Category: Medical

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Medical

Day 489 and Day Dreams

I had a dream during the day today. I mean the rapid eye movement kind not the fantasyland imagination. I had laid down to rest my eyes while my migraine medication worked it’s way into my system.

Generally I don’t fall asleep in the middle of the day. This is doubly true if I’m beating back a migraine. Triply so if it’s a particularly bad one. This migraine was so bad I needed nausea medication as well. I frantically texted my husband in the other room to help me look as I couldn’t locate my medications as keeping my eyes open triggered cascades of lightning flashes behind my eyes and nausea so bad I was afraid I’d lose the contents of my stomach.

I put on noise canceling headphones and a face mask and passed out. I woke into a dreamscape city that resembles the west village in New York. I was being instructed by a coach of some sort to forgive someone. Maybe it was myself. Maybe it was a cofounder of a past startup. The texture of the city was busy. Tourists were everywhere blocking the sidewalks. I recall a conversation about the end of the pandemic. Perhaps everyone was out celebrating. There were posters for movies or shows on every available service. I distinctly remember one in front of a fry shop that had media quotes promoting Billy on the Street combined with Family Guy characters. I’ve never seen Billy Eichner’s television show.

I woke back up nearly four hours after having originally gone to lay down. I felt dazed. I had the slightly unsettled feeling one gets upon waking in a bed that is not one’s own. I was disoriented and dizzy even laying down flat. My nausea still has not disappeared entirely. But the migraine had mostly passed.

Categories
Biohacking Medical

Day 483 and Medical Logistics

As you probably know, everything about the American medical system is a pain in the ass. I was expecting a delivery last night of a medicine that needs to be refrigerated. I went to bed assuming it never came. I woke up this morning to find it has been left out outside all night.

A $5000 dollar dose biologics injection (that’s only $150 in Europe) got left at door I don’t use without a knock. Thank god it didn’t get porch pirated as I cannot afford to replace it. I discovered the medicine this morning when going out for an espresso as it was left in dry ice by the basement door. Just a little chaos for the start of a day filled with other medical logistics.

Today is the day I pick up my prescription refills for the month. I have to do it once a month instead of a convenient quarterly by post situation as I take several controlled substances of which I’m not allowed to have more than a 30 day supply. It’s a real pain in the ass to travel for this reason as it has to be organized around when my insurance and the government will allow me to do so. If I want to be on the road for six weeks or go to Europe for more than a month I’m shit out of luck.

I take a lot of prescriptions to manage my chronic illness. I wish I didn’t need any of them. If I’m honest I put a lot of effort into wellness and lifestyle as part of a long term effort to ween off the pharmaceuticals like my biologic anti-inflammatory injections. I don’t want to be left for dead in a crisis as I’ve got no illusions that we will protect the sick and vulnerable. I protect myself.

I have to do the pharmacy dance now whether I like it or not. I have to take half a day to make sure everything comes in on the same day and in time for any mitigating factors like travel. I maintain a spreadsheet to keep it all organized. I have to use up valuable energy and focus on something that your average Canadian or German would find comically foreign. And that’s just the way it is and probably will be for sometime.

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Medical Politics

Day 475 and 4/20

Last year on April 20th aka 4/20 aka the day America celebrates weed culture, I wrote an post on using medical marijuana for my ankylosing spondylitis. It’s a thorough look at how I incorporated THC & CBD into a pain control regimen for an inflammatory autoimmune disease. I’ll recap some of it here as my views haven’t changed at all in the intervening year.

As a libertarian I’m pro-legalization but I likely wouldn’t have chosen to use THC recreationally except that it happens to be a drug that has demonstrated benefits for my condition and is comparatively less dangerous than other pharmaceuticals I am also proscribed (namely opioids and high dose NSAIDS). For some context, despite being a native Coloradan I had never smoked weed till this year. As a kid it just didn’t seem appealing (that’s what hippie boomers do), and to be candid as I got older I didn’t love the idea of tying a health need to something that wasn’t legal everywhere.

I spent months testing everything from bud and regular joints to elaborate butter and shatter concoctions in an expensive Pax vape. None of it achieved the desired effect which was pain mitigation and minimal head highs. It was expensive and demoralizing. It was hard to manage dosing and consistency and I was unsure if it would remain a part of my medical regimen. I wasn’t sure weed was ready for prime time but I did feel it was important to document it all both for my own biohacking purposes but in case it could help others.

After all of that experimenting, I settled into regularly using patches. It’s one of the least celebrated formats and, because that’s how it works, the last format I tried before settled into a routine. I use a brand called Mary’s Medicinals that makes an excellent 50-50 THC to CBD blend. It is completely reliable on dosing and effect. It has little to no head high. And it lasts for eight to nine hours. Basically as close as I can get to a pharmaceutical. Turns out I wasn’t kidding when I said I really was in it for the pain relief.

I genuinely hope that THC continues to cement its place in American culture and medicine. It’s a cheap easy and effective drug that replaces a lot of expensive and potentially dangerous pharmaceuticals. Of course we’d have powerful interests working to ban that. It’s a a national shame and I’m glad Americans have fought back. I’d rather weed replace alcohol and tobacco. Why get drunk and wake up feeling shitty when you can get calmly high and feel better in the morning. But it’s a long path and sadly it’s still viewed negatively by some. I hope to do my part on 4/20 to encourage folks to see it’s benefits.

Categories
Chronic Disease Medical Travel

Day 437 and A Mood

I’ve been struggling with allergies ever since I arrived in Frankfurt last week. The stress of travel and the constant itching affect my mood more than I’d like.

It’s a weird situation if I’m honest as I’m so happy to be traveling and on my own after two years or being in the same place and with the same person. I love my husband and I love my home but I’m sure everyone can relate at the end of the pandemic for the need to be alone.

My mood has largely been buoyant except for the constant low level misery that is these damn allergies. My eyes water. The skin around them is red and raw. My skin keeps finding new intermittent patterns to express hives and eczema. And I’ve built up quite a tolerance to Benadryl.

The allergies stress me out and then my spinal pain worsens and then suddenly I’ll find myself in just a miserable sad mood. I’m grateful I can write it all down so I can get the mood out. I just want to be comfortable in my own skin and smiling again.

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Medical Travel

Day 428 and Allergies

I’m staying in an Airbnb while I’m in Europe. I genuinely love the application and it’s community. I was an early adopter of Airbnb. Thanks to Airbnb I saved 60,000 dollars in one year. That cushion allowed me to quit a corporate job and pursue a startup without any anxiety.

My love for the application is pretty deep. It’s responsible for my marriage in some ways. I would only rent if I had another place to stay that allowed me to turn a profit. That usually meant I would rent while I traveled or if a friend has a place to crash. Alex was fascinated by my side hustle immediately. We’d only been on a couple dates when he offered to let me stay in his apartment while he traveled if we split the profits from my Airbnb. Naturally I said yes. I never moved out. And yes now we are married.

So yeah I really love Airbnb. But you do need to be aware of the community’s idiosyncratic norms. You are staying in someone’s home. That’s part of the charm. But also can can occasionally turn out in unexpected ways.

Since I arrived I’d been struggling with allergies. I broke out in hives. I had to figure out acquiring hydrocortisone in a foreign language. I was popping Benadryl like candy so I could barely stay awake. I was getting a little desperate to be honest. So I went on a long walk. Everything cleared up. I returned to the apartment and immediately started breaking out in hives again.

I texted my host to ask if he has any ideas. It turns out the host of my Airbnb loves scented candles. And he’s got great taste. The apartment has tons of candles and diffusers. But he’d put them into a cabinet so I didn’t know they were there. Alas I am extremely allergic to the chemicals that are often used in scented candles. Limonene in particular. So my body was going haywire over these candles but I had no idea they were there.

Thankfully we figured it out and moved them outside. But it’s a good reminder that context matters. At an Airbnb you are in a home furnished by a person with different needs and tolerances from you. And that’s ok. We figured it out. But me being upfront about my allergies from the start might have saved me a day of misery. Lesson learned.

Categories
Medical Preparedness Travel

Day 419 and Back to Normal

One of my friends texted to say “I’m shocked the hygiene theater at EthDenver failed as half my team has Covid-19!” Which is of course sarcasm. But we are all back in action. Consequences be damned! I’ve booked conferences through June. A venture fund that backs my husband just booked their CEO summit for an in person gathering. I have finally started eating at restaurants indoors again.

But for all this ridiculous talk of getting back to normal it’s just a lull. I’m happy to be out there as I’m confident in my immunity and my own risk tolerance based on having had an infection and being up to date vaccines. But it might not remain that way. And for plenty of people their risk calculus can’t be as liberal as mine. We’ve left behind the immune compromised. America doesn’t give a fuck about the disabled.

I hadn’t really meant this as a Covid post but rather it’s an introduction to this striving for normalcy. The pandemic is wrapping up and we can “Get Back to Normal” is more slogan than reality. If only because there is no going back. We’ve got the annoyance of all the second and third order effects of the pandemic to deal with now. And that is going to suck more than the pandemic

Faith in institutions is shaken and probably damaged for an entire generation. Health and medicine will make big strides as we finally address long virus issues. Maybe more chronically ill folks get better care. But for most people their trust in science is shaken. Not sure if the good will outweigh the bad yet.

We’ve also normalized a wide swath of government interventions we’d previously never tolerated. But it’s for our own good! Sure but who decides on the good going forward? What might else it get used for? And more people than I’d expected cheered on this kind of meddling in our daily lives. All for the greater good obviously. But I’m worried what happens when fascists get to decide on what is a greater good. And since we’ve normalized intervention it will be harder to push back.

I really do believe things are becoming more chaotic. We’ve accelerated a whole swath of changes that are going to shift our world. Some of it may be in good ways. I certainly plan to make a lot of money investing in the belief that we will adapt swiftly and positively. And either I’m right and we survive and so I make a lot of money. Or I’m wrong and it probably doesn’t matter. We’ve got to leap into the unknown to find out. But back to normal? Sorry buddy but we live in interesting times.

Categories
Internet Culture Medical Startups

Day 415 and Accessibility

I don’t think of myself as disabled or requiring special accommodations, though I have a well controlled medical condition that swells my spinal cord called ankylosing spondylitis. But for the first time since my diagnosis I really felt like I was handicapped. And I am feeling so much sadness over the idea that I might genuinely be disabled.

I’m attending ETHDenver and it’s wildly over capacity. No consideration has been given to any kind of basic accessibility. I didn’t think it would effect me though till I got here. I can walk without a mobility aid and if you met me you’d never know I have an issue. But I can’t stand in line on cold concrete for two hours. It turns out I would need a wheelchair for that kind of activity. And even if I had a wheelchair the first two days were in the cold and snow so I couldn’t have wheeled over or around the slush and water.

So I have only attended private parties and small events and group outings. This is great for me as I’m a well networked established member of the startup ecosystem. I’ve got a popular Twitter handle and can easily reach out to people. But I’m noticing just how much a bit of inaccessibility will gatekeep the crypto and web3 community. If you don’t have my heaps of privilege there is no way you could navigate this conference.

And we really need web3 to be welcoming and accessible. To build a better future with infrastructure and economies we all collectively own and benefit from we need an order of magnitude more people participating. But if no one can get in and experience things first hand than web3 will just be a repeat of the oligarchy of web2. It’s honestly my worst fear for crypto. We will accidentally exclude the people who will benefit the most from our innovations.

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Medical

Day 408 and Getting Ahead

My first piece of international travel since the pandemic began is coming up. I’ve not been on an airplane in over two years which is wild. But I needed to get a booster shot for my travel papers.

I was a bit nervous about how I’d react. I didn’t have the easiest time getting vaccinated. But I had a mild case of Omicon in December which made me slightly more optimistic about it.

I got caught in a snowstorm getting the booster yesterday. Which is so far the only inconvenience. I slept fine last night. I didn’t appear to spike a fever. I had no aches or pains other than the ones I live with normally. I’m so far enjoying having little to no reaction.

I did however take very good care of myself. I felt a migraine coming on mid-morning and I rushed in with all the good drugs. I wasn’t going to let myself suffer at all. And I am suspecting that keeping any and all stresses away has in fact been excellent for my body. Just another reminder that drugs are in fact good. Loving yourself can often mean mean treating yourself kindly. Removing the option for suffering and maybe all recovery can be this easy.

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Medical

Day 397 and Good Drugs

I feel a migraine coming on so I’ll do the bare minimum and get on with taking an Imitrax and heading to bed. I recently learned that psilocybin and the migraine drug Sumatriptan (aka Imitrax) are in the same basic category of drug except Sumatriptan isn’t psychoactive. I’d cite it but I’m having a hard time looking at screens.

Categories
Medical

Day 361 and Once More For The Cheap Seats

I was starting to feel pretty good on Saturday and Sunday. I thought maybe I’d kicked the worst of my breakthrough Omicron Covid case. I went down a crypto rabbit hole with the SOS token airdrop and it’s implications. Then on Sunday I was getting excited to launch a fun new project my bff Phil and I have been working on called Vibrations on Solana.

But I had a difficult night. I got woken up multiple times with tachycardia. I tried meditating at 1am. An hour later I was back at 140bpm while asleep. The heart rate alert woke me up. I tried some Wim Hoff breathing. Still couldn’t get it down. I took an Ativan I was getting so concerned. That knocked me out but it didn’t do much for my heart rate. I woke up to these readings on my Whoop.

Whoop capturing 125bpm heart rate at rest. Elevated respiratory rate. Elevated RHR

It seemed clear that all the fun and games I had planned for the day were not going to manifest. I went to get additional readings. My pulse oximeter gave me a 94 reading which isn’t awful but it’s not great either. I then went to Welltory and did a long HRV reading. So I’ll be in bed if you need me.

Welltory reading of my HRV suggests my Covid case requires rest