Tag: Life

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Biohacking Chronic Disease

Day 1491 and Snappy

I am a bit snappy at the moment. Everything hurts and too much is happening. Despite my endless horizon of opportunity my circumstances tightens to the pinprick focal point of pain.

Once you get angry enough that you quote Kierkegaard in public settings it’s probably a sign to knock it off.

I don’t have much of utility to say here except any problem that comes down to information acquisition is an excellent opportunity to make use of new tools so both myself and my husband have been deep in model comparison of different reasoning chains as we try to untangle IL-17 inhibitors vs 23.

It’s a weird feeling to be watching the crisis of institutional confidence in medicine play out over the most incredible extension of knowledge and capacity in my lifetime. PubMed spelunking? Pffft nah we got Sherlock Holmes mode for free.

Categories
Chronic Disease Politics

Day 1490 and Healthcare’s Sin Eaters

I went to see a rheumatologist today. I had the baffling experience of them wanting to actually get to know me. Which was surprisingly unhelpful in the moment but really nails vibe we’ve got with healthcare in America.

I kvetched on Twitter that I spent my week defending hot girls and open source software while I deride Big Pharma and public employee unions. That’s more of a humble brag about my priorities. But I felt bad that I picked on pharmaceuticals. I got replies. Why harsh on pharmaceuticals? And actually fair.

Drug companies are the least bad of some very bad actors. For all its faults, drug companies are not just existing to be parasitic like pharmacy benefit managers or generate wealth through regulatory capture like Epic.

If anything pharma is the sad scapegoat in healthcare. We pick one drug a decade to laud & then like clockwork do a hard reversal on it in a decade or two. Patients get hurt and doctors did their best. We saw with statins, SSRIs, opioids, adderall, and I’m sure soon GLP-1s will be next to have Netflix documentaries. Someone is always to blame and it’s usually the drug companies.

Some category is designated a sin eater for the system’s horrors. Which isn’t at all fair as all those drugs serve real needs. Sorry Oxycodone you remain a villain. But why is American in so much pain?

Which gets back to my surprise as having a doctor who wanted to get to know me. We came in with a typed up diagnostics sheet with a timeline of treatments, protocols and medications and the bastard has the audacity to ask me about the quality of my life.

I hesitate to say “well shit” because I am Protestant from Scandinavians stock because we pride ourselves on being “oh just fine”

And of course I’m the asshole who quotes Kierkegaard at my doctor. Sickness unto death right Doctor? Which I guess is a bit of a downer.

The man actually asked me if I’d consider managing my pain more aggressively. I am absolutely mogged by the audacity of the sentiment that I could suffer less.

Apparently no one scans you for drug seeking behavior when you chuckle and kneel before what God has decided for you. So that’s a good trick I guess for the less sincere.

You can really see how public perception of RFK Jr is so different from what elite narratives would like to see. People are with RFK’s righteous indignation. Why are so many suffering?

The cranks and the crazies are here because America is mostly gaslit by a nest of bad incentives. Doctors don’t want any of this. Neither do the drug companies. But someone has to be blamed and it’s usually the guys with the money. But they are trying as hard as anyone to actually come up with solutions.

Maybe no one deserves to have a righteous Kennedy come after them. But everyone feels a little bit crazy with how the system works now.

Categories
Media Politics Preparedness

Day 1489 and Foggy Frosty

I felt it was very important to get off the internet and soak in some restorative aesthetics. We are in a shock and awe moment almost anywhere you look from national politics to geopolitical technology competition. And everyone is jangling for narrative.

We’ve been a fog of informational war so long we forget we are all subject of multiple intersecting and independent actors who want your attention to be on their issues and their terms. We are living in context collapse hell.

Ans it’s not going to get any better. Many independent minded citizens are arising in these challenging times and they all operate with mindful caution. We have to invent our way out of the most challenging information environment of our lives.

Americans don’t realize we are subject to political and industrial competition and it plays out across social media. Don’t think because you know it is being done that you aren’t heavily affected. America has foreign enemies and quite a few domestic ones.

Extremism exist in some very weird bubbles. I am concerned seeing rationalist singularity cultists. But I’m also concerned about high frequency hedge funders who manipulate markets. We are in a great power competition and I’m sure we all have totally sensible opinions about open source artificial intelligence models. Right?

It’s all very cyperpunk. Manipulation of financial markets is as grey zone a tactic as sniping the telecoms pipeline from Helsinki to Tallinn. And we should be concerned about being competitive. We’ve been snowblind before

It’s a nuisance as neither you nor I have a clear line of view. Some of us maybe have a few months heads up. The lead feels less and less even as I am as much a part of shaping narratives as anyone. I was using DeepSeek in the fall.

When I was in fashion we had this website called “don’t believe the hypebeast” to mog those overly concerned with cool. Don’t get mogged. The same principle applies here. Don’t try to figure it all out.

Go read something with soul, listen to some Bach, and be with your family. Be frosty in the fog and exist in the real while you still can.

Categories
Aesthetics Biohacking

Day 1488 and Tune Ups

The back half of 2024 was such a whirlwind I keep discovering new eras where I am behind on keeping the engines of my life tuned.

While I’m adding in new excitement to my healthcare like hyperbaric chamber oxygen therapy (in the market to acquire one for my own use if you have recommendations) I’ve still got to make the various rounds for everything from my general practitioner to my osteopath to my dermatologist.

If the world is going to insist on going at this pace and I’m unwilling to slow down (because why would I?) then it’s full speed ahead on regular time ups and maintenance.

I hadn’t been to my osteopath since August. I hadn’t been in for Botox since October. And apparently I’ve not had a haircut since July.

Yes some of these are a bit more cosmetic than health driven but I’m somewhere closer to an old Mercedes than the family Subaru when it comes to appreciating form and function.

Categories
Chronic Disease Politics

Day 1486 and Odds and Ends and Migraines

It was a busy week. I felt physically well through most of it, but yesterday and today I am struggling. I’m in bed with a migraine that I think I accidentally kicked off by enjoying a quiet walk on sunny snowpack.

Amusing that people think we don’t get enough sun for solar power

While I prefer to have illness strike on a weekend, I feel irritated that I often get my personal time used up by health issues. I very much prioritize using my good hours for work.

Which on that note, I’d love for folks to check out a bill in Montana to secure a right to compute. What started as an idea has now officially been introduced into the legislative process. It’s a big victory to have this under consideration.

I was also in the New York Times this week in a column by James Pogue. It’s my second time being interviewed by him and I think quite highly of his reporting.

A few quotes in the New York Times on the tech right, the H1B debate, and a general sense of getting back to business

Categories
Aesthetics Politics

Day 1481 and smh

When I got started with my daily writing project I knew there would be days when I did not want to write. Today is one of them.

I actually expected “ugh no want to write” days to be more frequent than turned out to be true. I’ve bitched about it 51 times which isn’t a lot in the grand scheme of things.

I knew I’d find a way to force the issue just as I had made other habits a part of my life. You really can make almost anything a habit if you are so inclined. But I rarely have to force habit. I just do the thing till it’s either a habit or it’s clear it’s not for me. They say it’s 21 days but I’d give it more like 100 to be safe.

Things I just do every day include applying facial moisturizer, brushing my teeth, squatting (no not just on the toilet I mean the full body compound exercise), taking my vitamins, Tweeting, playing a stupid pay to play Chinese mobile game, telling my husband I love him and opening up my mobile content management app to write this post.

And yet I am in a real “smh” place today with my attempts to find meaning in any of my habits. I’m disappointed in more than a few things. It’s all very Cthulhu and Antarctic cold vibes for me today. Sure it’s -20 in Montana but it’s very sunny so it’s cheery dread.

Anyways, the interregnum is over, we have a new President who is an old President and everything that is new is old and everything old is new again.

The entire Arnault family showed up for the inauguration so Dior’s New Look is back. Does that make this a post war moment? Did we live through a cultural revolution and not even notice? Smh.

Categories
Aesthetics Politics Travel

Day 1480 and Here We Go

I’m recovering today from transcontinental travel. My body is reconciling itself with my soul after moving through the liminal spaces of German airports through the threshold of Chicago’s regional transit on to my home in Montana.

Travel always feels otherworldly to me and it’s not just the amazement of being above the clouds. The dreamscape surreality of time changing is disorienting to me. Time shifts ambiguously on long journeys which lends an added dimension of unease that comes with the change of place.

It doesn’t help that I’m already feeling the end of the political interregnum in America especially strongly. We may have vibe shifted but it’s unclear what comes next.

It seems appropriate to be uneasy. Everything as a Joker-esque “and here we go” craziness aesthetic to it. Memecoins and the Village People and algorithmic inflections makes the topology of the now impossible to map.

Categories
Biohacking Emotional Work

Day 1478 and Hoping For More

I briefly was overtaken by the desire to travel to Washington D.C for the inauguration. I am however more focused on the work in front of me for chaotic capital and on my 2025 goals of putting my ankylosis back to remission.

I finished a ten day hyperbaric chamber oxygen therapy course which has made me feel significantly better.

Day 1470 and Disappointing Biomarkers

I found a new potential candidate for an IL-17 inhibitor that has recently been released in Europe.

I’d had a disappointing set of bloodwork and I was determined to push forward on new improvements. I want a personal life that is more than lying prone in bed working on my professional passions.

I want more time with my family. I want the capital to pursue children. I’ve had embryos on ice for years and been too ill to carry them. I may be too old. I have family that live outside the United States with no easy visa solutions at and that I’d like to have near me. 

 If we are able to put together the capital investment required for surrogacy (or the miracle of being able to carry myself) a family means having everyone able to be a part of the children’s lives.

Maybe this is a fantasy beyond measure.

Day 845 and Fucked Fertility

Maybe my health will never support the strain of this with the workload I choose. But I pray that visas will come, that health can be granted, that capital will be liquid, and the possibilities of getting it all together isn’t impossible even in this crazy moment. Pray for my family if you are so inclined  

Categories
Biohacking Chronic Disease

Day 1475 and Equalizing Pressure

I scared someone really badly today. As I was being locked into the hard shell for my eighth hyperbaric chamber oxygen therapy session, I realized I had forgotten my chewing gum.

At 2 atmospheres of pressure it can be a real challenge to keep your ears from getting painfully congested. Even with yawning and blowing oxygen out your nose, it’s like going into an airplane with a sinus trouble. It’s uncomfortable but it can also be dangerous.

Careful. Equalize the pressure in your ears. If you feel your ears stuffy, equalize the pressure in the following ways. 1. Yawn 2. Swallow saliva. 3. Close mouth, pinch the nose, out of breath, blow the nose (all spelling mistakes theirs)

I got a little panicked as I was trying to stop the clinic technician from finishing the sealing process as I wasn’t sure if they could stop it once it was sealed or if I would need a full decompression cycle.

I was texting frantically “I forgot my gum can this be stopped ASAP so I can get it?”

I was tapping the window on the hardshell with a worried look and showing the text. I kept trying to make the font bigger and be clearer. FORGOT GUM OPEN?!

But it was confusing enough that everyone in the room thought something was seriously wrong. Which it would have been without the gum as I can’t do a full hour at 2 atmosphere without the help of the chewing. All the yawning, blowing out through the nose and other techniques aren’t quite enough.

It wasn’t yet an emergency. If it was I would have hit the big red button. But everyone seemed to think it was. After 2-3 minutes of frantic miscommunication it turned out that it was fine to open it up but we’d need to restart the seal and pressurize it again. I got the gum. And look who was on the TV screen.

Just don’t die while inside the chamber

Categories
Emotional Work

Day 1474 and Process over Outcome

It’s hard to trust, well, anything. The uncertainty of the near future looks like the uncertainty of the far future right now.

It feels as if one is in a fog so thick that you can’t see your own hand reaching out to touch something at arm’s length let alone glimpse gjr far horizon

How do we set goals and work towards outcomes in that kind of world? I find it unsettling despite having years to prepare for a more chaotic world.

I am learning to let go of grasping for specific outcomes and lean on process to bring me to outcomes. I work the problems in front of me. I maintain the protocols that work for me. When they cease to yield results I change as rapidly as I am able.