Tag: Energy

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Chronic Disease Emotional Work

Day 191 and Logistical Leverage

I hate logistics. It’s not that I am incapable of operational tasks, but I do not find them enjoyable or energizing. I’m happiest working from the 30,000 foot vantage point and most stressed when keeping tabs on the 1,000 foot details. Thankfully I discovered this about myself early in life and had the good sense to choose a life partner that feels the opposite.

My husband is a genius operator and loves logistics. He can find efficient ways to manage nearly everything. He is a COO both professionally and personally. He manages everything about our household. I used to feel a bit guilty about the fact but I’m objectively terrible at home economics as frankly I just get in the way when I try to pitch in. All those sit-com jokes about husbands who can’t fold laundry right? In our house it is reversed. Which is a bit embarrassing as I worked in fashion but bygones. I just get in Alex’s way and he would prefer not to be slowed down by my bumbling efforts.

Recently I had to take on life & home workload in addition to my own. He had to take his first trip since the pandemic began. I haven’t been without him since February of 2020 so it has been a while since I’ve had to manage without him. And wow did it show!

I maintained the same of basics into my system, the same routine, supplements, diet and treatments with the only addition of Alex’s workload. I only added an additional 2 to 3 hours to my time obligations, so roughly an extra 9% my day, but it had close to a 30% impact across all my core metrics.

Because I track so many biometrics on a daily and even persistent basis I know my physical and emotional baselines. Without Alex managing life, my physical capacity dropped across the board over two days. The additional household logistics, errands, cleaning & cooking & overhead dramatically impacted my capacity.

Within 48 hours all my body’s baselines worsened. My HRV went down an astonishing 22%. Whoop gave me recoveries at 33%. My RHR went up by a full 10%. My qualitative pain scores went from consistent 3s and 4s to a 7. My energy scoring went from a perceived 6 to a 2. Gyroscope dropped my health grade from 85 to 78. It was a mess.

It turns out that Alex has added significant capacity to my life. Work that takes him just a few hours a week enables me to thrive. It takes very little from him but it means the difference between barely getting by and having the capacity to work for me.

Maybe it wouldn’t be as easy for another person. Alex is a very high leverage person in general but particularly for me. 10% of my day for a 30% improvement is significant. If your spouse is the operator in your partnership it may be quite fun to quantify their impact. Nothing says I love you quite like proof of how much their efforts impact your biometric data.

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Emotional Work

Day 188 and Space

I over scheduled my day today. I figured it was fine as I left some half hour blocks between calls, pitches, errands, workouts and chores. That’s what most lives are like right? You get up, shower, exercise, get the family fed, go to work, have a short lunch break to eat at your desk, go back to work, then you’ve got errands and then it’s back to family obligations.

If that’s what most people’s lives are like it’s no wonder we are in the midst of a rebellion. I’m exhausted. I haven’t had a moment to think or self reflect at all. I feel so far away from myself after the parade of obligations. And I actually meditated and did thirty minutes of “brain training” on my at home EEG. And I went for an hour long walk! So why do I feel like I haven’t had any space today? Those things are restorative right?

It sounds incredibly luxurious when I put it down on paper. I’m doing shit to improve my brain function and I got 10,000 steps (I like to take calls while walking) so why do I feel frazzled? As it turns out I’ve actually faced this problem before. And thanks to my daily exercise of writing I put it down on paper. I can learn from myself.

I benefit from unstructured unencumbered time at rest. It’s not that I need it to be alone time or quiet time as much I need full on rest. I thrive when I have no reason to get out of bed. I do my best reading and synthesizing when my mind is free to wander without any obligation to anything but that space.

When I wrote that I meant it in the context of devoting enough time to active rest. But as it turns out I don’t just need rest on weekends. I need to give myself time in between tasks. I need to let my mind wander off instead of forcing it on to the next activity. I need to take some space to myself between each activity, even if it’s a nice one like a walk, to absorb and synthesize.

I’d encourage you to consider if you are giving yourself enough space to let your experiences integrate back into your mind and body. Sure we all have our obligations but maybe you’d be more efficient at them if you have yourself the space to breathe in between them. On that note I’m going to put on some television and go shit post on Twitter. I need to integrate my learnings from the day.

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Emotional Work

Day 185 and Small Potatoes

I’ve been stewing on something for the whole day so I’ve not felt I had the mental focus to write. Plus it’s 4th of July and I was busy eating BBQ and watching Roland Emmerich movies. I’ve watched Independence Day every single year since it came out and that’s as traditional as Die Hard on Christmas.

The reason I was stewing this morning is I feel like I’ve been wasting my energy on something. It didn’t start as a waste but it’s dawning on me that I’m not the best at protecting and preserving my limited reserves. I say yes to say too much.

I’ve got to stop fucking around with small problems. If I’ve got the capacity to manifest shit into reality 20% of the time why am I using that up on small potatoes when it’s just as much work to do it at scale?

Why put my energy into solving smaller problems when I can swing for the fences? Why do I think small potato problems are worth an iota of my energy. I am the type of woman who refuses to cook because it’s an inefficient use of time when industrial society has packaged foods. So why the fuck do I keep saying yes to people and problems that I don’t think are worth my time when I won’t even boil water? What the actual fuck is wrong with me.

I just feel too much social pressure to say yes to asks. If someone gets me excited to help I’m terrible at stepping back. I got convinced I was a mean bad person when I said “no” as a younger woman. I was told I wasn’t being accommodating. I was told I wouldn’t be well liked if I wasn’t nicer. Now I’m beginning to realize this was potentially poor advice. Might even be a function of gender (got to be a good girl). Either way I’ve got to stop saying yes to shit.

I’ve got limited energy and time. We all do. But it’s especially true for me as I deal with a disability in my ankylosing spondylitis. A chronic disability means saying yes like an abled person is terrible strategy. I’ve got to play the game smarter, budget my energy and time like the limited resource that it is and get over any past perceptions I cling to about “being nice.”

You know what isn’t nice? Saying yes to something you don’t want to do because you don’t want to hurt someone. Then you hurt two people. And one of them is yourself.

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Aesthetics Background

Day 184 and Enthusiasm

“Nothing great was ever done without enthusiasm!”

Some Waldorf classroom recitation

I went to a type of school called a “Waldorf” school for primary education. It’s a pedagogy that believes education should balance intellectual pursuits with artistic and physical ones to develop a well rounded human. A popular coinage is “head, heart and hands” but that’s honestly way too hippie dippie for what is a very practical and grounded approach to learning to be a human that has need for physical, spiritual and cerebral training.

Instead of staring at books all day you spend quite a bit of time on more classical pursuits to balance out traditional subjects like math and histories with music, drama, and a wide variety of physical education. Now you may think ok that’s just gym or music class right? Well, sort of, in the same way learning the alphabet is useful for reading. You need building blocks first. Small children aren’t particular good with javelins, Greek tragedy or the flute so they start you out small. Think “Sound of Music” Do-Re-Mi but for every subject.

One of the techniques Waldorf uses to help children learn to manage their bodies (likely also emotions & mind) is regular recitations. You memorize poems, chants and pieces of drama. You then physically practice run in a group or individually. Often a sequence of rhythmic clapping, chanting, stomping or other ways of integrating your body to the mental act of memorization is part of the process. It can be as complex as a portion of the Bhagavad-Gita (yes I’ve done this) or as simple as a sports chant.

“Nothing great was ever done without enthusiasm!”

I’ve got a fond memory of a classroom teacher insisting we start the day with energy and enthusiasm by using what is basically an arena chant that would be suitable for cheering on a sports team.

She’d have us get on our feet and in unison recite back “nothing great was ever done…..without….EN-THUS-IAAAASMMMMM!”

We’d repeat it over and over again with a 1-2-1-2 beat upfront and then a pause between done and without, and then a great push to pull out the word enthusiasm, with well, as much enthusiasm as we could muster.

By the end the entire class would be all smiles taking huge breathes to push out all the air they could through their diaphragms to put as much emphasis on “enthusiasm” as they could deliver. We’d be standing tall with our shoulders pulled back to give us the maximum advantage for our breath work. I swear these kids had a better grasp on Wim Hoff breathing than an Olympian. For a 5th grader it made use of multiple lessons we’d been taught over the years on diction, posture, physical presence, poise, timing, control and energy. Lessons that then served us well as we went on to sing Handel’s Messiah or learn Greek wrestling.

Plus it was a terrific reminder that all great things require our full selves. Enthusiasm is the path to greatness. Sure hard work and intelligence matters but if you love something with enthusiasm that puts you in the right path. So I try to remember that if I want a big outcome for something I need to feel real enthusiasm for it. And I’ll recite that chant in my head. Because that’s one of the building blocks I use to create success.

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Emotional Work Startups

Day 176 and Bias Against Action

There is a phrase popular amongst early stage startups meant to encourage faster problem solving; bias for action. It gained popularity as one of Amazon’s core principles.

Speed matters in business. Many decisions and actions are reversible and do not need extensive study. We value calculated risk taking.

Generally speaking this is a straight forward positive principle that individuals and organizations benefit from. It’s easy to become paralyzed by overthinking. The average person overweight risk and organizations are even more prone to this. Action is good when faced with external friction. And startups in particular can be killed by friction. I think a bias towards action is default good. I regularly use this methodology to make decisions for my life. In the face of uncertainty acting is often better than not.

But I’m learning that my tendency to “just do it” has some downsides. If I’m always trying to fit in more action, more decisions, more outcomes, then I can easily burn myself out. I can waste precious energy by always saying “yes” let’s do it. My enthusiasm can and does get the best of me. In other words, I’ve got a bias towards action that needs to be balanced out.

It’s hard for me to emotionally recognize that I need more of a bias against action. But I’m not saddled with the traditional issues that make a bias towards action necessary. I don’t struggle with willpower. I don’t struggle with meeting my commitments (short of being physically unable to work say 80 hour work weeks). Hell, I just decided on January first I would write something every day no matter what, and here I am almost halfway through my first year. When I commit to taking an action I generally mean it. Sometimes to my detriment given my workaholism.

So I’m reassessing when I personally need a bias towards action. Maybe I need to have a bias towards inaction so I do not let my enthusiasm for getting shit done set me back. I need to have a bias towards rest. I need to have a bias towards naps. I’d encourage you to ask yourself which side of the issue you come down on. Maybe it’s a bias towards action. That’s great! Do more and faster. But it’s also possible you are like me. Less can be more.

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Chronic Disease Emotional Work

Day 173 and Waves

Humans crave linear narratives. We do something. It has an effect. We see an improvement. I don’t know where we got this logic of clear cause and effect and simple logic arcs, because it doesn’t seem like it matches reality. Horizontal thinking has a much longer history. In antiquity no one insisted on a 3 act play. We wandered through the Odyssey.

Maybe this is why we impose routines and rhythms on our daily lives. I personally require a lot of external routines to tame my physical body. Most of my days are dedicated to simple repeatable patterns. It gives me strength. Humans look to seasons and the festivals we have labeled on top of changes. We plan our lives according the angle of the sun.

But I’m skeptical that the pattern recognition my mind lays out for me of linearity is real. Life is fully of squiggly lines. Biology resists straight lines like unpredictability is some kind of dogma. We spent all pandemic resisting exponential growth because it just didn’t make sense to our little minds.

I get lost in cause and effect every day. The insistence of my emotions that because I did “good” responsible things (like workout, meditate and therapy) means I should feel good afterwards is part of my linear bias. But it’s not true that because I was good in my activities that I should feel good afterwards. Sometimes I don’t. I can have a perfect day and feel like shit. Because fuck it cause and effect isn’t that clean. And everything is multi-causal anyways.

Life comes in waves. It builds and pulls back and then crests and crashes. I’m sure we can map some of it but I’m getting much more comfortable simply riding the waves of kids as they come in.

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Preparedness

Day 169 and Heatwave

I’m pacing back and forth inside my apartment. I need to get in my steps for the day and it’s simply too hot to go outside. A record (isn’t it always) heatwave has been scorching the American West for the past week. It’s hot. It’s dry. It is miserable.

Earlier in the week I tried getting up at 5am to beat the heat. But even first thing in the morning it was still over 80 degrees making it downright unpleasant to go for my usuals hour long wander. So I haven’t been outside for several days except to sprint into my Subaru and then into an air conditioned doctor’s office. Frankly it’s driving me insane. My body hates it. My mind hates it.

I’m a cold weather person by temperament and culture. I blame it on my Swedish ancestors and growing up in a mountain town in Colorado where I don’t think we even had air conditioning when I was a kid. Now twenty five years later I haven’t turned off the air conditioner in weeks.

The National Weather Service says temperatures are 10-20 degrees above average because of a heat dome. And also because climate change. I honestly think this jet stream fuckery sucks. I don’t understand how we are supposed to live like this.

A backpack containing a first aid kit and other disaster preparedness supplies.

I am grateful we haven’t yet started fire season. Though I know it is coming. All this time indoors should have me going through disaster supplies. And indeed we did redo our medic kit and trauma supplies this week. We even made our list public if you have been considering doing some preparedness of your own. But disasters have a way of blunting your capacity to do anything. So I’ve been pacing inside, my mind racing but accomplishing very little. Fuck this heatwave.

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Emotional Work Internet Culture

Day 161 and Phone Calls

A meme came across one of my group chats yeh other day that my friend said contained “strong Julie energy.” My response was oh yeah “phone calls are violence” and promptly turned it into a tweet.

Obviously I’m leaning into another extremely online joke with “thing is violence” which made for a good viral moment. But I really do hate having phone calls on my calendar. Not everyone agrees with me. I heard a lot from folks who insist that the human connection of one to one phone calls is superior to the written word.

Honestly I call bullshit on this. It is some Luddite nonsense to insist that written communication platforms are inherently inferior to voice. We thought phone calls were dangerous and weird when they were invented.

Unless I’m speaking with an entrepreneur (or my mother) I try to encourage folks to communicate with me asynchronously. Voice communication is slow and lossy. It lets you ramble and insist that tone and human emotion are more crucial than you being a crisp thinker. Which is maybe true in certain situations. Emotions and tone and context are important. But it’s not a substitute for you being a shitty communicator.

I’m not going to waste 30 minutes on something that can be communicated in a few sentences if you just think ahead and collect your thoughts. Call me an asshole but it’s not worth me slowing down my day so I can listen to someone struggle to organize their point.

And I get it, folks want to think things through together in a group. You know how much that sucks if you are the one pulling all the weight in the call? A lot! It’s exhausting. Stop expecting other people to think for you. It’s a dick move. Honestly fuck that noise.

I’m not getting on a damn phone call until I’ve exhausted all over ways of communicating and organizing a topic. Only then is all this nuance and emotional context shit a worthwhile endeavor. Do your homework before you insist on scheduling a call. It will be more productive and take less time.

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Chronic Disease Emotional Work

Day 157 Brushing Your Teeth

I feel like I need a break from having daily obligations for a day or two (it was a big week) but I’m also a creator of routines and rhythm. When you’ve got a chronic disease you don’t get to skip stuff like your medication or healthy habits without some consequences.

One reason I don’t find myself burdened by writing something long form everyday is that I see it as a habit like taking vitamins, taking a daily walk or brushing my teeth. It’s just something you do.

But I can chose how much time I put into writing or how long I walk (though it seems prudent to let the electric toothbrush run it’s full 2 minute cycle). So I’m reminding myself today that it’s alright to keep today light. If you want something good to read I recommend the Thursday Style Problem.

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Chronic Disease

Day 156 and Social Accommodations

One-on-one synchronous communication requires energy and commitment. If you have plenty of energy and few health problems maybe this isn’t intuitively obvious to you why it’s tiring for me. To understand I highly recommend the Spoonie theory of living with chronic disease. A Lupus patient Christine Miserando explains to a friend using “spoons” as a prop/metaphor.

So, she laid out a handful of spoons on the table and explained that the spoons symbolize all of a patient’s daily energy reserves. Every activity, no matter how thoughtless and automatic, depletes from the energy supply. Getting out of bed, showering, getting dressed, eating, and any number of mundane tasks threaten to deplete energy at any given time. When you run out of spoons, you can choose to borrow against the spoons of a future date, but there are consequences. When you deplete your spoons, you are bedridden. Unable to manage the simple activities of life.

I work with a limited set of “spoons” each day. If I manage my energy budget well you would never guess I’m any different than you. But I optimize my day around accommodating my firm energy budget realities. I think of it as a wheelchair or a crutch. It’s a tool that helps me extend my capacity. I can do more with less energy and thus I need fewer spoons.

One area that makes a huge difference is digital asynchronous communication. Written documents or presentations, text messages, email, Slacks, heck even voice memos are all great ways to reach me as long as you don’t expect an immediate response. Asynchronous communication means respond when I have the energy. I rarely feel overwhelmed by those as there isn’t a need to respond right that moment. I don’t have to use a spoon to get you a response. If you need FaceTime or a phone conversation then I have to work around your preferences (which might not be strictly necessary for the information it’s just what you happen to link) and then you are also asking me to prioritize your preferences over my limited energy banks. Which can feel disrespectful if you don’t suffer from strict energy budgets. You are asking me to take a double hit. Accommodating me makes me more likely to budget more energy and time on you in the future if you respect my energy now.

This means you may need to reach out more. If you expect a synchronous back and forth you may end up waiting on me. Please don’t wait on me to reach out and have energy & free time at the same time as you. You will wait a long time! Reach out and we will work it out asynchronous style.

This is why I love social media. It is easy way to connect people to what I am doing on my own tike frame I have extremely limited energy and capacity to express that one on one. If I had to I’d end up limiting my entire world to like 3 people. My energy for one to one communication is limited. As someone who is disabled and chronically ill, I feel lucky that I have access to technology that allows me to expand my capacity to connect and communicate. If I didn’t have these tools my world would be severely limited as each conversation and interaction I have takes significant resources.


Like a myriad of writers who have been sick before me (Walker Percy, Virginia Wolf to name a few) I use this tool to extend my life and influence beyond the bed in which I spend 12 hours a day. So please understand I cannot always communicate in real time or in person for everyone. It’s the highest energy usage thing I do. Let me use technology to expand my world beyond my bed. We will both get a lot more out of it and you will find that thanks to technology I can can as much done as you.