Categories
Medical

Day 1517 and Blink Blink

I’m writing this in the waiting room of the new hospital campus in Bozeman. We’ve recently had an outpost of the Billings Clinic go up alongside the highway between Bozeman and Belgrade to keep up with the growth in Southwest Montana.

It’s really nice and absolutely packed with people. The average age looks to be early seventies so it’s not a young crowd in the eye clinic.

The only other mid-life people besides Alex and myself is a prison inmate in a yellow jumpsuit and his two Corrections officers. I had half a mind to go ask him what he was in for while showing off my own deformity m.

I’m unsure if it’s a side effect of changing medication or just plain bad luck, but I have an infection in my right eyelid. It started about a month ago and looked like it was a simple chalazion.

It’s sometimes called an eyelid cyst or a meibomian cyst. It slowly forms when an oil gland (called a meibomian gland) becomes blocked. Cleveland Clinic

But over the last month it went from painless little boba ball sized lump to my entire eyelid being swollen. It got much worse this week especially as I started applying wet washcloths to it regularly.

They were able to perform an incision and curettage (don’t click through if you don’t want to see some gnarly eye stuff) as my discomfort was pretty intense. I desperately wanted it drained and they did not disappoint.

Just wiping up the last of the pus

I hope this heals well and without issues. I fear this was complicated by the changes I’m meant to undergo in my medical protocol from one IL-17 inhibitor to another.

To soften any backlash in symptoms during the change I’m on another immunosuppressant so I’m particularly nervous about infections especially when it comes to sensitive areas like the eyes. I’m glad I was able to get this drained but I’m a bit nervous about how it will heal.

Categories
Internet Culture Media

Day 1514 and Informational Ravine

I hate to add fears that we will face a “dead internet” but increasingly we lack shared context in our online spaces. As context collapses so too does culture. Bad behavior proliferates.

Without shared values we cannot find purchase on the informational ravine of the open web. Competing narratives and interests buffet your mind as you try to sense-make your way into a firmer grip. It’s easy to slip and find yourself unsure of what is up or down.

The vibes are bad. People have entirely different interpretations when presented with something as innocuous as an email asking “what did you get done this week?” If you discuss a particularly contested space it quickly becomes a hostile information environment. Many retreat.

If you are tempted to argue with me about whether that action is in fact innocuous you have to wonder how far apart you and I are from each other as we try to climb through the great ravine to the other side.

Categories
Emotional Work

Day 1513 and Forcing Function

I’ve not in one thousand five hundred and thirteen days of writing in a row set forth a m standard for how I might quit. Four years (or 216 weeks) is plenty of time to come up with a criteria for making a decision.

I have in that time embraced the haziness inherent in self trust. I’ll just know when it’s time. That’s obviously a rationalization. I assumed that circumstances would decide for me which meant I’d never need firm criteria for stopping. It would just happen.

Given my health and the general state of the world surely in this long timeframe some calamity, crisis or mishap would keep me from writing one day and that would simply be that. The chain would be broken.

It has not yet happened. No forcing function has stopped me from my writing practice. And I’ve not yet set worth anything firm about how I’ll know.

So far 2025 has tested me. There are many short posts. I have been hampered by health and home issues which sorely make me want to give up some days.

I’ve tried to included more sporadic “linking and thinking” to make my writing space more blog-like and less essay oriented. Backing away from narrative forms is a fine way of introducing flexibility into one’s writing.

I can’t help wondering if I should introduce a forcing function and create a set of criteria for when I’ll stop. But the truth is I’m scared to give myself a clear way out when I’m struggling. Perhaps it’s better to keep that trust that I’ll know.

Categories
Media Politics

Day 1512 and Thumbs Down

It’s been a bad month for me. It seems like a bad month in general. But that’s February for you right? It’s a thumbs down kind of month. I’ve enjoyed the nonstop snow but we’ve finally gone above freezing.

Icicles

As the sun melts down our power into icicles I’ll try not to dwell on the negatives.

Reading

The Brussels Effect or Denialism in Europe

Are you a Frankfurt School student? I certainly am. If you are, you may find John Ganz’s review of Alex Karp’s new book The Technological Republic to be an amusing read. His Substack also has some gems including this imagine of Adorno which I intend to use everywhere.

Theodor W. Adorno giving a thumbs down

Categories
Politics

Day 1511 and You Are Here

Watching institutional powers and public figures goes through the Kübler-Ross grief cycle as they grapple with technical and political change sucks. People are all over the place.

Institutional distrust from the public has America and Europe at odds just as our geopolitical position relative to China is most precarious. And yet this strange new world cannot possibly be coming. Having spent the last year in denial Germans have moved into anger.

Imagine what bargaining will look like as power shifts over the next few years. I’ve seen the depression stage already in technology as the shift in intelligence and computing washes over us.

I’ve come to acceptance only because I’ve got a head start. I didn’t look terribly sane at the time and now I am sitting pretty. Taking action while we grieve the loss of the world we knew is the human condition. If you can accept change is inevitable you might even start to enjoy the process.

Categories
Chronic Disease Media

Day 1509 and Wrapping My Arms Around The Problem

I am seeing some progress in my various home and health projects. I’ve been doing my best to remain optimistic even though I was not feeling well and the sheer amount of changes required was intimidating. But I’m seeing low progress.

An industrial hygienist is coming to do an arm test tomorrow on our basement as well as the rest of the house to confirm the extent of our mold problems. Our hope is that it’s contained to the bathroom in the basement.

If we have to do a bathroom remediation that presents an opportunity to do some renovations. While exciting that is also introducing more risk. But you can’t waste a crisis right?

Stuff I Read

The Agent Problem

CoinDesk reporting on the Libra scandal in Argentina

Politico: Voters Were Right About The Economy

Epsilon Theory “It Was Never Going to Be Me

Categories
Chronic Disease Emotional Work

Day 1508 and Dorymaxxing

I am pushing myself to continue with the daily writing habit even as I am on a rollercoaster of health and home challenges that have put me well on the back foot.

I want to rage against the symptoms, the system that can’t solve anything, and even my own body for being tricky. But that won’t fix anything. I’m need to give the new protocols the space to work.

So it’s one foot in front of the other. Whatever is happening out there in the real world I just need to put one foot in front of the other. Or if you prefer a meme. Just keep swimming Dory.

Just keep swimming

I’m doing my best not to get it get me down. I’m afraid of the setbacks. I am afraid of the length of recovery and the potential for things to be worse. But I’ll Dorymaxx. It’s all I’ve got in me

Categories
Emotional Work Politics

Day 1507 and Apocalypse Narcissism

I’ve been very wrapped up in my own problems of late. I have plenty of good reasons to be focused inward. When you feel as if you are fighting for survival, physical or otherwise, you can’t see anything else.

As I’ve looked up from my issues, I am seeing countless others caught in their own reactive spirals. Many of them are even directionally correct in their diagnosis of the problems facing them and the world as we know it.

The apocalyptic bent is especially strong in America at the moment. From politics to artificial intelligence to cultural wars, Americans are on the edge of change.

If your world is ending you probably can’t see beyond the horizon of the issues bringing about its end. Your view is myopic. Let’s call this phenomenon “apocalypse narcissism.”

It’s understandable to be wrapped up in fear when faced with all kinds of mortality. Your life, your nation, your culture, your planet and even your species all face world ending questions at some point. Sometimes change is so great we can’t see it as anything but death. Even if something better rises from the ashes.

Categories
Chronic Disease Emotional Work

Day 1506 and Breaking With Convention

I am in a challenging spot at the moment with our household mold issue and my attempts to accelerate changes in my care protocol for my autoimmune condition.

When things are challenging physically I find myself in tension. I want to share and be open in my experiment to write every single day. I am afraid that I’m doing nothing but share weakness by doing so.

I don’t want to telegraph only strain, illness, and struggle. Sure things are hard at the moment, but I am more than my current local minima conditions. Things are quite good.

Just because I feel too weak to articulate all the areas of strength doesn’t mean they don’t exist. I just can’t put them front and center right now.

This frustrates and even angers me. Large long term projects and investments are thriving and rather than focus on those I am curling into the fetal position and wishing I could disappear until I’m able to advocate loudly and proudly for my wins.

Categories
Chronic Disease Emotional Work

Day 1504 and Dead of Winter

For as exciting as the last few weeks have been it’s hard to feel like as it’s the dead of winter. I’ve not gone outside in several days as we are in -20 land which probably contributes to fatigue. Thankfully it’s bright and sunny.

I don’t have anything useful to say as being in the middle of multiple health projects is a time suck. Any excess energy goes to work as there really is no way of stopping progress. I wish I could keep up as it’s exciting.

Partially because things are so “out of bounds” I can feel more comfortable prioritizing long term gains and changes. I think I can achieve a health level up and fixing it now prepares me for strain later.

I take this approach on everything now. The short term has been set by decisions in the past and the medium term is highly uncertain. Steer correctly now so future you is set up to succeed.