Categories
Chronic Disease

Day 1063 and Overclocked

Since acceleration is within my meme space so heavily I am pushing myself to go faster. Predictably that introduces some instability in my Julie equilibrium. That’s a fancy way of saying I currently feel like shit.

I’ve been a bit immobile for the last couple hours from hitting some type pain wall from overclocking myself. I’d hope it would pass so I could focus and write but it’s getting late on the West Coast and it doesn’t seem likely.

It’s possible this isn’t entirely the fault of excess strain from travel and it is in some manner hormonal. I wonder if at some point an artificial intelligence will be able to deduce my follicular and luteal phases by sentiment analysis on my blog.

Feels like a compelling argument for restricting government power over your bodies doesn’t it? Imagine the unceasing eye of Sauron collecting context clues about your reproductive system and the right to bodily autonomy goes poof.

Anyways I’m out for the night to go do battle with the pain so I can accelerate more tomorrow.

Categories
Medical

Day 1043 and Differential Diagnosis Failure

I’m throwing something up here as I am fairly certain I’ll be out for the rest of the day. I have thrown back an entire pharmacy in an attempt to remedy a barrage of symptoms that are so intense I can barely process.

I thought I had a cold or potentially some kind of flu based on my initial symptoms like heightened respiratory rates, congestion and pain in my muscles. But as the day progresses I’m not so sure. The mucus is clear and was easily improved by a Mucinex and cortisone nasal spray. The remaining symptoms of lowered body temperature (which feels feverish) a migraine, and tight muscles are now much more acute. I guess the cold medicine I took was a waste of liver stress.

It’s messy and conflicting and neither myself, my husband, my doctor nor the artificial intelligence chats have managed a differential diagnosis.

My hope is that with the sheer variety of drugs that we have thrown at this that I’ll be passed out for the foreseeable future. Maybe a full twenty four hours of sleep can fix this. Hopefully you will see me cheerful tomorrow.

Categories
Aesthetics Travel

Day 1029 and Daytrip

I am in a pocket of personal heaven that I did not know existed until just now. I’m on the Tallinnk ferry to Helsinki. It’s just before sunset and briskly cold. The wind is whipping small white caps as we exit the bay.

I had not expected the serene calm that overtook me. The many shades of grey and blue where the sea meets the horizon’s soothe my autonomic nervous system. Watching the small waves crest as we roll ever so gently sends me into parasympathetic. I feel cozy.

Tallinn Bay. Passing another ferry.

I decided at the last moment to go to Helsinki for a day. I wanted to visit for my birthday but didn’t feel well enough. Since actions define who you are, I booked myself a business lounge ticket on Tallinnk ferry. It’s fifty miles and about two hours.

I have a lounge chair at the very front of the ferry. It’s as large as a cruise ship and feels as smooth. It’s clearly a premium experience. I paid 60 euro for the privilege and was rewarded with an excellent dinner of poached trout and chocolate mouse. I have a lingonberry juice in a proper glass.

We are passing other ferries with some regularity. There are routes to every imaginable Nordic destination. There is even a ferry to St. Petersburg. Google maps lists out the routes as I peel out of Tallinn Bay. Twitter mutuals note that the Nordic ferry system is the envy of the world. And I can see why. What a pleasurable way to travel.

I feel lulled into a peace I hadn’t considered possible with travel. My Bose headphones are playing Endel’s AI generated relaxation music. I have my Apollo Neuro set to relax. And I have an hour or so to contemplate the beauty of the ocean. If you ever find yourself with the opportunity to take one of these ferries do it.

Categories
Chronic Disease Emotional Work

Day 1020 and Subdue

I felt like I was on fire. Itchy skin, weeping eyes, coughing and wheezing, a sympathetic nervous system run amok. I was on my second histamine reaction in less than two weeks.

I have had two days of intense emotional work. One tragic aspect of a daily chronicle that’s public is dancing around some of the more private aspects of one’s life while still managing to write. I’ve been doing “a look ahead” exercise for the next decade with my family. Our goals and our challenges and our structures were all on the table. What do we want and how will we pursue it and what stands in our way?

So I found myself needed to sooth the systems. Reactivity is a choice. I wanted to feel my emotions but I’m less convinced I need to feel my hives.

So I downed 50mg of Benadryl, a couple other generic anti-histamines, a white girl downer, and I plugged myself into noise canceling headphones and a face mask. I did a few rounds of Non Sleep Deep Relaxation nervous system exercises. And slowly I was able to subdue reactions. I slipped into real sleep.

I feel better for it. But I also know I need more restorative time. Remaining subdued would be valuable.

Categories
Emotional Work Preparedness

Day 1017 and Crisis Chores

No matter how trying the week may have been, a day of rest is a day for chores. Fighting entropy is the fight to remain among the living. I feel more than a little bit behind on my goals and obligations. Doing chores is the way I exert my own will over a crisis.

I hope that anyone wondering why I’ve not been up to date on correspondence over the last week can glance at the last few days of posts and extend me grace. I’m not sure if I have done anyone wrong but be slow but I notice my own tardiness.

The benefit of public diaries and social media is that it provides a kind of open “what is happening” context for everyone to see why their emails and messages are not being returned.

I was able to do some amount of personal chores around the Airbnb. Then I was hit with another round of migraines and had to lay down. I am not out of the woods yet it would seem. Maybe tomorrow.

Categories
Emotional Work

Day 1016 and Carrying On

It’s been a terrible week. I feel stupid even typing it. How many times can I state the obvious? It’s as if the repetition of stating that I’m in a hard place physically, and emotionally, somehow shames me. Can’t I say or feel something new?

But I don’t have any desire to dig any deeper into the wounds of the present. I am in too much pain. I am deeply emotionally affected by the situation in Israel. In ways I frankly didn’t anticipate. Those horrors overlapping with being sick, being far from home, and having a significant personal milestone, have collectively laid me flat.

I’d prefer to remain silent but the exercise of daily writing pulls at my habits no matter the extent of the misery. And maybe that’s the point. No microcosm of personal suffering or global macro view of atrocity changes the reality. Pain is an equally shared human condition. And we walk through it no matter our circumstances.

I have to assume I am not alone. The ambient misery is both personal and collective. The human experience is terrifyingly universal. I am fearful of my own physical fragility when abroad certainly but it’s bigger than being away from home. I’m afraid of being fragile in a cruel world that is getting crueler.

I’ve struggled to maintain a level head and a healthy routine this week as the whiplash of a hostile immune reaction and steroids took me from one misery to another. Prednisone is a cruel drug. It tamps down any reaction from your immune system. It’s a hard reboot for a physical system gone haywire. How appropriate given the circumstances.

It wasn’t quite how I envisioned turning over from one decade to another. And while I appreciated the stormy Baltic solitude to savor the weight and significance of my personal milestone, I can’t help but also notice that carrying on feels like a heavy burden.

Categories
Emotional Work Travel

Day 1014 and Choices

I’m sick. I’m in a foreign country. I feel fragile. The way life, and history, keeps progressing it’s not surprising that I feel fragile, sad, and wistful.

It’s my birthday today. I’ve been looking forward to the new decade all year if I’m honest. The final official marker of middle age is now mine. The childhood yearning to be an adult is now finally satisfied. There is no youth left for me. Only the joyful responsibility of shouldering my burdens.

I’ve never been good at making the safe choices in life. I make choices that are driven by my desire to live a life that makes sense to me. Those choices don’t always make sense to others. I take risks. I suffer their consequences. I pick myself up off the floor. I start over. My regrets are few and my experiences varied and colorful.

I feel proud of where I am in my life. I’ve failed in ways both significant and silly. Any success I’ve had were paid in full by my failures.

I am trembling between excitement and exhaustion at the prospect of the next decade of my life. I have personal and professional goals that are risky. Unlikely even. But I feel as if I must take this new decade upon me with as much energy and momentum as I can muster.

If I do not speed up, then the friction of the world will slow me down. My life is filled with friction. I know the pain of a chronic disease and the curse of Cassandra.

But these are motivating factors for me. I see these risks as worth taking for an interesting life. I hope my next decade is as interesting as my last. And I intend to make the choices required to bring about that outcome.

Categories
Medical

Day 1008 and Pesky Hormones

I’m enjoying a double header of hormones today. I’m in my luteal premenstrual phase which always leaves me tired and emotional. But I am also just letting go of the last bits of adrenaline and cortisol from my travels last week.

As the last bits of stress hormones drain away and my cyclical hormones flow in all I can feel is the weight of the world. I’m sure this dramatic phrasing is merely a function of the pounding hormonal migraine that always accompanies this time of my cycle.

If this all sounds a little foreign to you, Alisa Vitti’s life’s work has been to help women understand their hormonal cycles impact. I’m always looking for ways to hack my physical performance and health so I’ve been especially focused on pesky stress hormones.

Hopefully a little bit of salmon, some greens, and more rest will get me through it. And by next week I’ll be well on my way to peak creativity and energy. The lull will pass soon.

Categories
Biohacking Medical

Day 1003 and Externalizing

My body gave me a bit of a surprise on the road. I keep a close eye on my inflammation as it’s the first trigger in my autoimmune condition. Generally it manifests internally as swelling in my spine or joints. But it didn’t always. My inflammation used to manifest externally on my skin.

I woke up today in Tallinn without my typical spinal pain but covered in red welts. If I had to guess, some change in climate, pollution, or weather was the culprit. Stress is stress and you can’t always predict how it manifests. I’m so used my body being in pain I’d forgotten that sometimes symptoms can just as easily manifest on the outside as the inside.

It takes an entirely separate set of medications to manage inflammation on my skin as it does to manage inflammation my joints and spinal column which is a bit of a pain in the ass. I am much more eager to treat it. Maybe it’s easier tolerate being in pain than being red and itchy. You’d think it would be the other way around.

Given that my body feels a bit stressed I’ll keep this short today. Hopefully the manifestations of inflammation calm themselves down and I won’t be dealing with either tomorrow.

Categories
Homesteading Medical

Day 987 and Eggs

One of our hens died today. My husband took on eight chickens from one of our friends a month ago It was an exciting moment. He really wanted chickens and it felt like great luck.

The family was moving and so Alex stepped in. If it were just me alone I probably wouldn’t have any animals as I don’t necessarily always have the physical capacity to do daily chores. I realize that’s a funny statement for someone who lives on a homestead in Montana but you get used to your limits and work around them.

But my husband lives for doing shit. I call him a “man of action” as he’s happiest when working on something. Chores and animals and homestead work are a hobby for him and I’m deeply grateful we could bring that way of living into our lives. I am envious that he has the capacity as there are few joys as deep as improving the world around you. I wish I could do what he does.

So it’s sheer bad luck I find myself on my own when one of the hens died. Alex was literally gone for a day and one of his birds dies on me. I feel responsible for the death even though I know I am not.

Death happens. Chickens are strange finicky animals and do in fact sometimes just up and die. I’m capable enough with death. I did plenty of farm work as a kid. But I’m not the one who does the bulk of the hard physical work and never will be. I contribute other things.

I simply wasn’t expecting that with just one day on my own being responsible for the hens that something bad would happen. But there I was finding myself responsible for dealing with the physical reality of a dead bird on my own.

I happened to have a doctors appointment in town this morning so I didn’t check on the chickens when I woke up. And that’s what I feel worst about. That I didn’t even notice.

I got in the car, went to get my own eggs checked (a follicular ultrasound if you are curious) and came back to find an entirely different egg problem on my hands.

I went to collect the morning’s eggs and saw a red hen laying underneath the raised coop. I briefly panicked wondering what the fuck was I supposed to do. She was clearly dead and I’d missed it. I’d just left for town without even checking on the hens.

I panicked and tweeted that I’d had no idea what to do. And then I found the heavy duty trash bags and nitrile gloves and moved the carcass out of the coop. The remaining hens seemed disturbed. The leader of the group in particular was quite vocal and came up to me as I was moving the body.

They didn’t seem to mind the body in the coop but began loudly clucking at me as I pulled her out. Did you know that chicken rigor mortis sets in about three to four hours after death? I do now. The body was in rigor when I found her so she had clearly died overnight.

I feel horribly guilt that I didn’t check the hens before I left for the doctor. But what would I have done? Judging by the rigor she was dead before I woke up.

I’m not sure I could have done the clean up quick enough to make my appointment. But the idea that the hens were just poking about next to their dead compatriot for any additional time while I went about my business of living seems horrifying. I guess that’s my own human bias setting in as they didn’t seem particularly disturbed by the body only by me removing it. I bagged it and put it in a bear proof trash can. I pulled up poultry disposal procedures and asked my internet friends what the duck to do next.

Some of our neighbors came over after their workday to help me dig a hole in the back pasture to bury the body. Digging a hole 3 feet down to keep the predators from sniffing it out is the recommended procedure.

I wasn’t up to the task of digging a grave on my own. Mostly because I’m not good enough with the tractor to get the post hole digger mounted. Thankfully I had help.

The remaining hens had laid three more eggs in the intervening hours. I had also learned in those hours that my ovaries were producing more than ample follicles. It would seem that, like our hens, I produce eggs in adverse conditions too. The circle of life in just one day.