ran a slight fever. I’m exhausted. And I have awful brain fog. Like my normal speed of thinking has slowed ten fold. I can still recall the topics or even general contours of what I want to say. But then I can’t quite get the specifics to form in my mind. It really is like living through a fog.

So I need to wrap this post up and go to bed. I am sick. It’s mild but it doesn’t mean it’s not there. So I need to treat myself gentle and make sure I help myself get well. If you get sick don’t push yourself. It will only extend the experience.

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Medical Preparedness

Day 354 and Covid

The worst has happened. After nearly two years of being ambiently aware of Covid as a risk in the world I have tested positive. I honestly didn’t think I had it. I feel a little bit sick. I briefly ran a fever. I mostly felt the malaise from the inflammation. Little did I know that the game had changed with Omicron. That was all Covid.

I think we are in the middle of public communication crisis. The new symptoms for Covid are not severe coughing but the sniffles. And the vaccine doesn’t give you neutralizing immunity. It sure does help reduce the severity of the infection if the mildness of my symptoms are any indication. I worked several days before I realized the extent of the illness. And in no way had we reduced our daily caution. The only time I spent indoors with other people was when I had to go to urgent care for a torn ligament in my ankle.

I’ve got to be honest. This is going to happen to you. It’s happening fast and you probably didn’t see it coming. From when Omicron first got identified to me getting ill was less than two weeks. We have a rapid test shortage which means only those with flexibility and money will know if they are sick.

It’s going to be a very ugly month. Not because anyone is going to get extremely sick. But rather a lot of us are going to be a little bit sick. Let’s be gentle with each other when it happens. We are all going to be really miserable together.

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Chronic Disease Medical

Day 352 and How To Be Sick

Everyone I know seems to be sick right now. My husband is sick. My media friends are sick. My finance friends are sick. My random internet friends are sick. No one is in bad shape but everyone is miserable. If Omicron is as transmissible as it seems you’ve got a good shot at getting sick in the next month or two even if you are fully vaccinated. Don’t panic. I’ve a ton of experience being sick so let me give you some advice on how to get through the misery in one piece. Being sick is an opportunity. You’ve got this.

Drink lots of water: basic but crucial. Down a full glass of water every few hours. Set a timer. Being hydrated is key to your body flushing out gnarly stuff.

Stay in bed: your body has diverted all your energy to your immune system to fight off invaders. You are going to be tired. Don’t try to overcome it with stimulants like coffee. That’s just going to make it worse. Accept that you won’t be as focused or as energetic. The less you try to push through it the faster you get better. Cancel everything. If you want to get back to normal the fastest path to that is letting yourself heal.

Intake lots of nutrients: your body needs all the help it can get. Now is not the time to restrict calories. Eat vegetables and high quality protein. Eat healthy fats. Take a multivitamin. Consider taking Vitamin C and Zinc. Drink broth as it keeps you hydrated and gives you nutrients. Here are some ideas from the Cleveland Clinic.

Take care of yourself: tempting as it may be to order junk food, binge watch tv and doom scroll social media, you need to build up your vitality and constitution. This is what had worked for me. Being in bed tightens up your muscles so do a basic stretching routine for ten minutes twice a day. Don’t overstimulate your autonomic nervous system. Go out in the sun and keep your circadian rhythm normal. Meditate even if it’s only a few minutes. Do deep breathing. Take a hot shower even if you can’t stand up for too long. Brush your teeth and your hair. Talk to to your family and let them know how love them. If you have the strength do something artistic or creative. You must maintain your humanity. That means finding rhythms that build you up.

Accept Help: being sick robs you of many of the building blocks of modern identity. If you have built your self acceptance on concepts like hard work and being productive, it’s going to make you feel shitty when you are in bed and can’t do anything. Being sick is a reminder that self acceptance is the key to happiness. You are more than what you do or produce. You are a human being worthy of love simply because you exist. At your weakest and your sickest you are as worthy as at your best. Be ready to accept help from others so you can accept yourself. Be ready to be cared for by others. You do not owe anyone anything. Your existence is enough.

Chances are you are used to feeling healthy. Being sick is going to rock your reality. But you will overcome it. Cultivating empathy for yourself is the best path for doing so. Don’t judge yourself. Care for yourself as if you were your own child. Without judgement. Good luck!

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Biohacking Finance Internet Culture Medical Startups

Day 350 and Web3 Healthcare

Imagine you’ve got a disease with a clear biomarker. I’ve got an autoimmune condition called ankylosing spondylitis. One of the ways to spot it on a blood test is to look for an elevated CRP or sed rate.

Maybe I want to find a way to connect with other patients. I provide proof of biomarker to join an autoimmune discord just like you provide proof of ownership of an NFT like they do in the Bored Ape Yacht Club. Maybe I want to join a group of other patients who are pooling their medical data so they can stop being in an N of 1 and have a chance to participate in new research for my own disease. I could join AutoimmuneDAO and contribute to funding, meme-ing, and researching my condition. If we discover a treatment protocol or drug through our DAO we’d have ownership in it. Imagine a token for your own patient DAO. This isn’t as crazy as it sounds. VitaDAO is doing this for longevity research. This is the future that web3 can bring to healthcare.

Quantified self and biohacking have improved my health significantly. But on its own my personal health data has little value. You would maybe pay me a few cents for my biometrics. The real value of that data is in the aggregate. That’s why I pay Whoop to manage my HRV data and why they won’t offer data interoperability.

The value is in the algorithm. But without me and without my data it wouldn’t be worth anything. They have a product and an algorithm because of my biometrics. And yet we’ve found no way to meaningfully integrate ownership and interoperability in healthcare yet.

Let me give an an example. There are multiple companies that make their money by recruiting clinical trial candidates. Why? Because you need aggregate data to run a study. Those companies have the same basic data analytic team as a marketing team at a direct to consumer product company. They know how much a patient (or customer) is worth and the cost to acquire them. You are worth a lot because you represent a demographic that has value in its totality. And yet most clinical trials fail to recruit people because patients just don’t see a benefit to participating. You’ve got no ownership or upside and the costs are significant. So science suffers.

But what if instead of being valuable to marketing and recruiters you could own a portion of the aggregate? Being a token holding biomarker “proof of disease” validated member of a patient research DAO flips the incentives. A breakthrough on a disease that treats you and you’d also own some of the proceeds of it’s intellectual property. Whoever brings web3 to healthcare is going to be doing a significant good for humanity. Web3 can improve diseases, move forward science and get us all paid.

Categories
Emotional Work

Day 347 and Self Acceptance

Because a huge chunk of this writing exercise has been tagged under “emotional work” I’ve had the good fortune of chronicling much of my emotional growth this year. A huge theme? Learning to love myself. I know, it’s pretty core stuff. You are probably working on the same thing as me. Just because it’s fundamental doesn’t mean it’s easy!

My favorite coping mechanism is working harder. Didn’t get what I wanted? It’s my fault. Maybe if I’d put in make work I would have! I’ve got a whole circle of abuse I pour on myself. It’s always my responsibility if something didn’t work out. Not happy? Time for self improvement. It’s rarely occurs to me that I should simply accept myself and that sometimes things simply don’t go my way. I don’t seek out self improvement for the joy of it. I do it to punish myself.

I’m terrified of letting go of my coping mechanisms. If I was good enough I would have felt loved as a child. This is a horrible inner child logic that I’m applying to myself. As if an infant deserves love because of its efforts. We love our children just for existing. And yet I struggle to express love for my own inner child.

If I stop using hard work as a coping mechanism I am afraid I’ll never be accepted again. If I let it loop even further I am afraid I will die. Because I fear I only overcame my health issues because I throw so much effort into recovery. I am afraid it is only through effort, punishment and improvement that I deserve to be in this world. Any wonder I find Calvinism appealing as a faith?

I tell myself these are rational coping mechanisms. The world does reward me for hard work and continual efforts towards improvement. I pay my bills through hard work. And sure if I don’t pursue basic healthy habits and fitness then yes I probably won’t feel as well. But these arguments are just an excuse to keep myself from accepting that I’m worthy as a human independent of my work or my health. And because I have a hard time hearing this for myself I want you to know you are worthy just for being you too. Our humanity is enough.