Categories
Chronic Disease Travel

Day 791 and Bathing Suits I’ve Never Worn

I’m on maybe my third or fourth trip to a warmer climate where I’ve brought a Norma Kamali bathing suit. I bought it on sale from Net-Porter as I’d always wanted one of her classic one pieces. I’ve never worn it.

For the casual reader, I have a chronic autoimmune disease called ankylosing spondylitis. It’s an inflammation condition that affects my spine and is aggravated by heat & humidity. Any temperature above above room temperature, give or take 72 depending on the humidity, starts to swell my tissues.

It’s well controlled with drugs but environmental factors can quickly spin up a bevy of symptoms including pain so debilitating I can’t walk. It’s one of the reasons we moved to Montana. I can live a semi-normal life so long as it’s cold. I spend most of my days laying flat in bed or in a zero gravity chair. My disability has become one of the super powers I use to propel my investing alpha. Because what else do you do with your time if you can’t leave bed except monitor financial indicators and chat with founders?

But back to the bathing suit. The black halter swimsuit has turned out to be entirely an aspirational garment. It’s still got the sanitary sticker for the crotch on it that says remove before wearing. I left it in and it’s become the not so subtle reminder that I may never enjoy a beach vacation again. It’s simply beyond my grasp unless I want to pay an obscenely high cost in pain and immobility.

I dutifully pack the Norma Kamali suit on each trip with a warmer climate. I’ve taken it to Miami, Texas, the Mediterranean and Mexico now. For this trip to Puerto Vallarta I packed a second bathing suit. It’s a striped bikini.

I had a fantasy that maybe I’d need a second swim suit as the other would need to dry if I swam every day. Oh what self deception we humans are capable of when it involves something we cannot have but want. I’ve never put the second suit on either. It also has the sanitary sticker still on it. It’s beginning to feel like they taunt me. Isn’t it funny that Julie still yearns to participate in the simple pleasures of life. “That dumb cunt” I imagine them murmuring as I pack.

My father loves tropical vacations. An adults only resort on a beach is his idea of a good time. And for his birthday, my brother and I very much wanted to give him what he wanted. Part of this is self protection as he often forgets to ask after other people’s preferences even if they are for something serious like a disease or disability. Better to avoid disappointment than know for sure. But also if we can give him what he wants why not make the sacrifice? It’s expensive for me energetically but I wanted to spend.

But it’s become clear I can’t make the sacrifices desired for the perfect fantasy family vacation. The bathing suit gets tossed in the suitcase with the knowledge that I can only manage one event outside each day. It’s usually a dinner or a chat.

Then I must sleep it off and work to recover. There is no space for pleasant relaxation on the beach in my body. The compressed Lycra slowly battling the expansion of my tissues as they swell overlapping with stuck lymphatic liquids would be torture. There is no joy to be found and no extra capacity to be eked out that might make the experience mimic the pleasure in a healthy body.

The fantasy is just that. A delusion I have about a life a lost and unlikely to be regained. The after effects of fertility treatments, IVF and living hard to outrun the vicissitudes of capitalism. I’ve accepted it as my lot in life. But it’s much harder to get it across to the rest of the world. And my fear that I’ll be left out and forgotten, that if I don’t fit myself into someone else’s life I’ll be abandoned. And so I rationalize that I’d be abandoned if I don’t at least try to bring the bathing suit. Even though going to the beach is a fantasy.

I hope my friends and family are able to meet me half way but I remain afraid that they don’t know how, or are unable to imagine what it’s like to live in my body. And it would be nice to be met halfway.

Categories
Biohacking Chronic Disease Travel

Day 789 and Types of Poverty

As you’ve probably seen articulated in thought leader tweet streams and thot-leader Medium posts, there are different kinds of millionaires. If you are young you are a time millionaire. If you are able bodied and healthy you are an energy millionaire.

I am in energy poverty. I carefully ration my attention & time and use lots of time-economic craft like asynchronous communication like emails and direct messages. Like a thrifty person with a budget I am always cutting the various coupons of time in my life to cobble together enough time to work full time so that no one can tell I’m energy poor.

It’s pretty common for folks to be in energy poverty. Maybe you are a parent. Maybe you are a care giver for an elderly parent. Maybe both. The most common is of course being disabled and requiring care. I am in that category.

I’ve turned my energy poverty into my super power. I am like Mr World monitoring feeds across the globe laying back and ingesting information & taking small minute actions to adjust my plans. I’ve adjust my career to fit this reality and find it to be an excellent fit for investing as it’s all about finding the alpha and acting on it.

I do telegraph that I’m in this situation. That my mind is sharp but my body is weak. I accept 2-3 events a week at maximum that require me to be up, about, in makeup and battle regalia (business dress) and the rest is dedicated to recovering.

I’ve never had hobbies that couldn’t be done from bed. The last time I participated in a sport was in my twenties before my latest flare. I’ve not had a social life independent from work for decades. It’s isolating and I remain perpetually afraid of losing people who aren’t in the same situation of energy poverty as I am.

Capacity can be drained further by negative conditions like heat, humidity or bright light. I am the type of disabled person that finds showering to be a huge drain so typically include those in my energy budgets as drains. Travel requires 24-48 hours of minimum recovery time which is why I tend only do month long stays places. You may have noticed I go cold places like Prague or Frankfurt and I live in Montana. That’s based on doctor recommendations.

Certain types of travel can’t be done without significant outlays of energy budget that will leave me in deficit for weeks. Beach vacations have long ago been lost but I can manage a tropical location so long as I stay entirely inside in an air conditioned room. Don’t worry laying on the beach isn’t fun for me so I’m not missing anything. Heat & salt water humidity is the fastest way for my body to begin an inflammation cycle.

I’m in Puerto Vallarta for my father’s birthday and the best I can manage is stay in my room all day and a dinner every other night. It’s a little confusing for folks who aren’t in energy poverty to fully grasp the concept but I feel no more frustrated with my situation than I would if I had financial poverty. Sometimes it’s just the situation and your budgets have hard limits. I’ll make an effort and spend 2 weeks of an energy on a long weekend for someone I love but it does cost me. Everything costs something.

Categories
Politics Travel

Day 787 and Feeling Rich

I accidentally shattered the glass on a social phenomenon that my husband hadn’t consciously noticed till I brought it up. There is a fondness among rich white wealthy countries for taking vacations in places where they feel richer. It’s not good enough to be middle class in a wealthy country, the goal is feeling wealthier in a poorer one.

The British have Thailand, the Americans have Mexico, and apparently the Germans have Mallorca but you could probably spend half an hour naming places in which first world white populations like to go on vacation to feel richer than they actually are in their home country.

It’s just particularly acute with Americans, especially our Boomer class elders. The American middle class loves to feel rich. And we are rich comparatively. We are in the global 10% every last one of us. The poorest American is almost astonishingly better off.

It’s a part of the God given inherent manifest destiny of our mythos that all Americans are rich and it checks out when you compare us to other economies. But what happens when you don’t feel rich at home?

Apparently you go abroad because being rich and living in luxury aren’t the same thing. Plenty of Americans don’t feel rich. It’s a source of intense insecurity and much of our national politics reflects the desire of Americans wanting “being rich” to mean living in luxury in comparison to someone else.

I don’t fully understand it or even like it but I’m experiencing it in Mexico right now and it’s not an entirely comfortable existential experience.

Categories
Chronic Disease Travel

Day 786 and Snow Birds

I woke up at 5am this morning to begin my journey from Bozeman to Puerto Vallarta. My father’s 80th birthday celebration is taking place in the appropriately warm tropical conditions so favored by retired snow birds. And it’s his party so he gets to chose his favorite location for us to gather to celebrate him.

Both my father and I live in Montana, but he tends to prefer travel more than me by a wide margin. I travel mostly for work and family obligations. I don’t find travel to be fun or an enjoyable luxury. Vacations aren’t my thing. Especially when it involves travel to somewhere hot. I would have been happy to celebrate in the -20 in Glacier personally.

Most of dislike of travel comes down to not caring for hot weather because of how much it hurts my body. It makes my spine swell. Humidity and heat are my enemy. I live in Montana partially for health reasons as anything above about 75 kicks in some of my inflammation issues.

Add in the additional strain on the spine of sitting in uncomfortable seats for hours and I’m currently struggling mightily not to wail uncontrollably from the pain. I desperately want to lay flat to ease some of the tension that has built up from needing to hold my body still and upright in uncomfortable airplane seats. I don’t want anyone to see that I’m barely holding back tears because the pain is so bad.

Alex got tisked by the flight attendant for trying to retrieve some of medication as we’ve got one of those useless bulkhead seats. It’s a terrible choice for even a modest disability as all the things that keep me functional in my travel bag were immediately whisked into overhead compartments. We didn’t do it fast enough and the attendant hovered asking that we hurry it up.

I haven’t done short haul flights in a while as most of my travel has been flat lay seats on international overnights. I wasn’t prepared for how much sitting up in a tight domestic airline seat would hurt. All I want to do is lay flat on a bed for 24 hours after this.

I’m on an airplane packed to the gills with Lily Pulitzer knock off wearing Boomer blondes and their salmon shirt wearing deeply tanned husbands. They all seem cheerful and excited to be headed to Mexico. Snowbirds are a colorful species. An exotic and hopefully endangered species that will eventually give way to more local and regional appreciation as the next generation of travelers pursues less Jimmy Buffet stylings.

Categories
Travel

Day 752 and 24 Hours

I cannot remember the last time I pulled an all nighter. Probably something related to Black Friday sales. But in order to travel back from Prague to Montana I was awake for 24 hours straight across three flights and four separate airports.

I hadn’t really intended to be awake for the entire trip but because one has to pad timing around flights these days, every leg of the trip involved three or four hours between flights or an extended delay that has me running.

I was awake at 5:30am in Prague for a 7am flight that boarded at 7am. I arrived in London at 10am GMT after delays. My Heathrow to Denver flight was meant to department at 1pm. That 9 hour flight was the most pleasant part of the journey but I didn’t want to nap during it as I was concerned it would make my jet lag significantly worse.

I landed in Denver at 3:30pm Mountain time which is 7 hours minus GMT and 8 hours behind Prague so it was 10:30pm for me. I was dragging as that was a long day in and of itself. And frankly I’m used to living off a hub like Denver so a final leg of the journey was a new experience for me.

It was snowing in Denver which had created a significant backlog for takeoffs as everyone needed de-icing. I made a made dash for the 1:30pm Bozeman flight that was delayed to 4pm. I sprinted through Global Entry and back through security but the doors had already closed. I had to wait for my originally schedule 7:30pm flight.

Miraculously that flight was only delayed to 8pm because of the weather but I still found myself sitting in Terminal B for hours as my energy flagged and my spine started to hurt. My body clearly knew it was time for me to be in bed but here I was under florescent lights, eating a Caesar salad at a chain restaurant, waiting for one last flight.

When we boarded at 8pm it was 4am for my internal body clock. Thankfully the 700 mile flight from Denver to Bozeman is only a little over an hour. We touched down at 930pm. By the time I got to Alex waiting for me outside I had been up for exactly 24 hours.

I crossed a contingent, the English Channel, flew over the arctic circle and through another continent, which is an impressive territory to cover in a single day. But what a long day it was.

I slept from 11pm to 10am MTN to make up my sleep debt for the all nighter and I am still pretty tired. That was the equivalent of sleeping till 5pm. It all felt very collegiate to sleep through “the entire day” even though I am now settled back into my original time zone.

My Whoop recovery score was a 24% so I was pretty into the red from the whole experience. But I should be ready to spend the week on the proper time zone so I suppose it was all worth it.

Categories
Travel

Day 751 and The Voyage Home

I began my long many legged journey back to Montana at 5:30am GMT+1. Most of my west coast friends haven’t even gone to sleep for their Friday nights as I set off before dawn on Saturday. Time zones are fun.

Journeys home make for a great narrative arc as we follow our hero from foreign lands back to his or her native land. My home is Montana so the trek from Prague is many legs and transitions.

Vaclav Havel Airport 5am in snow

She knows, now, absolutely, hearing the white noise that is London, that Damien’s theory of jet lag is correct: that her mortal soul is leagues behind her, being reeled in on some ghostly umbilical down the vanished wake of the plane that brought her here, hundreds of thousands of feet above the Atlantic. Souls can’t move that quickly, and are left behind, and must be awaited, upon arrival, like lost luggage.

William Gibson, Pattern Recognition

The first quote that comes to my mind is William Gibson’s theory of jet lag from Pattern Recognition. My soul finally caught up with me in Prague and now I’ll be waiting on my soul tail cruising behind me as I cross a continent, a channel, an ocean and another continent. I’ve got no lost luggage but a lost soul is a perpetual risk of globe trotting.

I used “The Voyage Home” as my title as it happens to be tied for my favorite Star Trek movie (along with Wrath of Khan). Yes, it is l own as “the whale movie” in which a pair of humpback whales must be brought from the past to save Earth. It is called the Voyage Home as Spock is being brought back from Vulcan by his crew after a death and rebirth sequence.

Trailing souls and rebirths are satisfactory metaphors for traveling. We work to maintain our sense of self even as our surroundings change. Sometimes those changes are transformative.

And like Spock I am stumped by a key question. “How do you feel?” Unlike Spock I do not fail to understand the nature of the question. I am sad, ashamed, angry and tired after the second visa failure. But if I must imitate everyone’s favorite Vulcan, you can tell my my mother I feel fine. Or I will soon. I am knitting together the timeline of my future with my soul in tow.

Categories
Aesthetics Travel

Day 750 and Interstitial

If you have ever stayed in an airport hotel or a particularly standardized corporate hotel, you’ve encountered the grand global homogeneity of acceptable hospitality.

Airwave bedroom at a Marriot in Prague

This aesthetic owes a debt to Silicon Valley and the way we’ve sanded off peculiar edges and smoothed over individual characters to make the real world’s brand book as consistent as our virtual ones. It’s called Airwave.

If you enjoyed the silky sameness of a WeWork or a perfect Airbnb or the reclaimed wood counter at a third wave coffee shop in Prague or Frankfurt, you’ve enjoyed Airwave.

If you travel enough, you find the aesthetics comforting eventually. As if your entire palette or taste profile was subtly sifted into the window of preferences set by an art director at an advertising agency in Brooklyn or Amsterdam.

Soothing sameness

Sure you seek out newness and novelty, but also you are glad for the suite at the just nice enough Marriot which delivers you a club sandwich with a request to room service. Remember when Jonny Mnemonic screamed for room service? If you are of a certain age I bet you do.

Ah the height of luxury for a data currier criminal of cyberpunk legend is now the expected outcome for the rootless cosmopolitans. Who is to stay which of us as a worse dystopia?

Categories
Travel

Day 749 and Beef

Living in Montana means I have no shortage of excellent beef. I’ve yet to have a bad steak or even a mediocre burger when I’ve shopped locally. Grass fed free range Montana beef is a luxury that is worth it.

I’ve got higher standards for meat because of it. So it was a very pleasant surprise to discover that the Czech appear to have the same affinity for meat as Montanans. I had some truly excellent beef in Prague. And I didn’t even eat a single steak. It was all peasant working class cuts.

Beef Goulash from Pilsner Urquel

Obviously I made time to explore beef goulash while in Prague. It’s not made with expensive cuts of beef. It’s generally Chuck or round. It’s stewed to be tender. The goulash I had at Pilsner Urquel was less than $20 and was absolutely stellar. I don’t drink but the few sips of dark beer I had cut the fat and spice perfectly.

I also I unexpectedly had one of the best burgers of my life at a butcher’s shop called Naso Maso. Their beef comes from Czech Fleckvieh cattle and is butchered in Jenc by hand. The shop only has a few seats but you can come in and order a burger to be grilled on the spot.

Naše maso cheeseburgers

Blessedly the Czech don’t have the same regulatory habits as the Germans so meat can be served rare. Nothing is worse than overcooking a hamburger in my book. Smash burgers were clearly invented to sell low quality beef. The Maillard effect isn’t enough to overcome the fact that it is lower quality.

It’s a real pleasure to enjoy exceptional beef from people who clearly appreciate everything about the nuances of the execution. Montanans and the Czech clearly share similar values.

Categories
Emotional Work Travel

Day 746 and Control

When I feel afraid I seek control. I have rituals and rhythms that help sooth the fears of my inner child.

This morning I was in my least favorite fear control pattern. I had to leave a temporary hotel for a new Airbnb as a mold issue destabilized my first week. Hives and prednisone and such. I hate packing and I hate the logistics of it. It reminds me of my childhood nightmares.

I set my alarm early enough to get breakfast and packing in before the slightly too early checkout. I was racked with anxiety I couldn’t repack everything as I’d acquired new items meant for an apartment stay and my suitcase overflowed.

I had vitamins and medicine to take but I couldn’t do more than choke down a croissant. I ordered fruit and cheese and than was too worked up to eat it. I hate wasting food so I wasn’t thrilled. I beat myself up for being a bad person who can’t take care of herself.

As soon as realized how had it was getting I took an Ativan. Joke all you want about benzodiazepines but occasionally they are the barrier between a traumatized woman and the history of her fears. Probably why it’s such a cliche. Just the sort of thing you learn as you are alone in a foreign country where you don’t speak the language.

I felt so rushed by the need to be out at a certain time. Each knock on the door a reminder of my failures. Each internal call to calm down a criticism I recalled from my father, my coaches, my bosses and my lovers. A hysterical woman is a shameful thing.

Each “hurry up” a reminder that I am someone who is policed and polite and controlled for other people’s convenience. I am not allowed to be scared or cry or reactive. A hysterical woman woman is, again, a shameful thing.

Finally after the tension and anger and shame bubbled up, I threw the first thing I could get my hands on to release the tension. Better than hurting myself a dim quiet voice said. I cracked my watch face. And immediately felt better. And so embarrassed I’d boiled over.

I’d only needed five more minutes to get myself together. Just a moment. Give me a second. Please just let me be. And each time my preferences had to accommodate someone else I lost more of myself.

I was able to exert the seamless self control over my emotions eventually. I checked out. I tipped. I’m swanned over to my new digs. I executed exactly what I needed and got on with my workday. But the shame stung and the control soothed it like a cold aloe gel.

Categories
Travel

Day 745 and Restless Travelers Scrolling

Coming of age in the golden era of digital hospitality had an enormous effect on my expectations for flexibility on the road. I rarely book ahead, I never worry about finding a place to stay, I overpack luxuries and I am always uncomfortably on the hunt for my personal totemic signifiers of safety. You need things on the road to keep your rituals intact so you don’t drift.

I know how to search for a place to rest and I restlessly pursue it on the road. Singles browse dating apps like I browse Airbnb. I spot red flags on apartment listings like a woman who has been on one too many bad dates.

I spent much of my childhood traveling. My most potent recurring nightmare is packing for a trip that never arrives. I have lived in a perpetual state of readiness to get up and leave. I bring endless tiny compacts and one singular pair of high heeled shoes for a night out I never go on. I am ready for glamour on the road but all I find is the anxiety of instability.

It’s this perpetual readiness to flee that has made me an exceptionally good picker of hotels, rental units, vacation homes and other short term stays. I couldn’t afford a deposit for an apartment in New York for so long that I could find an under-market illegal sublet on Craigslist on a moment’s notice. It’s a handy skill set.

Naturally I’ve come to take this talent for granted as I’ve cultivated it. I’m confident that I’ll pick a decent rental because I can spot issues from miles away. I admit I’ve looked down on complaints about how bad Airbnb has become. I thought I’d avoid the quality control issues. It’s no longer a better value than hotels generally speaking but the real crime is that it’s troubles are not worth the hassle for many. It’s not seamless like a branded hotel.

I felt the hassle was worth it for the comforts of home on the road. But I think I’ve crossed my personal Rubicon on Airbnb in Prague. I won’t default to it any longer. The costs are now basically identical. You’ve got to weigh the costs of friction against having your life a bit disturbed. Hotels specialize in hospitality. It’s probably worth remembering.