Tag: Pain

Categories
Biohacking Chronic Disease

Day 1830 and Itchy Twitchy Bitchy

It’s one of life’s truisms that we may wish for prestige, power and money, but none matter without your health.

“The first wealth is health” by Ralph Waldo Emerson.”

I don’t think it is self flattering to admit I have got some amount of respect, influence and capital. And yet every spare dollar and moment I have I spend trying to improve my health.

The other types of wealth I have don’t matter if I’m in too much pain to think or I am so regularly infected that my resting heart rate is in the mid nineties.

Yesterday I started getting what I call itchy and twitchy. It’s often the first sign of an infection that has broken through an altered window of immunity.

My entire body will itchy. Sometimes it will be accompanied by a rash like eczema. If the rash is bad enough to be opened through itching I can easily get a bad infection. The discomfort of all that makes me twitchy from the anxiety of it all.

I suspect I am itchy twitchy at the moment as I am in a city with polluted air from major construction and high air mold counts from the winter rains. It makes me want to hit the road immediately for dryer climates but I’ll take prednisone first.

That should make me very pleasant. Anyone who has taken the steroid knows it’s a joke as the drug makes everyone who takes it feel a bit crazy. And you get fat and moon faced for added insult to injury. So apologies in advance if I’m going to be a bit bitchy.

Categories
Community Politics

Day 1829 and Frigid Individualist, Snagging and Bagging Narco Terrorists and 2026 Forever War Time

The New Year shouldn’t really get going until after Epiphany. I’m not a Catholic, but I think the Holy Nights are a time for prayer and looking inward.

Alas, we seem to start the new near with a bang every year now. Concerns about Iran’s currency crisis was the big story in geopolitics as the chattering classes concerned themselves with socialist mayors in America were going on about collectivism’s warmth. I will take frigid individualism thanks to

Today I woke up to news of an early morning “snag and bag” of the President of Venezuela Nicholas Maduro and his wife being taken my American troops to stand trial.

The front page of the New York Times around 11am GMT

I’m in Europe so we had a bit more time with the news before Trump addressed the nation. It’s a little chilly where I am and I’m still worked up about the the warm fuzzy communism of the Zoomer youth who seem to think all problems are solved with more money and never seem to realize that it comes at gunpoint.

And despite running on an explicitly anti-war platform, Trump is now giving a press conference suggesting American oil companies are up for a forever war run by Marco Rubio. Rough day for our Secretary of State who is also probably as worried about Iran as anyone.

I suppose it’s now or never for a number of things. Toppling regimes named as narco-states and cutting off oil and capital flows as China does exercises in the straits. Things are malleable indeed.

Categories
Chronic Disease Chronicle Emotional Work

Day 1825 and Thoughts On Five Years of Writing Every Single Day

Much as it amazes me, I have written a public post every single day without fail for five straight years. I’ve not missed a single day.

I’ve written so many posts and essays, it honestly astonishes me. I didn’t expect to have this kind of longevity when I began but the world changed a lot in this past half decade. I am a woman of habits & routines, this blog helps me manage the chaos and instability that surrounds us. And hopefully I’ve become a better thinker (and writer) for this habit.

If you’d like to look back with me, I have a round up of 2021‘s best posts from fashion theory to the emotions of startup exits. They feel like a lifetime ago.

In my round up of favorites from 2022 aka year 2 of the experiment, we moved to Montana, bought our first house, had silly viral hits, & I became a certified wilderness first responder.

In my third year of posts from 2023, things remained intense. I accelerated into chaotic optimism, helped other millennial women understand fucked up fertility, and experimented with living outside America part time to improve my visibility on global issues.

And in fourth year of writing, my round up of my best posts of 2024 really showed a world sped up even further. My essays ranged widely with emotional work, crab bucket zero sum-ism & young men, Vernor Vinge’s legacy becoming our actual reality and the bizarre experience of digital memetics becoming constant real world issue.

So now it’s time to think about year five of the experiment. 2025 was a hard year for me even as it contained incredible wins. Going into it, I wondered how could year five top the past four years chronicled here? It both does and it doesn’t. Life, and the time we spend living it down, isn’t getting any easier. Life is barely human at all anymore. I feel the struggle in myself as I am still very much human.

It’s easy to feel as if I’ve not accomplished as much as my own written records show I did. If you ever feel like you get less done than you’d like, I encourage you to keep a log or journal as it helps show how much can do and how much does get done. Plus if you publish it online you’ll contribute to a wider humanistic understanding as our digital life becomes more mechanistic.

Another facet of this writing experiment has been fighting a chronic disease in my personal life that has no cure. Managing disabilities during with the pandemic years as it overlaid civilization shaking political and technological changes has been hard. I want to work and live as if I am healthy and it isn’t likely to ever be true. I work smarter because I can’t work harder.

I don’t always write about my investments in these posts, but I see how my thesis of chaos has forced us all into requiring more decentralization, compute and power. My once weird ideas are now common knowledge. Now everyone agrees with me.

The end of the neoliberal consensus and the beginning of the artificial intelligence buildout would have been hard on anyone. I’m proud that I was able to turn this change to my advantage.

I realize I’ve written quite a bit about the experience of these years where I wrote daily without showing off the last year of posts.

Since I’ve got one more day before 2025 officially ends, perhaps I’ll put the round up of posts tomorrow as I’ve given an overview of the experience of half a decade of daily essays today. What’s one more day among thousands right?

Categories
Culture Emotional Work

Day 1819 and So You’re Safe Enough To Celebrate With Rest

I prefer Christmas Eve to Christmas Day. What traditions my family had were mostly oriented around the night before Christmas and not Christmas Day itself.

We’d have a Christmas Eve dinner, our one item per person gift exchange, and most excitingly staying up for midnight mass with my mother

Christmas Day meant Christmas stockings and a jumble of different half heartedly attempted Christmas wishes and lots of long distance calls. Much less fun from a child’s perspective than gifts and late night ceremony.

So here I am on Christmas Eve all prepared for tomorrow’s day of stillness and rest. And I am exhausted. My body has sensed it’s safe to collapse into the kind of sickness that only comes after cortisol washes away on the tides of adrenaline going out to sea.

I’ve got not plans. My worship has never required a church. My prayers are between myself and my maker. I’ll be sick and happily collapsed into my own quiet reflection. May peace be with you.

Categories
Aesthetics Chronic Disease Travel

Day 1816 and Bedding Down

Having put no small amount of effort into preparing to be quietly away from the world for Christmas, I have made myself a very cozy in the chosen retreat.

Preparing for a closed world means I’ll have the freedom to close down myself. My body has been a bit up and down as it usually goes s these days so I’d like to log as many hours in restful response as I can.

Other activities I’d enjoy would be bathing in a warm tub, going for peaceful walks with no one around and reading for hours on end. Which seems manageable. It’s a time for prayer and contemplation.

My only wrinkle is the lack of available prepared food. I mentioned I’d be rather remote. And I did pack as much as was feasible

But if I can’t manage a few days of cooking simple meals like pasta and chicken that would be pretty sad. I’m lucky to have relied on that part of my life being handled by others as I do find the idea of cooking to be almost as tiring as the reality.

All of that moving around on hard kitchen floors as you juggle timers and fire is not a favored activity for someone with spinal issues. Still I’m optimistic if I stick to a quiet routine of reflection, rest and prayer maybe I’ll manage. Or perhaps a miracle will occur and I’ll be fed literally and spiritually.

Categories
Chronic Disease Medical

Day 1814 and Spicy Boi Shots

I’ve been trying to coax myself into taking my final biological injection of the year for most of the day. It’s a very painful shot. The feeling of it is somewhere between stinging and hot sauce being pushed into your subcutaneous fat. It’s spicy

I switched my IL-17 inhibitor for my inflammatory conditions as one of my first actions of 2025.

I was filled with optimism that this new variant called Bimzelx might be the one that finally brought down my biomarkers. And it did indeed show promising results. My CRP and SED rates have never been better.

Alas, the cost is quite high. I’ve got no immune system response to speak of when it comes to my skin and soft tissues. I’ve had four major skin infections requiring surgical intervention and many minor skin infections.

I don’t think I can live with the side effects of the drug even if my inflammatory numbers are better. There is no doubt it’s effectively treating some aspects of my psoriatic arthritis, axial spondyloarthritis, ankylosing spondylitis.

My pain is better so long as I can avoid picking up an infection. I’ve been on antibiotics most of the year. Alas I’ve only had maybe 2-3 weeks without an infection brewing or being beaten into a retreat.

So today may be my last spicy shot. I’ve gone it a full year of adjustment. I don’t relish the prospect of adjusting back to my previous medication as it takes a full year to fully dose on and off these things. But maybe I’ll be lucky and on my final shot in the year I’ll see a change for the better

Categories
Biohacking Chronic Disease

Day 1810 and Bodywork and Open Sourced Tactile Physical Data

I had a really excellent massage recently. The body worker really got under some of the tension points in my body and the compensatory patterns I was hoping for them to work through. I felt like the flow of my energy was reset.

This type of relational work between two people, one with body issues and another one who knows an efficient path for soothing them, need each other. I need relief and they need a payment that reflects their expertise.

Typically this has been labor paid in some increment of time. I paid for an hour long massage but I’d be willing to pay for more hours and the knowledge and capacity to execute that work on myself or through another body worker or tool.

I’ve got a Theragun, a Tiger Tail, lacrosse balls and foam rollers and I try to work through knots and pains. But I know way less than your average massage therapist or Alexander Technique practitioner so these tools are in the hands of a poor craftsman.

I would love for there to exist some type of Open Source Bodywork Database. I’m thinking work flows, anatomy training from video to textbook and routines input by every type of knowledge tradition and patient.

There are humorously already types of open source startups that work on body based API calls. One is called buttplug.io so you get the idea.

I’d love to see workers get paid to contribute their video, audio, and tactile experiences to an open world and ideally be paid a percentage each time it’s used.

Imagine being about to boot up this massage with an automated massage options. Or open share the repo with a therapist with less experience looking to learn. You pay the therapist trainee and for the routine and everyone benefits.

It’s a bit of a fantasy now but I’m sure we are closer than anyone realizes to being able to train these movements into automated systems. Imagine celebrity osteopaths with programs built into something you can use.

I would prefer this be an open source program for human body knowledge so that we learn mechanically the many physical routines and options that exist to make our bodies function better thanks to aligned incentives for everyone to participate. Dare to dream right?

Categories
Chronic Disease Emotional Work

Day 1806 and Trying Not To Upset My Proverbial Applecart

I have had way too many minor (and major) health problems emerge over the course of 2025. Adding in personal life tragedies (the death of my father) and I had a challenging year.

So I trying to keep the last few weeks of the year crisis free. I have already pulled myself out of the day to day to try for a slow wind down of the year. No holiday parties or appearances for me. I am gone.

As I slow down and put distance between myself and the world, I maybe stupidly see it as an opportunity to nudge myself on little health promoting efforts.

After the year I’ve had, I so desperately want to see improvements. Even if simply not collapsing into another infection cycle is a win.

I’ve been trying to consistently work on body basics like muscular compensation patterns and getting more steps each day, but I’m so terrified that even a minor miscalculation in exertion will upset my proverbial apple cart.

I went for a walk on a high mold count day and reached for prednisone. I’ve been teetering on the wrong side of recovery for so long I don’t think I can recall a genuinely good day. My sleep is similarly impacted. I want to have a long night of deep sleep and dream cycles but the best I can manage is just a long night.

Categories
Culture Preparedness

Day 1782 and Sweeping Rolls and Unrunnable Rapids

Navigating the rifts and eddies in the river of human scale time takes more skill and endurance than I fear I have.

Even if I assume that Earth time still running on any sort of human scale (which I don’t believe to be true), I find myself wondering if it’s better to head for the riverbank for a moment. Like Lewis and Clark, I only dimly understand where this river will let out.

I once paddled lightly, easily, even joyfully with the currents of my time. When I capsized, to continue with kayaking metaphors, I would simply snap myself back upright with a sweep or C-to-C Roll roll and carry on downstream spluttering wet and bursting with laughter.

Kayaking the Zeitgeist River was a fine past time for the quick witted and able shouldered amongst us. One could build an entire career by correctly the judging the river of time. And what fun it was to carry along with friends as time did most of the work.

But ever more frequently, I search for the eddies to pull myself out of the stream to stop for a while. Tired and hurting, I look for a refuge to catch my breath and slow my heart. As the timeline rages on without me, through crashing white water and its drowning currents, I wonder if I should even be alone on these waters at all.

Simply staying upright is now a bare minimum of a concern. A hip snap and good instincts does little when the course never ends and the rapids unexpectedly turn from a fun day of Class III rapids to Unrunnable class VI without so much as a posted sign. There are no maps or forecasts to be had. Your gear might be whatever you brought onto the water in entirely different conditions.

There be dragons here? Hardly so dramatic a metaphor applies from naval history pertains to river ways. But it’s no less dangerous for its lack of vista. Unseen rocks, snapped branches and water logged organic materials rise and decay into froth and burble. Lurking like so many unseen estuarine creatures swimming inland.

I already feel as if the tattered veil which separates our shared reality with whatever exists beyond is far too fragile. That any one of us can choose to run the rapids of passing time serves to remind me of how fraught the pastime of participating in history can be.

A small kayak with one intrepid soul can be righted quickly. But an endless run of rapids designed to sink any who choose to run it? The public experience of our shared time should not be such a battle. We all want to see where we are going don’t we?

Categories
Aesthetics Homesteading

Day 1777 and Spacing Out

Yesterday a severe geomagnetic storm hit Earth. I had been following its trajectory for a few days I think space weather is a fascinating topic.

Last year I was in Europe during a G5 event which is considered an extreme storm. It proved to be as unsettling as it was beautiful. Also migraine inducing. Just half an hour in the sun and I felt completely awful.

Naturally I wanted to tear the effects. I went out for a late afternoon stroll just as the storm first began to hit and I found myself in a rage over “this and that” as my vision flickered with red and green.

I thought I was so mad I was seeing red but I suspect the more logical explanation was that space weather affects us here on earth.


G4 (Severe) storm levels reached on 12 November at 0120 UTC (8:20pm EST)! Geomagnetic storm conditions are anticipated to continue into the night. Stay informed at spaceweather.gov for the latest. The included aurora images are of the aurora shining over northeastern Colorado.

I thought I was getting the auras that occasionally accompany a migraine for many people but now I’m not so sure. I rarely get visual disturbances in my migraines. Still our bodies run on electrical signals too. And I went outside just as the planet was getting hammered at the full severe G4 limit.

Alas after sunset I don’t take any particularly good pictures of the auroras that painted the skies though many others posted pictures from Montana.

I was focused on health needs from hyperbaric chamber oxygen therapy to a stint in our 180F Finnish cedar sauna. The glory of nature’s night is best experienced without a phone and ideally sweating out the day. No need to try to capture a picture of the moment. I was in the moment

Later, as I went outside freshly oxygenated, sweated out and showered, most of the sky had cloud cover.

The night was uncannily still. We usually have a lot of nocturnal noises as we have a whole ecosystem of creatures on our property and out into the mountain range above us, but I didn’t hear a peep. The animals must feel the space weather as deeply as we do.

Thankfully today dawned (with me having had a poor night sleep as expected) with all our homestead creatures out and about on the pond from duck to muskrat. More solar activity is expected so keep an eye on the NOAA forecast.

A pair of MilFred Muskrats with one of our ducks photobombing in the background