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Aesthetics Emotional Work

Day 284 and My Birthday

I’ve not enjoyed celebrating my birthday the past few years. There hasn’t felt like a lot of joy to go around which hinders my appetite for celebrating. I was struggling with my health and then the planet was struggling with a pandemic, and frankly I was just too sad to see my way into being happy about a birthday.

Not that I’ve traditionally been a big believer in birthdays. Some people love them and I find that lovely. I think it’s nice to celebrate another turn around the sun but it’s not generally been the mile marker for my own life. I’ve looked to other markers like the new year or the start of a new project. This post is title day 284 because on New Years Day I committed to write on essay every single day. But I don’t entirely write off birthdays. I do have little rituals that I enjoy for my birthday, and I was relieved that they felt joyful again this year.

I like to call my mother at precisely 7:14am California time as that was when I was born. I have always felt like my birthday was as much about her as it was about me. She brought me into this world, so taking a beat for the exact moment of my birth with my mother has felt like the most important ritual.

We were texting before the clock turned as we are on mountain time now. But at 8:14 MTN, I turned the text into a call and we got to enjoy the moment together.

It’s been hard to find the right ways to spend time with people as the various worries of the pandemic added rules and concerns to interactions. But today we just celebrated. I had lunch with my mother and my husband. We got an enormous sushi lunch. And then a surprise chocolate cake. And while this was all decadent it was also normal. It was normal to have a fancy meal and cake on your birthday with your family. I’d like to have more normal because that means more joy. And that’s my wish on my birthday. That we all have more normal joys.

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Emotional Work Internet Culture

Day 283 and Presencing

Nick Couldry uses the term ‘presencing’ in his book Media, Society, World to talk about how we go into digital or media spaces to manage our presence over time. It’s a way we cultivate a sense of wider purpose through a public presence. And because of the way suffering and trauma marginalize people, this act of making yourself more visible is even more important.

I was browsing Anne Helen Peterson’s newsletter Culture Study when the above quote hit me over the head. The interview was on the topic of ambiguous grief with a media studies professor Samira Rajabi. While the writing is almost uncomfortably academic it resonated with me immediately. I have been engaging in presenceing for the entire course of my illness. I just never had a name for why I felt like a public presence mattered to me.

While it sounds unbelievable, I never considered that I might be using social media as a way to give myself visibility in the face of the trauma of an extended and chronic illness. I’ve always been a heavy user of social media so I didn’t find it unusual that I spent significantly more time on Twitter and blogging as I went through the diagnosis and recovery process.

I had been used to being visible in my previous life. I was regularly in media for my startups and I had cultivated some amount of public presence on and off since I was in college. But I didn’t really become a Twitter personality that cultivated a presence and interactions and a voice until I got sick. Without knowing it was presencing myself.

In American culture in particular, there is a strong preference for triumphant stories. So we can conceive of suffering if it can be managed and overcome, but rarely do we know what to do with a story of chronic pain and suffering and how relentlessly it reminds a person that they no longer fit into the so-called “normal” world. To me, it becomes even more important for those people to be seen.

I really wanted my story to fit into a narrative when I first got diagnosed. I had all kinds of ambitions of overcoming and healing that were quickly dashed on the reality of my life. I was never going to be normal again. And I hated that. I still find myself overcome with grief at the prospect that there is no triumphant return.

But I want people to see that grief. And see that it’s alright. That life went on. I didn’t lose myself. Even in pain and illness, or perhaps because of it, I’ve gained ground in finding myself. The pain and degradation of illness is ugly and shitty but also powerfully transformative.

I have not given up just because the narrative isn’t clear and the story has no simple arc. Any impression we have that stories have structure is imposed in hindsight. We love our post-hoc rationalization. We love our pattern recognition. But the through line is never clear in the moment. And that’s why presence matters. We all need the visibility of the truth even if it doesn’t fit neatly into the story our culture has given us.

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Emotional Work

Day 278 and Overshooting

I have been feeling terrific. That means I’ve been able to do a lot more. But it’s also one of my tendencies to overshoot my capacity. Workaholism, like any addiction, is something I’ll have for the rest of my life. Being in recovery for it means recognizing I could relapse.

I feel a bit of that overextended twitchy feeling at the moment. That jittery adrenaline fueled vibe that proceeds a crash isn’t something I’ve allowed myself to feel for several years as frankly I was worried I’d go on a bender. A bender for me is perceived as societally approved. Look at that work ethic!

So this is me recognizing that I feel like I could go over the edge and I’m not going to do it. The temptation I had to find something to prolong the adrenaline of my winning work streak is heavy. I have a number of topics I’d like to write about today. I’ve got to do lists with tempting targets. But I’m not going to overshoot. I’ve written my paragraphs. I’ll tag it. I’ll send it out into social media and then I’m going to watch some trashy tv. Hold

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Emotional Work

Day 274 and Amends

If you have ever had an addict in your life you may be familiar with 12 step work. You probably know that the first step is admitting you have a problem. As anyone in recovery can tell you, the steps don’t get any easier.

I have attended Al-Anon and ACA because I’ve had addicts affect my life and I come from a family that has suffered from the dysfunction. I’ve worked the program. It’s benefited me enormously and I recommend it anyone who has experienced the harms of addictions. Because of this experience working the program when I see others in recovery I try to remind myself that working the steps is for them. I don’t owe them anything. But I do believe in grace, forgiveness and redemption is possible.

I had a formerly very close friend reach out to me to work the 9th step recently. They wanted to make amends.

Make direct amends to such people wherever possible, except when to do so would injure them or others

The 9th step is arguably the most powerful culturally to emerge from 12 step programs. While we all know admitting you have a problem and giving yourself up to a higher power is crucial to begin your recovery, making amends is about taking responsibility for yourself. It’s a step people can rush or even avoid entirely. Amends is not about saying your sorry. Amends is about taking responsibility for what you have done so you can move forward in recovery. Only by owning your past actions with those you have harmed can you begin to forgive yourself and believe that you are worthy of sobriety. It’s not really a step about other people so much as it is showing to yourself that recovery is possible.

I was overcome with sadness when this former friend reached out to me. Their alcoholism made me feel deeply abandoned as I lost what has been a close and meaningful friendship. But I didn’t feel any anger. I didn’t particularly feel wronged. Just a deep aching sadness that my friend has been taken from me and there was nothing I could do.

There are people in my life that are in recovery that have never made amends to me. Or at least they have not formally asked to make amends as part of a program. They’ve simply slowly done the work to show me I can trust them in my life. And I’ve forgiven them. But the actual step of making amends is a meaningful one. There is a reason it’s so hard to do right.

I don’t know what the future holds for my former friend and I. The fantasy I have is that they remain sober work to rebuild the trust and friendship we once shared. I missed them terribly. I mourned their loss like a death. But this is my fantasy not reality. Reality will he more complex.

I’m sad that even having been lucky enough to receive amends from them, it doesn’t mean all is well. Our actions have consequences. That’s why the 9th step is make amends and not apologize. Amends is fundamentally about owning what you have done. So while they can now begin the process of forgiving themselves, and knowing that in good faith they did make amends to me, my journey towards regaining trust in them is just beginning.

Which means I need to be responsible for my own feelings. How will my actions to accept contact, make amends, and forgive affect me, my family and my friends? There are other people that were harmed by their alcoholism. I don’t actually know yet. The sadness is still so strong. But I do know that I will attend an Al-Anon meeting, and I will pray, and I will work the steps too. And I pray willingness will come.

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Emotional Work

Day 272 and Small Steps

I talk a lot about pacing and routines and rhythms but it’s mostly because I struggle with it so much. As soon as I notice something is going in a direction I dislike, rather than course correct a little bit, I love to run in the opposite direction as fast as I can. Why be steady when chaos begets creativity?

Silicon Valley success myths are tied heavily to people that go their own way. We’ve coined terms like contrarian and narrative violation to add a high gloss to the basic truth that we just don’t like having our hands forced. Not even by ourselves. We like being able to pick and chose our direction.

This isn’t just truth of institutions or common knowledge. I get pissed when I’m forced into something by my own body. Heck, I especially dislike having my hand forced by my own biology. There is no authority more unforgiving than my own flesh.

Which has sometimes meant if I can overcome a biological reality my ego finds painful I’m inclined to do it. I love imposing brute force on myself. Naturally this habit isn’t the sort of thing that makes for a comfortable or pleasant life. But it’s a huge comfort to know that if you simply apply a little willpower you can undo the sins you’ve spent too much time accumulating.

Just look at some of the habits that have gained popularity in startup culture from intermittent fasting to overnight work sprints. Those techniques work. Some are arguably even sustainable for people. But it’s important to remember no matter how much we like to make things happen quickly, decisively or in new directions that sometimes the reality of being human cannot be ignored. On those days remember it’s ok to take small steps.

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Emotional Work

Day 269 and Pacing

I’m very defensive of my time. While I work at curtailing reactivity in my emotional growth, it’s still easy for me to feel invaded by obligations to others. Taking video or meeting in person was among my least favorite activities even before the pandemic. That’s one reason I’ve written extensively on how to communicate with me asynchronously. But another deeper reason is my fear of misusing my time. And tempting as it may be to project it onto others, I know that this fear is entirely about me.

I am very fearful of anyone needing things from me. I don’t mean things like money, favors or advice; though it is harder to say no than you’d think. My fear is deeper. I’m afraid friends and family will start to count on me for their emotional needs when I’m still figuring out how to be present for my own. I’ll deliberately put distance between myself and others to avoid feeling needed.

So what does this have to do with pacing? I’m not very good at giving myself enough space to be challenged and recovery. And when every encounter with another person is an emotional challenge, I need to be careful about pacing myself.

Maybe there is some latent autistic spectrum issues or maybe I have more trauma than I can consciously dig up but it’s a rare human that doesn’t make me anxious about the energy required for maintaining my own boundaries. It’s not about other people to be clear. It’s about me and my fears of being emotionally invaded.

As I build up more systems and accommodations to allow me to work effectively I need to figure out better pacing. How do I connect with others without emotional fear while still respecting my needs for down time and rest? Giving myself enough recovery has been an ongoing challenge that I write about extensively. But putting it into writing also serves as a valuable reminder to course correct before a crisis emerges.

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Chronic Disease Emotional Work

Day 267 and Morally Neutral Accommodations

I resisted the idea of investing in a zero gravity chair. Because of my spinal condition, I find it more comfortable to work for extended periods when laying flat. Working from bed isn’t exactly ideal, emotionally or practically. And yet I wasn’t ready to sink a significant investment into my work station. Thankfully I ended my procrastination this week with the arrival of my new altwork station.

Altwork desk in a zero gravity position

It was a significant expense but I can now comfortably spend a full workday in a chair without any adverse affects. The only downside appears to be good old fashioned tiredness at the end of the day. I’m thrilled with the investment.

I wonder why I resisted the idea of investing in a comfortable desk for as long as I did. Maybe part of it was shame that I needed what felt like such an extravagant accommodation. I didn’t feel like I was worth it. Or perhaps I felt a disability isn’t something I wanted to invest in. It was something I wanted to invest in overcoming. Spending money on making my life more comfortable and functional with my disability was hard for me to swallow.

I felt if I worked hard enough at managing the symptoms of my ankylosis that perhaps eventually I’d be able to manage sitting at a regular desk for a full work day. But what kind of fools errand was I setting myself on that I desired not only discomfort but to work myself up to enduring even more discomfort? My goal was to make myself uncomfortable.

I’ve long frustrated my doctors by resisting pain management medications. I tell myself I should grin and bear it when it comes to pain. I treated pain as if it were a moral good. I suspect I was doing something similar with resisting a comfortable chair. I’ve got a problem with equating suffering with morality.

Thankfully I was able to set that aside and buy the zero gravity chair. Now rather than suffer and tell myself I’m a better person for it, I’ll actually get my work done in comfort. Which should have been the goal all along.

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Emotional Work Internet Culture

Day 263 and I’m Baby

One of my friends got me an embroidered “I’m baby” patch with a Moomintroll holding a knife in place of the original Kirby. It’s an elaborate play on the “I’m Baby” meme and was a truly excellent Christmas gift. I’m a fan of the Finnish children’s author Tove Janson who created the Moomin series and also emotionally baby and my friend knows it.

Original “I’m Baby” Kirby meme vs a photo of my Moonin “I’m Baby” embroidered patch

The “I’m baby” meme is generally a play on why someone should be allowed to continue with their behavior or emotions without consequence. It’s a kind of elaborate joke about wishing to dodge responsibility if only for a few minutes. Obviously it’s very popular with Gen Z but it’s really more about wishing to live in a world where it’s even possible to be a baby when life feels overwhelming.

The original meme came out of an emergency but it’s come to be a kind of wishful demand and hope that one can just well be a baby for a bit and have someone else handle it.

Moomintroll is an excellent stand in for Kirby in the meme because in the Finnish cartoons he never has to live without Moomin Mama. Moomintroll is an archetypal baby. The Moomin universe has constant catastrophe (no seriously there are floods and asteroids) but Moomintroll can always count on Moomin Mama. It’s a soothing set of books for children obviously but it’s also just nice that there are parental figures to which one can turn. That’s a fantasy we all have at some point. Especially when shit looks bad.

But being baby also means someone else has to be the adult. The willful insistence on being baby is about giving your power to someone else. Unless you are literally baby (in which case how are you reading this blog) you’ve chosen to put someone else in the position of power. Which is an important lesson for adulthood. You always have the power. Even if you chose to be baby. Especially if you are baby.

So be careful when you say “I’m baby” and act helpless. You gave up your power. And that’s alright. Being helpless can be a totally cool sex thing and it’s great to chose your kink when. But you’ve got to have consent for that shit. Bringing someone else into your fantasy of being baby might be non-consensual. When my friend jokes that I’m baby it’s because he knows I like to give up my power. But alas it’s a fantasy and I can’t go back to being Moomintroll for real. But it’s a nice patch right?

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Emotional Work

Day 262 and Patience

I am in a transitional moment in life. I’ve spent the last two years climbing to my own personal mountaintop and studying at the feet of my own body’s masters. Being a student of myself and my limitations has been illuminating.

The montage scene of growing and becoming stronger in the monastery turns out to take a lot longer in real time than it does in the movies. Probably why they only show you the super cut. I did get to do most of it in isolation though so I guess that’s suitably cinematic. Most people probably imagine vows of silence not Tweeting alone from your bedroom during a pandemic but the effect is basically the same.

I can sense that I’m coming to the other side of some things. That my time becoming myself on the proverbial mountaintop is almost over. It is time to come down from my personal monastery and rejoin humanity with my learnings. I am an expanded soul from the experience of this hardship. But I’m also not quite finished with my journey back yet either.

Maybe in this metaphor I’m looking down on the city I am meant to rejoin. Or maybe I’m in a camp on my way down. Either way I feel eager to get back to the business of living in civilization. But I’m not there yet. Something is whispering patience to me. But I’m so close. I’m like an animal that knows it’s close to home and speeds up their pace. I’m anxious for the journey to conclude. But I’m not quite there yet. If you are waiting for me I’ll be there soon. What’s a couple more weeks after a couple of years after all?

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Emotional Work

Day 259 and Easing into Habits

Considering I’ve been writing every single day for two hundred and fifty nine straight days you’d think I’d have encountered more writer’s block. But I generally find myself capable of putting the proverbial pen to paper. Well in this case it is thumbs to mobile application layer but that doesn’t sound as evocative.

Even today when I had no discernible topic at the ready I am finding that words will spill out so long as I make the effort to form a thought and codify it to written form. While I had the notion that I had little to say today I am still able to say something. I am saying something about having nothing to say but it’s the act that counts.

It’s not that it’s necessarily a worthy entry, but rather a reminder to myself that the act of doing forces it’s own discipline. It’s practice. I am learning that doing something can be easy as long as I let myself relax into the momentum of doing it without expectations or pressure. This must be what all those sports speeches about practice are on about.

Seeing writing as a habit rather than an inspiration or performance likely helps. I’ve come to view the activity as similar to exercise, taking vitamins or brushing my teeth. Perhaps it’s more cognitively demanding but it’s no less part of the daily rhythm.

I’d like that to be true of more of the activities in my life. Being able to view professional necessities as habits is a sure way to see them not as exhausting “to do” lists but rather enjoyable easy daily practices. Sure it will start out harder but eventually it will become easier.