Tag: Trauma

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Chronic Disease Medical

Day 352 and How To Be Sick

Everyone I know seems to be sick right now. My husband is sick. My media friends are sick. My finance friends are sick. My random internet friends are sick. No one is in bad shape but everyone is miserable. If Omicron is as transmissible as it seems you’ve got a good shot at getting sick in the next month or two even if you are fully vaccinated. Don’t panic. I’ve a ton of experience being sick so let me give you some advice on how to get through the misery in one piece. Being sick is an opportunity. You’ve got this.

Drink lots of water: basic but crucial. Down a full glass of water every few hours. Set a timer. Being hydrated is key to your body flushing out gnarly stuff.

Stay in bed: your body has diverted all your energy to your immune system to fight off invaders. You are going to be tired. Don’t try to overcome it with stimulants like coffee. That’s just going to make it worse. Accept that you won’t be as focused or as energetic. The less you try to push through it the faster you get better. Cancel everything. If you want to get back to normal the fastest path to that is letting yourself heal.

Intake lots of nutrients: your body needs all the help it can get. Now is not the time to restrict calories. Eat vegetables and high quality protein. Eat healthy fats. Take a multivitamin. Consider taking Vitamin C and Zinc. Drink broth as it keeps you hydrated and gives you nutrients. Here are some ideas from the Cleveland Clinic.

Take care of yourself: tempting as it may be to order junk food, binge watch tv and doom scroll social media, you need to build up your vitality and constitution. This is what had worked for me. Being in bed tightens up your muscles so do a basic stretching routine for ten minutes twice a day. Don’t overstimulate your autonomic nervous system. Go out in the sun and keep your circadian rhythm normal. Meditate even if it’s only a few minutes. Do deep breathing. Take a hot shower even if you can’t stand up for too long. Brush your teeth and your hair. Talk to to your family and let them know how love them. If you have the strength do something artistic or creative. You must maintain your humanity. That means finding rhythms that build you up.

Accept Help: being sick robs you of many of the building blocks of modern identity. If you have built your self acceptance on concepts like hard work and being productive, it’s going to make you feel shitty when you are in bed and can’t do anything. Being sick is a reminder that self acceptance is the key to happiness. You are more than what you do or produce. You are a human being worthy of love simply because you exist. At your weakest and your sickest you are as worthy as at your best. Be ready to accept help from others so you can accept yourself. Be ready to be cared for by others. You do not owe anyone anything. Your existence is enough.

Chances are you are used to feeling healthy. Being sick is going to rock your reality. But you will overcome it. Cultivating empathy for yourself is the best path for doing so. Don’t judge yourself. Care for yourself as if you were your own child. Without judgement. Good luck!

Categories
Emotional Work

Day 347 and Self Acceptance

Because a huge chunk of this writing exercise has been tagged under “emotional work” I’ve had the good fortune of chronicling much of my emotional growth this year. A huge theme? Learning to love myself. I know, it’s pretty core stuff. You are probably working on the same thing as me. Just because it’s fundamental doesn’t mean it’s easy!

My favorite coping mechanism is working harder. Didn’t get what I wanted? It’s my fault. Maybe if I’d put in make work I would have! I’ve got a whole circle of abuse I pour on myself. It’s always my responsibility if something didn’t work out. Not happy? Time for self improvement. It’s rarely occurs to me that I should simply accept myself and that sometimes things simply don’t go my way. I don’t seek out self improvement for the joy of it. I do it to punish myself.

I’m terrified of letting go of my coping mechanisms. If I was good enough I would have felt loved as a child. This is a horrible inner child logic that I’m applying to myself. As if an infant deserves love because of its efforts. We love our children just for existing. And yet I struggle to express love for my own inner child.

If I stop using hard work as a coping mechanism I am afraid I’ll never be accepted again. If I let it loop even further I am afraid I will die. Because I fear I only overcame my health issues because I throw so much effort into recovery. I am afraid it is only through effort, punishment and improvement that I deserve to be in this world. Any wonder I find Calvinism appealing as a faith?

I tell myself these are rational coping mechanisms. The world does reward me for hard work and continual efforts towards improvement. I pay my bills through hard work. And sure if I don’t pursue basic healthy habits and fitness then yes I probably won’t feel as well. But these arguments are just an excuse to keep myself from accepting that I’m worthy as a human independent of my work or my health. And because I have a hard time hearing this for myself I want you to know you are worthy just for being you too. Our humanity is enough.

Categories
Politics Preparedness

Day 346 and Pandemic Inequalities

The last two years have been pretty good for the wealthy and pretty shitty for everyone else. Mostly because when governments slash interest rates and pour in stimulus, it’s the wealthy who can flood into equities and secure loans that make money functionally free. Everyone else has to rely on salaries that are paid in a currency that is being inflated.

I don’t think we are coming back from this widening division. It started before this anyway. The Great Recession and the Global Financial Crisis decoupled a lot. And you can probably blame the rest on Reagan. Hell go back to Nixon and the gold standard. Doesn’t matter. Compound interest and power laws have pretty clear math. The rich get richer.

But I’m somewhat more offended by the cultural chasm that is emerging. The labor class that lives under restrictions and fear while the elite with good passports and wealth move into Dubai apparently.

In a very fine demonstration of the power of public relations, The UAE appears to have placed glowing article in the Wall Street Journal about how Dubai is the new Covid free home of the monied. It’s a fascinating piece of propaganda about freedom to live life and do business. As long as you can afford it. It’s expensive to move to Dubai but once you are there apparently life is back to normal.

Sky high vaccinations and low taxes make Dubai a pandemic boomtown. Open borders and low infections are drawing the wealthy, businesses and tourists.

If you aren’t wealthy enough to pick up and start life over, you are stuck with whatever restrictions your nation places on you. Or conversely, you accept the risks of local transmission, vaccine uptake & political disposition of wherever you live. If you want to travel good luck with things like visas and the expense of quarantines.

I don’t know why this offends me. It’s been clear from the start that some people have had very different pandemics. The middle class has had the benefits of work from home. It’s been the working class that has had to live with all the risk and restrictions. But I do find it a bit upsetting that we are accepting new tiers of global citizenship based simply on your ability to pay to be without Covid cases. Since we can’t end this together I guess we are doomed to escape it on our own with our own abilities.

Categories
Emotional Work

Day 340 and Unconscious

I have reached the stage of my recovery process over my ankle injury that I am wondering what unconscious desire did I have to put myself in a position where I’d be reliant on others again. I’d only recently felt fully independent and healthy within the last few months. I had come to consider myself recovered. And yet here I was laid up back in bed.

A lot of folks don’t appreciate the therapeutic process of plumbing one’s unconscious desires. It has an uncomfortable hint of victim blaming to it. If something happened to you, well you must have wanted it somewhere deep inside. That sort of misses the point though. The freedom to become responsible for ourselves is hard work. It is actually much easier to allow ourselves to be a victim of our past patterns and behaviors.

We have to regularly inspect our deeply held emotions and their origins in order to live up to being an adult. Sure we all have wild inner children with deeply felt but entirely irrational reactions. Sometimes those unconscious pieces of ourselves runs the entire show. We might even fear it is the source of our unique genius. But it doesn’t have to be that way. We can appreciate the benefits of our joyful creative wild sides while still being a responsible adult that manages our inner child’s emotions.

Categories
Medical

Day 337 and Good News

On Wednesday afternoon I had an accident. My husband heard a snap and I was on the ground. I fucked up my ankle. X-rays and urgent care visits ensued and we begged our way into an orthopedist to assess the damage and get an MRI and ultrasound. The initial shock was wearing off.

The mobility aids dropped off by my concierge doctor had me feeling much more optimistic that whatever the diagnosis I could manage. A walker could easily get me to the bathroom on my own power. A shower chair was arriving from Amazon so I could finally wash up with something other than wet wipes. We’d also acquired an infrared sauna, a number of supplements to supplements to support ligament recovery, and some cold compression devices. I’m hoping it get an electro-stim device as well.

The orthopedist we’d begged our way into first thing this morning had good news for us. I’d torn two ligaments but it was pretty run of the mill. For once I didn’t have an exciting diagnosis. It was boring and simple. It wouldn’t require any surgery. It would be two weeks of keeping all weight off my ankle and then a slow introduction to physical therapy. If all goes well I’ll regain mobility in a month.

I’ll be wearing a boot and using a walker for a while but we can slowly introduce weight bearing activities at physical therapy within a few weeks. Maybe by Christmas I’ll be able to get myself up and down stairs. Since I don’t want to miss our Christmas tree being upstairs for the entire season.

Categories
Medical

Day 336 and Inaccessible

I’m probably still in shock. The last 24 hours have been a whirlwind of favor trading and phone calls and begging as we try to figure out the extent of the damage to my ankle. Something is broken but still need an ultrasound and an MRI to assess a full recovery full protocol. We are mostly hoping I can avoid surgery. But we will know more once I meet with the orthopedist tomorrow.

The only upside to this mess is living in Boulder Colorado we’ve got access to the best sports medicine on the planet. We were able to get excellent recommendations on in orthopedic specialist and thanks to wonderful friends secured an appointment within 24 hours.

I’ve also got an incredible primary care physician that has spent the day putting together all of the basics for healing and recovery. She thought of everything from bandaging to mobility aids to supplements. And she makes house calls.

I am however pretty shook up and in a lot of pain. I misjudged crutches this morning and took a terrible fall trying to get to the bathroom. You never notice how inaccessible the basics in life are until you need help getting onto the toilet. I am going to need round the clock help for a bit until we figure out how to install things I can lift myself up on. So maybe my upper body still will improve? But otherwise it’s pretty dehumanizing.

I’m also stuck on the top floor of our three story townhouse as the only way to get down the stairs currently is on my ass with the scoot and lift method. Thankfully Alex doesn’t seem to mind me using his office desk as a dining room table for a bit. They are too narrow to carry me down so this will be a bit tricky for the time being. We can’t have me on the middle floor as there is no bathroom and the downstairs doesn’t have a bed so this will have to do for now.

Categories
Chronicle

Day 335 and Ankle

I was going for a walk and misjudged coming down a stair. We’ve got tiny stairs of rock and wood and hand poured concrete in the courtyard of our complex. They aren’t the most even. I don’t know how I came down so hard but Alex said he heard something as I came down. I tried to get back up and put weight on my foot and immediately collapsed. I must have screened loudly as everyone came running.

I couldn’t make it up the stairs to get back into the house. I had to scoot myself up the stairs using my arms to lift me and shimmying my ass. I kept trying to test if could manage any pressure on it. I had tears running down my face and my iPhone giving me tachycardia warnings.

I initially crawled myself upstairs to get in bed so I could elevate and ice. We weren’t sure if it was a sprain or an actual broken bone or ligament. We called around to see if anyone had doctors who made house calls. The last thing I wanted was a four hour emergency room visit while I was in excruciating pain. But eventually the feedback from a virtual visit was I needed X-rays as it’s not a good sign that I can’t apply any pressure to it.

The urgent care center got me a boot and crutches and I’m waiting on the X-ray results. I am so angry as I don’t want a random health thing requiring surgery and physical therapy and months off my feet. I feel like I just got to a great place with my health recently. To have a set back with my existing issues would have been more of the same. To have something new feels profoundly unfair.

Categories
Emotional Work Internet Culture

Day 293 and A Good Cry

I’m a cryer. I hear the swell of trumpet from the Star Trek theme song and I’ll start welling up. I’ll read a poignant passage in a cheesy airplane novel and my chest will tighten with emotion. My eyes will tear up when I tell a friend that I’m proud of them. I’ve found myself sniffling over a set of emotional text messages. I love a good cry.

I think I’m a cryer because I bottle up my emotions otherwise. I’ll share feelings in public but the real deep down core emotions are harder for me to express openly. The fear and hurt and sadness that make up the core of my emotional unconscious take some coaxing and a lot of psychological safety to get out into the open.

One of the reasons I find social media so much fun is it is a cesspool of emotions. Much of shitposting is just rage and anger expressed with a joke. And the shitposts that are sad are often told with a kind of vulnerability that I more commonly associate with 12 step meetings or group therapy. Internet culture has become an escape valve for emotions we didn’t know we even had.

The more I see the negatives that comes with keeping emotions bottled up the more I appreciate ways to let them out. If it is a good cry then I’ll take whatever brings it on. If you need something stronger than I highly recommend a light dose of Internet emotions. Just don’t let it overwhelm. Ease into the shallow end with an anonymous shitposting account first.

Categories
Emotional Work

Day 291 and Self Control

Self control is a form of self abuse for me. Early in life I learned that I could control others by controlling my emotions. Instead of showing my feelings, I’d distort my emotions into whatever got me attention from adults. That’s pretty clever for a child, but is the road to misery once you’ve grown up.

Alas I’ve kept up the habit of self control. It might not look like it from social media or press narratives, but I self censor a lot. I’m often conscious of what others will like or dislike and I will edit my feelings if I feel it isn’t to my benefit. What can I say, I am still hurting from feeling like I wasn’t loved as a child by my father. Same old story that everyone has in their lives (well maybe for you it was your mother but same idea).

But it hurts to keep your emotions inside. Eventually it will turn into pain or sickness. Not that I’m saying all pain or illness is caused by emotions (that’s some bullshit) but the mind body connection is real. The point is it’s only hurting myself to exert so much control over my emotions.

I need to get more comfortable with being uncomfortable with other people and how they feel about me. The control I have is largely a fantasy. It’s not that it’s not possible to change how others perceive you. Hell I’ve picked professions where that’s practically the main skill set. I love the perception game. Public relations, fashion, even venture capital are all games you win by building a good reputation.

Having a good reputation doesn’t mean turning off honesty. If anything reputations are built on being trustworthy. And that generally means saying what you mean and meaning what you say. So I’ve got to stop abusing myself by choking off emotions I don’t think others will like. Maybe it’s a gender thing. I learned pretty quickly no one likes an angry woman. But sometimes I get angry. Whatever excuse I’m using for hiding unpleasant emotions has got to go.

Categories
Emotional Work Internet Culture

Day 283 and Presencing

Nick Couldry uses the term ‘presencing’ in his book Media, Society, World to talk about how we go into digital or media spaces to manage our presence over time. It’s a way we cultivate a sense of wider purpose through a public presence. And because of the way suffering and trauma marginalize people, this act of making yourself more visible is even more important.

I was browsing Anne Helen Peterson’s newsletter Culture Study when the above quote hit me over the head. The interview was on the topic of ambiguous grief with a media studies professor Samira Rajabi. While the writing is almost uncomfortably academic it resonated with me immediately. I have been engaging in presenceing for the entire course of my illness. I just never had a name for why I felt like a public presence mattered to me.

While it sounds unbelievable, I never considered that I might be using social media as a way to give myself visibility in the face of the trauma of an extended and chronic illness. I’ve always been a heavy user of social media so I didn’t find it unusual that I spent significantly more time on Twitter and blogging as I went through the diagnosis and recovery process.

I had been used to being visible in my previous life. I was regularly in media for my startups and I had cultivated some amount of public presence on and off since I was in college. But I didn’t really become a Twitter personality that cultivated a presence and interactions and a voice until I got sick. Without knowing it was presencing myself.

In American culture in particular, there is a strong preference for triumphant stories. So we can conceive of suffering if it can be managed and overcome, but rarely do we know what to do with a story of chronic pain and suffering and how relentlessly it reminds a person that they no longer fit into the so-called “normal” world. To me, it becomes even more important for those people to be seen.

I really wanted my story to fit into a narrative when I first got diagnosed. I had all kinds of ambitions of overcoming and healing that were quickly dashed on the reality of my life. I was never going to be normal again. And I hated that. I still find myself overcome with grief at the prospect that there is no triumphant return.

But I want people to see that grief. And see that it’s alright. That life went on. I didn’t lose myself. Even in pain and illness, or perhaps because of it, I’ve gained ground in finding myself. The pain and degradation of illness is ugly and shitty but also powerfully transformative.

I have not given up just because the narrative isn’t clear and the story has no simple arc. Any impression we have that stories have structure is imposed in hindsight. We love our post-hoc rationalization. We love our pattern recognition. But the through line is never clear in the moment. And that’s why presence matters. We all need the visibility of the truth even if it doesn’t fit neatly into the story our culture has given us.