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Chronic Disease

Day 1627 and 12 Hours

I went to bed yesterday around 3:30 or so. Oops. I could barely write a post as I was struggling to stay awake at all. I did three short paragraphs and tagged it and said good enough.

A long night of poor sleep

My sleep was not peaceful or restorative but at least it was long. The night before I was up late (ok 10:30pm or so) and I struggled to fall asleep.

Alex’s birthday party on Saturday was enough to wipe me out so badly that on Sunday I couldn’t stay up past mid-afternoon. Pathetic yes but not surprising.

I recently did a big round of bloodwork and was thrilled to see my inflammation is down significantly but I have something called inflammatory anemia. So maybe a contributing factor to my exhaustion. There are a number of odd areas that need some attention especially in my endocrine system.

The Bimzelx switch is in its 4th month so almost through the loading dosing. I have had awful side effects but the code biomarkers of CRP and Erythrocyte Sedimentation Rate (ESR) are significantly improved.

I still have all kinds of weird pains and compensatory biomechanical problems but I’m feeling moderately optimistic. The next steps are around the corner. And hopefully I get more deep sleep and REM sleep before I tackle it.

Categories
Biohacking Chronic Disease

Day 1622 and Pulsed Electromagnetic Field

On a bit of a whim, Alex bought “on the go” PEMF Infrared Mat from HigherDOSE.

This is the year of acquiring mechanical intervention medical equipment for us.

Yes as biohackers we trial a lot and some of it is less woo-woo than others. Treatments like hyperbaric chamber oxygen therapy have significantly more clinical data than say pulsed electromagnetic field treatments.

It seems easier to send electromagnetic waves at different frequencies than create a sealed oxygen chamber but consumer is weird and the military and elite athletics tested HBOT whereas mere hippies played around with PEMF.

A temperature setting swaps for 4 separate vibration settings Delta Waves, Theta Waves (Schaumann Reponse, Alpha and Beta Waves

So it’s qualia only here on the good vibrations but I am excited to try it out. I can’t exactly feel the vibrations unlike in other clinical settings where I’ve experienced much more intense (it’s measured in gauss or Tesla) but infrared warmth is a nice experience even if the vibrations don’t do much. But I will report on it.

Categories
Biohacking

Day 1621 and My Hyperstimulation Fixes

Not so long ago the idea of dopamine fasts became quite the topic of discussion. A Twitter mutual of mine first brought it to my attention and it seems it is his coinage.

The concept originated with California psychologist Dr. Cameron Sepah as a cognitive behavioral therapy (CBT) tool to help people cope with behavioral addictions and reset their relationship with instant gratification. Via perplexity

I won’t get into the details but the premise is to reduce stimulus so as to calm your dopaminergic responses.

As social media hyperstimulation rears its ugly head, I don’t think you need theory and angst or full cut off from stimulus. You ideally change a little at a time and sustain a practice.

Sure we are working against automated algorithms designed for maximum impact but we all still know how to be human. Breathe, feel your body, and relax into focus on whatever you see first.

I have a mix of high tech and simple body routines I rely on. I put on over the ear noise canceling headphones like Bose and I turn on my Endel app to play Solfreggio tones or let an autogenerated audio soundscape play. I dim the lights if it’s daytime. I love my ApolloNeuro for its vagus nerve tuning vibes as a supplement here.

I have also carried forward a nervous system regulation practice from Jonny Miller. Breathing techniques (especially box breathing), somatic feeling or interoception exercises, and non sleep deep relaxation all make up a part of my mindfulness practice.

At night I follow as best I can Bryan Johnson’s red lighting routine for circadian rhythm support though I remain a highly variable sleeper. I wear re-usable earplugs and an no pressure bubble eye mask.

If I need to come down from the day I’ll do a 3 in-5 out breath and settle into some fiction. I like to read on e-ink at night with either my Kindle or sometimes my Daylight though that is generally my reading instrument for the research. Once I start nodding off I’ll pull down my eye mask.

Categories
Chronic Disease

Day 1599 and Sadly Cold

I would love to have something to say today. I have a migraine. My circulation seems odd. I’ve got on 2 pairs of wool socks on, two layers on top and I’m underneath two down blanks. And I’m still cold.

Complaining about one’s body is such an unappealing habit and yet when the pain comes for your attention it has the gravity of a black hole.

I don’t want to be a bore. I fear every time I am trapped in a bad bodily cycle I am boring myself and others. It’s been six years since I was diagnosed with an autoimmune condition and so much of it has been chronicled here.

And yet no matter how much I throw at health and wellness I still find myself cold, sad, hurting and without any kind of cure.

Categories
Biohacking Travel

Day 1587 and Wellderly

My husband’s expert testimony before Congress yesterday was a particularly exciting day even by my standards. I felt so drained today.

My bar for excitement was set pretty high this spring. It has so far included impromptu drives to Istanbul, seeing our right to compute bill get signed into law, watching a founder we backed unveil a nuclear reactor design and discussing futurism at my hometown’s university.

When I list it out I almost forget how much during this time I was battling side effects from a mold infestation and working through changing my medication for my autoimmune condition. I got my right eyelid slit open twice!

When Alex made it home to Montana after midnight I felt like I could finally sleep. I never sleep well alone and much as I tried to sleep as he was flying back I could not. I’m exhausted today and needed a nap to stave off a migraine.

As we get older I am sure we will continue to be called upon to show up. So much of my energy is drawn into improving my health so I can participate in civic and economic life.

I want to improve my health so I can continue to discuss, learn, advocate and invest for this very confusing transition to our future.

I can scoff at catchy neologisms like “wellderly” as marketing campaigns for famous doctors in an especially challenging era for medical trust. But I am also concerned about sleeping better, gaining muscle mass, and improving my meager health. A man has many concerns but a sick man has only one remains true.

Categories
Aesthetics Travel

Day 1569 and The Sky Above The Port Tuned To A Dead Channel

I spent the night in a port city in Greece as I am making my way back to Western Europe. I’ll be crossing by airplane via polar routes on my way to Colorado next week for an academic conference at my home town university.

I feel like I’ve made it when I am invited to speak on topics like Renegade Futurism. I’m now old enough to have lived a couple rounds in the “dissident technology” discourse so I hope to have something of value to say to new generations.

“You can’t get the little pricks generation gap you.” Molly Millions Neuromancer

On the long drive back from Istanbul I am listening to William Gibson’s Neuromancer to set myself in the right mood after the mix of antiquity and modernity I encountered this week.

One doesn’t cross thousands of kilometers and centuries of empires without requiring a bit of an aesthetic change.

Sunnier ports than in Gibson’s Neuromancer

The weather is more sunny Mediterranean Easter weekend than the non-climate skies of a future Japan’s Chiba and Night City, but with really any port city at night I can’t help but think of the famous first line of cyperpunk’s foremost novel.

The sky above the port was the color of television, tuned to a dead channel.

William Gibson’s Neuromancer

And so I tuned in to a story of oligarchy, artificial intelligence, dissident coders and cyborgs with mirror shades. In that near future the protagonists make a stopover in Istanbul too and it involves medically advanced nervous system treatments too. Gibson’s cyborg chop shops are almost as advanced as what I saw this week.

Hyperbaric chamber oxygen therapy

Gibson’s 1984 novel is as relevant in 2025 as it ever was. Our timeline has become his later work in uncanny ways but his cyperpunk aesthetic has become as timeless as the domes of Constantinople.

The elephants eye domes of a hammam

Whatever transition we are about to make as humans as our own Wintermute intelligences arrive will be rocky. I don’t know who will be the dissidents and how centralizing power may prove to be.

One can just start to see corporate post-nation states emerge. Maybe they will look like Tessier-Ashpool S.A. Maybe it will look like Elon Musk’s family office Excession. Of course, that’s an entirely different science fiction novel about artificial intelligence.

Polybius’s cycles of political revolution chart
Categories
Aesthetics Biohacking

Day 1565 and Elephant’s Eye

I love bathing cultures of all kinds. It’s the beauty girl in me. I’ve been lucky to have worked in a number of wellness and fitness settings professionally and it’s privileged me to experiences that make one feel deeply human.

The modern Korean spas are dazzling and as enjoyable to me as natural Rocky Mountain hot springs. Baltic and Nordic sauna feels like home. One day I’d like to do a Japanese Onsen.

Being in Istanbul I wanted a chance to experience the Turkish hammams. If I was a bucket list sort of person this would be on it.

In a past life I worked on the Standard Hotels whose Miami property has a local spin on hammam culture. I loved the baths and cisterns with the heated floors.

But I’d not had the pleasure of experiencing the real thing until today.

The elephants eye

The domed architecture with the elephants eye lighting is a wonder of the world. Humanity has been finding ways to incorporate beauty into uplifting our bodily function for all of recorded history.

The cistern

To lay on warmed marble and look up at the light while cocooned in warmth and water is a fine way to be embodied. And for a little aside for a certain set would you believe the name of the hammam? It was qualia. If that isn’t the inverse tugging at me what else could it possibly be.

Categories
Biohacking Medical

1560 and Signs to Act

I’ve been holding myself a bit back from the world as I’ve been trying to take care of myself and lay low. Too much system input and a spate of bad luck (housing and health issues) made for a bumpy time.

So while I’ve been steadily attempting to stay online for some information flow my epistemic hygiene has mostly consisted of “staying offline” and working through routines that provide positive feedback loops.

I’ve been keenly interested in hyperbaric chamber oxygen therapy from both my very effective first set of treatments and the experiences I’ve seen in my own social circle. Everyone from local Bozeman friends (mostly men) working through injuries and chronic issues to tech’s favorite health billionaire Bryan Johnson have shared their enthusiasm for the therapy. It quite frankly just works.

We’ve acquired one (and am researching another provider that Bryan himself owns) as I’m exploring businesses that would allow us to bring them to Montana. Step one will be letting our friends come use ours in the barn! S

tep 100? Maybe MilFred Industries ends up with a wellness brand. I’ve certainly got extensive experience in every adjacent category from fitness (Equinox) to branded wellness (Goop) and direct to consumer cosmetics (Stowaway) so anything is possible.

Categories
Biohacking Chronic Disease

Day 1535 and Telogen Effluvium

In what has become a real persistent mood this winter, I have another dumb problem. I am losing my hair. Literally.

As it turns out stress can trigger hair into mistakenly going into what is called a rest phase. Perplexity tells me this is a temporary condition where significant stress pushes large numbers of hair follicles into a resting phase, causing shedding within weeks to months.

I have a lot of hair so it’s only really noticeable to me but I am tired of unexpected problems this winter. Obviously I have been under some stress and it feels like punishment.

Thankfully virtually all people diagnosed with it recover once the underlying stress has passed. It’s commonly associated with giving birth but it seems any significant or stressful event can trigger it.

Hair regrowth typically begins within 3–6 months. In most cases, up to 95% of acute TE resolves completely without long-term effects on hair density.

My vanity is pleased this temporary. I can certainly take it easy and pull back from unnecessary stress. Plus it’s a great reason to overspend at Sephora on new haircare. There is a bright side to everything.

Categories
Aesthetics Emotional Work

Day 1500 and Counting The Days

Somewhere in this blog there is a date error. It’s probably easy to find. I noticed the day I did it (I believe I was ill and got confused) and then time streamed on and now it barely matters.

Oddly I only care to mention it because I notice more when things are done in day by day format. We have 10 day retreats, month long sprints, quarterly focuses, if you are large enough to have yearly plans good luck to you.

We asked for acceleration and we got it. Timelines are so preposterously fast we can count them in shorter bursts. The Wall Street Journal has an administration day count for Trump. Today is day 21. Which is a light day involving golf with Tiger Woods and going to the Super Bowl.

I’m not inclined to dramatic pronouncements about the future (ok maybe a little). Humans don’t change too quickly their hard learned ways. But we are getting so much more information at such rapid pace right now that if you are inclined to count the days maybe set some goals for them.