Categories
Chronic Disease

Day 1627 and 12 Hours

I went to bed yesterday around 3:30 or so. Oops. I could barely write a post as I was struggling to stay awake at all. I did three short paragraphs and tagged it and said good enough.

A long night of poor sleep

My sleep was not peaceful or restorative but at least it was long. The night before I was up late (ok 10:30pm or so) and I struggled to fall asleep.

Alex’s birthday party on Saturday was enough to wipe me out so badly that on Sunday I couldn’t stay up past mid-afternoon. Pathetic yes but not surprising.

I recently did a big round of bloodwork and was thrilled to see my inflammation is down significantly but I have something called inflammatory anemia. So maybe a contributing factor to my exhaustion. There are a number of odd areas that need some attention especially in my endocrine system.

The Bimzelx switch is in its 4th month so almost through the loading dosing. I have had awful side effects but the code biomarkers of CRP and Erythrocyte Sedimentation Rate (ESR) are significantly improved.

I still have all kinds of weird pains and compensatory biomechanical problems but I’m feeling moderately optimistic. The next steps are around the corner. And hopefully I get more deep sleep and REM sleep before I tackle it.

Categories
Chronic Disease Community

Day 1626 and Sleep It Off

I am coming off multiple days of in-person interactions. It has been nice to go from Costco to committees to backyard bbq.

I am tired. I intend to rest and alas because I am doing things in the moment I have had too few moments for even a brief rest. It has been a good time.

My HRV and my RHR are way down and way up respectively. I need that to reverse so I’ll sleep it off.

Categories
Aesthetics Culture

Day 1623 and a Costco Birthday

Today is my husband’s birthday. He genuinely is a very low key guy and when his birthday falls on a weekday he isn’t into big to-dos. But he said he’d be up for a Costco date.

No surer sign of enjoying middle age than loving the finest buyers club values of Cost. But to be honest we’ve both always loved Costco. And you can really get into Costco when you have a multiple barn freezers and backup power so no apologies for our love of a practical Costco date.

Bounce house for sale? Birthday win

Though it didn’t go entirely to plan. If it means anything to the pulse of America the Bozeman Costco was a chaotic in a “concerning operational decay” way.

Now we noticed a lot of categories completely out. No lemons. Several steak cuts we’d been hoping to get for a birthday dinner. Produce in general was pretty bad. Enough to make you wonder if they were affected by the United Natural Foods hack.

But other things were off. Staffing wise you had to wonder if they fired half the staff or no one planned for managing checkout flow for June in Montana high season? Nothing is as predictable as tourists going to Yellowstone if you’ve got a manager with any tenure or common sense. but maybe they don’t. I have a Twitter mutual who burned out on a Costco job so two strikes guys. Talent is part of the Costco brand.

Alex works New York hours so we got there around 2:30 or so which you’d think would be quiet but is not in midsummer in southern Montana. It was summer high season traffic you’d expect on a Saturday though.

We walked every aisle and there was a lot of fun oddities. Japanese toilets, water bottle drying racks, sound absorbing wall panels. And there were some less fun selections.

We usually do a better business with bear spray

There was a disturbing amount of slop packaging products and rapidly prototyped TikTok trends follow ons. Dubai chocolate ice cream bars? The zoomers will enjoy their summers up here I’m sure.

Lots of grouchy Boomers and exhausted families were looking for basics in the middle of the store as we perused the sides of the store for fun. Everyone is in Montana it seems. As we waited checkout I heard discussion of how JD Vance meeting with the Murdoch family at their ranch in Dillon.

We had intended to go end it with a hot dog and pizza slice respectively but it was so intense at the checkout area we didn’t even try. The lines were unmanageable which is how we got so much gossip. Montana isn’t so big that you can fly Air Force 2 to Butte without chatter about which ranch you are visiting.

I hope Costco has made some margin on selling gold bars to happy men like my husband. We also found a few other things

Categories
Internet Culture

Day 1618 and Girls Just Want to Tweet Fun

Being extremely online is bad for you” has become a kind of common knowledge position the era of smart phone ubiquity. Every knows that everyone knows it’s bad for you.

It’s clear I do a lot of scrolling. I have an entire category here dedicated to internet culture. I am blessedly only addicted to Twitter. I refuse to download TikTok and I gave up Instagram years ago. I even tried to restart using Instagram and failed within the week.

Something about Instagram’s current culture makes me feel bad and as much as it has topics I personally (love like fashion) I can’t get past the icky feeling that it’s numbing my visual palette. It’s so bad I can’t even be a creator on it.

I like to have fun on the internet. I enjoy interactions, bon mots, hot takes, and niche interests. Instagram doesn’t feel like a great game of chance as Twitter can so why bother? Twitter is the best circus in town.

I know that when you star into the abyss it stars back at you. I am not immune to propaganda. Anyone with enough experience in the media business is acutely aware of how easy it is to influence the human mind.

But if I’m going to crack dick jokes in between scouting for venture deals and tracking financial and geopolitical news I am doing it on Twitter. Though if Bloomberg ever opened up its terminal to the unwashed we can circle our chub reveal futures contracts there instead. If you don’t know what that’s in reference to and have a delicate constitution don’t click ok?

Categories
Biohacking Medical

Day 1617 and Trap Queen

I am struggling with some biomechanical issues in my upper body that are intersecting poorly with the inflammation of my ankylosing spondylitis and psoriatic arthritis.

The upper fibers of my trapezius muscles are killing me. I presume I have some soreness and pain as I’ve been incorporating a new slow progressive full body workout program. But a little digging is making me reassess that conclusion.

Via Physio-Pedia

I’ve been patiently working the problem of my inflammatory issues for literally half a decade and yet I am regularly finding new information thanks to the wonders of deep research products.

Somehow I had never really researched enthesitis despite it being a fairly core symptom in my case presentation of spondyloarthropathies.

It is an inflammation where tendons and ligaments attach to the bone and I have it something fierce in my intercostals and trapezius muscles.

There are many other areas where enthesitis can occur, he says, including the area where the ribs meet the breastbone, the back of the head where it meets the neck, and in the spine in the area closest to the skin. Creaky Joints

It’s possible current pain not delayed onset muscle soreness at all. It’s enthesitis. I don’t know if my new IL-17 inhibitor is working as it should but the strain of my new workout regimen is just a part of a wider issue in my condition. I’ve got a deep dive running on exercises but right now I’m going to take a muscle relaxer (magnesium) and lay down.

Categories
Homesteading

Day 1610 and Tempting Fate

As I was going about doing “prepare for the worst so the best may come” set of chores I chose to brag about our travel pharmacy packing.

As Elon Musk leaves government service there has been a flurry of media hits. I don’t know anything about his personal medical situation nor is it my place to comment but I found it comical to suggest that 20 drugs in a daily medication box was nefarious.

New York Times “Musk Juggled Drugs and Family Drama”

Those are to put it mildly “rookie numbers” in the biohacking business. And it’s barely a dent if you practice the kind of global chaos preparedness that we do. So I bragged about it and showed one of our global travel kits.

Ray Kurzweil isn’t making it to the singularity on less than 40 supplements a day so I sure as heck ain’t setting out into emerging economies with anything less than a full set of bacterial, viral, and gastrointestinal remedies.

And as we care about things like being first responder trained and able to render aid to our community, we joke that you really can’t be a pro-social prepper if you don’t carry an AFAIK kit.

As I was being snide about our the value preparedness, outside in my own backyard we were being tested. And as soon as it happened I felt completely unprepared. Pride does indeed go before a fall.

We have a beautiful red fox that has for several seasons lurked around our property. We also keep laying hens. Alex has hardened the chicken coop to make sure they did not have a chance to get in. Nature and domestication co-exist uneasily.

We have never seen the fox out in day save in the dead of winter. In the spring we rarely ever see the fox.

So whenever we let the chickens roam generally we keep a keen watch on them. We’ve gone a few seasons with this working but letting your guard down can get you.

Alex was walking down our long drive to retrieve a trash can and let the roaming chickens out of his sight for less than five minutes. In that time the fox raced out from behind foliage and took one.

We caught it all on camera. Having taken one (we could not find her) the fox came back not more than ten minutes later and tried to grab another chicken which point Alex saw and intervened. The fox dropped her but she has a puncture wound.

I finally hear the ruckus and come outside. I see feathers everywhere and figure it out as soon as I see feathers. .

This chicken is alive

I’m pulling out my phone and asking the LLMs how do we care for an injured chicken. Turns out it’s not that different than human.

I run to find the supples for cleaning and disinfecting. I find the topical antibiotics. It all takes much longer than I think it should. Alex cleans her up and she seems fine. But wont know how she recovers for a bit. Now I will do a review of our supplies and their locations as I am reminded that there is no such thing as too prepared.

Categories
Aesthetics

Day 1604 and First Weekend of the Season

It is so beautiful today in Bozeman it almost doesn’t feel real. It’s warm but not hot. It’s sunny but we have fluffy clouds breaking up intensity. Cool breezes waft in and out without ever really turning to wind. I hope our entire summer has this weather.

Because of the holiday weekend the town has fully switched into “seasonal” mode from daily New York flights to way more availability at restaurants and service. One of Alex’s friends from college is headed into Yellowstone with his whole family from grandparents to kids.

Mountain towns make as much money in the summer as they do in the winter so you always wish for fluffy snow and cool clear summers.

The snowpack is smelting, the grass is green and the sky is oh so blue

While Yellowstone is worth the travel, I appreciate being able to work and hike all flavors of public trails from city to state in Bozeman.

On days like today I want to fully throw myself into a Bryan Johnson super adherence biohacker as I want to be able to enjoy as much of our summer as I can outside.

Categories
Emotional Work Uncategorized

Day 1603 and Seasonal Ambitions

In a past life I worked in marketing for the luxury gym Equinox I could go on about the fascinating complexities involved in selling a future that actually requires you to do more work than most just buying it. But I digress.

Some businesses are seasonal and fitness an easy example of this phenomena with its January resolution sales.

The lesser appreciated but no less important bump was always May. People believe this is the summer where they really get into their bodies.

You’d think people would join gyms at non prime-times but they don’t. Humans like that change is possible at every seasonal juncture.

And we are not wrong to have those aspirations. It’s beautiful to think this is the time I’ll really do it. This turn of the wheel will be the one.

Categories
Culture Internet Culture Reading

Day 1600 and Uncertain Milestones

I read some Charles Dickens today. No this isn’t a Great Expectations joke. Rather, I read the first seven paragraphs of his 900 page novel Bleak House.

Why? I wanted to test my literacy as part of social media’s great ongoing debate about humanity’s waning reading and writing abilities.

A Substacker & Twitter personality broke down a 2015 think-aloud reading comprehension study which analyzed the skills of English majors at two Kansas universities.

[They were asked to] read the first seven paragraphs of Charles Dickens’ Bleak House out loud to a facilitator and then translate each sentence into plain English

They Don’t Read Very WellA Study of the Reading Comprehension Skills of English Majors at Two Midwestern Universities.

The Substacker Beloved Kitten has written about what constitutes mass literacy before using something called the PIAAC which has five levels of literacy.

If you are a knowledge professional you better hope you are a four but social media comments suggest most of us are not.

This methodology doesn’t even try articulate level 5. And as someone who occasionally sees what a real 1% outlier looks like I don’t disagree. Our best are in a league of their own.

So obviously as American funded “college for all” it was clear not all college attendees would on the right side of average. And as it turns out, the English majors at highly subsidized state universities (mostly white girls incidentally) had a lot of trouble understanding Dickens’s British family court tragedy.

I also don’t want to read that many pages of fog metaphors, and I have an entire tag dedicated to forced metaphors.

I took the test (speaking my answer into my phone) and it was harder than you think to simplify but I had the vocabulary.

Amusingly all of the test takers were sure they could easily finish the stupid book after most of them failed to understand even its basic concepts. I would not finish Bleak House.

Like those other white girls I am unlikely to be in the 1% of literacy when it comes 19th century British literature. Surely in my own skill stack (and it’s overlapping areas of expertise) I can approach 2SD on things. I suspect this blog and my general internet presence suggests I can do Level 4 reading. We think around what we can.

That seems adequate given I contribute what I like and communicate what is enjoyable on my own spaces. Here I am plodding along contributing sixteen hundred days of writing to the public discourse which is its own proof of literacy. It’s several novels worth of training data for our artificial intelligences.

I think about how much I do or don’t want to contribute to the maw of publicly indexed Internet because I believe we get better if we all contribute to this public good.

Our future is a shared coordination problem requiring we can comprehend and contribute to our commons. Maybe I understand enough Dickens to get by. He maybe has a dimmer view of legalistic thinking than I do. But I’m sure he’d see plenty of wretches in our times too.

Categories
Chronic Disease

Day 1599 and Sadly Cold

I would love to have something to say today. I have a migraine. My circulation seems odd. I’ve got on 2 pairs of wool socks on, two layers on top and I’m underneath two down blanks. And I’m still cold.

Complaining about one’s body is such an unappealing habit and yet when the pain comes for your attention it has the gravity of a black hole.

I don’t want to be a bore. I fear every time I am trapped in a bad bodily cycle I am boring myself and others. It’s been six years since I was diagnosed with an autoimmune condition and so much of it has been chronicled here.

And yet no matter how much I throw at health and wellness I still find myself cold, sad, hurting and without any kind of cure.