Categories
Culture

Day 1918 and Other Lives You Could Have Lived

I was talking with my mother today as I was organizing some logistics for her birthday. Don’t tell her that though as it’s a surprise. Just kidding she knows I’m up to something.

As we talked shared pictures from a recent work trip where she was able to visit our extended family. Her brother lives in Texas after a long military career. It got me thinking about the very different lives it’s possible to live even within one family.

My mother has siblings that she is not related to by blood that are nevertheless our family. Her mother was unable to stay with her father. She married a man I consider my grandfather and gained a large family in the process.

One of my cousins (not by blood but through love) had her children when she was still a teenager. We are roughly same age. She has nearly fully grown children while I will likely never have children. We had very different life trajectories.

She didn’t have an easy time when she was a young mother, but seems to be in a good place now. She is married to a kind man (not to her children’s father though they were married for a time), enjoys watching her son play varsity baseball and football, and lives near her parents. She earned a beautiful life the hard way.

My aunt and uncle are hard working, deeply kind and patriotic people. They supported their daughter every step of the way. Which in the late nineties and early aughts was harder than it looked for a conservative military family in Texas.

I feel lucky my mother got to have such a wonderful brother (and other amazing siblings). My grandmother was an incredible woman. She got remarried at time when single mothers had it even tougher than my cousin did.

I think of the lineage of my mother’s family and wonder which of us made the right choices, which one of us thinks we made the right choices, and how we feel about those choices in the grand scheme of things. Lots of my family believe I made all the right choices. And maybe they are right.

Both my mother and grandmother heavily encouraged my interest in academics and the sciences in particular as they both wanted to pursue scientific careers and were unable to do so. I know I am their pride and joy.

But as I think of my mother’s upcoming birthday I know she won’t get to see her grandchildren playing varsity sports under Friday night lights in Texas with her mother sitting beside her. Her mother, my grandmother, has passed.

There won’t be three grown generations to coincide together because that’s just not how it works any more. And I don’t believe she is disappointed. And I know my grandmother wasn’t either. They wanted this life for me.

And it’s a good life. But I am also glad that my cousin was able to have a good life too. If only it were easier to balance some of the choices. If they were choices at all.

Categories
Biohacking

Day 1912 and Informing Ourselves

Some 20 years ago, before I knew I’d have medical troubles of any length, my college job was working for a medical ethicist who was a physician with a grant to study informed consent.

Now, years later, as I have worked my way through institutional resistance to how I may come to be disabled and generally dismissed as a patient, I come to find that much of the skepticism my mother had as a crunchy hippie is now functionally being proved a quarter century on. These uncomfortable trends drives skepticism in even the most informed minds. And most patients can only ever be expert on their symptoms.

This comes at the end of a crisis of communication about the value of public health and personal responsibility in a community. Many people did not feel that they were given adequate consent and no longer trust anything said by doctors. Would most medical professionals agree they had informed consent? I think most argue they were. I agree.

Now of course we’re all desperately trying to prevent harms here and patients more than ever feel that, as they don’t trust what’s coming to them because we’ve not effectively decoupled population-level information from the individual human behind a given case. Is that informed consent? Yeah as best we can do it.

Now how does research play into all this? I also happen to have the misfortune of having working on the early years of on one of the worst medical misinformation spreaders in all of healthcare. I say this lovingly: it is Gwyneth Paltrow.

Now if you root around Twitter, you will find commentary about how the supplements hawked on Goop and the supplements hawked on various right-wing sites are functionally identical. But she got a lot right because she is a rich well connected white woman with money. So again who is informed and to what degree?

Unfortunately some of the things that are sold as treatments or supplements they sell are real and have proven out. We’re working our way through the science on our gut biome, infection and its links to preventable autoimmune diseases, and any number of other previously heretical paths.

But we’ve really not transformed the way we process our information on what we know and what is actually considered best practices. The gap is very wide. Like a chasm. I am way outside the norms because I fucked myself up believing I wouldn’t be a statistic as it mostly worked for most women.

So I live with issues. But do I think that people have a right to experiment with what we think might be snake oil? Absolutely. Everyone calculates their own risk. Heck Sarno is just one giant placebo doctor on letting go.

We know that some of the avenues of exploration will prove to be placebo effect if they work. And we still somewhat trust things that are actually going to cause harm aren’t really making it into the popular press and mass consumption unless there’s some evidence. I sort of believe that to be true.

More people should feel that they have the right, if they have informed themselves over a period of time as patients, to work around the system if they make no progress despite best efforts and years of work.

There’s just a lot to balance on being informed about your conditions and your capacity to manage your own health that is up to you. I think that generally speaking the paternalistic attitude has not produced superior outcomes.

And the quality of care I get as someone who can pay for health care anywhere in the world, it is galling to me that the gap between what we know and how far we can go in practice is so wide.

So let the guy advertise the doggy cancer vaccine because at least it’s teaching people that we have solutions to more than they know. They can judge risk reward and be a little bit strange. Humans are humans.

You get to decide it based on your own understanding of your own life and you get what you get. I was disabled by my own misjudgment of informed consent on treatments recommended by a COO of a major company who paid to have as a perk to her workforce. Egg freezing was an approved elective procedure that everyone was on board with ten years ago.

I was informed. I consented. I got it wrong. Now let me see if I can fix it in my own manner of choosing. And I won’t trust mere authority next time. Neither celebrity nor pharmaceutical company is to be trusted.

Categories
Chronic Disease Chronicle Emotional Work

Day 1825 and Thoughts On Five Years of Writing Every Single Day

Much as it amazes me, I have written a public post every single day without fail for five straight years. I’ve not missed a single day.

I’ve written so many posts and essays, it honestly astonishes me. I didn’t expect to have this kind of longevity when I began but the world changed a lot in this past half decade. I am a woman of habits & routines, this blog helps me manage the chaos and instability that surrounds us. And hopefully I’ve become a better thinker (and writer) for this habit.

If you’d like to look back with me, I have a round up of 2021‘s best posts from fashion theory to the emotions of startup exits. They feel like a lifetime ago.

In my round up of favorites from 2022 aka year 2 of the experiment, we moved to Montana, bought our first house, had silly viral hits, & I became a certified wilderness first responder.

In my third year of posts from 2023, things remained intense. I accelerated into chaotic optimism, helped other millennial women understand fucked up fertility, and experimented with living outside America part time to improve my visibility on global issues.

And in fourth year of writing, my round up of my best posts of 2024 really showed a world sped up even further. My essays ranged widely with emotional work, crab bucket zero sum-ism & young men, Vernor Vinge’s legacy becoming our actual reality and the bizarre experience of digital memetics becoming constant real world issue.

So now it’s time to think about year five of the experiment. 2025 was a hard year for me even as it contained incredible wins. Going into it, I wondered how could year five top the past four years chronicled here? It both does and it doesn’t. Life, and the time we spend living it down, isn’t getting any easier. Life is barely human at all anymore. I feel the struggle in myself as I am still very much human.

It’s easy to feel as if I’ve not accomplished as much as my own written records show I did. If you ever feel like you get less done than you’d like, I encourage you to keep a log or journal as it helps show how much can do and how much does get done. Plus if you publish it online you’ll contribute to a wider humanistic understanding as our digital life becomes more mechanistic.

Another facet of this writing experiment has been fighting a chronic disease in my personal life that has no cure. Managing disabilities during with the pandemic years as it overlaid civilization shaking political and technological changes has been hard. I want to work and live as if I am healthy and it isn’t likely to ever be true. I work smarter because I can’t work harder.

I don’t always write about my investments in these posts, but I see how my thesis of chaos has forced us all into requiring more decentralization, compute and power. My once weird ideas are now common knowledge. Now everyone agrees with me.

The end of the neoliberal consensus and the beginning of the artificial intelligence buildout would have been hard on anyone. I’m proud that I was able to turn this change to my advantage.

I realize I’ve written quite a bit about the experience of these years where I wrote daily without showing off the last year of posts.

Since I’ve got one more day before 2025 officially ends, perhaps I’ll put the round up of posts tomorrow as I’ve given an overview of the experience of half a decade of daily essays today. What’s one more day among thousands right?

Categories
Emotional Work Politics

Day 1770 and Making Suffering Worthwhile

A long time ago, in a past life so foreign I can barely recall, I made some bad choices in the hopes that I was making good choices for the people I loved.

I froze eggs and embryos with my husband thinking that some day we’d have the money, health and stability to have children.

That day never came. And it’s unlikely to change. My health is what it is and I won’t ever be able to carry them. We’ve spent a small fortune trying to get me healthy enough just to go back to work and being healthy enough to carry just didn’t happen in time.

The high costs of surrogacy are daunting and the extra help I would require to raise them isn’t forthcoming. Being somewhat disabled means I’d need a lot of help and not the kind you can easily pay.

The extended family who does want to help and raise them (not blood family but nevertheless family) has never succeeded in getting a visa approved for so much as a vacation in America. So that route seems rather shut and has remained a small beacon of hope that seems ever less likely.

I could go abroad and raise children near them but that would be admitting defeat on a level on life in America that feels like dying.

My husband wouldn’t be able to come. We have a home and a life and careers in America. Funny how we don’t really have family in America that cares one way or another though all our existing blood relatives are American it’s the extended not quite family that seems to care most about family.

So a day after a socialist won the mayor’s race in New York City I have to ask myself how can we make the suffering of so many feel worthwhile? What did I achieve through my sacrifices? What did America achieve with our choices that can be seen as worthwhile? if those questions cannot be answered I don’t know where America goes from here.

Categories
Biohacking Emotional Work

Day 1765 and Hollowed Out

I’m at home with a freaky red light mask that could absolutely pass for a horror movie prop. My husband is sealed up in a hyperbaric chamber with two atmospheres of pressure and oxygen pumped in through a mask.

It may be Halloween but neither of those activities are horror movie material even though you could easily imagine them featuring as props in a serial killer series or Final Destination.

And yet these are things we are doing for health and wellness. One man’s horror movie is another man’s idea of a good night off and you can really tell we are tired childless adults that this is our idea of winding down on a Friday night.

The childless part wasn’t entirely a choice but we picked lives of professional intensity a long time ago so Friday night spent in self care is a sign that we’ve earned some respite.

Millenial success stories involve long hours. Millennials being all hallowed out on All Hallows’ Eve shouldn’t really come as a surprise to anyone, given the current state of American politics.

I’ve never liked Halloween much as if I want to dress up I don’t need social permission and I really don’t care for parties or socializing. I got all partied out in my twenties when I had to do a ton of it for professional reasons. I know it sounds glamorous but nightlife is work.

I had a tequila client and I had a hotel with the hottest nightclub in the New York City. I somehow managed to have both Patron and Le Bain as a client in my advertising agency era, and while loved both clients it did mean eventually all I can associate with nightlife is work. When I had a night off I stayed at home and read science fiction with a face mask.

Which means some things never change. There is no suburban holiday with children to dress up and take out. And I barely have recollections of doing any of that as a child. It’s no surprise this holiday has no hold on me

I don’t know why I have no fond memories of it but I don’t. I have almost no memories of Halloween. The precious few years in which we lived in suburbs, where I had both parents and I was young enough to go trick or treating barely register. And I don’t feel sad about it

I am much sadder about the kind of world we fought to succeed in as adults. I am happy to be home and with the horror movie treatments to heal the ravages of the real world that have been enacted on both of our bodies.

The long hours over decades, the multiple Covid infections my husband suffered, my own autoimmune issues and the realities of aging are not horrors but they are real. And I acutely am aware that Halloween is pretend.

And nobody should have to pretend that they aren’t hollowed out when they are. That is a fairy tale for children and for the people who still are. Neither category include me. It’s perfectly fine to be tired on a Friday.

If I’m going to put on a mask tonight it damn well better have health benefits. Here is to red light therapy and collagen masks. May they heal what ails you on all hollows eve. You can face the dead and your demons tomorrow.

Categories
Biohacking Medical

Day 1723 and Hormonal Rollercoaster Rides

We spent a long time at the doctor’s yesterday as Alex and I gutted it out with our excellent physician (with AI assists) through a myriad of different tests. We were attempting to figure out why he keeps getting respiratory infections and why I’m such a tasty treat to skin bacteria.

In truth, my basic inflammatory biometrics have improved so much on the new IL-17a inhibitor Bimzelx that it’s probably worth the hassle of occasionally having to slice open a random effected gland or abscess once a quarter. It’s just a shocking amount of work to do whack mole with pathology reports.

What I don’t seem to be able to improve is my low testosterone and the flavors of migraine headache that come with the roller coaster of my luteal phase. Which is presumably a clue and we are following it.

Astonishingly my lady hormones are in tip top shape. Though the “you should have no trouble getting pregnant if we can get off the medicines that stabilize you” remarks remains a heads trip. Yes I asked.

It is not a head trip that makes one’s husband enthusiastic about the prospect. Which is fair, as we have no family support, no backup plans for me regressing physically, and the family that does support us can’t get to America. So one can see why a CEO husband with sick investor wife who would have to give up work, plus potentially messed up baby, isn’t super appealing. Anyways! TFR is a fun topic.

I started with basic supplements in the precursor category like DHEA and STRO about a year ago when my testosterone came in at a 2 nanograms per deciliter (ng/dL) when it should be somewhere between 9 to 55 nanograms per deciliter (ng/dL). For context, adult men typically have levels in the 240–950 ng/dL.

The one sticky widget is that my testosterone remains stubbornly low. You wouldn’t think such a raging “see you next Tuesday” such as myself would be overburdened with the feminine hormones and lacking in ball buster hormones but I am.

I managed to eke it up to 5 with supplements and nutrition but it really didn’t match my otherwise excellent hormonal profile. Having ruined my chances at a healthy immune system when we tried the first half of IVF, I’ve spent some time working on and with my natural cycles.

Good information for all humans

I loathe being in my luteal phase but when I’m in my follicular phase I get 90% of my work done. We had presumed it was the rapid decline in estrogen and progesterone but maybe my floor rate testosterone was more of the issue.

For the past 8 weeks I’ve been using a testosterone cream that clicks up your dose and you rub it between your thighs. I know it’s gross. So I was curious to see where I might land. And praise the Lord I am now at 15 ng/dL. From 2 to 5 to 15 is some excellent progress but still below where we’d like me to hit. So we are going to run another test and try out the tiny pellets they slice into your skin. Since I’m already used to scalpels and antibiotics I figure why not?

Categories
Culture Media Startups

Day 1709 and Love is Blind UK and Better Late Than Single Failures as Global Cultural Mirror

It’s no secret I have come to love the sub-genre of reality dating shows about new ways of dating in the social media era.

I’ve watched every single episode of Love is Blind including the international versions as well as the matching shows that range from religious matching to cultural affinities and disabilities.

I am having a rough week what with my own chronic health challenges and the death of my father over the long weekend. My husband is also brutally ill with the flu. So it’s just generally 2025 on maximum. All brakes and no gas.

So I took a break from reality. to watch the reunion for Season Two of Love is Blind: UK aka the working class multicultural Manchester season as well as test out a South Korean dating show for forever singles or motae-solos in Korean called Better Late Than Single.

Now I’m a middle aged elder millennial who turned over into her forties with ten years of marriage so keep that in my mind. My husband and I met through a mutual friend and now I wonder if we were on the last helicopter out of Saigon.

We worked in the nascent New York startup scene. Over the course of two birthdays, a year apart, for that same friend, we got our act together (ok I did) and began dating.

A few weeks before we got engaged, that same friend showed us this new dating app called Tinder. We laughed at the bare bones profiles as were used to involved questionnaires from OKCupid.

Many of our friends had worked for the dating holding company juggernaut of Barry Diller’s called IAC. The founders of the OKCupid subleased space from Alex’s startup. Dating app culture was part of New York startup culture.

It’s clear that these applications have left a cavernous void in the culture of mating and dating not only in America but across the world. From Raya to AMANDA (a very judgmental Korean dating app) we’ve found all the ways to maximize for the most superficial aspects and signifiers of a person.

Some cultures seem to have taken this to extremes. On rainbow coalition class coded Manchester season of Love is Blind: UK we had Indian posh girls dating down class half Pakistani guys and Albanian girls falling for Lebanese guys. It was a clusterfuck. I won’t spoiler anything but the disposable attitudes clearly came from long habit you associate with dating application culture.

Meanwhile the forever singles have taken the opposite approach. Rather than sweetly autistic singles being helped along as Love on the Spectrum does, social media personalities roast painfully awkwardly awful members of the opposite sex fail to listen to each other. Holding eye contact and grossly insulting someone via misunderstanding was the tone.

If those media pieces show anything it’s the utter lack of tenacity being displayed by everyone involved. Sure, someone willingly going on a reality show is extreme. But the deep desire to be seen and loved goes beyond any culture or awkward social technologies. We’d all do with learning to fight more for love and family.

Categories
Community Culture

Day 1349 and Worry Not

Through Robin Hanson’s link round up today I came across a review of a book by Joyce Beresen “Warriors and Worriers” that has a novel thesis on how different sexes cooperate and compete.

Human males form cooperative groups that compete against out-groups, while human females exclude other females in their quest to find mates, female family members to invest in their children, and keep their own hearts ticking. In the process, Benenson turns upside down the familiar wisdom that women are more sociable than men and that men are more competitive than women.

The Survival of the Sexes: Warriors and Worriers

The reviewer Tove K of Wood from Eden suggests that Bereson’s work shows that worry and fear may be playing a part in our current fertility crisis for women.

If women worry more about competing for resources than men because their social competitions are zero sum (versus men who must be more cooperative for group defense) than I can see how if you get to fear being a driver of inferiority. If you are struggling with poverty or resource constraint you might be living in fear. It’s hard to imagine that there are infinite games. Maybe too many of us can’t see beyond limited zero sum “us versus them” resources competitions.

In that theme, Bryan Caplan wonders if only fear (and shame) can sway the highly impulsive as they are not as able to see cause and effect.

When I grew up young women experienced rather pervasive fear and shame on becoming pregnant. Now we see more women convinced to pull back from the risk of children entirely.

What I can’t quite square in these theories is how much actual resource constraints play into this versus the subjective differences in resources we see in our social groups. Is it all a comparison game?

You may be doing objectively better than any of your ancestors but still feel inadequate next to a lavish Instagram feed of an influencer. If you don’t think you can live up to the high standards of parenting required in American life maybe you’d worry yourself into a smaller family.

Or as many are choosing you’d worry yourself into no children at all. Last week the Surgeon General said Americans were in a crisis of parental stress. Who wants that? I’d say that women should worry less but if our biology says “only the paranoid survive” the future of humanity will take more than just our evolutionary instincts. We need to want to live.

Categories
Culture Emotional Work Uncategorized

Day 1232 and Crab Bucket

As I age from maiden into crone (many millennials missed mother) I find myself uncovering emotions I missed during the forced march through corporate feminism & Girlbossism. The meritocracy takes its pound of flesh.

I climbed the chaos ladder & am grateful for my perch but I did not understand what I sacrificed to participate in this climb. I doubt your average person does.

American Millennials intuited that we had an opportunity to class jump through the meritocracy of institutional human capital games & were encouraged to do so if we showed capacity. Largely that meant raw intelligence & affinity for playing by unwritten social rules. If you could get out you were told to do so. Social mobility is one of America’s great strengths.

It is not without costs. I sacrificed family & place. To climb above the station of my origin & “achieve” the American dream of education & assets you leave behind a lot. To go from the lower rungs to prosperity and security we leave behind parts of ourselves.

I do not regret this. Many millennials come from dysfunctional families. Boomer can read as slur to some because future shock & greed hurt so many of that generation. The narcissism of the new age experimentation with new cultures and expectations gave us divorce & rootlessness. Those insecure circumstances bred flexible performative children who adapted to incentives.

If I had not leapt onto the ladder of meritocracy I’d be struggling like many in my cohort and I’d still be without a people. The Millennial wealth gap is tearing social fabric because the divergence between our outcomes is so clear. Atomizing is part of assimilating.

I am now in a position in which I inhabit the lower rungs of the very top of the ladder. I have access & assets & a reputation for work in the infinite game of playing for leverage. There is security here to be had. But a Damocles blade hangs over us all.

American success isn’t cheap. And you may not always understand the costs at the outset.

If you’d like to read more about the millennial wealth gap I’d encourage you to look. I am lucky to be one of the “self made” in my cohort in that I picked work that ended up being well remunerated. I started from a decent place but we were poor for portions of my childhood. Startup life isn’t a smooth ride and Silicon Valley produces very uneven outcomes.

I will not however be a millennial heir. I’ll inherit debt. The great wealth transfer will not be coming my way. I’m grateful to have helped my family but equally grateful when they manage to take care of themselves. I am so sad so many of our elders spent so much that their heirs felt the best option was a race to climb out of the crab bucket of the meritocracy. I am glad I made it. But it hurt.

Categories
Biohacking Medical

Day 1229 and Hormones

I was pleased to wake up to a near perfect recovery score on my Whoop today. Because I manage a few chronic health issues I am a bit of a stereotypical biohacker type.

I happen to be rounding the corner into my best two weeks of the month and am seeing my biometrics improve.

While it’s fun to joke about moody women, I sometimes wonder if we’ve done ourselves a disservice by insisting that our hormonal rhythms be kept outside of polite conversation.

It’s not any fairer to men to keep discussions hormonal health quiet. Culture war nonsense aside, one of our major health systems surely deserves more public discussion and advancement.

As if the bounds of social propriety simply cannot accommodate anyone discussing say the follicular phase for women or what men can do to increase testosterone. Our fucked fertility deserves better than polite Victorian euphemisms.

If you aren’t sure about the state of your hormones and feel as if you could be in better health consider this permission to learn more about yourself. Your body deserves your self knowledge.